Elke Hausmann
@drelke.bsky.social
German, English, Spanish
Sociology, Medicine, General Practice
Sociology, Medicine, General Practice
Pinned
Elke Hausmann
@drelke.bsky.social
· Jul 24
BJGPLife: Long Covid and the body: can we move beyond judgements?
bjgplife.com/long-co...
#GeneralPractice #PrimaryCare #FamilyMedicine
bjgplife.com/long-co...
#GeneralPractice #PrimaryCare #FamilyMedicine
It’s a lengthy read, but that’s what we‘ll get to:
‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.
Above all, what we need is liberation from judgements.‘
#LongCovid
‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.
Above all, what we need is liberation from judgements.‘
#LongCovid
Reposted by Elke Hausmann
Following the BBC documentary Poisoned Water, I’ve put together a quick thread about the Camelford water poisoning and Simon Wessely. The thread is on a summary website for anyone who isn’t on Twitter and includes clips and references.
twitter-thread.com/t/1994370580...
twitter-thread.com/t/1994370580...
🧵Wessely and the Camelford water poisoning. by @ABrokenBattery(Adam) | Twitter Thread Reader
🧵Wessely and the Camelford water poisoning.
In 1988, thousands in Camelford were poisoned when 20 tonnes of aluminum sulphate was dumped direct into the water supply. Many suffered serious and lasting...
twitter-thread.com
November 28, 2025 at 11:47 AM
Following the BBC documentary Poisoned Water, I’ve put together a quick thread about the Camelford water poisoning and Simon Wessely. The thread is on a summary website for anyone who isn’t on Twitter and includes clips and references.
twitter-thread.com/t/1994370580...
twitter-thread.com/t/1994370580...
Harrowing viewing #PoisonWater
Aluminium, not ‚anxiety‘.
‚(…) don’t allow your emotions to show to other people who may use them against you. I had to be the man giving straight scientific evidence, no speculation, nothing, just report on what I knew to be correct‘.
www.bbc.co.uk/iplayer/epis...
Aluminium, not ‚anxiety‘.
‚(…) don’t allow your emotions to show to other people who may use them against you. I had to be the man giving straight scientific evidence, no speculation, nothing, just report on what I knew to be correct‘.
www.bbc.co.uk/iplayer/epis...
November 28, 2025 at 5:05 PM
Harrowing viewing #PoisonWater
Aluminium, not ‚anxiety‘.
‚(…) don’t allow your emotions to show to other people who may use them against you. I had to be the man giving straight scientific evidence, no speculation, nothing, just report on what I knew to be correct‘.
www.bbc.co.uk/iplayer/epis...
Aluminium, not ‚anxiety‘.
‚(…) don’t allow your emotions to show to other people who may use them against you. I had to be the man giving straight scientific evidence, no speculation, nothing, just report on what I knew to be correct‘.
www.bbc.co.uk/iplayer/epis...
Reposted by Elke Hausmann
Last month, I found out I have hypermobile Ehlers Danlos Syndrome, after decades of chronic pain and medical disinterest.
I've decided to write publicly about this, not just about hypermobility and its health impacts, but about how it feels when doctors don't care:
medium.com/p/4fea6398b8ba
I've decided to write publicly about this, not just about hypermobility and its health impacts, but about how it feels when doctors don't care:
medium.com/p/4fea6398b8ba
Welcome to my body
After twenty years of pain and repeated medical dead ends, a stranger sent me a message on Instagram. It led to a diagnosis all the doctors…
medium.com
November 26, 2025 at 5:20 PM
Last month, I found out I have hypermobile Ehlers Danlos Syndrome, after decades of chronic pain and medical disinterest.
I've decided to write publicly about this, not just about hypermobility and its health impacts, but about how it feels when doctors don't care:
medium.com/p/4fea6398b8ba
I've decided to write publicly about this, not just about hypermobility and its health impacts, but about how it feels when doctors don't care:
medium.com/p/4fea6398b8ba
Reposted by Elke Hausmann
🧵1️⃣ It’s UK Budget Day - so here’s a budget #RachelReeves hasn’t announced: a proper Long Covid Budget. We've estimated the real economic burden of Long Covid at £12-15 BILLION A YEAR.
