A Chronic Voice
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achronicvoice.com
A Chronic Voice
@achronicvoice.com
2.7K followers 2.3K following 8.6K posts
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.

https://achronicvoice.com/
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achronicvoice.com
A Chronic Voice @achronicvoice.com · Dec 21
Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 buff.ly/TKHRkRo

#ChronicIllness #disability #ChronicPain #MedSky #spoonie
About
Learn more about “A Chronic Voice”, a blog that aims to raise awareness about chronic illness and disabilities through various perspectives.
achronicvoice.com
achronicvoice.com
"MS is not a single #disease it is a collection of personalised #neurological catastrophes wearing the same name tag.. #MS is a fingerprint, not a formula.": buff.ly/15k77Cr

by goblinbloggeruk
#MultipleSclerosis #ProgressiveDisease #ChronicIllness #disability #awareness
MS One Disease, Millions of Realities — Why Medicine Still Gets It Wrong
“MS isn’t one condition — it’s millions of personal realities. A raw, lived-experience breakdown of why no two cases are the same and why real patients know more than textbooks.”
buff.ly
February 17, 2026 at 8:30 PM
achronicvoice.com
"I am still haunted by this experience more than a year on. I now rarely go out without my stick (even on a good day) because I feel like I need to ‘look #disabled ’ to prevent it happening again.": buff.ly/TdbBKtR

by whatapain_blog
#ableism #disability #InvisibleIllness #ChronicIllness #society
"Are you even disabled?" - What a Pain
Imagine the scene. You’ve got yourself all dressed up, new dress, new makeup. You’ve been stuck at home for months, literally, because you’ve been so unwell. Life has been crappy lately, you’re…
buff.ly
February 17, 2026 at 7:30 PM
achronicvoice.com
“I’m honoring 17 years of #adapting, #surviving, and pushing through while acknowledging that this kind of #survival would break anyone.”: buff.ly/TivJs7n

by @carriekellenberger.bsky.social
#ChronicIllness #disability #spoonie #SelfLove #SelfWorth
February 17, 2026 at 4:32 PM
achronicvoice.com
"You can also wear a baggy cotton nightdress at home, which is comfortable even if there are guests..but they’re not practical for days when you need to go for appointments. So I bought some #adaptive shorts.": buff.ly/9GlkkK6

#AdaptiveClothing #accessibility #disabled #mobility #surgery
Accessible Clothing for after a major knee surgery. www. a chronic voice .com
February 17, 2026 at 3:30 PM
achronicvoice.com
"[ #SpermWhales ] hunt together, babysit for each other and work together to see off predatory orcas. Of course they have complex #communication. They need it for #survival.": buff.ly/oN0jVzO

via @theguardian.com
#animals #whales #community #AnimalBehavior
Dogs name toys while elephants name each other. Animal language is more complex than we imagine | Helen Pilcher
If we really want to grasp what animals are ‘saying’, we need to understand their communication on their terms, not ours, says science writer Helen Pilcher
buff.ly
February 17, 2026 at 1:30 PM
achronicvoice.com
"[My #BestFriend, Aimee,] introduced me to #therapy, to taking smart risks, to honouring my #body’s signals instead of silencing them. Aimee loved me back to life.": buff.ly/NxfGlSB

via @psyche.co
#friendship #human #MentalHealth #resilience
How strength training saved me from my own mind | Psyche Turning Points
When grief and distraction spun my mind out of control, only the strain of my muscles could keep it intact
buff.ly
February 17, 2026 at 12:30 PM
achronicvoice.com
" #Gabapentin helps to keep the pain [from an #MS hug] at a tolerable level, but it’s rarely entirely absent. I describe the tightness as a feeling of thick rubber bands pulling between various parts of my #body,” Judy Lynn wrote": buff.ly/cwWvVPq

via @msnewstoday.bsky.social
#spoonie #ChronicPain
The MS hug: Symptoms, triggers, treatments, and tips to manage |...
The MS hug causes tightness around the chest and is a common sensation for people with MS. Learn more about its symptoms and treatments.
buff.ly
February 17, 2026 at 11:31 AM
achronicvoice.com
"In the big scheme of things, my flare-up is a small price to pay if it contributes to further #research ..Plus, I enjoyed the whole experience, felt valued & made new #friends & contacts.": buff.ly/96BqJKR

by dalerockell
#ChronicPain #fibromyalgia #community #StrongerTogether #advocates
My Bath Advocacy Adventure
In the big scheme of things, my flare-up is a small price to pay if it changes how the medical profession, society, and policy makers think about chronic illness.
buff.ly
February 17, 2026 at 9:30 AM
achronicvoice.com
CW: #impalment #surgery
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"The image was a map of #disaster : a steel rod cutting straight through the man’s core, grazing the aorta, skimming the vena cava, and pressing against the liver. It looked less like an #injury than a lit fuse.": buff.ly/6S8LWGm

