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Les Turner ALS Foundation @lesturnerals.bsky.social · 6h

2026 registrations are now open! Run with us on October 11, 2026 in Grant Park.

Sign up: buff.ly/zXqgcBk

Les Turner ALS Foundation @lesturnerals.bsky.social · 1d

With a grant from the Les Turner ALS Foundation, a Northwestern Medicine study has revealed a key mechanism underlying the development of ALS and other motor neuron diseases — offering new insights into potential treatment options.

Learn more: news.feinberg.northwestern.edu/2025/10/16/u...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 2d

Learn about mobility changes in ALS and how to partner with your healthcare team. Topics include transfers, walking aids, wheelchair evaluations, and caregiver training.

Join us Thursday, Oct 30 at 12 p.m. CT

Register: us02web.zoom.us/webinar/regi...

#ALS #FunctionalMobility #LesTurnerALS

Les Turner ALS Foundation @lesturnerals.bsky.social · 6d

Meet Hannah Redd, PT, DPT, NCS, neuromuscular specialist at Shirley Ryan AbilityLab. She’ll discuss functional mobility changes with ALS in our Oct 30 live webinar.

Register: us02web.zoom.us/webinar/regi...

#ALS #PhysicalTherapy #LesTurnerALS

Les Turner ALS Foundation @lesturnerals.bsky.social · 7d

Whether you’re adding a ramp, remodeling, or moving, planning ahead can make your home safer and more accessible.

The right home modifications can help reduce costs and create a space that truly works for your needs.

Learn more: lesturnerals.org/als-home-mod...

Les Turner ALS Foundation @lesturnerals.bsky.social · 8d

In October, we sponsored the annual meeting of the ALS/MND Natural History Consortium. The Les Turner ALS Center at Northwestern Medicine is one of 17 sites collecting data to help better understand ALS.

For more information, contact [email protected]

Les Turner ALS Foundation @lesturnerals.bsky.social · 9d

Archie was 70 years old when he was diagnosed with ALS in 2023.

“There was never a day in 24 years that he didn’t say, ‘I love you.’ He gave a little piece of himself to everyone he loved.” - Anne Wood

We’re honored to share his story as part of our Celebration of Life wall 💙

Les Turner ALS Foundation @lesturnerals.bsky.social · 12d

The data that has been captured from the 2021 and 2023 surveys has been valuable in understanding the global landscape of the Fundamental Rights of people living with ALS/MND. This year the Alliance wants to hear from blood relatives.

Survey link: survey.alchemer-ca.com/s3/50360855/...

Les Turner ALS Foundation @lesturnerals.bsky.social · 12d

Clinic visits can feel overwhelming, and it can be difficult to remember specific questions for your care team. We encourage you to prepare in advance by making lists of the different ways ALS is impacting you and writing down specific questions.

More info: lesturnerals.org/research-pat...

Les Turner ALS Foundation @lesturnerals.bsky.social · 13d

October 15 is right around the corner, which means Medicare Open Enrollment is almost here. This is your chance to review and compare health and drug plans for the year ahead.

Click here for more info: www.medicare.gov

Les Turner ALS Foundation @lesturnerals.bsky.social · 14d

Drs. John Coleman and Lisa Wolfe from the Les Turner ALS Center at Northwestern Medicine helped lead the NEALS Respiratory Care and Ventilation Committee Workshop, sharing ideas and advancing standards to improve respiratory care and quality of life for people living with ALS.

Les Turner ALS Foundation @lesturnerals.bsky.social · 15d

Congratulations to every member of Team Race for ALS who took on the Bank of America Chicago Marathon this weekend!

We’re so grateful for your dedication, compassion, and determination. Each mile you ran helps raise awareness and support for ALS care and research.

Les Turner ALS Foundation @lesturnerals.bsky.social · 16d

Learn about functional mobility changes with ALS and how to partner with your healthcare team. Join our live, no-cost webinar on Thursday, Oct 30 at 12 p.m. CT.

Register: us02web.zoom.us/webinar/regi...

#ALS #FunctionalMobility #LesTurnerALS

Les Turner ALS Foundation @lesturnerals.bsky.social · 19d

Dr. Hande Ozdinler, a member of the Les Turner ALS Center at Northwestern Medicine, is leading research on upper motor neurons in ALS—aiming to better understand the disease and guide future treatment approaches.

