(2/2) By placing your own physical, medical and emotional needs on equal par with your loved one with PD, you may help prevent yourself from falling into stress, caregiver burnout or depression. This #CaregiversMonth, we’re here to help: Parkinson.org/resources-support/carepartners/caring-for-self
Caring for the Care Partner
Find the balance between caring for a loved one with Parkinson's disease and caring for the care partner.
Parkinson.org
November 6, 2025 at 2:03 PM
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Q1: I’ve been involved with patient advocacy since 2019. After my mom passed, I needed to make sense of it all. I found the #Head2Hill event with @braintumor.org and it completely changed everything. Since then I’ve been focused on building a better future for patients & #carepartners. #btsm
June 8, 2025 at 11:13 PM
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📢 Reminder
There will be no Zoom meeting tonight.
Meetings will commence in September.
If you need assistance, contact us directly at (401) 785-3340
#RISLTCOP #LongTermCare #CareMeeting #CarePartners #RhodeIsland
There will be no Zoom meeting tonight.
Meetings will commence in September.
If you need assistance, contact us directly at (401) 785-3340
#RISLTCOP #LongTermCare #CareMeeting #CarePartners #RhodeIsland
July 8, 2025 at 12:30 PM
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Happy National Caregivers Day to the countless care partners in the Parkinson’s community. 🩵Your dedication does not go unnoticed. We see you, we appreciate you, and we’re here to support you: Parkinson.org/CarePartners
For Care Partners
Check out this section of our website designed for care partners including resources to help manage the caregiving journey along the way.
Parkinson.org
February 21, 2025 at 2:00 PM
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We understand that many care partners work or volunteer outside of their caregiving role. 💼 🏠
Today for Caregivers Month, explore our tips for finding balance between these responsibilities: Parkinson.org/resources-support/carepartners/caring-for-self/work
Today for Caregivers Month, explore our tips for finding balance between these responsibilities: Parkinson.org/resources-support/carepartners/caring-for-self/work
Balancing Work & Caregiving
Learn tips to balancing work & caregiving for your loved one.
Parkinson.org
November 22, 2024 at 8:00 PM
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My work life is better b/c of my amazing collaborations! I am thankful today in particular for my occupational therapy friends and colleagues. Congrats Kasey Stepansky, Elena Donoso Brown, and team on this new publication! #openaccess #strokerehab #carepartners
www.frontiersin.org/journals/reh...
www.frontiersin.org/journals/reh...
Frontiers | Caregiver perceptions of usual care home programs for persons with acquired brain injury: a qualitative descriptive study
www.frontiersin.org
February 6, 2025 at 7:45 PM
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People who live far away may wonder how they can help their loved one with Parkinson’s disease in a meaningful way. 🛣️ Explore our tips on caring from a distance: Parkinson.org/resources-support/carepartners/long-distance
Long Distance Caregiving
Learn more about the support you can provide from a distance on our long distance caregiving page.
www.parkinson.org
February 11, 2025 at 3:00 PM
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Interested in aging research and multiple chronic conditions (MCC) related issues ? Apply to the Aging Initiative IP4 #Patients and #carePartners Panel Advisory Here is the link: (IP4) arcsapps.umassmed.edu/redcap/surve...
more on the #HCSRN #AgingInitiative theaginginitiative.wordpress.com
more on the #HCSRN #AgingInitiative theaginginitiative.wordpress.com
AGING Initiative Insights and Perspectives from Patients and carePartners Panel (IP4) Application
arcsapps.umassmed.edu
January 22, 2025 at 2:10 PM
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Care Partner Webinar April 24th on Children and Parkinson's. Learn more and register for free: www.worldpdcoalition.org/4thcarepartner #CarePartners #Parkinsons #ParkinsonAwarenessMonth
April 24, 2025 at 2:32 PM
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📣 Next week!
Join us next Wednesday, May 21, for a FREE webinar exploring the changing roles of #carepartners.
Together, we’ll talk about the challenges, the resilience, and the tools that can help you find your footing again.
🔗 Register now: parkinsoncanada.zoom.us/webinar/regi...
#Parkinsons
Join us next Wednesday, May 21, for a FREE webinar exploring the changing roles of #carepartners.
Together, we’ll talk about the challenges, the resilience, and the tools that can help you find your footing again.
🔗 Register now: parkinsoncanada.zoom.us/webinar/regi...
#Parkinsons
May 13, 2025 at 6:11 PM
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Shared study findings with participants & others at a community dissemination event at
@CHASSCenter
. Thanks to FAM-ACT participants who attended & gave feedback on the #CHW delivered FAM-ACT #DSMES program for adults w/#type2diabetes & #carepartners
@CHASSCenter
. Thanks to FAM-ACT participants who attended & gave feedback on the #CHW delivered FAM-ACT #DSMES program for adults w/#type2diabetes & #carepartners
November 17, 2024 at 12:28 PM
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"This study aimed to characterize the symptoms managed by #MultipleSclerosis #CarePartners, recognize relationships between #SymptomManagement difficulty & other aspects of the caregiving role, and identify supplemental sources of care-giving #support used by care partners."
doi.org/10.7224/1537...
doi.org/10.7224/1537...
April 8, 2025 at 3:04 PM
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ZOOM MEETING UPDATE:
For the months of July and August, the Rhode Island State Long-Term Care Ombudsman Program will be pausing our monthly Zoom Meetings.
