Teunke Arvo
@teunkearvo.bsky.social
Independent historical researcher (involuntarily self-taught), writing at a frustratingly slow 🐌 pace due to severe chronic illness.
Reposted by Teunke Arvo
Alice Wong was one of the most effective people challenging the Whiteness of disability communities and its many flaws, but who believed fiercely in us as a community, in disabled people as oracles.
Alice brought so much to so many of us, it’s hard to measure the kind of gratitude I have for that.
Alice brought so much to so many of us, it’s hard to measure the kind of gratitude I have for that.
November 15, 2025 at 1:34 PM
Alice Wong was one of the most effective people challenging the Whiteness of disability communities and its many flaws, but who believed fiercely in us as a community, in disabled people as oracles.
Alice brought so much to so many of us, it’s hard to measure the kind of gratitude I have for that.
Alice brought so much to so many of us, it’s hard to measure the kind of gratitude I have for that.
Reposted by Teunke Arvo
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
November 15, 2025 at 7:52 AM
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
Reposted by Teunke Arvo
“I'm honored to be your ancestor & believe disabled oracles like us will light the way to the future.”
I’m crying. I didn’t know Alice Wong personally, but as a disabled person I felt her kinship & I’ll carry her as an ancestor for however long I have left on this earth 💔
bsky.app/profile/drsh...
I’m crying. I didn’t know Alice Wong personally, but as a disabled person I felt her kinship & I’ll carry her as an ancestor for however long I have left on this earth 💔
bsky.app/profile/drsh...
From her account on FB (text in alt tag).
November 15, 2025 at 6:55 AM
“I'm honored to be your ancestor & believe disabled oracles like us will light the way to the future.”
I’m crying. I didn’t know Alice Wong personally, but as a disabled person I felt her kinship & I’ll carry her as an ancestor for however long I have left on this earth 💔
bsky.app/profile/drsh...
I’m crying. I didn’t know Alice Wong personally, but as a disabled person I felt her kinship & I’ll carry her as an ancestor for however long I have left on this earth 💔
bsky.app/profile/drsh...
Reposted by Teunke Arvo
I am so sad to hear of Alice Wong’s passing. She was an amazing person and activist and I valued her words and ideas immensely.
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 9:55 AM
I am so sad to hear of Alice Wong’s passing. She was an amazing person and activist and I valued her words and ideas immensely.
Really difficult to see the fibro community enthusiastically and unsuspectingly share a preprint on fibromygia that is obviously part of the bps movement’s current efforts to create a biological underpinning for their psychosomatic claims, and which undermines fibro as a biomedical illness.
This preprint is part of the current frantic efforts of the psychosomatic/bps movement to keep their slipping hold on these conditions by “proving” the biology of their claim that they are primarily a matter of perception & psyche-driven, to be helped with mind-body interventions. 1/x
November 15, 2025 at 9:43 AM
Really difficult to see the fibro community enthusiastically and unsuspectingly share a preprint on fibromygia that is obviously part of the bps movement’s current efforts to create a biological underpinning for their psychosomatic claims, and which undermines fibro as a biomedical illness.
Reposted by Teunke Arvo
New from the Maureen Hanson team in the US
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
November 14, 2025 at 12:47 PM
New from the Maureen Hanson team in the US
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Reposted by Teunke Arvo
Ive been revisiting my dissertation and I just cannot say enough about good journalism. To the brave reporters who go where no one else will, and despite push back will cover what they feel will bring justice to those impacted. My dissertation work relied on reporting from the early 2000s and
November 14, 2025 at 5:35 PM
Ive been revisiting my dissertation and I just cannot say enough about good journalism. To the brave reporters who go where no one else will, and despite push back will cover what they feel will bring justice to those impacted. My dissertation work relied on reporting from the early 2000s and
Reposted by Teunke Arvo
Absolutely correct. So much of the discourse around restoring trust in the institutions is focused on decorum and civility theater. But why would anyone trust the institutions if, after the horror show that we are suffering through, they yet again fail to impose some measure of real accountability?
