Miranda
@crookedneighbor.bsky.social
Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
LongCovidSafety.net
Pinned
Miranda
@crookedneighbor.bsky.social
· Jul 10
Escalating Anti-Homeless Policies Fall Hardest on Disabled People in the US
As legislative attacks on unhoused people ramp up, disabled people are on the front lines.
truthout.org
I've spent the past year trying to help my friends get housing and keep them out of nursing homes. @longcovidsafetynet.bsky.social is the labor of love and frustration that has come out of this struggle.
truthout.org/articles/esc...
truthout.org/articles/esc...
Sharing from a long-time organizing comrade. Their friend is housing insecure and trying to make it back to NYC within the next month for stable housing. Please support if you can!
December 8, 2025 at 11:24 PM
Sharing from a long-time organizing comrade. Their friend is housing insecure and trying to make it back to NYC within the next month for stable housing. Please support if you can!
Reposted by Miranda
If every one of my 3000+ followers could give Désirée $2, she'd exceed her goal for getting safe housing. I know that everyone won't see this, but if you do see it and have $5 or a bit more to spare, please consider it.
gofund.me/cfd069ce3
gofund.me/cfd069ce3
Donate to Help First Gen Immigrant Get Documents, Survive Homelessness, organized by Sam Dylan Finch
Dear community,
The story of what my friend has endured i… Sam Dylan Finch needs your support for Help First Gen Immigrant Get Documents, Survive Homelessness
gofund.me
November 1, 2025 at 4:42 AM
If every one of my 3000+ followers could give Désirée $2, she'd exceed her goal for getting safe housing. I know that everyone won't see this, but if you do see it and have $5 or a bit more to spare, please consider it.
gofund.me/cfd069ce3
gofund.me/cfd069ce3
I desperately want the shingles vax even though I'm "too young." Had chicken pox at 14 (unvaccinated--it was so rare at the time that the doctor called all their staff over to see what it looked like). Got a staph infection because of the open wounds. Staph infection gave me permanent nerve damage.
All over my FB people talking about their bad experiences with shingles vax and dissuading each other from getting it! We need to give people real info on how to mitigate the symtoms caused by vaccines because vaccines are always better than meeting a virus unprepared. Yet drs aren't coaching ppl
December 8, 2025 at 7:04 PM
I desperately want the shingles vax even though I'm "too young." Had chicken pox at 14 (unvaccinated--it was so rare at the time that the doctor called all their staff over to see what it looked like). Got a staph infection because of the open wounds. Staph infection gave me permanent nerve damage.
Reposted by Miranda
I'll be writing about #LongCOVID trials in kids for
@thesicktimes.org.
With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch.
recovercovid.org/news/recover...
@thesicktimes.org.
With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch.
recovercovid.org/news/recover...
RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
recovercovid.org
December 5, 2025 at 2:16 PM
I'll be writing about #LongCOVID trials in kids for
@thesicktimes.org.
With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch.
recovercovid.org/news/recover...
@thesicktimes.org.
With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch.
recovercovid.org/news/recover...
Reposted by Miranda
The white & classist oppression of many "COVID-cautious" people also helped push a mask bloc cofounder into houselessness. It's been almost a year & things haven't improved.
They could use financial support ($ app: $PoetJaleane) if you're willing to share.
bsky.app/profile/wort...
They could use financial support ($ app: $PoetJaleane) if you're willing to share.
bsky.app/profile/wort...
The Black, trans, disabled cofounder of a mask bloc is houseless & isolated. They've been sleeping in freezing cold for over a week & are running out of options.
Below is a link to a non-amazon wishlist that also has methods for donating $. Are you willing to share/boost?
tinyurl.com/supportDiJ
Below is a link to a non-amazon wishlist that also has methods for donating $. Are you willing to share/boost?
tinyurl.com/supportDiJ
DiJ they/them's List - Support DiJ in Being on Giftster
Shop DiJ they/them's public wish list registry, named Support DiJ in Being, last updated December 5, 2025 on Giftster
tinyurl.com
December 8, 2025 at 1:54 AM
The white & classist oppression of many "COVID-cautious" people also helped push a mask bloc cofounder into houselessness. It's been almost a year & things haven't improved.
They could use financial support ($ app: $PoetJaleane) if you're willing to share.
bsky.app/profile/wort...
They could use financial support ($ app: $PoetJaleane) if you're willing to share.
bsky.app/profile/wort...
