Ragnhild
husbymoen.bsky.social
Ragnhild
@husbymoen.bsky.social
Lever et mikroliv og fascineres av mikrolivet i jorda🌱
#pwme #millionsmissing
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Wow I wonder who is in this redacted photo
February 2, 2026 at 2:40 AM
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I know many things are happening but please take a minute to read this: we are in full blackout in Kyiv, metro stopped, for the 1st time like this, power outages for the whole Ukraine and even in neighbouring Moldova now too. all because of Russia bombing our power stations , while it’s -19 outside
January 31, 2026 at 10:01 AM
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Maybe Greenland could invade us instead?
January 20, 2026 at 11:16 AM
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OTD in 1994 trilateral agreement between Russia, Ukraine & USA was signed.

"Ukraine commits to full disarmament, including strategic offensive weapons, in exchange for economic support & (this is the best part) security assurances from the USA & Russia".

So you can trust us now
January 14, 2026 at 9:50 AM
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A dominant theme of Hitler's speeches in the late 1930s is that Germany was surrounded by threats. These threats were imaginary: it was Nazi Germany that threatened other nations. But they were used to justify pre-emptive attacks. Trump is following this script.
January 10, 2026 at 10:51 AM
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New research finds people with ME/CFS have a striking deficiency in vasopressin - a hormone that helps the body retain water.

This could explain common symptoms like constant thirst and dizziness upon standing.

Let's break down the findings.
January 6, 2026 at 1:15 PM
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At some point it will happen right?

Staying chronically optimistic...

Happy less crappy new year to you all!!

#pwme #myalgicE #millionsmissing #severeME #photophobia #hyperacusis #POTS #banPEM #art2cureME #canyouseeMEnow #balletdancer #zorgbetervoorME #chronicillness #science
December 31, 2025 at 5:52 PM
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Marshall Project reporting reveals widespread violations of protections for children in immigration detention. Since Trump took office, at least 3,800 children under 18 (including 20 infants) have been booked into ICE custody.
December 19, 2025 at 12:48 AM
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Has the world completely forgotten and abandoned Georgia? Are we waiting for it to be entirely swallowed by Moscow and China to even pretend to care or notice that Georgians who want freedom, democracy, and sovereignty have been facing violence, protesting in Tbilisi for OVER A YEAR?!
December 19, 2025 at 6:34 AM
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🇳🇴 Patients from Norway have created a petition to encourage the government to provide funding for the Daratumumab study and to strengthen future biomedical research efforts in ME CFS.

You can sign the petition here:
Sign the Petition
Call for Funding a New Clinical Study on Daratumumab for ME/CFS
www.change.org
December 10, 2025 at 12:14 PM
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December 9, 2025 at 5:33 PM
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@annekiel.bsky.social skriver bl.a. om ME-sykes møter med tjenestene og mener at «vi også i akademia må tørre å snakke om de lidelsene den symbolske volden tidvis sadistiske systemer frembringer, og konsekvensene dette har for reproduksjonen av marginaliserte gruppers marginalisering.».
Temaet vold i møte med systemene fortjener mer oppmerksomhet, og nettopp med forståelsen av at ikke all vold er fysisk, skriver Fafo-forsker Anne Kielland.
Symbolsk vold i møte med offentlige tjenester
Vi i akademia må tørre å snakke om de lidelsene den symbolske volden tidvis sadistiske systemer frembringer.
agendamagasin.no
November 13, 2025 at 10:04 AM
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Exactly two years ago, 🇬🇪 was granted the EU candidate status.

Now 🇬🇪 is a dictatorship in terms of state institutions, the consolidation of which is only hindered by protests and the public.

As UK MP Perran Moon sait at PACE, what Putin did in Russia in 12 years, they did in Georgia in 12 months.
November 9, 2025 at 8:40 AM
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Today @TheNewYorker released our short documentary “Rovina’s Choice” online.

