I'm Not Dead (yet)!
YouTube video by driver49
www.youtube.com
November 1, 2025 at 9:14 PM
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October 28, 2025 at 6:03 PM
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October 27, 2025 at 5:57 PM
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6 reposts
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October 25, 2025 at 12:09 AM
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17 reposts
3 quotes
260 likes
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October 11, 2025 at 3:27 PM
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Emmet Sheehan pitched in a postseason game with “K ALS” on his glove 😭😭😭
Thank you @BCBirdBall for such amazing advocates 🫶
#EndALS
h/t eagle-eyed @tomhaberstroh.bsky.social (no pun intended)
Thank you @BCBirdBall for such amazing advocates 🫶
#EndALS
h/t eagle-eyed @tomhaberstroh.bsky.social (no pun intended)
October 10, 2025 at 5:38 PM
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Emmet Sheehan pitched in a postseason game with “K ALS” on his glove 😭😭😭
Thank you @BCBirdBall for such amazing advocates 🫶
#EndALS
h/t eagle-eyed @tomhaberstroh.bsky.social (no pun intended)
Thank you @BCBirdBall for such amazing advocates 🫶
#EndALS
h/t eagle-eyed @tomhaberstroh.bsky.social (no pun intended)
October 10, 2025 at 5:10 PM
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27 reposts
2 quotes
340 likes
ALS in an insidious disease that rips your loved one from you slowly and brutally. To witness a once vibrant soul no longer able to speak or move is wrenching and the pain caregivers go thru is immeasurable. The research funding that has been slashed with NIH cuts is UNACCEPTABLE. #ActForALS #EndALS
Eric’s honesty and strength in sharing his ALS journey move us all. His Washington Post interview shows the fight, the hope, and why we must keep going. #ActForALS #EndALS
img.washingtonpost.com/style/2025/1...
img.washingtonpost.com/style/2025/1...
A ‘Grey’s Anatomy’ heartthrob confronts ALS — and hopes to help others
Eric Dane, “McSteamy” of “Grey’s Anatomy” fame, is suffering from ALS, the terminal illness. He is lobbying Congress to lobby for more federal research funds.
img.washingtonpost.com
October 6, 2025 at 8:42 PM
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Eric’s honesty and strength in sharing his ALS journey move us all. His Washington Post interview shows the fight, the hope, and why we must keep going. #ActForALS #EndALS
img.washingtonpost.com/style/2025/1...
img.washingtonpost.com/style/2025/1...
A ‘Grey’s Anatomy’ heartthrob confronts ALS — and hopes to help others
Eric Dane, “McSteamy” of “Grey’s Anatomy” fame, is suffering from ALS, the terminal illness. He is lobbying Congress to lobby for more federal research funds.
img.washingtonpost.com
October 6, 2025 at 8:31 PM
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8 reposts
1 quotes
77 likes
I'm so sorry. Will keep you both in my prayers. #EndALS
October 2, 2025 at 12:23 AM
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Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
September 27, 2025 at 8:47 PM
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September 26, 2025 at 9:41 AM
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Keep your mind engaged: https://bit.ly/46rjOUl
Keeping the mind active with ALS is about finding joy in activities that spark your curiosity, creativity, or connection. At the same time, adapt around your comfort and physical needs.
#ALS #EndALS #NeurodegenerativeDisease #ALSNewsToday #Bionews
Keeping the mind active with ALS is about finding joy in activities that spark your curiosity, creativity, or connection. At the same time, adapt around your comfort and physical needs.
#ALS #EndALS #NeurodegenerativeDisease #ALSNewsToday #Bionews
September 19, 2025 at 11:31 AM
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I am so sorry for your loss.💔My brother-in-law has ALS, I can’t imagine how you are feeling right now. Sending support and hugs. 🫂💜
#endALS
#endALS
September 16, 2025 at 1:20 AM
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September 16, 2025 at 1:04 AM
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Take a look at what they’ve now learned about this abnormal process: https://bit.ly/3HPGGV8
Researchers say “our static way of thinking about the genome and gene expression” is part of the reason the discovery took so long.
#ALS #ALSResearch #MysterySolved #EndALS #Bionews
Researchers say “our static way of thinking about the genome and gene expression” is part of the reason the discovery took so long.
#ALS #ALSResearch #MysterySolved #EndALS #Bionews
September 15, 2025 at 2:03 PM
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September 15, 2025 at 6:09 AM
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450 likes
2 saves
“My favorite part of the Walk is seeing the community and knowing how much support there is… It’s empowering to know we can have that kind of impact.”
Last year, Julianne Olivo walked with her mom, Leslie, and their team Run for Her Life.
#ALSWalkForLife #FacesOfALS #WhyWeWalk #EndALS
Last year, Julianne Olivo walked with her mom, Leslie, and their team Run for Her Life.
#ALSWalkForLife #FacesOfALS #WhyWeWalk #EndALS
September 11, 2025 at 5:38 PM
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David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
September 9, 2025 at 8:32 PM
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The Les Turner ALS Foundation is committing $500,000 to sustain ALS research at Northwestern amid a federal funding freeze.
Hope can’t wait.
lesturnerals.org/les-turner-a...
#ALSResearch #EndALS
Hope can’t wait.
lesturnerals.org/les-turner-a...
#ALSResearch #EndALS
September 3, 2025 at 9:05 PM
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