Reposted by Miranda
As people support me & @lizzietask.bsky.social w mutual aid — I can’t help think people haven’t been as generous w another survivor w a now over-the-rainbow bridge pup. The obvious difference is I’m white — naming that
As someone inside because of mutual aid, I’m asking you to share (the post & $)
As someone inside because of mutual aid, I’m asking you to share (the post & $)
i'll be on the streets tmrw.
it's snowing outside.
my ESA dog & only family died a few days ago.
i can't live in a car sans title (takes at least 8 wks to arrive).
i have no delusions that i'll be able to raise enough to pay for an indoor stay thru Dec by 12/5.
but if you can help, i'd be thankful.
it's snowing outside.
my ESA dog & only family died a few days ago.
i can't live in a car sans title (takes at least 8 wks to arrive).
i have no delusions that i'll be able to raise enough to pay for an indoor stay thru Dec by 12/5.
but if you can help, i'd be thankful.
December 7, 2025 at 9:17 AM
As people support me & @lizzietask.bsky.social w mutual aid — I can’t help think people haven’t been as generous w another survivor w a now over-the-rainbow bridge pup. The obvious difference is I’m white — naming that
As someone inside because of mutual aid, I’m asking you to share (the post & $)
As someone inside because of mutual aid, I’m asking you to share (the post & $)
Reposted by Miranda
This man did a photo opp of himself destroying homeless people's last possessions.
California Governor Gavin Newsom said on Thursday that the Democratic Party needed to be “more culturally normal” and “less judgmental.”
December 7, 2025 at 1:36 AM
This man did a photo opp of himself destroying homeless people's last possessions.
Reposted by Miranda
For context Chalder was one of the primary investigators on the infamous PACE graded exercise therapy trial.
She spent her career focusing on psychosocial factors with #MECFS and believes you can treat it with CBT.
She now has a study on #LongCovid showing up on Visible.
She spent her career focusing on psychosocial factors with #MECFS and believes you can treat it with CBT.
She now has a study on #LongCovid showing up on Visible.
1️⃣ Visible Health has launched a local clinical trial feature. One of the first surfacing to users is an ACT (Acceptance & Commitment Therapy) trial led by Trudie Chalder, a researcher whose work has been highly controversial in ME. This raises important patient-safety concerns.
December 6, 2025 at 8:56 PM
For context Chalder was one of the primary investigators on the infamous PACE graded exercise therapy trial.
She spent her career focusing on psychosocial factors with #MECFS and believes you can treat it with CBT.
She now has a study on #LongCovid showing up on Visible.
She spent her career focusing on psychosocial factors with #MECFS and believes you can treat it with CBT.
She now has a study on #LongCovid showing up on Visible.
Reposted by Miranda
Kasey Bonifacio's 13 Days of Accessibility is a great way to dig into the Web Content Accessibility Guidelines, which are international standards used to measure accessibility. Kasey's resource makes WCAG more digestible.
a11ycalendar.kaseybon.com
a11ycalendar.kaseybon.com
13 Days of Accessibility
Review the 13 WCAG 2.1 guidelines that web designers and developers can follow to create accessible websites.
a11ycalendar.kaseybon.com
December 6, 2025 at 9:50 PM
Kasey Bonifacio's 13 Days of Accessibility is a great way to dig into the Web Content Accessibility Guidelines, which are international standards used to measure accessibility. Kasey's resource makes WCAG more digestible.
a11ycalendar.kaseybon.com
a11ycalendar.kaseybon.com
Reposted by Miranda
I have felt like vomiting every day for over a month, lost so much weight trapped in the yt racist, physical violence of Karen Traite & Joe Levy, whose initial offer to stay I declined.
But their abuse violence shame is not mine to hold.
Esmé, I am sorry I couldn’t get you out of there sooner.
But their abuse violence shame is not mine to hold.
Esmé, I am sorry I couldn’t get you out of there sooner.
December 6, 2025 at 3:55 PM
I have felt like vomiting every day for over a month, lost so much weight trapped in the yt racist, physical violence of Karen Traite & Joe Levy, whose initial offer to stay I declined.
But their abuse violence shame is not mine to hold.
Esmé, I am sorry I couldn’t get you out of there sooner.
But their abuse violence shame is not mine to hold.
Esmé, I am sorry I couldn’t get you out of there sooner.
I believe @sndesireecha.bsky.social is spot-on in her critique of the covid-cautious community here. A huge percentage of these people (many of whom are white, and all of whom I presume are housed) are really only interested in masking etc. as a way to protect themselves and their nuclear families.