It traces the ongoing effects of the sudden shutdown of US foreign aid through the story of one mother in Kenya as she seeks to save her daughter from sickness and starvation. 🎥 1/ www.newyorker.com/culture/the-...
The Shutdown of U.S.A.I.D. Has Already Killed Hundreds of Thousands
The short documentary “Rovina’s Choice” tells the story of what goes when aid goes.
www.newyorker.com
November 6, 2025 at 12:41 PM
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Well, this is some good news.
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...
Breakthrough blood test finally confirms Chronic Fatigue Syndrome
A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. For millions who’ve ...
www.sciencedaily.com
November 3, 2025 at 4:15 PM
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From ME Research UK:

Seven new research projects across two consortia have been announced as part of the Netherlands 28.5 million euros 10-year ME/CFS programme - tinyurl.com/uzeb2an6

What a difference when political will directs a sea-change in ME/CFS research funding.

#MEcfs #PwME #CFS
September 21, 2025 at 3:20 PM
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1) In a new pre-print, the lab of Bhupesh Prusty reports that antibodies (IgG) from ME/CFS patients cause mitochondrial fragmentation in endothelial cells.

This was not seen in antibodies from MS patients or healthy controls.

August 14, 2025 at 9:30 AM
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This is huge. Not only does this genetic analysis reinforce that ME is real but it also highlights areas for research regarding mechanisms and treatments. #DecodeME
Breaking NEWS: 🚨

#DecodeME has discovered 8 possible genetic predispositions in the genes of #MEcfs patients that are not found in the control group.
youtube.com/shorts/0S5u8...
DecodeME Initial DNA Results
YouTube video by DecodeME
youtube.com
August 6, 2025 at 10:15 PM
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Excited to be here in Stavanger, Norway, to speak at @meforeningen.bsky.social conference on ME/CFS and Long Covid

Fascinating programme planned, lots of interesting presenters

#MECFS #LongCovid #pwME
May 7, 2025 at 6:38 AM
"I learned the most when I was promoted to patient" Doctor with M.E.
1) OMG we did it‼️‼️

In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.

They speak candidly about their experiences

youtu.be/J0ywwLIfH_w?...
Doctors as Patients (with subtitles)
YouTube video by Anil about ME
youtu.be
May 4, 2025 at 9:11 AM
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Mye tyder på at naturens tålmodige buffer-kapasitet mot vår klima-uforstand er i ferd med å bli brukt opp.

Det er dramatisk www.nrk.no/klima/krafti...
Kraftig økning i CO₂ i atmosfæren
Aldri har det vært en kraftigere økning i mengden CO₂ i atmosfæren enn fra 2023 til 2024. Klimaforskere frykter at det betyr at vi får mindre hjelp fra jordkloden til å bremse klimaendringene.
www.nrk.no
April 26, 2025 at 7:50 AM
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4/
Myth: ME is just about feeling tired
Fact: The defining symptom of ME is Post-Exertional Malaise (PEM) – an extreme worsening of symptoms after even minor physical or mental exertion.

worldmealliance.org/2025/04/worl...

#MyalgicEncephalomyelitis #PwME #MEcfs
April 18, 2025 at 2:10 PM
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Mirror: 'ME sufferers 'feel invisible and ignored' as NHS review shows two-thirds more affected'

'Two-thirds more people are living with debilitating ME than was previously thought, an NHS review has found'

www.mirror.co.uk/news/health/...
ME sufferers 'feel invisible and ignored' as review shows many more have illness
NHS data for England shows middle age women and white people are much more likely to develop devastating myalgic Encephalomyelitis (ME) - otherwise known as Chronic Fatigue Syndrome
www.mirror.co.uk
April 22, 2025 at 1:28 PM
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Det er vår felles kyst. Equinor sitt oljeutslipp. Kan de virkelig hemmeligholde hvor oljen slår på land?

For 8 dager siden sendte jeg på vegne av @naturvernforbundet.no en forespørsel til Equinor og til oljebransjens eget oljevern om å få se registreringene av oljepåslag etter Njord A utslippet.
March 15, 2025 at 8:42 AM
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1. You feel powerless? Don’t know what you can do to resist the rise of fascism?
Here is an answer: Good Things.
Fascism inflicts pain and harm as a matter of doctrine.
Kindness, care and conviviality defend us from it.
The more we build community, the less it can take root.
🧵
March 10, 2025 at 1:12 PM