what's neat is if you're like wow I want a cheerful space in my house that'll make me feel better when I feel down

you can like totally hire me to do just that thats like my job

Hello, #NEISvoid! New #MECFS and #LongCOVID genetics preprint out today: 🧪

www.medrxiv.org/content/10.6...

As we begin putting together our second issue, just a quick reminder that you can purchase our first @nimblewitlit.bsky.social issue in hard copy!

PDF and online version is always free on our site but it’s nice to hold!!

did you know I wrote about my entire experience from realizing I could buy + deciding on what kind of house/features worked within my health + the whole purchase/moving process just for you?

get your guide today! For free! venaalex.gumroad.com/l/qwrrvr

yeah we should talk about disability accommodations in college

starting with my article mylifemymigraine.com/2019/02/17/i...

www.giftsforme.org

New endeavor

PLEASE help bex if you can

they need rent money by tomorrow and, bc of late payments before, they might become HOMELESS if they do not raise the funds

they need over $700 by DECEMBER 1 which is TOMORROW

please share and donate if you can

FOLKS??

Rebeka needs a ride home. And a meal. On Thanksgiving!

ASAP

If you're interested, this tribute to Alice Wong was written by one of the people who knew her best

www.thenation.com/article/soci...

Since this year of all years I think skipping the big stores and shopping small businesses is a great thing, I asked my discord community to give me links to their shops!

view.flodesk.com/emails/69274...

Please link to your own shops in the replies, and show us some pics of your favorite items!

This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.

substack.com/home/post/p-...

This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.

Remember, HOPE is a sweet rebellion.

#MEAction is a lantern in the darkness.

We can only continue our work with your support. www.meaction.net/lantern-in-t...

Clinical trials are under attack from the Trump administration.

@washingtonpost.com reported on a new JAMA paper that shows grants for 383 clinical trials were terminated from the end of February to August, affecting more than 74,000 trial participants.

@allysonchiu.bsky.social

The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”

Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵

friends, thank you so so much ❤️

i'm almost there- i literally just need $170 to be able to pay for radiation!!!!

please can 17 of you send $10 towards that?

also, can someone please help me to get home (i'm gonna need about $38 ASAP)

i didn't i'd get to go home today

PLEASE?

I dare you to read @thellpsx.bsky.social and @pipagaopoetry.bsky.social on their sister crip for eSims for Gaza Alice Wong and not cry llps.substack.com/p/alice-wong...

“Storytelling is a powerful form of resistance. It leaves evidence that we were here in a society that devalues, excludes, and eliminates us.”

— alice wong

Before she died, Alice Wong was kind enough to give me an interview for my book, Who Wants Normal?

Here’s her wonderful advice to disabled women (from the Guardian extract): www.theguardian.com/world/2025/a...

Yesterday, i found out before my brother's funeral that my long time friend and mentor Alice Wong had passed. I wasn't able to say something sooner but her loss has really hit me.

@sfdirewolf.bsky.social was one of the first people in the disability community to befriend me and embrace me.