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easypublic.bsky.social
@easypublic.bsky.social
39 followers 97 following 59 posts
Studies and Information on Long Covid, Post Vac, MECFS
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Reposted
fatigatioev.bsky.social
Hörtipp: "Die teure Epidemie – Wie Long Covid und ME/CFS die Gesellschaft belasten" - Beitrag von @aeneasrooch.bsky.social im #SWR mit O-Tönen u.a. von Dr. Natalie Grams, Jörg Heydecke, Prof. Carmen Scheibenbogen und Prof. Bernhard Schieffer. Dauer: ca. 28 min.

#MECFS #Wissen #SWRKultur
Die teure Epidemie – Wie Long Covid und ME/CFS die Gesellschaft belasten
1,5 Mio. Menschen in Deutschland haben Long Covid oder ME/CFS. Das erzeugt nicht nur Leiden, sondern auch hohe Kosten für die Gesellschaft.
www.swr.de
November 11, 2025 at 7:30 AM
easypublic.bsky.social
In today’s hearing before the Bundestag’s Covid-pandemic inquiry commission, patient associations demanded more funding for research, better medical care and clearer support systems for people and children suffering from #LongCOVID #MECFS and #PostVac
www.aerzteblatt.de/news/long-co...
Long COVID: Mehr Therapieforschung und Unterstützung gefordert – Deutsches Ärzteblatt
www.aerzteblatt.de
November 10, 2025 at 7:52 PM
easypublic.bsky.social
Update on Dr. David Systrom Study led by Harvard MECFS Collaboration

A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.

www.omf.ngo/investigatio...
Investigating PEM via Muscle Biopsy in ME/CFS and Long COVID - Open Medicine Foundation
The study explores the pathophysiology of post-exertional malaise (PEM), the hallmark symptom of ME/CFS.
www.omf.ngo
November 10, 2025 at 7:41 PM
Reposted
freulingskind.bsky.social
📢 #CallForPublicHealthAction

I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS

#CovidIsNotOver
#MaskUp
#CovidCautious
Demonstrating for: 1. Mandatory respiratory protection (FFP2/FFP3/N95/N99) in healthcare and social care to ensure patient safety for all. 2. High-quality air in all schools, other public buildings, and workplaces. 3. Full access to COVID-19 vaccines for all age groups for whom the vaccines are approved. 4. Adequate care and biomedical research for Long COVID, ME/CFS, and other infection-associated chronic conditions. 5. Honest, science-based public education about the short- and long-term risks of infection, and how to best protect each other. Do you agree? Like, repost or quote-post, tagging #CallForPublicHealthAction @callforphaction.bsky.social
November 9, 2025 at 4:26 PM
Reposted
theladyred.bsky.social
Breakthrough blood test finally confirms Chronic Fatigue Syndrome

A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. A breakthrough that may help diagnose long Covid too
Breakthrough blood test finally confirms Chronic Fatigue Syndrome
A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. For millions who’ve ...
www.sciencedaily.com
November 9, 2025 at 4:37 PM
Reposted
tomkindlon.bsky.social
Medscape: "Canadian Cardiologists Must Step Up Care for Long COVID"

www.medscape.com/viewarticle/...

Report on an educational session from the Canadian Cardiovascular Congress (CCC) 2025 about cardiovascular issues associated with Long Covid.

#LongCovid #PASC #PostCovid
Canadian Cardiologists Must Step Up Care for Long COVID
Cardiologists need to know how to recognize and manage the cardiac effects that can arise from SARS-CoV-2 infections or COVID vaccines, experts say.
www.medscape.com
November 9, 2025 at 4:37 PM
Reposted
buonsenso.bsky.social
Long COVID and the AMPA Pathway: New Clues from Brain Imaging

danilobuonsenso.substack.com/p/long-covid...
Long COVID and the AMPA Pathway: New Clues from Brain Imaging
Over the past few years, Long COVID has become one of the most puzzling and impactful conditions in post-viral medicine — especially for the many children and adults who continue to experience “brain ...
danilobuonsenso.substack.com
November 9, 2025 at 4:57 PM
Reposted
jolu.bsky.social
Neue Erkenntnisse zu molekularen Ursachen von Long-COVID. 👇

