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C.H. Romatowski

@chromatowski.bsky.social

7.5K followers 760 following 3.9K posts

This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!

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C.H. Romatowski @chromatowski.bsky.social · 9d

Want to pull out this slide: people deserve to know there’s a growing mountain of evidence finding more Covid infections = more likelihood of being left chronically ill.

There’s a temptation to think that if you recovered ok last time, then you will next time too, but that’s not what the data say.

Researchers in Spain assessed over 190,000 participants, using data from a public health research network, in a study published in the journal Vaccines. They found that Long COVID prevalence was three to 10 times higher in individuals with three or more reported infections (about 600 people in the dataset) than in those with only one infection.

They also found that the number of thrombotic events, including strokes and pulmonary embolisms, in people under 60 doubled from 2020 to 2024, in both people who were and weren’t vaccinated. The authors concluded that policymakers should prevent the spread of SARS-CoV-2 and that healthcare workers should continue wearing protective masks.

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Prisonculture @prisonculture.bsky.social · 7h

Everyone should experience the humbling effect of sending out a small request to an organizing listserve [of people who have self-selected to be on said list] and getting zero responses. It will help you to understand how hard it is to organize anything.

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David Shiffman, Ph.D. 🦈 @whysharksmatter.bsky.social · 11h

ICYMI, here is the press release for my study with @drjuliawester.bsky.social - we surveyed over 800 scientists who use social media. They overwhelmingly agree that Twitter is no longer useful or pleasant, and that for all professional online scientist goals, Bluesky is superior.
🧪 #SciComm 🌍

“Twitter sucks now and all the cool kids are moving to Bluesky:” Our new survey shows that scientists no longer find Twitter professionally useful or pleasant

My colleague Dr. Julia Wester and I have a new paper out in the journal Integrative and Comparative Biology reporting on the results of a survey distributed to over 800 scientists, science educator…

www.southernfriedscience.com

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Emily Mullin @emilymullin.bsky.social · 4h

WIRED reporter here. If you're a CDC worker and would like to share any information on the RIFs, feel free to message me at emullin.06 on Signal.

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C.H. Romatowski @chromatowski.bsky.social · 4h

Evergreen.

C.H. Romatowski @romatowski.bsky.social · Mar 30

I think about this all the time

Post from Tressie • 6h
@tressiemcphd.bsky.social

I've found that people who insist they their advice is critical to society rarely have people seeking their advice.
That's the real problem they are trying to solve.

Feb 15, 2024 at 11:27 AM

Reposted by C.H. Romatowski

Julia Métraux @juliametraux.bsky.social · 4h

“This is absolutely a violation of federal law.”

For @motherjones.com, I reported about how reduction-in-forces in the Office of Special Education Programs will lead to disabled kids' needs not being met, as funding may not be distributed. www.motherjones.com/politics/202...

Trump's new layoffs hurt disabled kids

"This is absolutely a violation of federal law."

www.motherjones.com

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Lisa Diedrich @lisadiedrich.bsky.social · 4h

The 2017 protests against Republican plans to repeal the ACA & cut Medicaid were led by disabled people who put their bodies on the line to prevent an outcome that would have been devastating for disabled people. And this corrupt twit is talking about his own PTSD? Give me a break. #IllnessPolitics

Aaron Rupar @atrupar.com · 9h

REPORTER: Do you support repealing Obamacare and what's your healthcare plan?

MIKE JOHNSON: We worked on repealing and replacing Obamacare back in 2017. I still have PTSD from the experience. We know that American healthcare needs dramatic reform. We have lots of ideas.

(So, no plan)

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Apoorva Mandavilli @apoorvanyt.bsky.social · 10h

Hundreds of infectious disease specialists have been let go by the Trump administration. Here are four who helped to keep pandemics at bay.
(Gift article)

www.nytimes.com/2025/10/13/h...

They Fought Outbreaks Worldwide. Now They’re Fighting for New Lives.

www.nytimes.com

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Emily Beitiks (she/her) @emilybeitiks.bsky.social · 7h

If you haven’t ever experienced Superfest, the films are a great way to learn more about disability, all selected by disabled people. Free for all and hybrid!

San Francisco Disability Cultural Center @sfdcc.bsky.social · 7h

Superfest starts this week! We have a line-up of fantastic films with virtual, hybrid, and in-person viewing options - join us!

