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jo
@moerakijo.bsky.social
#LongCovid #ME #WearAMask😷 #CovidIsNotOver
books, libraries, histories
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Aotearoa New Zealand
The winter tragedy being hidden from view

Emily Writes weekly newsletter

"Aotearoa is just days away from the start of summer. In Palestine, winter officially begins in December, but it's already in full force "
The winter tragedy being hidden from view
Aotearoa is just days away from the start of summer. In Palestine, winter officially begins in December, but it's already in full force. And it's adding even more misery to Palestinians trying to surv...
www.emilywrites.co.nz
November 26, 2025 at 8:12 PM
Reposted by jo
What the hell is going on with the new New Zealand school curriculum, and what does it have to do with the Atlas Network? (No, really!)

A thread:

#nzpol #kikorangi
November 26, 2025 at 4:16 AM
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Recharge in Progress 😴💙 Our soft eye mask is soothing and perfect for rest and pacing. 🎁 A beautiful comfort gift for someone you love this Christmas.

Shop today - zurl.co/iLKlQ

#RechargeInProgress #EmergeAustralia #MECFS #PowerOurPath #Christmasgiving #longcovid
November 26, 2025 at 4:00 AM
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Sunrise, Wednesday 26 November, from Okitu Beach, Aotearoa / New Zealand.

Ata mārie / Good Morning ☀️
November 25, 2025 at 4:50 PM
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Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:04 PM
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This Friday over 17,000 PSA health members are striking across the motu for safe staffing, fair pay, and conditions to give quality care patients deserve. 📍Find your nearest 28 November picket or rally at psa.org.nz/health
#NZPol #StandTogetherForHealth
November 25, 2025 at 2:05 AM
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Sunrise, Tuesday, 25 November from Wainui Beach, Aotearoa / New Zealand.

Ata mārie / Good Morning ☀️
November 24, 2025 at 4:55 PM
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Your friends with long Covid would really appreciate you running some errands for them. Just offer it. Or a bit of housekeeping support. Anything at all.
“If it’s that bad, you would have help!”

Help doesn’t magically arrive when you become disabled.

You’re not assigned a caregiver or given more money based on severity.

Many need more help than they’re getting.

If you’re struggling tonight, know you’re not alone.

Many of us are with you.
November 24, 2025 at 4:20 PM
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ijdsj.online
November 24, 2025 at 6:17 PM
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Introducing “Energy Limiting
Conditions”
The Emergence and Evolution of a New Impairment
Concept
Catherine Hale
Independent Researcher, UK
Dr Anna Ruddock
Independent Researcher, UK
Ana Bê
Senior Lecturer in Disability Studies, Liverpool Hope University, Liverpool, UK
#ME/CFS #LongCOVID
www.scienceopen.com
November 24, 2025 at 6:15 PM
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BEST BOOKS OF 2025 FOR KIDS!
It's that most wonderful time of the year. Our selectors have picked the best books of 2025 for tamariki and rangatahi. Find great reads galore, handpicked by the experts! my.christchurchcitylibraries.com/holiday-read... ^DR
#pukapuka #booksky
November 24, 2025 at 8:04 PM
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We can disagree on policy. But promoting someone who spreads misogynistic rumours into a key leadership role? That should be a red line for any council committed to safe and respectful politics. #nzpol

thespinoff.co.nz/politics/25-...
Andrew Little buddies up to the right
In his first council meeting as Wellington mayor, Andrew Little opened a political rift between Labour and the Greens.
thespinoff.co.nz
November 24, 2025 at 8:15 PM
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Great to see this official statement from NZ Greens 🏳️‍⚧️
November 24, 2025 at 5:11 AM
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Monday morning, 24 November, from Okitu Beach, Aotearoa / New Zealand.

Kia pai to rā / Have a good day ☀️
November 23, 2025 at 8:00 PM
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🇳🇿New Zealand COVID weekly update: 16 Nov 2025

10 Nov to 16 Nov 2025:

🔹Reported cases: 157 (-13.2%)
🔹Reported Deaths: 2 (-50.0%)
🔹Total deaths: 5,477 (+2)

28 Oct to 3 Nov 2025:

🔹Hospitalisations: 32 (+39.1%)

#COVID19NZ

Source: tewhatuora.govt.nz/for-health-p...
November 18, 2025 at 10:51 PM
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Meet the AI workers who tell their friends and family to stay away from AI
Meet the AI workers who tell their friends and family to stay away from AI
When the people making AI seem trustworthy are the ones who trust it the least, it shows that incentives for speed are overtaking safety, experts say
www.theguardian.com
November 22, 2025 at 4:13 PM
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Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
November 22, 2025 at 6:15 PM
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To date, 1007 schools reject the Government’s racist removal.

“The government plans to remove the requirement for school boards to give effect to Te Tiriti o Waitangi. Too bad, say hundreds of schools, because they plan to uphold their commitments anyway, as Awanui Te Huia explains.” #nzpol
Schools commit to Te Tiriti anyway | E-Tangata
“The relationships that schools and kura have with Māori endures despite directives from the right-wing.” — Awanui Te Huia.
e-tangata.co.nz
November 22, 2025 at 6:03 PM
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Sunrise, Saturday, 22 November, from Okitu Beach, Aotearoa / New Zealand.

Ata mārie / Good Morning ☀️
November 21, 2025 at 5:01 PM
Reposted by jo
The overwhelmingly positive experiences of trans youth on puberty blockers
The overwhelmingly positive experiences of trans youth on puberty blockers
A survey of trans youth highlights the enormous value of puberty blockers – and the strong need for continued access to them....
thespinoff.co.nz
November 21, 2025 at 7:49 PM
Reposted by jo
A day in the life of a New Zealand MP attending Cop30 in Brazil
A day in the life of a New Zealand MP attending Cop30 in Brazil
Francisco Hernandez shares his diary from Belém, featuring plenary sessions, Pringles, fire evacuations and bus blunders. <br />...
thespinoff.co.nz
November 21, 2025 at 7:40 PM
Reposted by jo
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.

www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
www.mayoclinicproceedings.org
November 21, 2025 at 3:56 PM
Reposted by jo
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:02 PM
Reposted by jo
The Unity Books bestseller chart for the week ending November 21
The Unity Books bestseller chart for the week ending November 21
The groundbreaking book about a first period hits the charts....
thespinoff.co.nz
November 21, 2025 at 3:45 AM
Dreaming about disabled third spaces
" the places that give you a sense of community life, replenishment and creativity. "
Emily Coull writes and dreams of better, more accessible third spaces and invites us to her imagined one: The Lady Bird Café.
Dreaming about disabled 'third spaces' 🐞
Plus: Disabled and Delicious Week 😋
open.substack.com
November 21, 2025 at 1:25 AM