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calltobase.bsky.social
@calltobase.bsky.social
11 followers 150 following 6 posts
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longcovidadvoc.com
1/ Emily Mendenhall has now responded to criticism of her “threshold” theory and expanded it by invoking polyvagal theory. While framed as biological and integrative, this is possibly out of the frying pan and into the fire territory?
open.substack.com/pub/emilymen...
Thresholds is a Biological Theory that Incorporates Social and Ecological Realities
Thresholds is not a theory of trauma but rather one of entanglements, with a spotlight on biological inflections
open.substack.com
January 21, 2026 at 2:34 AM
Reposted
mileswgriffis.bsky.social
Every time I hear about Davos I can’t help but think of this classic from @juliadoubleday.bsky.social 😷❄️🦠

www.thegauntlet.news/p/billionair...
Billionaires at Davos don't think COVID is a cold
A few weeks ago, the New York Times called mask-wearers "the last holdouts". This week, the world's richest people went to great lengths to protect themselves from COVID
www.thegauntlet.news
January 21, 2026 at 5:01 AM
Reposted
mecfsskeptic.bsky.social
1) 🇧🇪 A small Belgian study reports that patients with ME/CFS and FM might have abnormalities in the opioid system.

They found that the opioid receptor genes were more often methylated, suggesting that these patients might be less sensitive to this type of pain relief.
January 19, 2026 at 9:03 AM
Reposted
drelke.bsky.social
The revelations from yesterday that Wessely intimidated the author by threatening to sue into downplaying her critique of CBT and GET is only part of the story.

There is much more to this book - some positive, but much else needs to be seen critically. Read my essay for more.

#LongCovid
#ME
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · 3d
🗞️We have a fascinating article by guest writer @drelke.bsky.social on Mendenhall's new book 'Invisible Illness'.

Suffice to say there are complexities & controversies...

🖇️ tinyurl.com/vct9n5ez
A promotional graphic with a dark, blurred gradient background. The text reads: "'These are not verifiable conditions' Thoughts on Emily Mendenhall's new book 'Invisible Illness: a history, from hysteria to Long Covid' - by Dr Elke Hausmann. Long Covid Advocacy." The bottom includes the website "LONGCOVIDADVOCACY.SUBSTACK.COM" and a Substack logo.
January 19, 2026 at 7:25 AM
Reposted
cabruce.bsky.social
A very clear, important follow up post from @ABrokenBattery on the #ME Scandal. So important to dig out the terrible damage done from those at the top of the establishment to all pwME. Only then can real progress be made.

ME/CFS Scandal Follow up medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 19, 2026 at 8:14 AM
Reposted
tomkindlon.bsky.social
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest

www.medrxiv.org/content/10.1...

Screenshot from January 2026 AMMES newsletter

#MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Image of someone not moving on a treadmill, looking exhausted Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest Patients with long COVID and ME/CFS displayed higher proportions of type IIa/IIx fibers, and signs of intrinsic mitochondrial dysfunction, observations that were not seen following bed rest. These findings indicate that the lower exercise capacity in patients with long COVID and ME/CFS is not solely due to physical inactivity; therefore rehabilitation strategies for patients should consider that patients with ME/CFS and long COVID are not simply deconditioned, and should be treated as unique cases with alternative rehabilitation strategies. Read more here>>
January 18, 2026 at 8:20 PM
Reposted
longcovidadvoc.com
“Wessely read a version of the writing & threatened to sue me if it didn’t include the other side.” - Mendenhall

This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · 3d
🗞️We have a fascinating article by guest writer @drelke.bsky.social on Mendenhall's new book 'Invisible Illness'.

Suffice to say there are complexities & controversies...

🖇️ tinyurl.com/vct9n5ez
A promotional graphic with a dark, blurred gradient background. The text reads: "'These are not verifiable conditions' Thoughts on Emily Mendenhall's new book 'Invisible Illness: a history, from hysteria to Long Covid' - by Dr Elke Hausmann. Long Covid Advocacy." The bottom includes the website "LONGCOVIDADVOCACY.SUBSTACK.COM" and a Substack logo.
January 18, 2026 at 5:20 PM
Reposted
longcovidadvoc.com
🗞️We have a fascinating article by guest writer @drelke.bsky.social on Mendenhall's new book 'Invisible Illness'.

Suffice to say there are complexities & controversies...

🖇️ tinyurl.com/vct9n5ez
A promotional graphic with a dark, blurred gradient background. The text reads: "'These are not verifiable conditions' Thoughts on Emily Mendenhall's new book 'Invisible Illness: a history, from hysteria to Long Covid' - by Dr Elke Hausmann. Long Covid Advocacy." The bottom includes the website "LONGCOVIDADVOCACY.SUBSTACK.COM" and a Substack logo.
January 18, 2026 at 8:30 AM
Reposted
mecfsskeptic.bsky.social
1) Reminder: the Horizon Europe work program for 2026-2027 includes a call on post-infection long-term conditions. It has a budget of 6-8 million per project and seems ideally suited for ME/CFS and Long Covid research.

The opening date is 10 February 2026.
January 18, 2026 at 8:30 AM
Reposted
tomkindlon.bsky.social
(Florida, USA)

ME/CFS study that is recruiting. Principal Investigator: Nancy Klimas, M.D.

