Adam
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
https://linktr.ee/abrokenbattery
Pinned
Adam
@abrokenbattery.bsky.social
· Dec 12
New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
John Rutter’s response to Rod Liddle, in a letter in The Spectator
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
December 7, 2025 at 4:02 PM
John Rutter’s response to Rod Liddle, in a letter in The Spectator
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
Clip from BBC Composer of the Week: John Rutter speaks about composing his Requiem while battling #MECFS after chickenpox. It “disturbed my physical energy, my mental acuity and my whole mood.”
December 7, 2025 at 2:19 PM
Clip from BBC Composer of the Week: John Rutter speaks about composing his Requiem while battling #MECFS after chickenpox. It “disturbed my physical energy, my mental acuity and my whole mood.”
Highlights from Natasha Devon on LBC yesterday, where she discussed the government’s ADHD review and mentioned concerns about vice-chair Sir Simon Wessely, because of his controversial comments on young people “overdiagnosing” their mental health.
December 7, 2025 at 11:13 AM
Highlights from Natasha Devon on LBC yesterday, where she discussed the government’s ADHD review and mentioned concerns about vice-chair Sir Simon Wessely, because of his controversial comments on young people “overdiagnosing” their mental health.
Reposted by Adam
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
December 5, 2025 at 8:45 AM
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
Clip from a German RTL news mini doc (auto-dubbed by YouTube).
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
December 5, 2025 at 10:26 AM
Clip from a German RTL news mini doc (auto-dubbed by YouTube).
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Reposted by Adam
It seems so silly but it’s really uplifting to see a celebrity fundraise and advocate for #MECFS
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
December 4, 2025 at 4:51 PM
It seems so silly but it’s really uplifting to see a celebrity fundraise and advocate for #MECFS
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
Clip from The Nightmare Neighbour Next Door (S2E3), where Laurel Wingfield who has #MECFS talks about her life before, how she struggles now and how gardening has been a focus.
December 4, 2025 at 9:09 AM
Clip from The Nightmare Neighbour Next Door (S2E3), where Laurel Wingfield who has #MECFS talks about her life before, how she struggles now and how gardening has been a focus.
TW: Euthanasia
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
December 3, 2025 at 9:17 AM
TW: Euthanasia
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from an NOS news report about the PAIS protest in The Hague. Wheelchairs symbolised those too ill to attend. Patients with post-infectious illnesses: long COVID, ME/CFS, Lyme, Q-fever and sepsis are calling for proper research and treatment.
December 2, 2025 at 1:30 PM
Clip from an NOS news report about the PAIS protest in The Hague. Wheelchairs symbolised those too ill to attend. Patients with post-infectious illnesses: long COVID, ME/CFS, Lyme, Q-fever and sepsis are calling for proper research and treatment.
Reposted by Adam
Some photos from the #PAISProtest now happening at the Malieveld in The Hague.
Looks like a nice crowd has gathered.
Looks like a nice crowd has gathered.
November 30, 2025 at 2:32 PM
Some photos from the #PAISProtest now happening at the Malieveld in The Hague.
Looks like a nice crowd has gathered.
Looks like a nice crowd has gathered.
Thinking of everyone taking part in the PAIS-protest in the Netherlands today.
People with ME and Long Covid deserve to be believed, to receive safe care, proper biomedical treatment, and an end to years of neglect and scandal.
More info: www.hetpaisprotest.nl
People with ME and Long Covid deserve to be believed, to receive safe care, proper biomedical treatment, and an end to years of neglect and scandal.
More info: www.hetpaisprotest.nl
#NietHersteld
www.hetpaisprotest.nl
November 30, 2025 at 1:23 PM
Thinking of everyone taking part in the PAIS-protest in the Netherlands today.
People with ME and Long Covid deserve to be believed, to receive safe care, proper biomedical treatment, and an end to years of neglect and scandal.
More info: www.hetpaisprotest.nl
People with ME and Long Covid deserve to be believed, to receive safe care, proper biomedical treatment, and an end to years of neglect and scandal.
More info: www.hetpaisprotest.nl
Clip from The Conditional Release Program podcast, with Jack the Insider (Peter Hoysted) Simon Wessely was Nominated for the Bent Spoon Award (the annual prize for pseudoscience at SkeptiCon). Wessely wasn’t eligible though because he’s not Australian.
November 30, 2025 at 9:24 AM
Clip from The Conditional Release Program podcast, with Jack the Insider (Peter Hoysted) Simon Wessely was Nominated for the Bent Spoon Award (the annual prize for pseudoscience at SkeptiCon). Wessely wasn’t eligible though because he’s not Australian.
Clip from a 2011 news segment about 22-year-old Ben DePasquale, who became severely ill with #MECFS at 18. Doctors thought he maybe depressed and suggested exercise which only made him worse. “He is sick of the medical community seemingly not paying attention.”
November 29, 2025 at 8:06 AM
Clip from a 2011 news segment about 22-year-old Ben DePasquale, who became severely ill with #MECFS at 18. Doctors thought he maybe depressed and suggested exercise which only made him worse. “He is sick of the medical community seemingly not paying attention.”
Reposted by Adam
November 27, 2025 at 2:31 PM
Reposted by Adam
Poison Water - a documentary about the Camelford water poisoning incident is on BBC2 right now.
www.bbc.co.uk/programmes/m...
www.bbc.co.uk/programmes/m...
BBC Two - Poison Water
A mass poisoning of tap water in Cornwall leads to a desperate search for truth.
www.bbc.co.uk
November 26, 2025 at 9:04 PM
Poison Water - a documentary about the Camelford water poisoning incident is on BBC2 right now.
www.bbc.co.uk/programmes/m...
www.bbc.co.uk/programmes/m...
