Nandini
@nandini0306.bsky.social
🇨🇦🍁Mother
Healthcare Professional | Advancing Pediatric post-COVID Strategy |
Founder, Children’s Long COVID Network (CLCN)
Outspoken views on Children's Long Covid/Post Covid Illness, research, care, and treatment.
Healthcare Professional | Advancing Pediatric post-COVID Strategy |
Founder, Children’s Long COVID Network (CLCN)
Outspoken views on Children's Long Covid/Post Covid Illness, research, care, and treatment.
Reposted by Nandini
ALBERTA: Bill 11 makes healthcare more expensive for everyone by introducing a two-tier system ⚠️
It lets doctors mix public and private work, giving faster access to people who pay while everyone else waits longer.
Visit NoTwoTier.ca to advocate against this and FOR Universal Public Healthcare.
It lets doctors mix public and private work, giving faster access to people who pay while everyone else waits longer.
Visit NoTwoTier.ca to advocate against this and FOR Universal Public Healthcare.
URGENT – Stop Premier Danielle Smith’s Plan to End Universal Healthcare
Alberta Premier Smith has used the Notwithstanding Clause to pass laws that erase rights and silence the courts.
NoTwoTier.ca
November 28, 2025 at 5:13 AM
ALBERTA: Bill 11 makes healthcare more expensive for everyone by introducing a two-tier system ⚠️
It lets doctors mix public and private work, giving faster access to people who pay while everyone else waits longer.
Visit NoTwoTier.ca to advocate against this and FOR Universal Public Healthcare.
It lets doctors mix public and private work, giving faster access to people who pay while everyone else waits longer.
Visit NoTwoTier.ca to advocate against this and FOR Universal Public Healthcare.
@cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social @markcarneyforpm.bsky.social @canadahealthwatch.ca @childhealthcan.bsky.social
whn.global/scientific/l...
whn.global/scientific/l...
Long COVID in Children: What the Science Shows and How to Protect Them - WHN
Authors: Yaneer Bar-Yam, Stephane Bilodeau, Špela Šalamon, Greta Fox, Sunil K Raina, Andrew Ewing Long COVID in Children: Science, Precautions, and Protection For years, many parents, doctors, and pol...
whn.global
December 11, 2025 at 9:56 PM
1/ This may look like “just one story” to many, not a dataset, but it crystallizes a pattern that far too many families are bumping into: when the system cannot explain a young person's symptoms, it downgrades them to lifestyle, instead of upgrading the level of curiosity.
www.ad.nl/binnenland/m...
www.ad.nl/binnenland/m...
‘Mam, ik ga toch niet dood?’: het waren de laatste woorden van Mayke (22)
Met het vwo-diploma op zak volgt Mayke Koopman (net 22) haar passie: schilderen. Bij het toekennen van een internationale kunstprijs wordt haar talent geroemd. Een broze gezondheid sloopt een carrière...
www.ad.nl
December 9, 2025 at 4:47 PM
1/ This may look like “just one story” to many, not a dataset, but it crystallizes a pattern that far too many families are bumping into: when the system cannot explain a young person's symptoms, it downgrades them to lifestyle, instead of upgrading the level of curiosity.
www.ad.nl/binnenland/m...
www.ad.nl/binnenland/m...
Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social
www.nature.com/articles/d41...
www.nature.com/articles/d41...
December 9, 2025 at 12:54 AM
Germany just did the thing everyone else keeps pretending is "impossible" or "does not exist". @cmadocs.bsky.social @markcarneyforpm.bsky.social
www.nature.com/articles/d41...
www.nature.com/articles/d41...
On this Giving Tuesday, CLCN is showing up for the children with LC who continue to be overlooked. Giving attention, giving voice, and giving our children the recognition they deserve.
#GivingTuesdayCanada #LongCOVIDChildren #CLCN #DriveRecognition #StrengthenCare#LCDiagnosis
#GivingTuesdayCanada #LongCOVIDChildren #CLCN #DriveRecognition #StrengthenCare#LCDiagnosis
❣️A small gesture from CLCN for Canadian Children with Long COVID with warmth:
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
December 3, 2025 at 12:52 AM
On this Giving Tuesday, CLCN is showing up for the children with LC who continue to be overlooked. Giving attention, giving voice, and giving our children the recognition they deserve.
