A Chronic Voice
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
https://achronicvoice.com/
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About
Learn more about “A Chronic Voice”, a blog that aims to raise awareness about chronic illness and disabilities through various perspectives.
achronicvoice.com
Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 buff.ly/TKHRkRo
#ChronicIllness #disability #ChronicPain #MedSky #spoonie
#ChronicIllness #disability #ChronicPain #MedSky #spoonie
“there were times when my #grief was magnified & I’d find myself in pools of tears, at the most random of times & places..& I couldn’t muster an explanation..due to the fact that I didn’t necessarily understand myself.”: buff.ly/OjXlFpQ
by @myblurredworld.bsky.social
#blind #identity #Disabled
by @myblurredworld.bsky.social
#blind #identity #Disabled
Sight loss and grief - My Blurred World
I've been losing my eyesight since I was 3 years old and I've found myself grieving for it at times, here's my personal experience of sight loss and grief
buff.ly
January 1, 2026 at 5:30 PM
“there were times when my #grief was magnified & I’d find myself in pools of tears, at the most random of times & places..& I couldn’t muster an explanation..due to the fact that I didn’t necessarily understand myself.”: buff.ly/OjXlFpQ
by @myblurredworld.bsky.social
#blind #identity #Disabled
by @myblurredworld.bsky.social
#blind #identity #Disabled
"There was this game we played in..school..during a #motivational course..papers were stuck onto our backs & we had to go ard writing down a person’s best #quality. I noticed that those who lacked..#personality had the..words ‘sweet’ attributed to them.": buff.ly/LS14B8Y
#sweet #BeKind #spoonie
#sweet #BeKind #spoonie
Kick Ass With Kindness and a Sweet Cherry on Top
Kindness and being sweet don't sound like very kickass personality traits. Here's how I learned that it can be a strong self-identity.
buff.ly
January 1, 2026 at 3:30 PM
"There was this game we played in..school..during a #motivational course..papers were stuck onto our backs & we had to go ard writing down a person’s best #quality. I noticed that those who lacked..#personality had the..words ‘sweet’ attributed to them.": buff.ly/LS14B8Y
#sweet #BeKind #spoonie
#sweet #BeKind #spoonie
“My #limbs are filled with fluid that is stagnant & the backs of my legs..r beyond tender. Even having my cats move onto my lap to nap is #painful. It’s so bad, thoughts of #amputation almost seem normal! I’m desperate for relief.”: buff.ly/4DVIm4a
#ChronicPain
by @carriekellenberger.bsky.social
#ChronicPain
by @carriekellenberger.bsky.social
Pain Awareness: How I Defeated The Fear Of Touching My Body and Making Pain Worse - My Several Worlds
CHRONIC PAIN How I Defeated The Fear Of Touching My Body and Making Pain Worse
buff.ly
January 1, 2026 at 1:30 PM
“My #limbs are filled with fluid that is stagnant & the backs of my legs..r beyond tender. Even having my cats move onto my lap to nap is #painful. It’s so bad, thoughts of #amputation almost seem normal! I’m desperate for relief.”: buff.ly/4DVIm4a
#ChronicPain
by @carriekellenberger.bsky.social
#ChronicPain
by @carriekellenberger.bsky.social
"In 2026, you'll have the chance to see 13 #FullMoons, including three #supermoons and two #lunar eclipses (one of which is the last total #LunarEclipse until New Year's Eve 2028).": buff.ly/ilqTGU6
via @livescience.com
#FullMoon
via @livescience.com
#FullMoon
Full moons of 2026: When to see all 13 moons (including a Blue Moon and a Blood Moon) rise next year
When does the next full moon rise? Find out exactly when to see the full moons of 2026, including the full "Wolf Moon" supermoon in January.
buff.ly
January 1, 2026 at 12:30 PM
"In 2026, you'll have the chance to see 13 #FullMoons, including three #supermoons and two #lunar eclipses (one of which is the last total #LunarEclipse until New Year's Eve 2028).": buff.ly/ilqTGU6
via @livescience.com
#FullMoon
via @livescience.com
#FullMoon
"Long-term #HighFat diets can reprogram #liver cells, forcing them into a stem-like survival state that increases #cancer risk. What helps these #cells endure stress may also give #tumors a critical head start.": buff.ly/AB2IFwL
via sciencedaily
#LiverCancer #research
via sciencedaily
#LiverCancer #research
MIT study shows high-fat diets give liver cancer a dangerous head start
A high-fat diet does more than overload the liver with fat. New research from MIT shows that prolonged exposure to fatty foods can push liver cells into a survival mode that quietly raises the risk…
buff.ly
January 1, 2026 at 11:30 AM
"Long-term #HighFat diets can reprogram #liver cells, forcing them into a stem-like survival state that increases #cancer risk. What helps these #cells endure stress may also give #tumors a critical head start.": buff.ly/AB2IFwL
via sciencedaily
#LiverCancer #research
via sciencedaily
#LiverCancer #research
"Some #illnesses do not storm the body to the brink of death..don’t..leave dramatic scans behind. Yet they quietly hollow a life from the inside, stealing ease, stealing spontaneity, turning ordinary days into endurance tests.": buff.ly/8ctB4NT
via kevinmd
#ChronicPain #fibromyalgia #Sjogrens
via kevinmd
#ChronicPain #fibromyalgia #Sjogrens
Sjogren's, fibromyalgia, and the weight of invisible illness
Living with invisible illness like Sjogren's and fibromyalgia turns life into an endurance test. A story of finding peace and resilience in the rain. Read more.
