Adriana P. Long Covid Canada
@longcovid-adri.bsky.social
Lead of Long Covid Canada Collaborative grp. ANIMAL LOVER. Former int. Competitive swimmer. Disabled by LC since Xmas 2020. #Covid #LongCovid #MECFS science-based advocate w several orgs. #FBLC We must #Unite2Fight strong together in this chaos! 🖤🤘
Pinned
Guide PEM
The PEM Guide Created by: Adriana Patino, Lead of Long Covid Canada group **DISCLAIMER** This document is NOT intended as medical advice. It consists of notes I am sharing from my own personal ex...
docs.google.com
I've written a #PEM Guide from my own experience as a patient & learnings from my specialists. My goal is that even if you’re familiar with some of the concepts that u learn something new; that "AHA!" that helps you tie it all together and practice it better. feedback welcome & share if useful🖤🤘
Reposted by Adriana P. Long Covid Canada
Reposted by Adriana P. Long Covid Canada
Cannot overstate the enormous contribution of volunteer variant trackers like Mike.
www.sbs.com.au/news/article...
www.sbs.com.au/news/article...
Scientists rely on this COVID-19 data. It's made by a volunteer in Melbourne
Meet the Melbourne IT specialist who tracks "incredibly valuable" COVID-19 data in his spare time.
www.sbs.com.au
December 12, 2025 at 11:28 PM
Cannot overstate the enormous contribution of volunteer variant trackers like Mike.
www.sbs.com.au/news/article...
www.sbs.com.au/news/article...
Reposted by Adriana P. Long Covid Canada
BA.3.2 (Circada) COVID variant is spreading very slowly so far.
BA.3.2 descendants represent 13% of SARS-CoV-2 samples in Netherlands in Nov/Dec.
Summary of the BA.3.2 family from @snpoehlm.bsky.social via @ryanhisner.bsky.social
Note: BA.3.2.2.2 (= RE.2.2) is 18x of sequences
BA.3.2 descendants represent 13% of SARS-CoV-2 samples in Netherlands in Nov/Dec.
Summary of the BA.3.2 family from @snpoehlm.bsky.social via @ryanhisner.bsky.social
Note: BA.3.2.2.2 (= RE.2.2) is 18x of sequences
December 13, 2025 at 2:42 AM
BA.3.2 (Circada) COVID variant is spreading very slowly so far.
BA.3.2 descendants represent 13% of SARS-CoV-2 samples in Netherlands in Nov/Dec.
Summary of the BA.3.2 family from @snpoehlm.bsky.social via @ryanhisner.bsky.social
Note: BA.3.2.2.2 (= RE.2.2) is 18x of sequences
BA.3.2 descendants represent 13% of SARS-CoV-2 samples in Netherlands in Nov/Dec.
Summary of the BA.3.2 family from @snpoehlm.bsky.social via @ryanhisner.bsky.social
Note: BA.3.2.2.2 (= RE.2.2) is 18x of sequences
Reposted by Adriana P. Long Covid Canada
”In the Covid years, we all wore masks regularly, & if someone in our family was ill, we didn’t meet up. We didn’t get any colds or flu for about two years. I think it speaks for itself.”
Well done. Except—everybody now!—we‘re still in the Covid years. (There’s been a really big misunderstanding.)
Well done. Except—everybody now!—we‘re still in the Covid years. (There’s been a really big misunderstanding.)
‘It’s hardly an inconvenience’: your views on wearing a mask to combat flu
With a record number of flu patients in hospital, Britons are weighing up the merits of face coverings
www.theguardian.com
December 13, 2025 at 1:23 AM
”In the Covid years, we all wore masks regularly, & if someone in our family was ill, we didn’t meet up. We didn’t get any colds or flu for about two years. I think it speaks for itself.”
Well done. Except—everybody now!—we‘re still in the Covid years. (There’s been a really big misunderstanding.)
Well done. Except—everybody now!—we‘re still in the Covid years. (There’s been a really big misunderstanding.)
Reposted by Adriana P. Long Covid Canada
From Sweden:
Health outcomes in hospitalised and non-hospitalised individuals after COVID-19, an observational, cross-sectional study
www.nature.com/articles/s43...