Following the BBC documentary Poisoned Water, I’ve put together a quick thread about the Camelford water poisoning and Simon Wessely. The thread is on a summary website for anyone who isn’t on Twitter and includes clips and references.
twitter-thread.com/t/1994370580...
twitter-thread.com/t/1994370580...
🧵Wessely and the Camelford water poisoning. by @ABrokenBattery(Adam) | Twitter Thread Reader
🧵Wessely and the Camelford water poisoning.
In 1988, thousands in Camelford were poisoned when 20 tonnes of aluminum sulphate was dumped direct into the water supply. Many suffered serious and lasting...
twitter-thread.com
November 28, 2025 at 11:47 AM
Following the BBC documentary Poisoned Water, I’ve put together a quick thread about the Camelford water poisoning and Simon Wessely. The thread is on a summary website for anyone who isn’t on Twitter and includes clips and references.
twitter-thread.com/t/1994370580...
twitter-thread.com/t/1994370580...
Clip: BBC Look North 10-year-old Asa has been named Young Person of the Year by SENSE. Asa supports his mum with daily tasks at home after they became disabled with ME/CFS after Covid-19.
November 26, 2025 at 8:11 PM
Clip: BBC Look North 10-year-old Asa has been named Young Person of the Year by SENSE. Asa supports his mum with daily tasks at home after they became disabled with ME/CFS after Covid-19.
Highlights from a 2006 BBC Inside Out segment about 20 yr old Claire Wade, bedbound with severe ME. She fell ill at 10 and lost her entire teenage years to the illness. She spent the last 6 yrs confined to bed, with only letters & emails to connect her to the outside world.
November 26, 2025 at 7:00 AM
Highlights from a 2006 BBC Inside Out segment about 20 yr old Claire Wade, bedbound with severe ME. She fell ill at 10 and lost her entire teenage years to the illness. She spent the last 6 yrs confined to bed, with only letters & emails to connect her to the outside world.
Segment from WELT (German TV) featuring Federal Research Minister Dorothee Bär discussing Germany’s National Decade Against Post-Infectious Diseases - €500 million for research including #MECFS and #LongCOVID. (English Subtitles - 3 mins)
youtu.be/f84TAp3D_Ng?...
youtu.be/f84TAp3D_Ng?...
Germany’s National Decade Against Post-Infectious Diseases (€500m Research Plan)
YouTube video by Broken Battery
youtu.be
November 24, 2025 at 10:09 AM
Segment from WELT (German TV) featuring Federal Research Minister Dorothee Bär discussing Germany’s National Decade Against Post-Infectious Diseases - €500 million for research including #MECFS and #LongCOVID. (English Subtitles - 3 mins)
youtu.be/f84TAp3D_Ng?...
youtu.be/f84TAp3D_Ng?...
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
November 22, 2025 at 6:15 PM
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
Former Team GB rower and #longCOVID campaigner @oonaghcousins.bsky.social spoke to Sky News in response to the COVID Inquiry. She highlighted how long-term illness was foreseeable and why a proper national strategy is urgently needed. Aired on 20/11/25 (5 mins).
youtu.be/-qZHg9PsE4c?...
youtu.be/-qZHg9PsE4c?...
Former Team GB Rower Oona Cousins Responds to the COVID Inquiry on Sky News
YouTube video by Broken Battery
youtu.be
November 22, 2025 at 4:43 PM
Former Team GB rower and #longCOVID campaigner @oonaghcousins.bsky.social spoke to Sky News in response to the COVID Inquiry. She highlighted how long-term illness was foreseeable and why a proper national strategy is urgently needed. Aired on 20/11/25 (5 mins).
youtu.be/-qZHg9PsE4c?...
youtu.be/-qZHg9PsE4c?...
Clip: Julie Heath shares the impact of becoming a carer for her husband and two children with #MECFS, and how she’s become their advocate because they don’t have the energy to do things like speak to their GP. ME/CFS doesn’t just affect individuals it affects whole families.
November 22, 2025 at 11:23 AM
Clip: Julie Heath shares the impact of becoming a carer for her husband and two children with #MECFS, and how she’s become their advocate because they don’t have the energy to do things like speak to their GP. ME/CFS doesn’t just affect individuals it affects whole families.
BBC Radio Somerset (12 mins) Charlie Taylor speaks to Julie and John Heath about their family, where three out of four members have been diagnosed with #MECFS — they discuss how the condition affects daily life and the profound impact on their family.
youtu.be/t-eIzxqmNWY?...
youtu.be/t-eIzxqmNWY?...
BBC Somerset - 3 out of family of 4 diagnosed with ME/CFS
YouTube video by Broken Battery
youtu.be
November 22, 2025 at 8:06 AM
BBC Radio Somerset (12 mins) Charlie Taylor speaks to Julie and John Heath about their family, where three out of four members have been diagnosed with #MECFS — they discuss how the condition affects daily life and the profound impact on their family.
youtu.be/t-eIzxqmNWY?...
youtu.be/t-eIzxqmNWY?...
New from the The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
November 21, 2025 at 5:54 PM
New from the The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
BBC Points West ran a very short 20-second clip on yesterday’s Westminster debate. Local MP Tessa Munt called for greater NHS support and investment for people with #MECFS. Unfortunately the segment used “extreme tiredness” to describe the main symptom.
November 21, 2025 at 5:00 PM
BBC Points West ran a very short 20-second clip on yesterday’s Westminster debate. Local MP Tessa Munt called for greater NHS support and investment for people with #MECFS. Unfortunately the segment used “extreme tiredness” to describe the main symptom.