Dr Elisa Perego
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elisaperego78.bsky.social
Dr Elisa Perego
@elisaperego78.bsky.social

#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |

Communication & Media Studies 35%
Psychology 20%
Pinned
My new research is out

"A Case Definition of a New Disease: A Review of the US Working Definition (USG) and 2024 NASEM Definition for Long COVID"

I use two US #LongCovid case definitions as case studies for a broader discussion of SARS-CoV-2 sequelae

Reposted by Elisa Perego

1/
667 Days in the dark: Forgotten by the outside world, post-covid patients live a waiting existence

By Ellen de Visser

Photography Linelle Deunk

November 29, 2025

@volkskrant.nl
Via @niethersteld.bsky.social

www.volkskrant.nl/kijkverder/v...
667 dagen in het donker: hoe postcovidpatiënten uit de maatschappij verdwenen
Ze leven achter gesloten gordijnen, aan bed gekluisterd. Voor de allerziekste postcovidpatiënten in Nederland is er nog steeds geen passende hulp of zicht op genezing. Vier van hen gunden ons een blik...
www.volkskrant.nl

The opinion piece is a response to an earlier piece which called for a science of symptoms, where symptoms would be disjointed from their biological causes
I thank @winslowsp.bsky.social for the kind invitation to co-sign

"The symptoms of long COVID only make sense when linked to their cause: a virus with a tropism for blood vessels, presence of immune dysregulation, viral persistence, damage to blood vessels, with multisystemic consequences—neurological, cardiac, metabolic, etc." @winslowsp.bsky.social in LeMonde

"We are at a pivotal moment where candidate biomarkers and imaging techniques must be validated and deployed"

Biological abnormalities can be seen in #LongCovid

Happy to co-sign in LeMonde by S. Tanguy @winslowsp.bsky.social with many patient groups, researchers

www.lemonde.fr/idees/articl...
« Les symptômes du Covid long ne prennent sens que lorsqu’ils sont reliés à leur cause »
TRIBUNE. Cinq ans après l’épidémie de Covid-19, un débat oppose patients, chercheurs et médecins sur la nature du Covid long. Alors que certains travaux lui dénient le statut de maladie, un collectif ...
www.lemonde.fr

In a sample of 100 children from Indonesia who had Covid, 47% showed abnormal pulmonary function on spirometry and 18% had persistent symptoms lasting more than three months following SARS-CoV-2 infection

#LongCovid

Link www.mdpi.com/1648-9144/61...
www.mdpi.com

"Your body is not functioning, basically. [Crippling fatigue. Inability to think straight]"

Medical scientist Rebecca Broni on living with #LongCovid for five years

www.rte.ie/news/2025/11...
Long Covid turned my life upside down, says scientist
Five years on from contracting Covid, medical scientist Rebecca Broni is still living with its effects and now faces a cut in financial support.
www.rte.ie
Australia just recorded zero cervical cancer cases in women under 25 for the first time since records began in 1982. The amazing result of HPV vaccination.

Reposted by Elisa Perego

⭕ A lire, TRIBUNE dans @lemonde.fr , en kiosque mercredi !
"les symptômes du #CovidLong ne prennent sens que lorsqu’ils sont reliés à leur cause"

Réponse collective à la tribune du Pr Lemogne & al du 04/11 appelant à développer une "science des symptômes"

www.lemonde.fr/idees/articl...
« Les symptômes du Covid long ne prennent sens que lorsqu’ils sont reliés à leur cause »
TRIBUNE. Cinq ans après l’épidémie de Covid-19, un débat oppose patients, chercheurs et médecins sur la nature du Covid long. Alors que certains travaux lui dénient le statut de maladie, un collectif ...
www.lemonde.fr

💔

Costs of #LongCovid "are estimated at an average annual burden of $1 trillion globally"

www.nature.com/articles/s41...
www.nature.com

Eva was hospitalized in early 2021 with Covid and discharged only over one year later, when she was reported to be conscious, but remained with severe pulmonary and neurological sequelae. She has died in November 2025 at home in Manaus surrounded by family and little son Ethan

Brazilian singer Eva Rodrigues Praia Walkey has passed away in her 40s after fighting #LongCovid for five years. She endured lengthy hospital stays, 400 days in a coma, a cesarean section the day she was first hospitalized with hypoxia, 2 cardiac arrests, and lost 20% of her lungs

It's an individual and gruelling sport so I an not surprised to see obvious impact. And sure, v few would speak about Covid

It's mostly what I say here but with more links. Bsky doesn't work very well for me

Reposted by Elisa Perego

"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021"

www.youtube.com/watch?v=9817...

#ChildHealth #LongCovidKids #LongCovid
Marcie's Story | Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids
www.youtube.com

"Happy to get the win [over Spain's Munar],” tennis star Zverev said. “I’m not feeling my best, so, was lacking energy a little bit yesterday and overnight". He's said to be "coughing" and lack voice in post match interviews (Spain in the end won the Davis semifinals) (I have the full thread on X)

"I am ill but I will give everything"

Tennis star Alexander Zverev shared to be unwell and not fully fit after tighly beating Jaume Munar at the Davis Cup today. He's reported to have "a flu" and be "coughing" in the press.

Please remember that the UK had seen what happened in Wuhan (China) and Lombardy (Italy) when they had to decide in the end how to mitigate for Covid in 2020. And the evidence was that unmitigated SARS-CoV-2 spread was recipe for disaster

"A total of 634 fetal samples (538 from fetuses of women who were SARS-CoV-2 infected during pregnancy), from 32 tissue types, [were] collected and analyzed in [the] study. The study raises concerns over transmission of SARS-CoV-2 from the mother to the foetus in pregnancy

"Women of both groups [those who had Covid in pregnancy and the controls who didn't] opted for second-trimester pregnancy termination due to either elective abortion or fetal abnormalities."

Autopsies of 18 foetuses showed that "SARS-CoV-2 can be widely distributed in fetal organs through vertical transmission". In addition immune and DNA damage were found in the infected organs

www.nature.com/articles/s41...
Presence of SARS-CoV-2 in fetal organs via intraamniotic infection - Nature Communications
Infection with SARS-CoV-2 during pregnancy may result in maternal and fetal complications. Here, the authors analyze 18 fetuses following maternal SARS-CoV-2 infection and identify distribution in fet...
www.nature.com

Reposted by Elisa Perego

Friend this morning ‘you want to go to the pub’. I don’t know what to say anymore, those around me ignore my situation entirely. Five years campaigning and still don’t have good vaccine access or any awareness of airborne risk, post infection risk. There is a failure to inform on risk.

Thanks very much much🙏 I have been sharing a lot on X about this. Tragic

Health Communication in the Age of Platforms: Drivers of Misinformation and the Crisis of Medical Expertise

www.mdpi.com/2673-8392/5/...

I personally agree it's not enough including because the whole funding is spread in ten years. We are sick now and have been for years

Reposted by Elisa Perego

🎙️ME Debate TODAY!
🏛️ Westminster Hall
🕓 4.30pm (UK time)
Led by @tessamunt.bsky.social MP
📺 To watch:
Parliamentlive.tv
Westminster Hall
www.parliamentlive.tv