#GivingTuesdayCanada #LongCOVIDChildren #CLCN #DriveRecognition #StrengthenCare#LCDiagnosis
#GivingTuesdayCanada #LongCOVIDChildren #CLCN #DriveRecognition #StrengthenCare#LCDiagnosis
❣️A small gesture from CLCN for Canadian Children with Long COVID with warmth:
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
December 1, 2025 at 10:30 PM
❣️A small gesture from CLCN for Canadian Children with Long COVID with warmth:
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
@jamapediatrics.com Publishing lifestyle-based pediatric reviews without considering children affected by COVID Infections- including those living unknowingly with Long COVID- it creates an incomplete and potentially unsafe narrative.
jamanetwork.com/journals/jam...
jamanetwork.com/journals/jam...
Lifestyle Interventions Addressing Blood Pressure in Children
This systematic review assesses the effectiveness of school- or community-based lifestyle interventions to reduce high blood pressure in children and identifies components that support effectiveness.
jamanetwork.com
December 1, 2025 at 9:30 PM
@jamapediatrics.com Publishing lifestyle-based pediatric reviews without considering children affected by COVID Infections- including those living unknowingly with Long COVID- it creates an incomplete and potentially unsafe narrative.
jamanetwork.com/journals/jam...
jamanetwork.com/journals/jam...
Canadian based.
For all Canadian clinicians, researchers.
@cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social
healthlinksed.ca?product=long...
For all Canadian clinicians, researchers.
@cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social
healthlinksed.ca?product=long...
Long Covid: The Parallel Pandemic – Health Links Education
healthlinksed.ca
December 1, 2025 at 8:38 PM
Canadian based.
For all Canadian clinicians, researchers.
@cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social
healthlinksed.ca?product=long...
For all Canadian clinicians, researchers.
@cmadocs.bsky.social @cfpc-cmfc.bsky.social @royalcollege.bsky.social
healthlinksed.ca?product=long...
Alberta’s public health care is under attack. Premier Smith wants doctors in both public and private systems — a fast lane for the wealthy, longer waits for everyone else.
Our system is already strained. Sign the petition. 💙
notwotier.ca/directmessag...
Our system is already strained. Sign the petition. 💙
notwotier.ca/directmessag...
URGENT – Stop Alberta's government from overriding the Charter of Rights
Alberta Premier Smith plans to use the Notwithstanding Clause to pass laws that erase rights and silence the courts.
notwotier.ca
December 1, 2025 at 5:07 AM
Alberta’s public health care is under attack. Premier Smith wants doctors in both public and private systems — a fast lane for the wealthy, longer waits for everyone else.
Our system is already strained. Sign the petition. 💙
notwotier.ca/directmessag...
Our system is already strained. Sign the petition. 💙
notwotier.ca/directmessag...
Further to CLCN's communication with the CBC Ombudsman re: Oct interview w Gill Deacon, I am sharing our response back to CBC. To all my fellow Canadian parents know that CLCN will not let this go unresolved.
November 22, 2025 at 7:35 PM
Further to CLCN's communication with the CBC Ombudsman re: Oct interview w Gill Deacon, I am sharing our response back to CBC. To all my fellow Canadian parents know that CLCN will not let this go unresolved.
Why did CBC’s Feb 2025 segment on rising school absenteeism not mention COVID [email protected] Interviewed the Canadian School Attendance Partnership: grp led by psychologists/psychotherapists who continue to frame a medical crisis in kids as a mental-health issue.
November 22, 2025 at 6:22 PM
Why did CBC’s Feb 2025 segment on rising school absenteeism not mention COVID [email protected] Interviewed the Canadian School Attendance Partnership: grp led by psychologists/psychotherapists who continue to frame a medical crisis in kids as a mental-health issue.