Please read this full thread, donate to Désirée's GFM if you can, and show up for your homeless neighbors.
This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.
gofund.me/6b8af16ac
This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.
gofund.me/6b8af16ac
December 6, 2025 at 3:59 PM
I believe @sndesireecha.bsky.social is spot-on in her critique of the covid-cautious community here. A huge percentage of these people (many of whom are white, and all of whom I presume are housed) are really only interested in masking etc. as a way to protect themselves and their nuclear families.
Reposted by Miranda
Please read this full thread, donate to Désirée's GFM if you can, and show up for your homeless neighbors.
This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.
gofund.me/6b8af16ac
This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.
gofund.me/6b8af16ac
December 6, 2025 at 3:48 PM
Please read this full thread, donate to Désirée's GFM if you can, and show up for your homeless neighbors.
This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.
gofund.me/6b8af16ac
This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.
gofund.me/6b8af16ac
Reposted by Miranda
Malone is now talking about the role of undocumented migrants in spreading measles.
There is no evidence of this. I am disgusted. The measles outbreak is American-grown due to declining vaccination coverage in response to disinformation.
There is no evidence of this. I am disgusted. The measles outbreak is American-grown due to declining vaccination coverage in response to disinformation.
December 5, 2025 at 8:04 PM
Malone is now talking about the role of undocumented migrants in spreading measles.
There is no evidence of this. I am disgusted. The measles outbreak is American-grown due to declining vaccination coverage in response to disinformation.
There is no evidence of this. I am disgusted. The measles outbreak is American-grown due to declining vaccination coverage in response to disinformation.
Not this shit again
The amNY editorial board wants to bring back the mask ban: www.amny.com/editorial/ed...
Editorial | It’s time for New York to reinstate the mask ban | amNewYork
More than five years removed from the COVID-19 pandemic, we are long past the point of necessity for public mask-wearing. The mask ban that was lifted during
www.amny.com
December 6, 2025 at 12:35 AM
Not this shit again
Reposted by Miranda
All right, I know my inbox wasn't open for that long, but I am preparing to close for the year THIS SUNDAY, December 7.
If you've got something for me, now's your chance! Send it in before Sunday, or else wait until January. :)
If you've got something for me, now's your chance! Send it in before Sunday, or else wait until January. :)
December 5, 2025 at 10:28 PM
All right, I know my inbox wasn't open for that long, but I am preparing to close for the year THIS SUNDAY, December 7.
If you've got something for me, now's your chance! Send it in before Sunday, or else wait until January. :)
If you've got something for me, now's your chance! Send it in before Sunday, or else wait until January. :)
I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom
The fact that the best story they could come up with was “what if you could talk to your dead mom?” Is so telling
Update on the White Mirror project.
December 5, 2025 at 1:10 AM
I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom
Reposted by Miranda
We’re discussing Grief, Stress, and Connection During the Holidays at the #MEAction Partner Caregiver support group meeting this Sunday, Dec. 7, from 12–1 p.m. PST / 3–4 p.m. EST / 8–9 p.m.
All caregivers are welcome to join
www.meaction.net/event-detail...
All caregivers are welcome to join
www.meaction.net/event-detail...
#MEAction Partner Caregiver Support Call | #MEAction
The Partner Caregivers Support Group invites caregivers who are spouses, partners, or significant others of people with ME/CFS or Long COVID (and associated conditions) to join us to connect, share, a...
www.meaction.net
December 3, 2025 at 10:02 PM
We’re discussing Grief, Stress, and Connection During the Holidays at the #MEAction Partner Caregiver support group meeting this Sunday, Dec. 7, from 12–1 p.m. PST / 3–4 p.m. EST / 8–9 p.m.
All caregivers are welcome to join
www.meaction.net/event-detail...
All caregivers are welcome to join
www.meaction.net/event-detail...
Reposted by Miranda
It's #GivingTuesday. At @thesicktimes.org, our end-of-year fundraiser has been lagging behind; we're hoping to raise $10k today to get back on track.
Here are a few recent stories that demonstrate our unique role serving the Long COVID community. the-sick-times.fundjournalism.org/donate/ (1/10)
Here are a few recent stories that demonstrate our unique role serving the Long COVID community. the-sick-times.fundjournalism.org/donate/ (1/10)
December 2, 2025 at 4:52 PM
It's #GivingTuesday. At @thesicktimes.org, our end-of-year fundraiser has been lagging behind; we're hoping to raise $10k today to get back on track.