At a £ a minute that puts us back in 26,500 BC - the Late Upper Paleolithic 😳
#Budget2026
At a £ a minute that puts us back in 26,500 BC - the Late Upper Paleolithic 😳
#Budget2026
November 26, 2025 at 11:18 AM
🧵1️⃣ It’s UK Budget Day - so here’s a budget #RachelReeves hasn’t announced: a proper Long Covid Budget. We've estimated the real economic burden of Long Covid at £12-15 BILLION A YEAR.
At a £ a minute that puts us back in 26,500 BC - the Late Upper Paleolithic 😳
#Budget2026
At a £ a minute that puts us back in 26,500 BC - the Late Upper Paleolithic 😳
#Budget2026
November 26, 2025 at 8:18 AM
Reposted by Elke Hausmann
🧵#CLoCK Update
New paper released on #longcovid paediatric fatigue that demonstrates UK research culture has not made the vital steps needed to meet need or understand the disease.
Let's critically assess the issues:
/1
New paper released on #longcovid paediatric fatigue that demonstrates UK research culture has not made the vital steps needed to meet need or understand the disease.
Let's critically assess the issues:
/1
November 25, 2025 at 8:01 PM
🧵#CLoCK Update
New paper released on #longcovid paediatric fatigue that demonstrates UK research culture has not made the vital steps needed to meet need or understand the disease.
Let's critically assess the issues:
/1
New paper released on #longcovid paediatric fatigue that demonstrates UK research culture has not made the vital steps needed to meet need or understand the disease.
Let's critically assess the issues:
/1
Reposted by Elke Hausmann
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.
substack.com/home/post/p-...
substack.com/home/post/p-...
November 24, 2025 at 11:30 PM
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by Elke Hausmann
Schaden entsteht nicht durch Inhalt (Post COVID, ME/CFS = „psychosomatisch“), sondern durch:
systemische Wiederholung,
selektive Wahrnehmung,
Ausschluss realer Evidenz,
Abwertung von Erlebten,
Normierung der Deutung,
Immunisierung gegen Kritik,
mediale Macht,
institutionelle Abstützung
+ Schweigen.
systemische Wiederholung,
selektive Wahrnehmung,
Ausschluss realer Evidenz,
Abwertung von Erlebten,
Normierung der Deutung,
Immunisierung gegen Kritik,
mediale Macht,
institutionelle Abstützung
+ Schweigen.
November 24, 2025 at 9:07 AM
Schaden entsteht nicht durch Inhalt (Post COVID, ME/CFS = „psychosomatisch“), sondern durch:
systemische Wiederholung,
selektive Wahrnehmung,
Ausschluss realer Evidenz,
Abwertung von Erlebten,
Normierung der Deutung,
Immunisierung gegen Kritik,
mediale Macht,
institutionelle Abstützung
+ Schweigen.
systemische Wiederholung,
selektive Wahrnehmung,
Ausschluss realer Evidenz,
Abwertung von Erlebten,
Normierung der Deutung,
Immunisierung gegen Kritik,
mediale Macht,
institutionelle Abstützung
+ Schweigen.
Reposted by Elke Hausmann
Thirty-one years ago today. The Evening Telegraph, Derby, England. 23rd November 1994.
"Mrs Duval said: "The damage these people do is profound - they upset sufferers and their families by choosing to ignore all the evidence"".
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
"Mrs Duval said: "The damage these people do is profound - they upset sufferers and their families by choosing to ignore all the evidence"".
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 23, 2025 at 7:49 AM
Thirty-one years ago today. The Evening Telegraph, Derby, England. 23rd November 1994.
"Mrs Duval said: "The damage these people do is profound - they upset sufferers and their families by choosing to ignore all the evidence"".