They have been trying to recruit for this study for years

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
 Now Recruiting! The Use of Directed Probiotics in ME/CFS The Institute for Neuro-Immune Medicine at Nova Southeastern University is conducting a research study to evaluate the gut immune interactions and whether resetting your microbiome with the use of a probiotic regimen will help your gut health and perhaps your body as well. Volunteers deemed eligible to participate will be asked to: • Complete two blood sample collections • Take a probiotic once daily for eight weeks • Participate in telephone assessments with our research staff • Complete online questionnaires The study duration will last up to 12 weeks. Who can Participate? INIM Researchers will evaluate the use of probiotics in 100 participants who: Are between 19 to 75 years of age • Meet the Institute of Medicine (Canadian Consensus Criteria) case definition of ME/CFS • May or may not be diagnosed with irritable bowel syndrome (IBS) Volunteers who are deemed eligible to participate and complete the entire study will receive $150 total in compensation. Interested in participating? Want to learn more? Contact us at KanekaStudy@nova.edu Institute for NSU Neuro-Immune Medicine NOVA SOUTHEASTERN UNIVERSITY Florida
January 16, 2026 at 11:53 PM
Reposted
erictopol.bsky.social
Tylenol during pregnancy is safe without increased risk of autism, ADHD, or intellectual disability of offspring
A new review of the evidence just out
www.thelancet.com/journals/lan...
January 16, 2026 at 11:43 PM
Reposted
mecfsskeptic.bsky.social
1) Solve ME/CFS (@PlzSolveCFS) has made an overview of researchers who were supported by a Ramsay grant and went on to win millions of research funding from other institutions.

So, the support of Solve might have acted like a stepping stone to bigger grants.
January 17, 2026 at 8:50 AM
Reposted
mecfsskeptic.bsky.social
1) From the new NIAID vision:

"The NIAID will foster research to better understand long-term post-infectious and non-infectious inflammatory syndromes, such as long COVID, chronic Lyme disease, myalgic encephalitis/chronic fatigue syndrome, and adverse events after vaccination"
January 16, 2026 at 4:15 PM
Reposted
mecfsskeptic.bsky.social
1) A small in-depth study found B-cells from ME/CFS patients to have more lipids. The authors write:"To our surprise, ME/CFS LCLs exhibited an accumulation of lipids including fatty acids"

This could indicate a metabolic deficit or differences in B-cell signalling and receptors
January 16, 2026 at 9:22 AM
Reposted
lucibee.bsky.social
Just published in BMJ Open

Large UK Long Covid cohort study finds that recovery is low and negatively associated with fatigue severity

bmjopen.bmj.com/content/16/1...
Trajectory, healthcare utilisation and recovery in 3590 individuals with long covid: a 4-year prospective cohort analysis
Objective To characterise long-term trajectory of recovery in individuals with long covid. Design Prospective cohort. Setting Single-centre, specialist post-COVID service (London, UK). Participants...
bmjopen.bmj.com
January 15, 2026 at 11:08 AM
Reposted
erictopol.bsky.social
Not good to see the rise in p-tau181, a marker of brain inflammation tied to increased risk of Alzheimer's disease, in a prospective cohort (mean age 56 years) with #LongCovid and neurological symptoms

www.thelancet.com/journals/ebi...
January 15, 2026 at 2:19 AM
Reposted
mecfsskeptic.bsky.social
1) 🇦🇺 Australian researchers claim they have found a "robust biomarker" for ME/CFS, namely a dysfunction of an ion channel in Natural Killer cells.

Unfortunately, there are also a couple of limitations to the study.
January 15, 2026 at 8:44 AM
Reposted
abrokenbattery.bsky.social
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.

youtu.be/eu8Lj_R-OtQ?...
BBC Inside Science - £1.1M ME/CFS and Long Covid Study
YouTube video by Broken Battery
youtu.be
January 8, 2026 at 5:20 PM
Reposted
tomkindlon.bsky.social
News Release (from NCNED in Australia) 12-Jan-2026

New research confirms people with ME/CFS have a consistent faulty cellular structure

www.eurekalert.org/news-release...

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
News Release 12-Jan-2026 New research confirms people with ME/CFS have a consistent faulty cellular structure A faulty ion channel function is a consistent biological feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), providing long-awaited validation for hundreds of thousands of Australians living with the debilitating illness Peer-Reviewed Publication Griffith University image: New research confirms people with ME/CFS have a consistent faulty cellular structure view more Credit: Griffith University A faulty ion channel function is a consistent biological feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), providing long-awaited validation for hundreds of thousands of Australians living with the debilitating illness. The new Griffith University research found a crucial cellular structure responsible for calcium transport, the TRPM3 ion channel, was faulty in immune cells from people with ME/CFS.
January 13, 2026 at 1:27 PM
Reposted
tomkindlon.bsky.social
New from @danielmissailidis.bsky.social et al, researchers in Victoria, Australia

Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/ #ChronicFatigueSyndrome cell lines: a case-control study

link.springer.com/article/10.1...

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis
Screenshot of abstract
January 8, 2026 at 9:30 PM
Reposted
mecfsskeptic.bsky.social
1) In the coming years, we will likely get an answer to a frequently asked question: Is ME/CFS caused by auto-antibodies?

Looking forward to the HLA-results from DecodeME, the Norwegian daratumumab study and sham-controlled trials on immunoadsorption.
January 13, 2026 at 8:48 AM