Binita Kane
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
The one thing Manchester is good at is showing love and unity when sh*tty things happen.
Really proud to see the reaction of different communities coming together in solidarity against hate.
Really proud to see the reaction of different communities coming together in solidarity against hate.
October 3, 2025 at 6:27 PM
The one thing Manchester is good at is showing love and unity when sh*tty things happen.
Really proud to see the reaction of different communities coming together in solidarity against hate.
Really proud to see the reaction of different communities coming together in solidarity against hate.
I’ll be on BBC Breakfast at 7.15am talking about the publication of the Final Delivery Plan for ME, alongside @swastrosarah.bsky.social
July 22, 2025 at 5:57 AM
I’ll be on BBC Breakfast at 7.15am talking about the publication of the Final Delivery Plan for ME, alongside @swastrosarah.bsky.social
We have a very long way to go. This issue was covered in the iPaper and Times last year.
July 15, 2025 at 8:13 AM
We have a very long way to go. This issue was covered in the iPaper and Times last year.
My understanding (I am not an expert on this subject) is that FII is extremely rare.
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
July 15, 2025 at 8:13 AM
My understanding (I am not an expert on this subject) is that FII is extremely rare.
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME.
See this report ➡️ cerebra.org.uk/wp-content/u...
More alerting signs - education is interrupted, parents insist on children having medication in school, child may adopt ‘unnecessary aids’ such as a wheelchair.
July 15, 2025 at 8:13 AM
More alerting signs - education is interrupted, parents insist on children having medication in school, child may adopt ‘unnecessary aids’ such as a wheelchair.
This slide highlights that mothers are almost always the instigators of abuse, Dads variably involved. Note also wording about parents somehow gaining from their child’s illness and ‘erroneous beliefs about their child’s health’.
July 15, 2025 at 8:13 AM
This slide highlights that mothers are almost always the instigators of abuse, Dads variably involved. Note also wording about parents somehow gaining from their child’s illness and ‘erroneous beliefs about their child’s health’.
Guess what - you need to ‘select all’ to get this answer right. These ‘abusive parents’ won’t accept reassurance that their child is fine and may seek alternative medical opinions.
July 15, 2025 at 8:13 AM
Guess what - you need to ‘select all’ to get this answer right. These ‘abusive parents’ won’t accept reassurance that their child is fine and may seek alternative medical opinions.
Other suspicious behaviour - suggesting a child reduces PE or eats a specific diet.
July 15, 2025 at 8:13 AM
Other suspicious behaviour - suggesting a child reduces PE or eats a specific diet.
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.
Look at the symptoms that these ‘abusive’ parents may report.
Look at the symptoms that these ‘abusive’ parents may report.
July 15, 2025 at 8:13 AM
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.
Look at the symptoms that these ‘abusive’ parents may report.
Look at the symptoms that these ‘abusive’ parents may report.
So good to spend the day with @profmarkfaghy.bsky.social and his incredible team at the University of Derby plotting #LongCovid research. So much we could do if only we had the funding….
June 23, 2025 at 4:45 PM
So good to spend the day with @profmarkfaghy.bsky.social and his incredible team at the University of Derby plotting #LongCovid research. So much we could do if only we had the funding….
Nice poster from Rob Wust and colleagues showing micro vascular dysfunction & basal membrane changes in skeletal muscle in ME and Long Covid. Reduction in oxygen & nutrients to muscle tissue contributing to fatigue and PEM.
June 5, 2025 at 8:50 AM
Nice poster from Rob Wust and colleagues showing micro vascular dysfunction & basal membrane changes in skeletal muscle in ME and Long Covid. Reduction in oxygen & nutrients to muscle tissue contributing to fatigue and PEM.
Our global effort to raise the urgency of research into Long Covid in children published in The ERJ ⬇️
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
May 23, 2025 at 9:48 AM
Our global effort to raise the urgency of research into Long Covid in children published in The ERJ ⬇️
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
List of signatories:
May 21, 2025 at 2:16 PM
List of signatories:
I talked about the history of ME, how and why we have got here, I mentioned @rageshriwrites book ‘Unheard’ and how patients with ME have been dismissed for decades.
May 14, 2025 at 9:07 PM
I talked about the history of ME, how and why we have got here, I mentioned @rageshriwrites book ‘Unheard’ and how patients with ME have been dismissed for decades.
A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.