🚩This was recently shared with us by a parent and it's deeply disturbing. It appears that this hospital has a troubling pattern in its approach to children living with complex illnesses. Also reportedly being separated from parents for extended questioning- serious ethical & safeguarding concerns.
November 10, 2025 at 2:32 AM
🚩This was recently shared with us by a parent and it's deeply disturbing. It appears that this hospital has a troubling pattern in its approach to children living with complex illnesses. Also reportedly being separated from parents for extended questioning- serious ethical & safeguarding concerns.
To my fellow Canadian parents with children living with Long COVID: the Children's Long COVID Network submitted a complaint to the CBC Ombudsman. Please consider sending your own personal letters to CBC to amplify our collective voice.
November 8, 2025 at 5:00 PM
To my fellow Canadian parents with children living with Long COVID: the Children's Long COVID Network submitted a complaint to the CBC Ombudsman. Please consider sending your own personal letters to CBC to amplify our collective voice.
@cbcnews.ca @cbcnews-mirror.bsky.social Canadians living w Long COVID, especially children, deserve responsible journalism, not "braining training" pseudoscience on National TV. Whoever endorsed this should be ashamed. Appalling, @ianhanomansing.bsky.social. Complaint escalated to the CBC Ombudsman
@gilldeacon.bsky.social Respecting your courage in speaking on your Long COVID journey, but promoting a "recovery" narrative based on psychological and mind-body interventions in your CBC interview of Oct 26th gravely misrepresented Long COVID in public discourse.
Thoroughly disappointed in this LC media coverage that aired Oct 26, 2025 on CBC Canada completely misrepresents this life altering illness…extremely harmful.
Need community advocates to share far and wide & also reach out to CBC. 1/2
#LCisreal
#MEcfs
#pwME
m.youtube.com/watch?v=DXri...
Need community advocates to share far and wide & also reach out to CBC. 1/2
#LCisreal
#MEcfs
#pwME
m.youtube.com/watch?v=DXri...
November 8, 2025 at 4:57 PM
@cbcnews.ca @cbcnews-mirror.bsky.social Canadians living w Long COVID, especially children, deserve responsible journalism, not "braining training" pseudoscience on National TV. Whoever endorsed this should be ashamed. Appalling, @ianhanomansing.bsky.social. Complaint escalated to the CBC Ombudsman
Strong & credible study. Issue is when national outlets like @ctvnews-mirror.bsky.social keep turning to @isaacbogoch.bsky.social as the "default expert" even outside his field. This catch-all authority flattens complex science and sidelines those with real expertise.
www.ctvnews.ca/health/artic...
www.ctvnews.ca/health/artic...
Study compares heart risks of COVID-19 infection and vaccination, and the results may surprise you
The risk of children developing rare but serious heart complications is higher after a COVID-19 infection than after vaccination, according to a new study.
www.ctvnews.ca
November 8, 2025 at 3:38 PM
Strong & credible study. Issue is when national outlets like @ctvnews-mirror.bsky.social keep turning to @isaacbogoch.bsky.social as the "default expert" even outside his field. This catch-all authority flattens complex science and sidelines those with real expertise.
www.ctvnews.ca/health/artic...
www.ctvnews.ca/health/artic...
@spichaksimon.bsky.social thank you for holding @ianhanomansing.bsky.social CBC accountable on this. They have a lot to answer on this.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
In a statement, CBC told me:
"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."
Will update the story with this soon.
"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."
Will update the story with this soon.
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
November 8, 2025 at 12:44 AM
@spichaksimon.bsky.social thank you for holding @ianhanomansing.bsky.social CBC accountable on this. They have a lot to answer on this.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
It's deeply disappointing when a National broadcaster watched by millions undermines its own credibility.
@carriemcginn.bsky.social @sabrinapoirier.bsky.social @icancmeresearch.bsky.social
On Jan 15th, 2026.
ow.ly/Fnhy50XiObM
On Jan 15th, 2026.
ow.ly/Fnhy50XiObM
Welcome! You are invited to join a webinar: From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test. After registering, you will receive a confirmation email about joining the webinar...