Read more: alsnewstoday.com/news/northwe...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 20d

Join us for the 19th Annual All In For ALS Casino Night on Saturday, November 15th, 7–10 p.m. CT at the East Bank Club.

Experience a night of live casino games—blackjack, roulette—along with exclusive auction items, delicious appetizers, and a lively photo booth.

Book tickets: buff.ly/c9IojY0

Les Turner ALS Foundation @lesturnerals.bsky.social · 21d

Meet April Szymanski, APRN.

April will be running the Bank of America Chicago Marathon for her patients with ALS.

“Not specifically one person, all the patients that I’ve been able to care at Northwestern, I’ll be thinking of them.”

Interested in 2026? [email protected]

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Les Turner ALS Foundation @lesturnerals.bsky.social · 22d

Anne Marie Doyle, M.A., CCC-SLP, Director of Community Education at the Les Turner ALS Foundation, joins 'In The Passenger Seat: Hospice Conversations by ILHPCO'.

Listen to the episode for insights that help providers deliver expert, compassionate care: podcasts.apple.com/us/podcast/n...

Les Turner ALS Foundation @lesturnerals.bsky.social · 22d

We’re honored to be recognized as one of the Centers of Care for those at risk of genetic ALS and FTD.

This recognition reflects our continued commitment to providing expert, compassionate care for individuals and families navigating the challenges of genetic ALS and FTD.

end-the-legacy.bsky.social @end-the-legacy.bsky.social · 23d

We are thrilled to announce two new clinics have been appointed as recognized Centers of Care for those at risk of Genetic ALS and FTD!
Information on the centers can be found on our website: https://www.EndtheLegacy.org/care

#EndtheLegacy #GeneticALS #GeneticFTD #C9orf72

Les Turner ALS Foundation @lesturnerals.bsky.social · 23d

Genetic testing can provide answers for you and your family — from understanding risk to exploring future health care choices.

Learn more in our ALS & Genetic Counseling and Testing for Family Members Guide.

Read here: lesturnerals.org/als-genetic-...

#GeneticTesting #ALSSupport #ALSResearch

Les Turner ALS Foundation @lesturnerals.bsky.social · 26d

Ninfa is running her 8th marathon in Chicago—with Team Race for ALS.

“For the last six miles you need to find your why. I think of them and how much they would love to have the opportunity to do that.”

Cheer her on Oct 12 @ Grant Park, 7:30 a.m. CT
Interested for 2026? [email protected]

Les Turner ALS Foundation @lesturnerals.bsky.social · 27d

“When it played, every single person—120 guests—was in tears.”

Monica O’Callaghan gave her daughter a wedding speech in a voice that sounded like her own—thanks to AI voice technology.

Read the full story here: buff.ly/SraAYD9

Les Turner ALS Foundation @lesturnerals.bsky.social · 27d

Join us on Monday, November 3, 2025, for the 15th Annual Les Turner Symposium on ALS featuring researchers and clinicians from UC San Diego, Université de Montréal, University College London, and Northwestern University.

Register here: lesturnerals.org/research-pat...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 28d

Are you living with ALS? Do you want to make a positive difference? By joining the National ALS Registry, you can learn about clinical trials and research studies that you may be able to participate in.

20K joined, 115K+ surveys, 70+ trials.

Learn more: cdc.gov/als/join/index.html

Les Turner ALS Foundation @lesturnerals.bsky.social · 29d

Celebrating the life of Art Eggert.

Art was 69 years old when he was diagnosed with ALS in 2020. Art was a bigger than life kind of guy!

“He was known for his dumb dad jokes and puns, best hugger!” – Ysabel Eggert

We’re honored to share his story as part of our Celebration of Life wall 💙

Les Turner ALS Foundation @lesturnerals.bsky.social · Sep 29

Trevor Storm, a Shelbyville hospice nurse, is running the Chicago Marathon with Team Race for ALS for Gregory Dirks.

"This isn’t just for Greg. It’s for every family living with ALS. And I’m proud to be running for them."

Come cheer for Trevor on Oct 12, 7:30 am CT, Grant Park!