Screenshot from Science for ME weekly update
#LongCovid #POTS
Health outcomes in hospitalised and non-hospitalised individuals after COVID-19, an observational, cross-sectional study
www.nature.com/articles/s43...
Screenshot from Science for ME weekly update
#LongCovid #POTS
December 13, 2025 at 2:49 AM
From Sweden:
Health outcomes in hospitalised and non-hospitalised individuals after COVID-19, an observational, cross-sectional study
www.nature.com/articles/s43...
Screenshot from Science for ME weekly update
#LongCovid #POTS
Health outcomes in hospitalised and non-hospitalised individuals after COVID-19, an observational, cross-sectional study
www.nature.com/articles/s43...
Screenshot from Science for ME weekly update
#LongCovid #POTS
Reposted by Adriana P. Long Covid Canada
Covid mRNA vaccines have a rare link to myocarditis adverse events (~30 cases per million 2nd doses).
Extensive work in mice shows two inflammation mediators that appear to be the mediators and a plant-derived anti-inflammatory (genistein) that blocks it
www.science.org/doi/10.1126/...
Extensive work in mice shows two inflammation mediators that appear to be the mediators and a plant-derived anti-inflammatory (genistein) that blocks it
www.science.org/doi/10.1126/...
Inhibition of CXCL10 and IFN-γ ameliorates myocarditis in preclinical models of SARS-CoV-2 mRNA vaccination
Preclinical models of SARS-CoV-2 vaccination revealed a targetable CXCL10–IFN-γ axis that drives cytokine-induced cardiac injury.
www.science.org
December 10, 2025 at 7:07 PM
Covid mRNA vaccines have a rare link to myocarditis adverse events (~30 cases per million 2nd doses).
Extensive work in mice shows two inflammation mediators that appear to be the mediators and a plant-derived anti-inflammatory (genistein) that blocks it
www.science.org/doi/10.1126/...
Extensive work in mice shows two inflammation mediators that appear to be the mediators and a plant-derived anti-inflammatory (genistein) that blocks it
www.science.org/doi/10.1126/...
Reposted by Adriana P. Long Covid Canada
🚨 Today, I formally introduced articles of impeachment against Robert F. Kennedy, Jr.
RFK Jr. has turned his back on science and the safety of the American people. Michiganders cannot take another day of his chaos.
RFK Jr. has turned his back on science and the safety of the American people. Michiganders cannot take another day of his chaos.
December 10, 2025 at 1:10 PM
🚨 Today, I formally introduced articles of impeachment against Robert F. Kennedy, Jr.
RFK Jr. has turned his back on science and the safety of the American people. Michiganders cannot take another day of his chaos.
RFK Jr. has turned his back on science and the safety of the American people. Michiganders cannot take another day of his chaos.
Reposted by Adriana P. Long Covid Canada
🎯
December 10, 2025 at 4:52 PM
🎯
Reposted by Adriana P. Long Covid Canada
I've always worked hard to protect myself. Still do.
I'm now at the point where mRNA vaccines are doing more harm than good, due to Long COVID complications.
Best practice will always be:
#PreventCOVID
#WearN95orBetterinPublic
I'm now at the point where mRNA vaccines are doing more harm than good, due to Long COVID complications.
Best practice will always be:
#PreventCOVID
#WearN95orBetterinPublic
Wear a respirator 😷 get vaxxed!
Wear a respirator 😷 get vaxxed!
Wear a respirator 😷 get vaxxed!
Wear a respirator 😷 get vaxxed!
Wear a respirator 😷 get vaxxed!
Yup! COVID almost killed me by causing a LAD MI on January 11th, 2025.
Not one attending cardiologist at William Osler Hospital were knowledgeable enough to recognize this.
They had no answers, so I tried to teach them.
They wouldn't listen.
pmc.ncbi.nlm.nih.gov/articles/PMC....
Not one attending cardiologist at William Osler Hospital were knowledgeable enough to recognize this.
They had no answers, so I tried to teach them.
They wouldn't listen.
pmc.ncbi.nlm.nih.gov/articles/PMC....
