Binita Kane
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binitakane.bsky.social
Binita Kane
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25

Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
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A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.
Reposted by Binita Kane
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”

Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com

observer.co.uk/news/...
November 23, 2025 at 9:40 AM
Reposted by Binita Kane
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
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Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
November 20, 2025 at 4:49 PM
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What Martin said. Independent SAGE were not cranks, not extremists, not over-reacting. #covidinquiry
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
November 20, 2025 at 5:24 PM
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1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
November 20, 2025 at 4:43 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.

youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
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The third topic @binitakane.bsky.social and I discussed was episodes of low blood sugar patients often report, even though their home testing shows normal blood sugar, broken down more in this blog (as promised!):

Blood sugar regulation: lc-sc.co.uk/bodily-syste...
November 17, 2025 at 8:54 PM
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Here’s what you won’t hear from some commentators on social media: in the year to October, London recorded 10,000 fewer violent crimes leading to injury than it did in the twelve months before I was elected.

More on the progress we’re making ⬇️ www.mirror.co.uk/news/politic...
'London is world's best city - people claiming it's lawless hate its success'
'The fact that London has again been crowned greatest city in the world disproves everything our critics claim, and they can’t stand it', the London Mayor Sadiq Khan writes
www.mirror.co.uk
November 16, 2025 at 1:17 PM
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The 2nd thing @binitakane.bsky.social & I discussed was thirst. We barely scratched the surface of this fascinating appetite, explained more in this blog:
lc-sc.co.uk/bodily-syste...

Including:
Blood volume
Prostaglandins
Acetylcholine
Mast cells
Dopamine
Glutamate & other neurotransmitters 🧵
November 13, 2025 at 9:01 PM
Reposted by Binita Kane
🚨 NEXT WEDNESDAY 19 NOVEMBER

We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.

If you have the energy - an email to your MP asking them to attend can go a long way 🙏

Template in next post👇
November 13, 2025 at 9:48 AM
Thank you Harriett! This is so helpful ⬇️
Latest blog: I promised I'd write some blogs to break down our discussion (www.youtube.com/live/Ar0X_N3...) & go over things we didnt get through. The first thing we discussed was body water & hydration issues esp in POTS:

Body water regulation
lc-sc.co.uk/bodily-syste...

@binitakane.bsky.social
November 12, 2025 at 1:57 PM
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USA Photo of the year
November 7, 2025 at 3:45 PM
Reposted by Binita Kane
Reposted by Binita Kane
Exulansis -the moment you simply give up trying to explain the in‑between.

📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them.

www.longcovidadvoc.com/post/exulans...
Exulansis - The Gulf of Understanding
An Ongoing Battle for Adequate Treatment and Care: The Impact of Long Covid on Families' by Marianne Lynch.
www.longcovidadvoc.com
November 8, 2025 at 3:41 PM
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When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits.

Due to our policies, we've done it in 9.

In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
November 8, 2025 at 9:09 AM
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The early flu season in England continues to build, while the latest Covid wave continues to recede.

Latest UKHSA hospital admission data up to 27 Oct.
November 6, 2025 at 7:28 PM
Reposted by Binita Kane
Ep26 | Long COVID Clinic Fireside Chat
with @binitakane.bsky.social & @helenoakleigh.bsky.social

Hydration, Appetite & Blood Sugar in POTS
🗓️ Wed 5 Nov 18:00 GMT | 📺 YouTube

Dr Binita Kane & @angryhacademic.bsky.social unpack low blood volume, thirst, “low blood sugar” sensations & hunger in POTS.
October 31, 2025 at 11:42 AM
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“Science is never settled” sounds reasonable—but it’s often a rhetorical trick to undermine consensus on issues like vaccines or climate change.
Science evolves, but some things are overwhelmingly supported by evidence.
My latest for Live Science
www.livescience.com/...
1/10
There is such a thing as 'settled science' — anyone who says otherwise is trying to manipulate you
How bad-faith arguments sow doubt by weaponizing scientific humility.
www.livescience.com
October 28, 2025 at 8:36 AM
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this moment has no name
no flag
no price
it belongs to the still things
to the horizon
the trees
the space before thought
and now
to you

#Photography Bernard Doucette
@bdoucette.bsky.social
October 23, 2025 at 12:51 PM
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'mRNA vaccines seem to boost the effectiveness of an immune therapy for skin and lung cancer.' @maxkozlov.bsky.social @nature.com
'COVID-19 mRNA vaccine acts like a siren and activates the immune system throughout the body - programming a response to kill the cancer.'
www.nature.com/articles/d41...
People with some cancers live longer after a COVID vaccine
mRNA vaccines seem to boost the effectiveness of an immune therapy for skin and lung cancer ― in an unexpected way.
www.nature.com
October 23, 2025 at 1:48 PM
Reposted by Binita Kane
Quick update on Covid in England - hospital data showing that the latest significant Covid wave is - thankfully - on its way down.

This chart by @bob-hawkins.bsky.social and his substack
bhawkins3.substack.com/p/covid-situ...
October 23, 2025 at 4:03 PM
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How can citizens and journalists hold back authoritarianism, far-right populism and hate?

Join our live event with GEORGE MONBIOT, NAFEEZ AHMED, YASMIN ALIBHAI-BROWN, and NICK LOWLES. Finding hope, protecting democracy.

7 pm, 4 November. Book now: bit.ly/BylinesHope
October 19, 2025 at 8:28 PM
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A 60 second summary of some of the biggest and best sights from #NoKings Day.

Congratulations to every single organizer, volunteer and attendee👏

History.
October 19, 2025 at 12:16 PM
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Thankful to @autisticrealms.bsky.social and @emergentdivergence.com to be first out the gate on the @tesmagazine.bsky.social article
Why ‘invented’ SEND labels are disabling pupils, October 2025..
Suspect won't be the only one.

autisticrealms.com/inclusion-ne...
Inclusion Needs Recognition, Not Erasure: A Neurodiversity-Affirming Approach | Autistic Realms
When headlines claim that autism and ADHD are “invented labels,” it’s more than rhetoric, it’s erasure. A explores why removing neurodiversity from educatio ...
autisticrealms.com
October 18, 2025 at 4:55 PM