Something the US needs to accept too is that without a large-scale correction imposing consequences on a large number of people, the crisis of governance here will continue indefinitely
November 14, 2025 at 4:12 PM
Absolutely correct. So much of the discourse around restoring trust in the institutions is focused on decorum and civility theater. But why would anyone trust the institutions if, after the horror show that we are suffering through, they yet again fail to impose some measure of real accountability?
Reposted by Teunke Arvo
Medicine: "We wish patients were more engaged in care."
Patient: Comes organized with top 3 symptoms, conditions already ruled out, relevant imaging and testing conducted,...
Medicine: "It appears that you are hyperfixated on your symptoms and spend too much time on Google. Dx: psychosomatic."
🙃
Patient: Comes organized with top 3 symptoms, conditions already ruled out, relevant imaging and testing conducted,...
Medicine: "It appears that you are hyperfixated on your symptoms and spend too much time on Google. Dx: psychosomatic."
🙃
November 14, 2025 at 8:50 AM
Medicine: "We wish patients were more engaged in care."
Patient: Comes organized with top 3 symptoms, conditions already ruled out, relevant imaging and testing conducted,...
Medicine: "It appears that you are hyperfixated on your symptoms and spend too much time on Google. Dx: psychosomatic."
🙃
Patient: Comes organized with top 3 symptoms, conditions already ruled out, relevant imaging and testing conducted,...
Medicine: "It appears that you are hyperfixated on your symptoms and spend too much time on Google. Dx: psychosomatic."
🙃
Reposted by Teunke Arvo
Geweldig nieuws!
Duitsland gaat 500 miljoen investeren in onderzoek naar #MEcvs!
www.spiegel.de/politik/karl...
Duitsland gaat 500 miljoen investeren in onderzoek naar #MEcvs!
www.spiegel.de/politik/karl...
November 13, 2025 at 9:52 PM
Geweldig nieuws!
Duitsland gaat 500 miljoen investeren in onderzoek naar #MEcvs!
www.spiegel.de/politik/karl...
Duitsland gaat 500 miljoen investeren in onderzoek naar #MEcvs!
www.spiegel.de/politik/karl...
Reposted by Teunke Arvo
Today is a good day to remember, and to say, that the #MeToo movement was right, and was righteous, and has been vindicated over and over again. There was no overreach. There was no excess. There was no they-went-too-far.
So much work remains to be done.
So much work remains to be done.
November 12, 2025 at 11:16 PM
Today is a good day to remember, and to say, that the #MeToo movement was right, and was righteous, and has been vindicated over and over again. There was no overreach. There was no excess. There was no they-went-too-far.
So much work remains to be done.
So much work remains to be done.
Reposted by Teunke Arvo
treatment strategies. Its research will focus on examining the role of Epstein-Barr virus (EBV) as the driving force behind misdirected, autoreactive T and B cell responses, and thus as the cause of ME/CFS.
November 13, 2025 at 4:10 AM
treatment strategies. Its research will focus on examining the role of Epstein-Barr virus (EBV) as the driving force behind misdirected, autoreactive T and B cell responses, and thus as the cause of ME/CFS.
Reposted by Teunke Arvo
The consortium project CURE-ME (Characterizing AUtoimmuneREsponses and Defining Targets in #ME/CFS) between the Berlin Institute of Health at Charité (BIH), Charité –Universitätsmedizin Berlin and the Technical University of Munich (TUM) will receive a total of €1,817,508 in grant funding from
EBV may trigger autoreactivity and cause ME/CFS – BIH-led CURE-ME research project awarded federal funding - News - BIH at Charité
The consortium project CURE-ME (Characterizing AUtoimmuneREsponses and Defining Targets in ME/CFS) between the Berlin Institute of Health at Charité (BIH), Charité –Universitätsmedizin Berlin and the ...
www.bihealth.org
November 13, 2025 at 4:10 AM
The consortium project CURE-ME (Characterizing AUtoimmuneREsponses and Defining Targets in #ME/CFS) between the Berlin Institute of Health at Charité (BIH), Charité –Universitätsmedizin Berlin and the Technical University of Munich (TUM) will receive a total of €1,817,508 in grant funding from
“Early findings indicate that Epstein-Barr Virus may also cause the autoimmune disease lupus”
#EBV #Lupus
www.scientificamerican.com/article/the-...
#EBV #Lupus
www.scientificamerican.com/article/the-...
