Author | Lightnews

ALS News Today @alsnewstoday.bsky.social · 13h

Exploring new treatment paths: https://bit.ly/4qDHlL8

A new Italian clinical trial has officially enrolled its first participant to test a cannabis-based medicine for managing symptoms in people with ALS, Parkinson’s, and Alzheimer’s.

#ALSNewsToday #ALSResearch #MedicalCannabis #ALS #Bionews

Graphic summarizing a trial involving Avextra's cannabis-based medicine for ALS, Parkinson’s, Alzheimer’s. It highlights the potential benefits of full-spectrum extract and mentions Avextra's development of a standardized extract.

ALS News Today @alsnewstoday.bsky.social · 1d

Understand the Cost Burden: https://bit.ly/47KiZYl

A new @alsassociation.bsky.social study found that Medicare users with ALS face more than $47,000 in medical costs in the first year after diagnosis, over three times the average Medicare user.

#ALSNewsToday #ALS #ALSCare #ALSAssociation #Bionews

Graphic highlighting ALS care costs: ALS patients in the U.S. spend over $47,000 in the first year, with hospital care as the largest expense.

ALS News Today @alsnewstoday.bsky.social · 1d

Share with us: https://bit.ly/41G6b1R

#ALS #EndALS #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 2d

Explore promising progress: https://bit.ly/3WppaLi

A new study suggests a simple blood test may one day help diagnose ALS faster and even predict how quickly it will progress.

#ALSResearch #ALSNewsToday #ALSBiomarker #NeurodegenerativeDisease #Bionews

Illustration of a hand holding a blood vial, with a cross-section of a blood vessel showing DNA fragments. Text highlights a blood test for diagnosing and predicting ALS progression.

ALS News Today @alsnewstoday.bsky.social · 5d

Explore the new dashboard: https://bit.ly/47m2X5F

The ALS Association has launched a free interactive data tool offering access to five years of real-world ALS survey data from over 4,000 patients and caregivers.

#ALS #ALSNewsToday #ALSResearch #ALSCommunity #ALSAwareness #PatientData #Bionews

Megaphone icon with text about the ALS Association launching the ALS Focus Data Dashboard, a tool for exploring ALS data to improve care and policy.

ALS News Today @alsnewstoday.bsky.social · 5d

Post your experience: https://bit.ly/44fduOt

#ALSDiagnosis #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 5d

Share your experience: https://bit.ly/42XnrQW

Many ALS patients make changes to their diet, whether it be to improve their overall nutrition or accommodate an ALS-related issue with eating.

What changes have you made?

#ALS #ALSDiet #NutritionAndALS #ALSResearch #ALSNewsToday #Bionews

ALS diet recommendations: Eat polyunsaturated fats, high fiber, polyphenols, resveratrols, high-calorie foods. Avoid: glutamates, some mushrooms, nuts, proteins, seafood, sweets.

ALS News Today @alsnewstoday.bsky.social · 6d

See what’s changing: https://bit.ly/43grTdR

Researchers have uncovered blood and spinal fluid biomarkers that could help track ALS progression and treatment response.

#ALS #ALSNewsToday #ALSResearch #ALSCommunity #NeuroScience #Bionews

Loudspeaker icon with text about U.S. and Europe researchers identifying blood and spinal fluid biomarkers to track ALS progression and treatment. Key proteins include TNNT2 and PDLIM3. ALSNewsToday.com at the bottom.

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ALS News Today @alsnewstoday.bsky.social · 7d

Read the new findings: https://bit.ly/49gTRd0

A new study shows a strong geographic association between ALS and multiple sclerosis.

#ALS #MultipleSclerosis #NeuroResearch #ChronicIllness #ALSNewsToday #NeurodegenerativeDiseases #HealthScience #Bionews

Map showing a study's finding of a strong geographic association between ALS and MS. Source: ALSNewsToday.com

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ALS News Today @alsnewstoday.bsky.social · 7d

Setting Intentions: https://bit.ly/4o1CL7p

Columnist Dagmar Munn shares how a daily intention helps her stay grounded while living with ALS.

#ALSNewsToday #LivingWithALS #ALSToolKit #SelfCare #Mindfulness #ALSSupport #ALSCommunity #Bionews

Quote by Dagmar Munn on self-care, emphasizes incorporating simple, daily actions to cut through sensory overload. ALSNewsToday.com

ALS News Today @alsnewstoday.bsky.social · 8d

Explore AI-driven ALS research: https://bit.ly/4o2Ncb7

Bristol Myers Squibb and Insitro are expanding their partnership to design new ALS treatments using artificial intelligence.

#ALSNewsToday #Bionews #ALSResearch #NeurodegenerativeDiseases #ArtificialIntelligence #BristolMyersSquibb #Insitro

A megaphone icon with text about Insitro using AI to identify new ALS drug targets quickly, aiming to improve survival and reverse pathology.