#CovidIsNotOver #Teamvorsicht #LongCovid

www.uni-luebeck.de/forschung/ak...
November 9, 2025 at 5:44 PM
Reposted
fetthennecarl.bsky.social
#TeamVorsicht
#Brustschmerzen
#Longcovid
November 9, 2025 at 5:45 PM
Reposted
pflegeherz.bsky.social
1/1 Interessante spanische Studie zur Herzbeteiligung bei zuvor gesunden #LongCovid Betroffenen. 209 Betroffene wurden hier aufgrund kardio-vaskulärer Symptome genauer untersucht. Dank an @harryspoelstra.bsky.social für die Info und Kommentar!

academic.oup.com/eurheartj/ar...
Cardiac involvement in long COVID: echocardiographic, cardiac magnetic resonance, and endomyocardial biopsy findings in previously healthy individuals with persistent chest pain
AbstractBackground. Long COVID is a poorly understood condition affecting up to 45% of COVID-19 survivors, with chest pain being one of the most common com
academic.oup.com
November 9, 2025 at 12:15 PM
easypublic.bsky.social
Who would like to contribute to the financing of the “Buried Alive” demonstration on October 15 in Berlin, which drew attention to the suffering of millions of people with MECFS and called for more research funding?
www.gofundme.com/f/finanzieru...?
Donate to Finanzierung der stillen Visualisierung vom 15.10.2025 BMFTR, organized by Johanna Sasse
Hallo, ich bin Johanna von Kinder ME/CFS und eine der Mit… Johanna Sasse needs your support for Finanzierung der stillen Visualisierung vom 15.10.2025 BMFTR
www.gofundme.com
November 9, 2025 at 10:52 AM
Reposted
polybiorf.bsky.social
The PolyBio-supported study on elevated plasma proteins associated with breathlessness in Long COVID was featured in an article in Technology Networks : www.technologynetworks.com/tn/news/long...
May 1, 2025 at 4:48 PM
Reposted
dupuisj.bsky.social
Why I Can’t Just Meet You for Dinner

open.substack.com/pub/centerle...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
open.substack.com
November 7, 2025 at 7:07 PM
Reposted
elisaperego78.bsky.social
Co-creating a social science research agenda for Long Covid

doi.org/10.3389/fpub...
Frontiers | Co-creating a social science research agenda for Long Covid
IntroductionOur objective was to understand how social scientific research could best address the needs and concerns of patients, families, carers, healthcar...
doi.org
November 7, 2025 at 2:15 PM
Reposted
elisaperego78.bsky.social
Very glad to have a chapter in the Long COVID and Society book curated by D. Lupton.

In my chapter, I show how #LongCovid patient-driven advocacy-research was critical in 2020-1 to identifying LC as a novel multi-system disease entity, and achieving recognition from policymakers and WHO
dalupton.bsky.social Prof Deborah Lupton, MPH PhD @dalupton.bsky.social · 20d
Now published! My edited book ‘Long COVID and Society’ - my introduction is free to read for everyone. Download from the link below and check out the others chapters too (Chapter 14, about LC children and families, is also open access)

link.springer.com/book/10.1007...
Long COVID and Society
This is the first book to bring together academics and activists living with Long COVID to explore the social impacts of the new complex chronic condition.
link.springer.com
November 7, 2025 at 7:13 PM
Reposted
castltrastondrs.bsky.social
#Medsky🧪 #IDsky #Immunosky #publichealth
In this small study of 78 LC individuals with ME/CFS and compared them with 62 age- & sex-matched recovered (R) individuals. Highlights​
• Female #LongCovid (FLC)patients show heightened immune activation & inflammation
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
Shahbaz et al. find that female long COVID patients with ME/CFS exhibit heightened inflammation, altered hematopoiesis, disrupted hormone levels, and neuroinflammatory gene signatures. In parallel, ou...
www.cell.com
November 7, 2025 at 7:03 PM
Reposted
andipete.bsky.social
🧪 #LongCovid
erictopol.bsky.social Eric Topol @erictopol.bsky.social · 3d
The dysregulated immune system in #LongCovid with #MECFS. with sex-specific changes, increased inflammation (as seen by cells, chemokines and cytokines), and disrupted hormone levels www.cell.com/cell-reports...
November 7, 2025 at 7:34 PM
Reposted
ralfwittenbrink.bsky.social
Long-Covid-Symposium im Oktober 2025 in Kanada (UT: 🇩🇪)