May 14, 2025 at 9:07 PM
A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.
The NIHR has published an evidence map for MECFS research.
Summary: generally low quality observational studies, outdated definitions, mostly from high income countries, very few focussed on treatments.
Summary: generally low quality observational studies, outdated definitions, mostly from high income countries, very few focussed on treatments.
March 30, 2025 at 9:51 AM
The NIHR has published an evidence map for MECFS research.
Summary: generally low quality observational studies, outdated definitions, mostly from high income countries, very few focussed on treatments.
Summary: generally low quality observational studies, outdated definitions, mostly from high income countries, very few focussed on treatments.
I’ll be joining Asthma&Lung UK alongside @sheencr.bsky.social today to talk about how we can clean up Greater Manchester’s air.
Event is open to the public, come down if you can! Manchester Art Gallery 12-2pm ⬇️
Event is open to the public, come down if you can! Manchester Art Gallery 12-2pm ⬇️
March 22, 2025 at 8:36 AM
I’ll be joining Asthma&Lung UK alongside @sheencr.bsky.social today to talk about how we can clean up Greater Manchester’s air.
Event is open to the public, come down if you can! Manchester Art Gallery 12-2pm ⬇️
Event is open to the public, come down if you can! Manchester Art Gallery 12-2pm ⬇️
From the US consensus guidelines - link to full document here;
www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org/article/S002...
February 15, 2025 at 11:28 AM
From the US consensus guidelines - link to full document here;
www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org/article/S002...
Thought for the day.
February 9, 2025 at 4:34 PM
Thought for the day.
Brilliant work from the Australian group ‘Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction’.
H/T @davidjoffe64.bky.social
www.nature.com/articles/s41...
H/T @davidjoffe64.bky.social
www.nature.com/articles/s41...
January 29, 2025 at 7:32 AM
Brilliant work from the Australian group ‘Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction’.
H/T @davidjoffe64.bky.social
www.nature.com/articles/s41...
H/T @davidjoffe64.bky.social
www.nature.com/articles/s41...
Paid opportunity for people of South Asian backgrounds to take part in research around eating disorders ⬇️
January 27, 2025 at 2:47 PM
Paid opportunity for people of South Asian backgrounds to take part in research around eating disorders ⬇️
‘Pediatric Long COVID has a distinct blood protein signature marked by increased ongoing general and endothelial inflammation, similar to that seen in adults’.
More brilliant work from @buonsenso.bsky.social and team 🇮🇹
www.nature.com/articles/s41...
More brilliant work from @buonsenso.bsky.social and team 🇮🇹
www.nature.com/articles/s41...
January 24, 2025 at 9:05 PM
‘Pediatric Long COVID has a distinct blood protein signature marked by increased ongoing general and endothelial inflammation, similar to that seen in adults’.
More brilliant work from @buonsenso.bsky.social and team 🇮🇹
www.nature.com/articles/s41...
More brilliant work from @buonsenso.bsky.social and team 🇮🇹
www.nature.com/articles/s41...
This is what happens when public health policy fails;
Flu and COVID:
⬆️ NHS staff sickness, ⬇️ staff vaccination uptake and of course little or no airborne protection for staff in hospitals.
Data for week to 15th Dec showed 54,165 NHS staff off sick.
Who suffer the most? Patients.
Flu and COVID:
⬆️ NHS staff sickness, ⬇️ staff vaccination uptake and of course little or no airborne protection for staff in hospitals.
Data for week to 15th Dec showed 54,165 NHS staff off sick.
Who suffer the most? Patients.
January 21, 2025 at 8:50 AM
This is what happens when public health policy fails;
Flu and COVID:
⬆️ NHS staff sickness, ⬇️ staff vaccination uptake and of course little or no airborne protection for staff in hospitals.
Data for week to 15th Dec showed 54,165 NHS staff off sick.
Who suffer the most? Patients.
Flu and COVID:
⬆️ NHS staff sickness, ⬇️ staff vaccination uptake and of course little or no airborne protection for staff in hospitals.
Data for week to 15th Dec showed 54,165 NHS staff off sick.
Who suffer the most? Patients.
Please share in any NHS nursing networks.
Thank you 🙏🏽
Thank you 🙏🏽
December 15, 2024 at 11:13 AM
Please share in any NHS nursing networks.
Thank you 🙏🏽
Thank you 🙏🏽