Here are a few recent stories that demonstrate our unique role serving the Long COVID community. the-sick-times.fundjournalism.org/donate/ (1/10)
Here are a few recent stories that demonstrate our unique role serving the Long COVID community. the-sick-times.fundjournalism.org/donate/ (1/10)
Reposted by Miranda
We really want to expand our work further in 2026 and beyond, but right now, we're just trying to keep afloat after a big grant concluded this fall. Help us keep paying ourselves and all the great writers we work with. Donations are doubled today and through the end of the month! (10/10)
Join | The Sick Times
The Sick Times is supported by people like you. Support The Sick Times today.
the-sick-times.fundjournalism.org
December 2, 2025 at 4:52 PM
We really want to expand our work further in 2026 and beyond, but right now, we're just trying to keep afloat after a big grant concluded this fall. Help us keep paying ourselves and all the great writers we work with. Donations are doubled today and through the end of the month! (10/10)
Signed up to testify at two different City Council hearings today and tomorrow, and I can't find the Zoom link anywhere. Did they change the rules?
December 2, 2025 at 3:22 PM
Signed up to testify at two different City Council hearings today and tomorrow, and I can't find the Zoom link anywhere. Did they change the rules?
These ads are up all over the NYC subway btw
December 1, 2025 at 11:56 PM
These ads are up all over the NYC subway btw
Reposted by Miranda
I've not been doing a very good job of hyping my own work, but I promise it's good and worth it. Read it. Love the lesbians and gay men and gendermonster queers who are all trying to figure out how to be immortal, love blood, and maybe each other:
linktr.ee/lilyflowerbo...
linktr.ee/lilyflowerbo...
November 7, 2025 at 2:01 AM
I've not been doing a very good job of hyping my own work, but I promise it's good and worth it. Read it. Love the lesbians and gay men and gendermonster queers who are all trying to figure out how to be immortal, love blood, and maybe each other:
linktr.ee/lilyflowerbo...
linktr.ee/lilyflowerbo...
Reposted by Miranda
Please help my friend, Mem, Mem is a black disabled person who is suffering from MECFS and Long Covid.
They are trying to raise $1133 for rent before mon., Dec 1st. Any late utility or rent will result in termination of their lease.
linktr.ee/torqu111
#MABoost #MutualAid #Thanksgiving #Helpsky
They are trying to raise $1133 for rent before mon., Dec 1st. Any late utility or rent will result in termination of their lease.
linktr.ee/torqu111
#MABoost #MutualAid #Thanksgiving #Helpsky
November 27, 2025 at 10:33 PM
Please help my friend, Mem, Mem is a black disabled person who is suffering from MECFS and Long Covid.
They are trying to raise $1133 for rent before mon., Dec 1st. Any late utility or rent will result in termination of their lease.
linktr.ee/torqu111
#MABoost #MutualAid #Thanksgiving #Helpsky
They are trying to raise $1133 for rent before mon., Dec 1st. Any late utility or rent will result in termination of their lease.
linktr.ee/torqu111
#MABoost #MutualAid #Thanksgiving #Helpsky
Reposted by Miranda
It's now been over two months, and we still don't have any updates from the federal government on RFK Jr.'s Long COVID Consortium. During the meeting the head of ARPA-H stated they would have plans within "weeks".
thesicktimes.org/2025/10/21/i...
thesicktimes.org/2025/10/21/i...
It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium. - The Sick Times
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
thesicktimes.org
November 25, 2025 at 5:59 PM
It's now been over two months, and we still don't have any updates from the federal government on RFK Jr.'s Long COVID Consortium. During the meeting the head of ARPA-H stated they would have plans within "weeks".
thesicktimes.org/2025/10/21/i...
thesicktimes.org/2025/10/21/i...
I signed a bedbound friend up for this a while back, and she's gotten like five or six cards! Highly recommend.
I got my chronic market newsletter this morning.
It is a great website. You can buy items from folks with MECFS and you can also sign up to have a letter sent to you if you need a pick me up.
chronic.market
It is a great website. You can buy items from folks with MECFS and you can also sign up to have a letter sent to you if you need a pick me up.
chronic.market
Chronic Market
chronic.market
November 25, 2025 at 6:37 PM
I signed a bedbound friend up for this a while back, and she's gotten like five or six cards! Highly recommend.