Scientists have developed a simple, accurate blood test that can potentially identify Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) — a long-term, debilitating condition that affects m...
ow.ly
November 7, 2025 at 6:57 AM
Powerful piece by a pediatrician reminding us of a truth often neglected by Canadian school systems: accommodations aren't privileges-they are rights. Equity means meeting children where they are- but for those with complex illnesses like Long COVID, it often isn't.
kevinmd.com/2025/08/why-...
kevinmd.com/2025/08/why-...
Why accommodations aren't special treatment but essential for equity
Disabled students and professionals continue to face systemic discrimination and exclusion, especially in education and medicine, where outdated attitudes and resistance to accommodations hinder equit...
kevinmd.com
November 7, 2025 at 5:41 AM
Powerful piece by a pediatrician reminding us of a truth often neglected by Canadian school systems: accommodations aren't privileges-they are rights. Equity means meeting children where they are- but for those with complex illnesses like Long COVID, it often isn't.
kevinmd.com/2025/08/why-...
kevinmd.com/2025/08/why-...
Day3 reflection: "Keeping up with Long COVID and ME/CFS patients means keeping up with the emerging science of Complex Chronic illnesses"- adopting new ways of continuous monitoring, testing. Thank you @icancmeresearch.bsky.social for hosting a groundbreaking conference every clinician should hear.
November 7, 2025 at 2:40 AM
Day3 reflection: "Keeping up with Long COVID and ME/CFS patients means keeping up with the emerging science of Complex Chronic illnesses"- adopting new ways of continuous monitoring, testing. Thank you @icancmeresearch.bsky.social for hosting a groundbreaking conference every clinician should hear.
Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
November 6, 2025 at 6:02 AM
Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts
1/A new report on children and youth. The alarming part is not in the absolute numbers - its the pattern!
Persistent vascular & inflammatory injury in a pediatric population following a virus that many still claim is mild in kids. 📢Major public health red flag
www.thelancet.com/journals/lan...
Persistent vascular & inflammatory injury in a pediatric population following a virus that many still claim is mild in kids. 📢Major public health red flag
www.thelancet.com/journals/lan...
Vascular and inflammatory diseases after COVID-19 infection and vaccination in children and young people in England: a retrospective, population-based cohort study using linked electronic health recor...
Children and young people have higher risks of rare vascular and inflammatory diseases
up to 12 months after a first COVID-19 diagnosis and higher risk of rare myocarditis
or pericarditis up to 4 week...
www.thelancet.com
November 5, 2025 at 4:46 AM
1/A new report on children and youth. The alarming part is not in the absolute numbers - its the pattern!
Persistent vascular & inflammatory injury in a pediatric population following a virus that many still claim is mild in kids. 📢Major public health red flag
www.thelancet.com/journals/lan...
Persistent vascular & inflammatory injury in a pediatric population following a virus that many still claim is mild in kids. 📢Major public health red flag
www.thelancet.com/journals/lan...
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
November 5, 2025 at 1:57 AM
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Phenomenal Canadian scientific conference on the emerging research on Long COVID & ME/CFS.
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
November 4, 2025 at 8:57 PM
Phenomenal Canadian scientific conference on the emerging research on Long COVID & ME/CFS.
1. @ianhanomansing.bsky.social platformed the Lightening Process as Long COVID "recovery" on National Television -No evidence, No biomedical context, & Huge policy risks.
Long COVID is biological. Children deserves science, not illusion.
Long COVID is biological. Children deserves science, not illusion.
CBC’s Flagship Program Platforms “Quackery” for Long COVID
CBC's national broadcast aired an interview with Gill Deacon about her Long COVID recovery. Deacon used an unproven program called the Lightning Process that's been criticized for exploiting patients ...
simonspichak.beehiiv.com
October 31, 2025 at 11:01 PM
1. @ianhanomansing.bsky.social platformed the Lightening Process as Long COVID "recovery" on National Television -No evidence, No biomedical context, & Huge policy risks.
Long COVID is biological. Children deserves science, not illusion.
Long COVID is biological. Children deserves science, not illusion.