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
"Mrs Duval said: "The damage these people do is profound - they upset sufferers and their families by choosing to ignore all the evidence"".
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
Reposted by Elke Hausmann
1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
November 22, 2025 at 8:39 AM
1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
Reposted by Elke Hausmann
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
November 22, 2025 at 6:15 PM
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
Reposted by Elke Hausmann
🧵 Thread: The Economic Cost of Long Covid – new 2025 study in Nature
1/ A new paper has modelled the economic burden of Long Covid in the U.S. and globally. Spoiler: it’s massive. Here’s a breakdown. 👇
1/ A new paper has modelled the economic burden of Long Covid in the U.S. and globally. Spoiler: it’s massive. Here’s a breakdown. 👇
November 22, 2025 at 5:08 PM
🧵 Thread: The Economic Cost of Long Covid – new 2025 study in Nature
1/ A new paper has modelled the economic burden of Long Covid in the U.S. and globally. Spoiler: it’s massive. Here’s a breakdown. 👇
1/ A new paper has modelled the economic burden of Long Covid in the U.S. and globally. Spoiler: it’s massive. Here’s a breakdown. 👇
Reposted by Elke Hausmann
Trial By Error: Another Exercise Trial with Clinically Insignificant Findings By David Tuller @davetuller1.bsky.social
virology.ws/2025/11/21/t...
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC
virology.ws/2025/11/21/t...
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC
Trial By Error: Another Exercise Trial with Clinically Insignificant Findings | Virology Blog
By David Tuller, DrPH A recent study from JAMA Network Open, called “Resistance Exercise Therapy After COVID-19 Infection: A Randomized Clinical Trial,” dem ...
virology.ws
November 21, 2025 at 8:55 PM
Trial By Error: Another Exercise Trial with Clinically Insignificant Findings By David Tuller @davetuller1.bsky.social
virology.ws/2025/11/21/t...
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC
virology.ws/2025/11/21/t...
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC
Reposted by Elke Hausmann
1/8
Auftaktveranstaltung der
„Allianz postinfektiöse Erkrankungen: #LongCOVID,
#MECFS“,
eingeladen vom
@bmg-bund.bsky.social und BMFTR .
Ein historischer Schritt:
Mit rund 50 Mio. Euro jährlich (insgs ½ Milliarde) wird nun erstmals eine Dekade biomedizinischer #MECFS #PAIS
Forschung möglich.
Auftaktveranstaltung der
„Allianz postinfektiöse Erkrankungen: #LongCOVID,
#MECFS“,
eingeladen vom
@bmg-bund.bsky.social und BMFTR .
Ein historischer Schritt:
Mit rund 50 Mio. Euro jährlich (insgs ½ Milliarde) wird nun erstmals eine Dekade biomedizinischer #MECFS #PAIS
Forschung möglich.
November 21, 2025 at 5:54 AM
1/8
Auftaktveranstaltung der
„Allianz postinfektiöse Erkrankungen: #LongCOVID,
#MECFS“,
eingeladen vom
@bmg-bund.bsky.social und BMFTR .
Ein historischer Schritt:
Mit rund 50 Mio. Euro jährlich (insgs ½ Milliarde) wird nun erstmals eine Dekade biomedizinischer #MECFS #PAIS
Forschung möglich.
Auftaktveranstaltung der
„Allianz postinfektiöse Erkrankungen: #LongCOVID,
#MECFS“,
eingeladen vom
@bmg-bund.bsky.social und BMFTR .
Ein historischer Schritt:
Mit rund 50 Mio. Euro jährlich (insgs ½ Milliarde) wird nun erstmals eine Dekade biomedizinischer #MECFS #PAIS
Forschung möglich.
Deadline: 12 December. If everyone who lost a job or knows someone who lost a job in the #NHS to #LongCovid responded, maybe the NHS could rethink exposing its workers to #Covid with no PPE. Roughly 1 in 3 people losing jobs as a result of having Long Covid are health or social care workers.