The Virus That Causes Mono May Also Cause Lupus
Early findings indicate that Epstein-Barr Virus may also cause the autoimmune disease lupus
www.scientificamerican.com
November 13, 2025 at 7:44 AM
“Early findings indicate that Epstein-Barr Virus may also cause the autoimmune disease lupus”
#EBV #Lupus
www.scientificamerican.com/article/the-...
#EBV #Lupus
www.scientificamerican.com/article/the-...
Reposted by Teunke Arvo
Germany’s Schön Klinik surveyed 3,345 people with long COVID.
Only 36% saw improvement after nearly 3 years of symptoms.
Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor.
www.thieme-connect.de/products/ejo...
Only 36% saw improvement after nearly 3 years of symptoms.
Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor.
www.thieme-connect.de/products/ejo...
Thieme E-Journals - Pneumologie / Abstract
Thieme E-Books & E-Journals
www.thieme-connect.de
November 12, 2025 at 4:15 PM
Germany’s Schön Klinik surveyed 3,345 people with long COVID.
Only 36% saw improvement after nearly 3 years of symptoms.
Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor.
www.thieme-connect.de/products/ejo...
Only 36% saw improvement after nearly 3 years of symptoms.
Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor.
www.thieme-connect.de/products/ejo...
Reposted by Teunke Arvo
Reposted by Teunke Arvo
Wegbereider van het nieuwe fascisme www.vn.nl/langs-de-fas...
November 12, 2025 at 2:39 AM
Wegbereider van het nieuwe fascisme www.vn.nl/langs-de-fas...
Reposted by Teunke Arvo
1) In-depth Canadian study on 78 Long Covid patients with ME/CFS. They compared these to 62 controls who were infected by SARS-CoV-2 but did not develop complications.
Too many findings to mention them all, but here are some interesting results...
Too many findings to mention them all, but here are some interesting results...
November 12, 2025 at 10:07 AM
1) In-depth Canadian study on 78 Long Covid patients with ME/CFS. They compared these to 62 controls who were infected by SARS-CoV-2 but did not develop complications.
Too many findings to mention them all, but here are some interesting results...
Too many findings to mention them all, but here are some interesting results...
Reposted by Teunke Arvo
I was the young, fit, healthy person TPTB insist would be just fine contracting Covid. My long-Covid isn’t as severe as Jessica’s but it destroyed my life nonetheless, permanently derailing my career due to irreversible brain damage MCAS, clots, fatigue, and progressive organ damage.
Mask up.
Mask up.
So I try not to give too many gory details about life with long covid, but I also think it’s important to give a clear picture of what can happen to anyone.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
November 12, 2025 at 10:22 AM
I was the young, fit, healthy person TPTB insist would be just fine contracting Covid. My long-Covid isn’t as severe as Jessica’s but it destroyed my life nonetheless, permanently derailing my career due to irreversible brain damage MCAS, clots, fatigue, and progressive organ damage.
Mask up.
Mask up.
Reposted by Teunke Arvo
France: "Wearing a mask is once again mandatory in Paris hospitals"
"Faced with a rapid rise in respiratory infections, several hospitals in the Île-de-France region have decided to reinstate mandatory mask-wearing for healthcare workers, visitors, and patients over the age of 6."
archive.li/ZeKtJ
"Faced with a rapid rise in respiratory infections, several hospitals in the Île-de-France region have decided to reinstate mandatory mask-wearing for healthcare workers, visitors, and patients over the age of 6."
archive.li/ZeKtJ
November 12, 2025 at 8:02 AM
France: "Wearing a mask is once again mandatory in Paris hospitals"
"Faced with a rapid rise in respiratory infections, several hospitals in the Île-de-France region have decided to reinstate mandatory mask-wearing for healthcare workers, visitors, and patients over the age of 6."
archive.li/ZeKtJ
"Faced with a rapid rise in respiratory infections, several hospitals in the Île-de-France region have decided to reinstate mandatory mask-wearing for healthcare workers, visitors, and patients over the age of 6."
archive.li/ZeKtJ
Reposted by Teunke Arvo
“Het ontnemen van verhalen, en van het vermogen om ze te vertellen, is een buitengewoon belangrijke stap in ontmenselijking. Daarmee maak je [mensen tot] iets wat er eigenlijk al niet meer is.”