via kevinmd
#ED #emergency #surgeon
The night of an impalement injury surgery
A construction worker was impaled by a steel rod. Doctors at Nanjing Jiangbei Hospital performed a five-hour surgery to save his life, navigating millimeters from major vessels. Read the story.
buff.ly
February 17, 2026 at 7:30 AM
achronicvoice.com
“There is nothing wrong with being fragile, my dear. A fragile thing like you has the power to cut someone in two.” – Eloise Night. Don't forget that being #human, you are #resilient & there is a certain power in #brokenness.: buff.ly/HqXYzit

#MondayBlogs #ChronicIllness #affirmation #SelfLove
“There is nothing wrong with being fragile, my dear. A fragile thing like you has the power to cut someone in two.” - Eloise Night. www. a chronic voice .com
February 17, 2026 at 4:30 AM
achronicvoice.com
"In the woods, I let myself unravel a little..The #forest became a mirror, showing me that #healing isn’t about erasing #pain, it’s about learning to live among it, gently.": buff.ly/aEu6Yuv

by sunbeamacres
#ChronicPain #fibromyalgia #nature #disability
Finding Calm in Fibromyalgia: The Power of Forest Therapy
🌿When your body becomes a buzzing forest of sensations, sometimes the only way to heal is to walk among the trees. I wrote about my journey through endometriosis, hypermobility, menopause and fibro…
buff.ly
February 17, 2026 at 2:30 AM
achronicvoice.com
"1. Identify your #sensory anchors. Think about colors, textures, scents, or sounds from your #happiest #memories. If #childhood feels heavy, look to other times. What do you remember most vividly?": buff.ly/nFDXNFZ

via tinybuddha
#MentalHealthMatters #emotions #SelfLove
How to Return to Emotional Safety, One Sensory Anchor at a Time - Tiny Buddha
We can’t go back, and we don’t need to. But we can return, in small ways, to the places inside us where we first felt safe, joyful, or whole.
buff.ly
February 16, 2026 at 11:30 PM
achronicvoice.com
"It’s been a lot of trial and error for me..I have a rough idea of which types of food cause the most damage, having learned the painful way. By sharing these personal experiences, I hope that it saves you some pain.": buff.ly/Wm7JfsS

#MondayBlogs #MedSky #ChronicPain #Esophageal #diverticulum
Epiphrenic Esophageal Diverticulum — Foods That Are Okay Or Not Okay For Me. www. a chronic voice .com
February 16, 2026 at 9:30 PM
achronicvoice.com
“When feeling so detached, distanced & cut-off from even those we love the most, we may withdraw from the world in an effort to cope, further #isolating ourselves. “ #Pain inverts our normal #perspective,” says David Biro.”: buff.ly/B2hZTn4

by @apainprincess.bsky.social
#ChronicPain #NEisVoid
The Isolating Loneliness of Chronic Pain & Invisible Illness
Chronic pain and invisible illness can be incredibly isolating, sometimes in obvious ways but other times, it's far more insidious or subtle. Just as our pain and symptoms are mo
buff.ly
February 16, 2026 at 8:30 PM
achronicvoice.com
“Because Lp(a) is #genetic, people can have high levels even with normal #LDL ..A screening must be ordered separately from the typical #lipid panel and is only required once in a lifetime.”: buff.ly/wDzuymF

from @yaleschoolofmed.bsky.social
#HeartHealth #HighCholesterol #cholesterol #MedSky
Your Cholesterol Numbers: The Good, the Bad, the Triglycerides
A Yale Medicine cardiologist explains how to understand your cholesterol screening numbers.
buff.ly
February 16, 2026 at 6:30 PM
achronicvoice.com
“Studies have detected potentially harmful substances from #ECigarette aerosols in #urine, meaning the #bladder is still exposed to #toxic compounds. While long-term data..still limited, #ECigarettes cannot currently be considered harmless.”: buff.ly/43IpfNg

from kevinmd
#vaping #smoking #cancer
Why smoking is the top cause of bladder cancer
Bladder cancer and smoking are strongly linked. Discover how tobacco toxins affect the bladder and why quitting improves survival and lowers recurrence.
buff.ly
February 16, 2026 at 5:30 PM
achronicvoice.com
“ #Pregnancy is something I’ve had to think about since I was 14. Some of the drugs can cause permanent #infertility & I had to weigh the risks & benefits. It didn’t matter that I was just a skinny, naïve, single #teen girl.": buff.ly/gb20WrL