December 10, 2025 at 3:25 AM
I've always worked hard to protect myself. Still do.
I'm now at the point where mRNA vaccines are doing more harm than good, due to Long COVID complications.
Best practice will always be:
#PreventCOVID
#WearN95orBetterinPublic
I'm now at the point where mRNA vaccines are doing more harm than good, due to Long COVID complications.
Best practice will always be:
#PreventCOVID
#WearN95orBetterinPublic
Reposted by Adriana P. Long Covid Canada
A woman in Saskatchewan needs surgery for a parathyroid issue and is being offered MAiD instead.
There’s no one in the province who can perform the procedure and the government won’t pay to send her elsewhere.
This is why disability advocates warn about assisted dying
🧵
There’s no one in the province who can perform the procedure and the government won’t pay to send her elsewhere.
This is why disability advocates warn about assisted dying
🧵
Sask. woman considers MAID because she can't get needed surgery for rare disease | CBC News
For the past eight years Jolene Van Alstine has suffered from a rare form of parathyroid disease, normocalcemic primary hyperparathryroidism (nPHPT). It causes extreme bone pain.
www.cbc.ca
December 9, 2025 at 5:51 AM
A woman in Saskatchewan needs surgery for a parathyroid issue and is being offered MAiD instead.
There’s no one in the province who can perform the procedure and the government won’t pay to send her elsewhere.
This is why disability advocates warn about assisted dying
🧵
There’s no one in the province who can perform the procedure and the government won’t pay to send her elsewhere.
This is why disability advocates warn about assisted dying
🧵
*CANADIANS!! Please see very generous offer from this fantastic lady. If you know a family with a kid living with LC and are in need/low income please reach out!!
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
2/ Alongside, we wanted to offer something small, personal. As many of you know, my teen daughter has been living with LC for 5 yrs. She has been using Warm Buddies (www.warmbuddy.com) - comfort items to help her through cold intolerance, PEM, sensory overwhelm, and pain.
Heat Wraps - Warm Up Animals - Heat Therapy Products
High quality heat wraps, heat packs and heat therapy products for natural relief of aches, pain and stress. The Original warm up plush animals.
www.warmbuddy.com
December 9, 2025 at 1:43 AM
*CANADIANS!! Please see very generous offer from this fantastic lady. If you know a family with a kid living with LC and are in need/low income please reach out!!
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
Let make this holiday season a reason to spread generosity, especially for kids who would need it most. 🖤🤘
Reposted by Adriana P. Long Covid Canada
Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social
www.nature.com/articles/d41...
www.nature.com/articles/d41...
December 9, 2025 at 12:54 AM
Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social
www.nature.com/articles/d41...
www.nature.com/articles/d41...
Reposted by Adriana P. Long Covid Canada
Completely reasonable that your doctor or healthcare worker can give you COVID while your under their care at a hospital, right? The idea it’s just a cold sure is one expensive delusion.
Very cool of my coworker to show up with COVID because the HOSPITAL I work for doesn't have any restrictions for employees with COVID anymore. And even cooler than my other coworker thinks her bee pollen hand spray will do the trick 👉👉
December 3, 2025 at 2:11 AM
Completely reasonable that your doctor or healthcare worker can give you COVID while your under their care at a hospital, right? The idea it’s just a cold sure is one expensive delusion.
This beautiful girl 🥰🥰 #Gypsy #LoveAllAnimals
December 2, 2025 at 4:04 AM
This beautiful girl 🥰🥰 #Gypsy #LoveAllAnimals
Reposted by Adriana P. Long Covid Canada
Heard from another educator who is finally fed up with always getting sick. They said they plan on wearing a respirator at work every day moving forward.
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
November 28, 2025 at 3:56 PM
Heard from another educator who is finally fed up with always getting sick. They said they plan on wearing a respirator at work every day moving forward.
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
A good decision that will help prevent airborne pathogen spread👍
You don't have to get sick to learn that its a bad idea.
#N95
#PreventCOVID
Reposted by Adriana P. Long Covid Canada
<<Canada enters chat >>
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
November 28, 2025 at 5:06 PM
<<Canada enters chat >>
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
Yes, MAHA gang is hugely to blame. And yes, 🍁has its own M-CHA gang (god help us).
And, PRO-infxn public health msg'ing since COVID (Hybrid Immunity ™️, get infected or accrue Immunity Debt™️, 'only the vulnerable') accelerated this mess.
Can't be PRO-infection AND pro-vax 🤷
Reposted by Adriana P. Long Covid Canada
Investigadores de Nueva Zelanda y Japón descubren la estructura de un virus milenario «cazador de bacterias» que podría ser la clave para destruir superbacterias.
ecoinventos.com/investigador...
ecoinventos.com/investigador...
Investigadores de Nueva Zelanda y Japón descubren la estructura de un virus milenario "cazador de bacterias" que podría ser la clave para destruir superbacterias
Los bacteriófagos son virus que infectan bacterias, no a humanos ni animales. Se consideran una alternativa prometedora frente a la creciente resistencia antimicrobiana. Actúan con gran precisión: cad...
ecoinventos.com
November 27, 2025 at 9:09 PM
Investigadores de Nueva Zelanda y Japón descubren la estructura de un virus milenario «cazador de bacterias» que podría ser la clave para destruir superbacterias.
ecoinventos.com/investigador...
ecoinventos.com/investigador...
Reposted by Adriana P. Long Covid Canada
“If it’s that bad, you would have help!”
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
November 23, 2025 at 10:18 AM
“If it’s that bad, you would have help!”
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
Help doesn’t magically arrive when you become disabled.
You’re not assigned a caregiver or given more money based on severity.
Many need more help than they’re getting.
If you’re struggling tonight, know you’re not alone.
Many of us are with you.
Reposted by Adriana P. Long Covid Canada
Medscape: 'Can Long COVID Be Decoded?'
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
Can Long COVID Be Decoded? | Medscape
YouTube video by Medscape
www.youtube.com
November 23, 2025 at 3:16 PM
Medscape: 'Can Long COVID Be Decoded?'
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
Reposted by Adriana P. Long Covid Canada
Everything wrong with the last almost 6 years right there.
November 23, 2025 at 12:39 AM
Everything wrong with the last almost 6 years right there.
Reposted by Adriana P. Long Covid Canada
Everyone must have access to safe vaccination.
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Sign the Petition
Demand Access to NovaVax for All Canadians
www.change.org
November 22, 2025 at 10:09 PM
Everyone must have access to safe vaccination.
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Reposted by Adriana P. Long Covid Canada
Pregnant women need to be informed about and protected from SARS-CoV-2 infections.
Autopsies of 18 foetuses showed that "SARS-CoV-2 can be widely distributed in fetal organs through vertical transmission". In addition immune and DNA damage were found in the infected organs
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Presence of SARS-CoV-2 in fetal organs via intraamniotic infection - Nature Communications
Infection with SARS-CoV-2 during pregnancy may result in maternal and fetal complications. Here, the authors analyze 18 fetuses following maternal SARS-CoV-2 infection and identify distribution in fet...
www.nature.com
November 22, 2025 at 9:04 PM
Pregnant women need to be informed about and protected from SARS-CoV-2 infections.
Reposted by Adriana P. Long Covid Canada
The Sick Times: 'Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise'
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 2:15 PM
The Sick Times: 'Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise'
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
Written by
By Simon Spichak
'Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say'
thesicktimes.org/2025/11/21/l...
One of the brightest light in my life, commander of all the little souls and my heart. Look at how gorgeous señorita Miau is!! 🥰🥰
November 21, 2025 at 11:26 PM
One of the brightest light in my life, commander of all the little souls and my heart. Look at how gorgeous señorita Miau is!! 🥰🥰
Reposted by Adriana P. Long Covid Canada
Excellent public health messaging from New York City!!
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
November 19, 2025 at 9:14 AM
Excellent public health messaging from New York City!!
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.
Be the happy peace sign waving emoji instead of the sick and sniffling emoji.
How can you do that?
Wear a mask! Ideally a respirator like an N95.
It’ll help keep you and your community safe.