Voor @oneworld.nl interviewde ik een van de belangrijkste stemmen van dit moment. 👇
Voor @oneworld.nl interviewde ik een van de belangrijkste stemmen van dit moment. 👇
INTERVIEW I De Amerikaanse schrijver Ta-Nehisi Coates, wiens bekroonde werk op sommige scholen verboden is, roept op ‘te vechten’ voor kunst, cultuur en onvertelde verhalen in tijden van autocratie. ‘Door mensen hun verhalen te ontnemen, maak je het makkelijker ze te doden.’
Schrijver Ta-Nehisi Coates: 'We móeten vechten voor onvertelde verhalen'
De Amerikaanse schrijver Ta-Nehisi Coates, wiens bekroonde werk op sommige scholen wordt verboden, roept op ‘te vechten’ voor kunst, cultuur en zelfbevrijding in tijden van autocratie. Want verhalen, ...
www.oneworld.nl
November 12, 2025 at 8:33 AM
“Het ontnemen van verhalen, en van het vermogen om ze te vertellen, is een buitengewoon belangrijke stap in ontmenselijking. Daarmee maak je [mensen tot] iets wat er eigenlijk al niet meer is.”
Voor @oneworld.nl interviewde ik een van de belangrijkste stemmen van dit moment. 👇
Voor @oneworld.nl interviewde ik een van de belangrijkste stemmen van dit moment. 👇
“….I feel like I’m waiting for some fever to break, but it never does. While I lost my ability to walk down the street as a 38-year-old, no one would acknowledge anything was wrong, nor acknowledge why I might want to avoid another infection. “We’re back to normal,” says the Blob, “this is normal.”
Living with Long COVID often feels like living in a horror movie. Along with your disease comes a creepy Hive Mind refusal to acknowledge the dangers of COVID infection. In Vince Gilligan's new Apple TV show Pluribus, the Hive Mind comes to life:
www.thegauntlet.news/p/pluribus-c...
www.thegauntlet.news/p/pluribus-c...
"Pluribus" captures the isolation of COVID-awareness in a COVID denialist world
For years I've described having Long COVID as living in a horror movie. Now that horror movie (well, prestige Apple TV show) is here.
www.thegauntlet.news
November 12, 2025 at 8:08 AM
“….I feel like I’m waiting for some fever to break, but it never does. While I lost my ability to walk down the street as a 38-year-old, no one would acknowledge anything was wrong, nor acknowledge why I might want to avoid another infection. “We’re back to normal,” says the Blob, “this is normal.”
Reposted by Teunke Arvo
8/
Clean air. Masks. Precautions. These aren’t inconveniences. They are the line between staying whole and watching your health slip away, wave by wave.
Clean air. Masks. Precautions. These aren’t inconveniences. They are the line between staying whole and watching your health slip away, wave by wave.
August 27, 2025 at 12:15 AM
8/
Clean air. Masks. Precautions. These aren’t inconveniences. They are the line between staying whole and watching your health slip away, wave by wave.
Clean air. Masks. Precautions. These aren’t inconveniences. They are the line between staying whole and watching your health slip away, wave by wave.
Reposted by Teunke Arvo
Capitalism says productivity is the most important metric in determining value
That you must “earn” everything, even food, housing and healthcare.
How do you earn it? By working until you die.
It teaches people to see children, the elderly & disabled as expendable.
It enriches the wealthy only
That you must “earn” everything, even food, housing and healthcare.
How do you earn it? By working until you die.
It teaches people to see children, the elderly & disabled as expendable.
It enriches the wealthy only
November 11, 2025 at 9:27 AM
Capitalism says productivity is the most important metric in determining value
That you must “earn” everything, even food, housing and healthcare.
How do you earn it? By working until you die.
It teaches people to see children, the elderly & disabled as expendable.
It enriches the wealthy only
That you must “earn” everything, even food, housing and healthcare.
How do you earn it? By working until you die.
It teaches people to see children, the elderly & disabled as expendable.
It enriches the wealthy only
Reposted by Teunke Arvo
November 10, 2025 at 1:03 PM