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ALS News Today @alsnewstoday.bsky.social · 8d

Join the conversation: https://bit.ly/4kgD6R7

#ALS #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 12d

Share your thoughts: https://bit.ly/44lDaJp

#ALSDiagnosis #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 12d

Share your accessible hobbies: https://bit.ly/4n6uON1

#ALS #LifeWithALS #ALSNewsToday #Bionews

Dagmar Munn shares how ALS affected her ability to pursue fiber arts, leading her to adapt and take up knitting slowly. She suggests ALS patients inspire each other to find new accessible passions.

ALS News Today @alsnewstoday.bsky.social · 13d

New ALS Drug in Development: https://bit.ly/47tX2N5

Eikonizo Therapeutics’ experimental oral therapy, EKZ-102, is expected to begin clinical testing in 2026.

#ALSNewsToday #Bionews #ALSResearch #ALSTreatment #EikonizoTherapeutics #NeurodegenerativeDisease #ALSNewsToday

Graphic summarizing a study on EKZ-438, a precursor to Eikonizo’s EKZ-102, showing potential benefits for ALS treatment by reducing abnormal protein buildup and improving motor neuron survival.

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ALS News Today @alsnewstoday.bsky.social · 13d

Preparing for winter’s weight: https://bit.ly/3IYcPKT

As the seasons shift in Michigan’s Upper Peninsula, Kristin Neva reflects on caring for her husband, Todd, as his ALS progresses.

#ALSNewsToday #ALSCommunity #ALS #Caregiving #RareDisease #ALSawareness #ChronicIllness #EndOfLifeCare #Bionews

A silhouette of a person gazing out a window as autumn leaves fall. Text reads: "As the colors change, I’m bracing for another winter with ALS" —Kristin Neva.

ALS News Today @alsnewstoday.bsky.social · 14d

Discover more: https://bit.ly/4habjBQ

#ALS #ALSFundraiser #ALSEvent #ALSAwareness #ALSNewsToday #Bionews

Promotional flyer for Life Time's fitness event on Oct. 25 to raise ALS and children's health research funds via a $25 donation.

ALS News Today @alsnewstoday.bsky.social · 15d

Add your voice: https://bit.ly/4en3Uh3

#AnkleFootOrthosis #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 16d

Share your answer: https://bit.ly/4heT5zo

#ALS #ALSDoctor #ALSNewsToday #Bionews

A doctor sits at a desk talking to a seated woman wearing a hat, with a man standing beside her. Text reads, "My relationship with my doctor is ___."

ALS News Today @alsnewstoday.bsky.social · 16d

Share your experience: https://bit.ly/476Ngz6

#ALS #AssistiveDevice #ALSNewsToday #PowerLiftRecliner #Bionews

Elderly man sitting in a power lift recliner chair, smiling. Text invites users to discuss and share their experience with such chairs.

ALS News Today @alsnewstoday.bsky.social · 19d

Share your thoughts: https://bit.ly/4h206TM

#ALS #MND #ALSNewsToday #Bionews

Open window showing four scenes of a person with ALS using mobility aids in different seasons. Text asks about coping with ALS and seasonal changes.

ALS News Today @alsnewstoday.bsky.social · 19d

Share your thoughts: https://bit.ly/44fdrlL

#StemCellTherapy #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 19d

ALS and mental health: https://bit.ly/42ClEk1

ALS affects more than the body, it impacts emotions, relationships, and daily routines of those living with it, caregivers, and loved one. Explore ways to protect your mental health and find support.

#ALS #WorldMentalHealthDay #ALSNewsToday #Bionews

World Mental Health Day 2025: Three diverse individuals, one in a wheelchair, engage in conversation. ALS awareness highlighted.

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ALS News Today @alsnewstoday.bsky.social · 20d

ALS and surgery: https://bit.ly/4mRpT2r

An important topic that often goes unspoken. Have you had any surgeries since being diagnosed? Share your experience or learn from others in this community discussion.

#ALS #ALSCommunity #ALSSupport #ALSPatients #ALSForums #ALSNewsToday #Bionews

Illustration of surgeons in an operating room with text asking if people with ALS have had surgeries or complications. ALSNewsToday.com at bottom.

ALS News Today @alsnewstoday.bsky.social · 21d

Cooking up connection: https://bit.ly/4mTFjDa

Even as ALS changes what’s possible in the kitchen, Kristin and her husband, Todd, continue to find joy in creating meals together.

#ALS #ALSNewsToday #ALSCommunity #ALSCaregiver #ALSAwareness #CaregiverSupport #RareDiseaseCommunity #ALSFamilies

A woman and a man in a wheelchair smile while cooking together. Quote: "Cooking together remains a joy, even when one of us has ALS" - Kristin Neva.