➡️ Covid ist nicht vorbei

➡️ LongCOVID-Fälle steigen kontinuierlich

➡️ Wir sehen immer mehr Fälle von Long Covid

➡️ Keine seltene Erkrankung, auch nicht bei Kindern

➡️ Keine Therapie - Prävention ist darum wichtig!
November 2, 2025 at 8:12 PM
easypublic.bsky.social
Nachruf auf Marc Kirch
gestorben 17.09.2025
von Hannes Berns
Gedanken zum Tod meines Freundes, Weggefährten und nimmer lebensmüden, kämpferischen ME-Bruders
„Der Wert einer Gesellschaft bemisst sich daran, wie sie die Schwächsten behandelt."
Gustav Heinemann (ehemal. Bundespräsident)
t.co/Ykdclm0S2R
http://mecfs-freiburg.de/nachruf-marc-kirch.html#nachruf-hannes-berns
t.co
November 7, 2025 at 6:23 PM
easypublic.bsky.social
Long COVID is underdiagnosed, researchers say

Covid is not over
Long Covid cases are rising steadily
We are seeing more and more cases of Long Covid
It is not a rare disease, even in children
There is no treatment – prevention is therefore important!
www.cbc.ca/player/play/...
Long COVID is underdiagnosed, researchers say, and there’s work to be done to change that
St. John’s hosted the 2025 Canadian Symposium on Long COVID earlier this month, a gathering of top researchers, clinicians, and people living with long COVID. As the CBC’s Adam Walsh reports, those on...
www.cbc.ca
November 7, 2025 at 6:12 PM
easypublic.bsky.social
Tevogen Reports Major Clinical Milestone: Expands HLA Coverage of its Investigational Precision T Cell Therapy for Acute and Long COVID

www.globenewswire.com/news-release...
Tevogen Reports Major Clinical Milestone: Expands HLA Coverage of its Investigational Precision T Cell Therapy for Acute and Long COVID
This milestone expands patient eligibility through multi-HLA targetingBuilds on completed TVGN 489 trial demonstrating 100% viral clearance, no...
www.globenewswire.com
November 7, 2025 at 12:23 PM
Reposted
renegaderesearch.bsky.social
The paper Dr. Stuart Malcolm cited at our Microdosing GLP-1/GIP Receptor Agonists in #MECFS #LongCovid roundtable: pubmed.ncbi.nlm.nih.gov/36907221/

More research on GLP-1/GIP RAs treating intracranial hypertension symptoms: tinyurl.com/ennwun4x

tinyurl.com/u6ad2xa4

tinyurl.com/2hramz8n #MedSky
November 6, 2025 at 7:49 PM
Reposted
lcnarrativejustice.bsky.social
“The Open Letter followed an action in AMC’s New York headquarters, where an empty wheelchair was placed with a sign reading ‘Disabled Artists Will Not Be Erased.‘ In October, the artists living with Long COVID reported that no response had been received from AMC or Eric Bogosian’s representatives.”
November 6, 2025 at 8:01 PM
Reposted
janaxpetersen.bsky.social
Juhuuuu, wollt ihr mit mir feiern? Meine ungehaltene Rede „Die wunde Stelle mitten unter euch“ über den menschenunwürdigen Umgang mit #MECFS wurde von der Stiftung Brückner-Kühner und dem Verlag S.Fischer Theater ausgewählt — und ich darf sie am 10. Dezember im Rathaus Kassel halten!
Jana liegt auf einem Bett mit Sonnenbrille und Bluse, pink mit Schlangenmuster Rote und gelbe Schrift auf dunkelblauem Grund, da steht: Ungehaltene Reden ungehaltener Frauen Ein Buch mit der Aufschrift ICH! Neue ungehaltene Reden ungehaltener Frauen
November 5, 2025 at 3:54 PM
Reposted
elkeasen.bsky.social
📻 Im Radio-Salzburg war heute bei “Mittagszeit” #MECFS eine Stunde lang Thema.

Prof. Kathryn Hoffmann hat sowohl die Krankheit als auch das so wichtige Thema spezialisierte ME/CFS-Behandlungsstellen super erklärt. 1/
Screenshot der Website von Radio Salzburg. Oben ist ein roter Balken, in dem steht “Mittagszeit”, darunter der Zeitstrahl des Radioprogramms und unten die Wochentage.
November 5, 2025 at 5:43 PM