#MondayBlogs #ChronicIllness #YoungAdult #spoonie
Grieving the Life That I Will Never Have (Due to Chronic Illness & Disability)
My psychologist asked me to write a diary entry, “Grieving the Life That I Will Never Have”, as a person with chronic illness. Here's what I wrote.
buff.ly
February 16, 2026 at 3:31 PM
achronicvoice.com
“The #VictorianEra was an epoch defined above all by an #obsession with #progress. The Victorians were great innovators..& utopians, envisioning a perpetual process of #improvement: not only of the self, but of #society, of all mankind.”: buff.ly/F2HkrkC

via @aeon.co
#SelfImprovement #society
Victorian diary-writers kicked off our age of self-optimisation | Aeon Essays
Our cursed age of self-monitoring and optimisation didn’t start with big tech: as so often, the Victorians are to blame
buff.ly
February 16, 2026 at 2:30 PM
achronicvoice.com
“You expect automated conveyor belts or robot arms..but it’s..completely #analog, from beginning to end..convey nuances of proportion & texture that QR codes & Yelp reviews cannot.”: buff.ly/NpDXs7x

via @newyorker.com
#ShokuhinSampuru #Food #replicas #japan
Feast Your Eyes on Japan’s Fake Food
Lifelike food replicas have long been a fixture of Japanese dining culture. Now, in an exhibition at Japan House, they are being spotlighted as art.
buff.ly
February 16, 2026 at 12:30 PM
achronicvoice.com
CW: #death
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“It amazes me that after a serious #BrainInjury that made some of my #memories vanish, I can still..remember the..look of terror in Chris’..eyes when I told him that, as he had directed, we weren't going to put him on the #respirator.”: buff.ly/oKpJCGq

by dlhampton
#HIV #ChronicIllness
Are You Torturing Yourself With Your Thoughts? - The Best Brain Possible
There's always going to be pain, joy and everything in between. Your experience of this life and your brain are shaped by what you choose to focus on.
buff.ly
February 16, 2026 at 11:30 AM
achronicvoice.com
“Perhaps you share a space in the office, or a stall at the farmers’ market. Although close, you are separate from the well. They in their #working #bodies and #minds. You in your cocoon from which no butterfly will emerge.”: buff.ly/6Tfftgz

via @psychologytoday.com
#ChronicIllness #NEisVoid
In a Cage: The Inner Life of the Chronically Ill
A Personal Perspective: When chronically ill, you may try to join others in the world, but you will likely be separate from them.
buff.ly
February 16, 2026 at 9:30 AM
achronicvoice.com
"In a remarkable feat of #capitalist #opportunism, the #concept has been co-opted by entrepreneurial thought leaders & influencers, who promise to help you ‘find’ your #purpose so you can monetise it by creating a business out of it.": buff.ly/sCrIZAj

via @psyche.co
#SelfImprovement #PersonalGrowth
Your purpose isn’t something to find, it’s something you form | Psyche Ideas
In my therapy office, I’ve found that to live with greater purpose, we must think differently about where it comes from
buff.ly
February 16, 2026 at 7:30 AM
achronicvoice.com
"Just like #flowers that have been cut, we can continue to be on best display with the proper nutrition, care & environment..since we’re already in full bloom, we might as well brighten the lives of those around us.": buff.ly/7zhcLxx

#perspective #ChronicIllness #MondayBlogs #disability
Flowers are the Most Beautiful When They're Just About to Die (and What That's Got to Do with Being a Spoonie)
February 16, 2026 at 4:30 AM
achronicvoice.com
[New Post] "For #children with #DevelopmentalDifferences such as motor delays, this is training disguised as play. A lot of formal #therapies miss this. They isolate the movement, forget the joy. But #art -based motor workshops flip that.": buff.ly/V4AD0im

#MondayBlogs #MotorSkills #neurodivergent
How Art Benefits Children with Developmental Differences. Guest Post by Martin Block. Read More. (Pupils are dressed casually in a classroom setting. They are painting on canvases attached to wooden easels, and look quiet and focused. A teacher in a blue dress smiles from the corner, and seems to be guiding them along.)
February 16, 2026 at 4:00 AM
achronicvoice.com
“For many years, the line between #lonely & #alone was blurry. Some days, I craved #connection, and wished for a #sibling. Other days, I relished my own company..My surplus of #solitude forced me to find solace in it, and so I did.”: buff.ly/EcMmEMM

from @behscientist.bsky.social
#human #isolation
Solitude Is a Skill - by Elizabeth Weingarten - Behavioral Scientist
We all need different amounts of social time and alone time. If the solitary life comes less natural to you, what should you do?
buff.ly
February 16, 2026 at 1:30 AM