Meetings will commence in September.
We look forward to seeing you again!
#RISLTCOP #LongTermCare #CareMeeting #CarePartners #RhodeIsland
For the months of July and August, the Rhode Island State Long-Term Care Ombudsman Program will be pausing our monthly Zoom Meetings.
Meetings will commence in September.
We look forward to seeing you again!
#RISLTCOP #LongTermCare #CareMeeting #CarePartners #RhodeIsland
July 3, 2025 at 1:45 PM
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Once again, my team had to divide and conquer. Today we were in Houston, Dallas, & Gonzales LA. Special shout out to CarePartners and Alzheimer's Association, Houston & Southeast Texas Chapter for the support. Special shout out also to my team.
March 29, 2025 at 11:29 PM
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📱 SZ Care Series Tip 4
Science confirms: consistent social connection = better outcomes in schizophrenia. Just being present - through regular calls, texts, or visits - makes a huge difference.
Care partners: your steady presence matters more than you know 💫
#Schizophrenia #CarePartners
Science confirms: consistent social connection = better outcomes in schizophrenia. Just being present - through regular calls, texts, or visits - makes a huge difference.
Care partners: your steady presence matters more than you know 💫
#Schizophrenia #CarePartners
February 24, 2025 at 10:17 PM
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🩵 Explore all stages of the Parkinson's care partner journey and practical tips that can help along the way: Parkinson.org/CarePartners
For Care Partners
Check out this section of our website designed for care partners including resources to help manage the caregiving journey along the way.
Parkinson.org
July 11, 2025 at 4:05 PM
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#MS #CarePartners
Have you checked out all the free research articles from the Internationsl Journal of MS Care?
November 2023 issue devoted to caregivers.
meridian.allenpress.com/ijmsc/issue/...
Have you checked out all the free research articles from the Internationsl Journal of MS Care?
November 2023 issue devoted to caregivers.
meridian.allenpress.com/ijmsc/issue/...
November 21, 2024 at 5:45 PM
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"Too often, the therapeutic choices that the #patients or the #CarePartners have to make about how invasive to be or when to stop need to be guided by a nuanced understanding of individual patient values": buff.ly/SKfNq5P
#PatientCare #caregiving #healthcare
Via Catalyst
#PatientCare #caregiving #healthcare
Via Catalyst
buff.ly
March 24, 2025 at 6:30 AM
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What a week!
I’m so proud of my student, Arpitha Sherry, who successfully defended her master's research project today!
#dementia #StudentResearch #SLPeeps #CogComm #CarePartners #Qualitative
Thanks, @learrington.bsky.social & @talkthreads.bsky.social for serving on the committee!
I’m so proud of my student, Arpitha Sherry, who successfully defended her master's research project today!
#dementia #StudentResearch #SLPeeps #CogComm #CarePartners #Qualitative
Thanks, @learrington.bsky.social & @talkthreads.bsky.social for serving on the committee!
March 21, 2025 at 8:51 PM
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Shout out to my mom!
...who signed a photo release for this @jmirpub.bsky.social paper about #sharedaccess (proxy access) in patient portals.
Hot tip: w/permission, you can upload custom images to JMIR! #mychart #olderadults #carepartners @amiainformatics.bsky.social
www.jmir.org/2024/1/e49394/
...who signed a photo release for this @jmirpub.bsky.social paper about #sharedaccess (proxy access) in patient portals.
Hot tip: w/permission, you can upload custom images to JMIR! #mychart #olderadults #carepartners @amiainformatics.bsky.social
www.jmir.org/2024/1/e49394/
Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person’s Care
The US health care delivery system does not systematically engage or support family or friend care partners. Meanwhile, the uptake and familiarity of portals to personal health information are increas...
www.jmir.org
January 4, 2025 at 9:08 PM
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💙 As caregivers, we already intuitively know that environmental risk is modifiable. We change our loved ones' environments constantly, reducing stressors and creating supportive spaces.
Once again, science is catching up to what caregivers already figured out (3/3)
#CarePartners #MentalHealth
Once again, science is catching up to what caregivers already figured out (3/3)
#CarePartners #MentalHealth
May 30, 2025 at 7:51 PM
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Editorial: Far More Than Burnout and Burden: Gerontological Nurses and Care Partners.#Olderadults #Geronurses #Carepartners #Burnout #Burden
buff.ly
January 22, 2025 at 8:15 AM
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Our first panel is live now on the WPC Care Partner webinar. #carepartners #parkinsons
April 24, 2025 at 4:29 PM
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The best time to learn about in-home care options or assisted living facilities is before those options are needed. Knowing about options ahead of time will make your life easier if this transition becomes necessary.
We're here to help: Parkinson.org/resources-support/carepartners/outside-help
We're here to help: Parkinson.org/resources-support/carepartners/outside-help
Getting Outside Help
Identify when it may be time to look into getting outside help and the resources available to assist you.
www.parkinson.org
July 16, 2025 at 9:02 PM
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The best time to learn about in-home care options or assisted living facilities is before those options are needed. Knowing about options ahead of time will make your life easier if this transition becomes necessary.
We're here to help: Parkinson.org/resources-support/carepartners/outside-help
We're here to help: Parkinson.org/resources-support/carepartners/outside-help
Getting Outside Help
Identify when it may be time to look into getting outside help and the resources available to assist you.
www.parkinson.org
January 9, 2025 at 5:00 PM
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