Event info: dcc.page/calendar

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Solve M.E. @solveme.bsky.social · 6h

Register today for the @icancmeresearch.bsky.social online conference Nov. 4-6. The event was designed by people w/ #MECFS and the theme is “Nothing About Us Without Us.”

icancme.ca/research/202...

2025 ME Conference - ICanCME

icancme.ca

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C.H. Romatowski @chromatowski.bsky.social · 4h

Omega-3 has helped me a lot and isn’t too terribly expensive. Some people really like plasmologens but they’re very expensive.

Reposted by C.H. Romatowski

Minestrone Monster @minstronemonster.bsky.social · 6h

#neisvoid #longcovid folks, what are some good supplements for memory and brain fog? I got a pal who is suffering and could use recommendations

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Oni Blackstock, MD MHS @oniblackstock.bsky.social · 5h

Write to Congress: All CDC Employees must be reinstated

Write to Congress: CDC Employees must be Reinstated

**Please write now to your Senators and Representative demanding that ALL CDC employees be reinstated as part of any agreement to reopen the government.** Late on Friday, October 10, the Trump Admin...

actionnetwork.org

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Walker Bragman @walkerbragman.bsky.social · 17h

This is the way.

“Fuck you, make me.”

Matt Novak @paleofuture.bsky.social · 19h

Border Patrol “attempted to arrest a plumber working inside a Logan Heights home but left empty-handed after the homeowner refused them entry.

The homeowner told agents she would not allow them inside because the warrant they presented did not include her address and lacked a judge's signature.”

Federal immigration operations target San Diego neighborhoods, sparking community resistance

Federal immigration agents conducted operations in Logan Heights and Southeast San Diego on Friday, with community members capturing footage of the enforcement actions.

www.10news.com

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C.H. Romatowski @chromatowski.bsky.social · 1d

🫂🫂

C.H. Romatowski @chromatowski.bsky.social · 1d

Isn’t the problem that outlets aren’t hiring a lot more journalists to cover these stories, so everyone could work at a human pace? I don’t hear calls for more coverage as criticisms of individuals (maybe I’ve just missed posts directed at individuals?)

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C.H. Romatowski @chromatowski.bsky.social · 1d

I mean even just at the level of, I have the impression that (maybe especially on Twitter) other people are constantly in each other’s DMs, whereas that is VERY limited for me. There’s just so little slack in the thread to navigate anything let alone stuff with a distressing component.

C.H. Romatowski @chromatowski.bsky.social · 1d

Oh yeah, it’s *radically* changed my life that way and I’ve def lost relationships esp w/people for whom jousting wasn’t a register they could (would?) switch off. I lost my “debate me bro” appetite long ago so I’m not sad to miss that type of interaction but am sad to lose people I cared about.

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C.H. Romatowski @chromatowski.bsky.social · 1d

Ofc good distress tolerance skills would be helpful for those people (us), but afaik skill building usually comes in a form of exposure therapy and if the therapy makes you sick, well.

C.H. Romatowski @chromatowski.bsky.social · 1d

Yeah exactly, it’s hard bc conflict tolerance is so important, crucial skill for organizing for sure, and I just don’t know how we solve for the fact that it makes some of us sicker. This weighs on me a lot, to the point of asking ppl w/specific expertise but no one has really had an answer for me.

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Monica Verduzco-Gutierrez @mvgutierrezmd.bsky.social · 1d

Cool to see Will Toledo (of Car Seat Headrest) wearing a mask to perform at Austin City Limits. I found out he had Long Covid that stopped their touring in 2022. Glad to see them back! www.seattletimes.com/entertainmen...

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C.H. Romatowski @chromatowski.bsky.social · 1d

Wow good to know they’re doing that…

C.H. Romatowski @chromatowski.bsky.social · 1d

So interesting to hear what diff ppl want. Besides getting ME/LC news my goals are 1, talk to ppl I like and 2, share info, in that order, so if blocking to keep convos net + to me means I share info w/fewer ppl, that’s fine. How sick I am looms large tho, bandwidth to chat w/allcomers is scarce :/

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C.H. Romatowski @chromatowski.bsky.social · 1d

(Ie because Vichy Twitter is certainly not representative!)

C.H. Romatowski @chromatowski.bsky.social · 1d

Totally makes sense. All goes to a good fundamental Q: what is one trying to get out of the experience? Taking a general temp has never been that for me but I know it def is for many (to extent some use it as an arg for staying on Twitter but I think that’s evidence of Twitter warping perspective!!)

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C.H. Romatowski @chromatowski.bsky.social · 1d

V interesting point!