The #NHSProductivityCommission Call for Evidence is a chance for you to share your ideas about how productivity could be improved across hospital care, primary care, community care and mental health.
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
November 21, 2025 at 1:36 PM
Reposted by Elke Hausmann
From 5:27, listen to #LongCovid lived experience from Jade, Laura about daughter Molly, and Martin.
BBC: 'UK Covid Inquiry: Response 'too little, too late'
'We get more details from our reporter and hear from people who suffered from long Covid symptoms.'
www.bbc.com/audio/play/w...
'We get more details from our reporter and hear from people who suffered from long Covid symptoms.'
www.bbc.com/audio/play/w...
BBC Audio | BBC OS | UK Covid Inquiry: Response 'too little, too late'
The report says a mandatory lockdown could have been avoided
www.bbc.com
November 20, 2025 at 10:00 PM
From 5:27, listen to #LongCovid lived experience from Jade, Laura about daughter Molly, and Martin.
Reposted by Elke Hausmann
Today, as the #CovidInquiry releases its module 2 report, we are thinking especially of everyone who will have to relive the trauma of that time, who will have to hear of the government failings that led to their loved ones' deaths.
We will never forget our beloved dead. ❤️
We will never forget our beloved dead. ❤️
November 20, 2025 at 10:20 AM
Today, as the #CovidInquiry releases its module 2 report, we are thinking especially of everyone who will have to relive the trauma of that time, who will have to hear of the government failings that led to their loved ones' deaths.
We will never forget our beloved dead. ❤️
We will never forget our beloved dead. ❤️
Reposted by Elke Hausmann
UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support.
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
November 20, 2025 at 5:37 PM
UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support.
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
Reposted by Elke Hausmann
1/ The Covid Inquiry's Module 2 report confirms critical failures at the highest levels of government, failures that have left millions with Long Covid and inadequate support.
We've drafted a press release in response:
www.longcovid.org/impact/news/...
We've drafted a press release in response:
www.longcovid.org/impact/news/...
Long Covid Support
To learn more visit LongCovid.org
www.longcovid.org
November 20, 2025 at 6:21 PM
1/ The Covid Inquiry's Module 2 report confirms critical failures at the highest levels of government, failures that have left millions with Long Covid and inadequate support.
We've drafted a press release in response:
www.longcovid.org/impact/news/...
We've drafted a press release in response:
www.longcovid.org/impact/news/...
‚And here’s the part the government still refuses to face: Long Covid was not considered at all. Not in early planning, not in risk assessments, not in public communication. /5‘
#LongCovid
#LongCovid
The UK Covid-19 Inquiry confirms what our communities have lived for years: the government’s pandemic response wasn’t just a failure - it was a historic abandonment. “Too little, too late” doesn’t capture the scale of the harm. /1
November 20, 2025 at 6:15 PM
‚And here’s the part the government still refuses to face: Long Covid was not considered at all. Not in early planning, not in risk assessments, not in public communication. /5‘
#LongCovid
#LongCovid
Reposted by Elke Hausmann
There should be infinitely more interest in this medical mystery.
How many doctors can even name the phenomenon described below?
I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)
#MedSky
How many doctors can even name the phenomenon described below?
I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)
#MedSky
November 20, 2025 at 8:13 AM
There should be infinitely more interest in this medical mystery.
How many doctors can even name the phenomenon described below?
I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)
#MedSky
How many doctors can even name the phenomenon described below?
I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)
#MedSky
Reposted by Elke Hausmann
M.E. = Myalgic Encephalomyelitis
ME Essential is the magazine for members of the (UK) ME Association
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
ME Essential is the magazine for members of the (UK) ME Association
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 19, 2025 at 10:47 PM
M.E. = Myalgic Encephalomyelitis
ME Essential is the magazine for members of the (UK) ME Association
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
ME Essential is the magazine for members of the (UK) ME Association
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME