Adam
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
https://linktr.ee/abrokenbattery
Video clip of Natasha Devon raising concerns about Simon Wessely being involved in the government’s ADHD review.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
December 8, 2025 at 7:01 PM
Video clip of Natasha Devon raising concerns about Simon Wessely being involved in the government’s ADHD review.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
Clip from BBC Composer of the Week: John Rutter speaks about composing his Requiem while battling #MECFS after chickenpox. It “disturbed my physical energy, my mental acuity and my whole mood.”
December 7, 2025 at 2:19 PM
Clip from BBC Composer of the Week: John Rutter speaks about composing his Requiem while battling #MECFS after chickenpox. It “disturbed my physical energy, my mental acuity and my whole mood.”
Highlights from Natasha Devon on LBC yesterday, where she discussed the government’s ADHD review and mentioned concerns about vice-chair Sir Simon Wessely, because of his controversial comments on young people “overdiagnosing” their mental health.
December 7, 2025 at 11:13 AM
Highlights from Natasha Devon on LBC yesterday, where she discussed the government’s ADHD review and mentioned concerns about vice-chair Sir Simon Wessely, because of his controversial comments on young people “overdiagnosing” their mental health.
Clip from a German RTL news mini doc (auto-dubbed by YouTube).
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
December 5, 2025 at 10:26 AM
Clip from a German RTL news mini doc (auto-dubbed by YouTube).
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Clip from The Nightmare Neighbour Next Door (S2E3), where Laurel Wingfield who has #MECFS talks about her life before, how she struggles now and how gardening has been a focus.
December 4, 2025 at 9:09 AM
Clip from The Nightmare Neighbour Next Door (S2E3), where Laurel Wingfield who has #MECFS talks about her life before, how she struggles now and how gardening has been a focus.
TW: Euthanasia
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
December 3, 2025 at 9:17 AM
TW: Euthanasia
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from an NOS news report about the PAIS protest in The Hague. Wheelchairs symbolised those too ill to attend. Patients with post-infectious illnesses: long COVID, ME/CFS, Lyme, Q-fever and sepsis are calling for proper research and treatment.
December 2, 2025 at 1:30 PM
Clip from an NOS news report about the PAIS protest in The Hague. Wheelchairs symbolised those too ill to attend. Patients with post-infectious illnesses: long COVID, ME/CFS, Lyme, Q-fever and sepsis are calling for proper research and treatment.
Clip from The Conditional Release Program podcast, with Jack the Insider (Peter Hoysted) Simon Wessely was Nominated for the Bent Spoon Award (the annual prize for pseudoscience at SkeptiCon). Wessely wasn’t eligible though because he’s not Australian.
November 30, 2025 at 9:24 AM
Clip from The Conditional Release Program podcast, with Jack the Insider (Peter Hoysted) Simon Wessely was Nominated for the Bent Spoon Award (the annual prize for pseudoscience at SkeptiCon). Wessely wasn’t eligible though because he’s not Australian.
Clip from a 2011 news segment about 22-year-old Ben DePasquale, who became severely ill with #MECFS at 18. Doctors thought he maybe depressed and suggested exercise which only made him worse. “He is sick of the medical community seemingly not paying attention.”
November 29, 2025 at 8:06 AM
Clip from a 2011 news segment about 22-year-old Ben DePasquale, who became severely ill with #MECFS at 18. Doctors thought he maybe depressed and suggested exercise which only made him worse. “He is sick of the medical community seemingly not paying attention.”
Clip: BBC Look North 10-year-old Asa has been named Young Person of the Year by SENSE. Asa supports his mum with daily tasks at home after they became disabled with ME/CFS after Covid-19.
November 26, 2025 at 8:11 PM
Clip: BBC Look North 10-year-old Asa has been named Young Person of the Year by SENSE. Asa supports his mum with daily tasks at home after they became disabled with ME/CFS after Covid-19.
Highlights from a 2006 BBC Inside Out segment about 20 yr old Claire Wade, bedbound with severe ME. She fell ill at 10 and lost her entire teenage years to the illness. She spent the last 6 yrs confined to bed, with only letters & emails to connect her to the outside world.
November 26, 2025 at 7:00 AM
Highlights from a 2006 BBC Inside Out segment about 20 yr old Claire Wade, bedbound with severe ME. She fell ill at 10 and lost her entire teenage years to the illness. She spent the last 6 yrs confined to bed, with only letters & emails to connect her to the outside world.
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
November 22, 2025 at 6:15 PM
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
Clip: Julie Heath shares the impact of becoming a carer for her husband and two children with #MECFS, and how she’s become their advocate because they don’t have the energy to do things like speak to their GP. ME/CFS doesn’t just affect individuals it affects whole families.
November 22, 2025 at 11:23 AM
Clip: Julie Heath shares the impact of becoming a carer for her husband and two children with #MECFS, and how she’s become their advocate because they don’t have the energy to do things like speak to their GP. ME/CFS doesn’t just affect individuals it affects whole families.
BBC Points West ran a very short 20-second clip on yesterday’s Westminster debate. Local MP Tessa Munt called for greater NHS support and investment for people with #MECFS. Unfortunately the segment used “extreme tiredness” to describe the main symptom.
November 21, 2025 at 5:00 PM
BBC Points West ran a very short 20-second clip on yesterday’s Westminster debate. Local MP Tessa Munt called for greater NHS support and investment for people with #MECFS. Unfortunately the segment used “extreme tiredness” to describe the main symptom.
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
Highlights — JoPlattMP.bsky.social MP developed #MECFS after #LongCOVID and says these are among the most devastating yet neglected illnesses of our time. She calls for research to match Germany’s €500m pledge & for a severe ME service, with patients dying from nutritional failure.
November 21, 2025 at 6:50 AM
Highlights — JoPlattMP.bsky.social MP developed #MECFS after #LongCOVID and says these are among the most devastating yet neglected illnesses of our time. She calls for research to match Germany’s €500m pledge & for a severe ME service, with patients dying from nutritional failure.
Tessa Munt MP calls for urgent action to accelerate #MECFS research. The UK has spent just £10 million over 12 years — about 60p per patient/year. Four times more went on a helicopter for a former PM, 12 times more on a bat tunnel for HS2. Why isn’t ME a strategic research priority?
November 20, 2025 at 9:09 PM
Tessa Munt MP calls for urgent action to accelerate #MECFS research. The UK has spent just £10 million over 12 years — about 60p per patient/year. Four times more went on a helicopter for a former PM, 12 times more on a bat tunnel for HS2. Why isn’t ME a strategic research priority?
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
November 20, 2025 at 4:49 PM
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
Tessa Munt MP: “ME is perhaps the only condition where the sicker you become, the less care you receive from the NHS.” NHS care for severe ME is nonexistent, over 200 healthcare workers were so concerned they wrote to the Health Secretary 14 months ago but received no response.
November 20, 2025 at 11:51 AM
Tessa Munt MP: “ME is perhaps the only condition where the sicker you become, the less care you receive from the NHS.” NHS care for severe ME is nonexistent, over 200 healthcare workers were so concerned they wrote to the Health Secretary 14 months ago but received no response.
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
November 20, 2025 at 7:04 AM
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
November 19, 2025 at 8:51 PM
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.
November 19, 2025 at 7:01 PM
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.