Alex
@admiringbog.bsky.social
410 followers 390 following 430 posts
person with ME/CFS professional slug
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Reposted by Alex
togetherwemask.bsky.social
“I mask because I travel a lot, even before COVID. I also don’t want to bring anything home.” — Behind the KN95 is Ren Strapp @renstrapp.com who writes and illustrates for her graphic romance novels. @msjulieslam.bsky.social met Strapp at #NYCC225, featuring masked heroes for #MaskTogetherAmerica.
Ren Strapp, wearing an orange KN95, matching beanie, was holding her graphic romance novel: How Could You, as she posed for Julie Lam’s camera at New York Comic Con.
admiringbog.bsky.social
We really need home economics to make a come back.
Reposted by Alex
mecfsskeptic.bsky.social
1) 🇬🇧 For ME/CFS patients in the UK only: Action for ME has opened its 2025 Big Survey! Last time, it had more than 4000 respondents, but hopefully this one will be even bigger.

The deadline for submitting your response is 27 January 2026.
Reposted by Alex
nousaerons.bsky.social
A Secret Weapon for Improving Student Outcomes: Better Air Quality. Research shows that test scores and attendance improve when schools install air filters and upgrade ventilation. Thanks to @davidcarel.bsky.social for this reminder.
www.the74million.org/article/a-se...
A Secret Weapon for Improving Student Outcomes: Better Air Quality
Carel: Research shows that test scores and attendance improve when schools install air filters and upgrade ventilation.
www.the74million.org
Reposted by Alex
digimoons.bsky.social
everyone is coming into the dental office sick

please don't go to the dentist if you're sick

how do you think germs spread 😔😔😔
Reposted by Alex
thecovidinfoguy.bsky.social
"As the Flu Surges in Asia, Could Getting Sick Year-Round Be the New Normal?"

We let COVID rip for years and it smashed everyone’s immune systems. Now flu, RSV and other viruses hit harder — being “sick year-round” is becoming the new normal. But it doesn’t have to be this way.

archive.md/jzMX8
As the Flu Surges in Asia, Could Getting Sick Year-Round Be the New Normal?

by Miranda Jeyaretnam Reporter
admiringbog.bsky.social
Interesting. I’ve had a stuffy nose since my last covid infection over a year ago. Feels different from past ME/CFS symptoms, more severe.
atranscendedman.bsky.social
Amsterdam studied 95 people with long COVID and found that in some, the nasal lining remained leaky and inflamed months after infection

This barrier damage fueled immune overactivation through an IL-1β to IFN-γ pathway, a possible new treatment target

www.sciencedirect.com/science/arti...
Barrier dysfunction in nasal epithelium contributes to persistent inflammation in long COVID
Long COVID (LC) is characterized by persistent symptoms associated with chronic inflammation and immune dysregulation, but the local tissue mechanisms…
www.sciencedirect.com
Reposted by Alex
tomkindlon.bsky.social
Reminder: The DecodeME team want to do a related genetic study with the samples they have collected already but unfortunately don’t have the funding yet:
megenetics.org.uk/our-projects...
#MEcfs #PwME #CFS
admiringbog.bsky.social
Yeah I agree: 6 feet is for droplets not airborne transmission, weird to see it being used a mandate now.
Reposted by Alex
valebodi.bsky.social
Living with ME means trying to explain over & over again what PEM is and then suffering with more PEM from doing so…

#ME/CFS #pwME #PEM #PEM≠fatigue

Factsheet on PEM www.s4me.info/docs/PEM_Fac...
Via @scienceforme.bsky.social
Living with PEM
Episodes of PEM make the already disabling illness harder to live with. PEM can vary from unpleasant to unbearable. Some people refer to a PEM episode as a crash. Some report episodes of PEM lasting for hours, but they are more likely to last for days or weeks, sometimes longer. There is no treatment for PEM. Someone with PEM has to cut back their activity a lot more than usual or rest completely until the episode of PEM passes.
It can be hard or impossible for someone with ME/CFS to avoid PEM because the level of exertion that triggers it is often lower than the amount of exertion they need to do to live, given the support they have. The amount someone can do and level of stimulus they can tolerate may be so low that PEM is unavoidable just from basic activities such as talking or washing. Factors outside the person's control can trigger PEM, such as work and family demands, infections and sensory stimulation such as a hot day or a noisy neighbour.
admiringbog.bsky.social
The “make sure you’re in areas with good ventilation” is bad too, because we’ve been asking for better air standards. People may very well have no control over air quality.
admiringbog.bsky.social
The six-feet distance is such a throwback to 2020. I thought that was really jarring.
Reposted by Alex
itsbabs.bsky.social
thus it is imperative that we as caring, compassionate communities members prevent their carnage. mask up.
itsbabs.bsky.social
i am begging you to see wearing a mask as the act of daily solidarity with your fellow man that you are looking for. now is the time.

if you don’t know where to start, see some brands i like n wear in the vid, &
if you need free masks (or want to donate some), try:
maskbloc.org
covidactionmap.org
admiringbog.bsky.social
That’s so rough with ME, hope it gets better.
Reposted by Alex
vashetc.bsky.social
Do you all think it’s inhumane to leave people rotting in bed (literally, not metaphorically)? Im talking about people who cannot tolerate light and sound, and maybe even touch. People who can’t drink or chew on their own. For decades.

If so then you should look up Myalgic Encephalomyelitis.
Reposted by Alex
gaffa.bsky.social
It is possible for everybody at a Con to mask.

As proof, I offer this shot of everybody at Combo Breaker 2023.
Wide angle shot of a very large crowd filling a convention center, the vast majority of whom are wearing masks or respirators.
admiringbog.bsky.social
I’ve been slacking on actually using mine. But this is a good reason to go back to using it.
Reposted by Alex
davetuller1.bsky.social
Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
Reposted by Alex
valebodi.bsky.social
When “Rest” does not feel like an accurate term (in regard to #ME/CFS)

To me, rest has a positive connotation. My idea of resting when I was healthy was taking a long hot shower, taking a bubble bath, having a spa day, lounging on the beach, reading a book, or binge watching a tv series in bed.
From the cfs community on Reddit
Explore this post and more from the cfs community
www.reddit.com
admiringbog.bsky.social
I’ve learnt an incredible amount about #ME/CFS from social media.
conradhackett.bsky.social
Has anything great happened in your life because of social media?
Reposted by Alex
broadwaybabyto.bsky.social
“1 in 17 acute-care hospital stays involved at least one harmful event. In 1/4 of those cases, patients experienced more than one.”

This is why disabled patients say no one should be alone in hospital.

Everyone needs an advocate.

Most of us have experienced tremendous harm:
‘No blame, no shame’: Experts urge culture shift to reduce hospital harm
A new report shows preventable harm continues to be a significant issue in Canadian hospitals, affecting thousands of patients and adding pressure to the health-care system.
www.ctvnews.ca
Reposted by Alex
grachstephanie.bsky.social
Truly honored to have lead the inaugural chapter on #MECFS management in the @elsevierconnect.bsky.social textbook Scientific Basis of Fatigue, "Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A New Narrative." The greatest honor of all was co-authoring with my role models--
Dr. Stephanie Grach, a Caucasian woman with brown eyes and (currently) shoulder-length brown hair, holding a textbook open to the mentioned chapter's first page. Wearing a blue suit jacket, red/blue shirt, and blue KN95 mask, against a purple-gray background.