buff.ly
January 1, 2026 at 9:30 AM
"Some #illnesses do not storm the body to the brink of death..don’t..leave dramatic scans behind. Yet they quietly hollow a life from the inside, stealing ease, stealing spontaneity, turning ordinary days into endurance tests.": buff.ly/8ctB4NT
via kevinmd
#ChronicPain #fibromyalgia #Sjogrens
via kevinmd
#ChronicPain #fibromyalgia #Sjogrens
"Live Science's #health channel editor makes predictions about the #medical breakthroughs and #PublicHealth shifts to come in 2026.": buff.ly/1PxlNTK
via @livescience.com
#Medsky #MedicalResearch #medicine #science
via @livescience.com
#Medsky #MedicalResearch #medicine #science
From gene therapy breakthroughs to preventable disease outbreaks: The health trends that will shape 2026
Live Science's health channel editor makes predictions about the medical breakthroughs and public health shifts to come in 2026.
buff.ly
January 1, 2026 at 7:30 AM
"Live Science's #health channel editor makes predictions about the #medical breakthroughs and #PublicHealth shifts to come in 2026.": buff.ly/1PxlNTK
via @livescience.com
#Medsky #MedicalResearch #medicine #science
via @livescience.com
#Medsky #MedicalResearch #medicine #science
“In #recovery, I learned how dangerous #alcohol can be. It’s definitely more mainstream than heroin or crack, but it’s just as deadly. I didn’t come this far to let alcohol take me down.”: buff.ly/uRJOYVE
by Tim Stoddart
#AlcoholAddiction #AlcoholAbuse #addiction
by Tim Stoddart
#AlcoholAddiction #AlcoholAbuse #addiction
The Greatest Battle of My Life: How I Overcame Addiction
Tim of Sober Nation shares how he overcame addiction to all sorts of drugs, especially opiates, and how alcohol was a major trigger.
buff.ly
January 1, 2026 at 4:30 AM
“In #recovery, I learned how dangerous #alcohol can be. It’s definitely more mainstream than heroin or crack, but it’s just as deadly. I didn’t come this far to let alcohol take me down.”: buff.ly/uRJOYVE
by Tim Stoddart
#AlcoholAddiction #AlcoholAbuse #addiction
by Tim Stoddart
#AlcoholAddiction #AlcoholAbuse #addiction
“[ #Endometriosis ] impacts everything from what I wear to work to all of my #friendships and #relationships. It's a lot to ask someone to take on as a partner or as a friend. Most of the time, it's too much.”: buff.ly/cvzxlk8
via theodyssey
#disability #ChronicIllness
via theodyssey
#disability #ChronicIllness
buff.ly
January 1, 2026 at 2:30 AM
“[ #Endometriosis ] impacts everything from what I wear to work to all of my #friendships and #relationships. It's a lot to ask someone to take on as a partner or as a friend. Most of the time, it's too much.”: buff.ly/cvzxlk8
via theodyssey
#disability #ChronicIllness
via theodyssey
#disability #ChronicIllness
“Comments like "but you were fine yesterday!"..hit like accusations. They force you to either defend yourself or silently swallow the hurt of not being trusted.”: buff.ly/A2rEan3
#NEisVoid #ChronicIllness #InvisibleIllness #disabled #awareness
by @remotetherapy.space
#NEisVoid #ChronicIllness #InvisibleIllness #disabled #awareness
by @remotetherapy.space
The Invisible Struggle
When Your Illness Doesn't Show on the Outside
buff.ly
January 1, 2026 at 12:30 AM
“Comments like "but you were fine yesterday!"..hit like accusations. They force you to either defend yourself or silently swallow the hurt of not being trusted.”: buff.ly/A2rEan3
#NEisVoid #ChronicIllness #InvisibleIllness #disabled #awareness
by @remotetherapy.space
#NEisVoid #ChronicIllness #InvisibleIllness #disabled #awareness
by @remotetherapy.space
"My #hair was falling out in bunches and clumps every day for a period of time from #medications ..Wherever I went, I left behind some of my hair. It was frustrating to see yet more hair on the ground, right after I had mopped up": buff.ly/C4Li4MC
#NEisVoid #ChronicIllness #spoonie
#NEisVoid #ChronicIllness #spoonie
December 31, 2025 at 9:30 PM
"My #hair was falling out in bunches and clumps every day for a period of time from #medications ..Wherever I went, I left behind some of my hair. It was frustrating to see yet more hair on the ground, right after I had mopped up": buff.ly/C4Li4MC
#NEisVoid #ChronicIllness #spoonie
#NEisVoid #ChronicIllness #spoonie
“Folk dont want the messy #truth ..They want uplifting tales of hope, poignant tales of sorrow, struggle & overcoming into victory & joy that carries them up with it & a shiny list of tools to get there. I can’t offer that.": buff.ly/2gHz4YH
#Bipolar #MentalIllness
by @siegeofthespirit.bsky.social
#Bipolar #MentalIllness
by @siegeofthespirit.bsky.social
these moments are hell
Folk don’t want the messy truth. Not that I have seen, at least not my messy truth. They want uplifting tales of hope, poignant tales of sorrow, struggle and overcoming into victory and joy that ca…
buff.ly
December 31, 2025 at 8:30 PM
“Folk dont want the messy #truth ..They want uplifting tales of hope, poignant tales of sorrow, struggle & overcoming into victory & joy that carries them up with it & a shiny list of tools to get there. I can’t offer that.": buff.ly/2gHz4YH
#Bipolar #MentalIllness
by @siegeofthespirit.bsky.social
#Bipolar #MentalIllness
by @siegeofthespirit.bsky.social
#DogLove overload and wishing everyone a #HappyNewYear2026 - whatever '#happy' means to you 😊
#ChronicIllness #Disability #advocate
#ChronicIllness #Disability #advocate
December 31, 2025 at 8:05 PM
#DogLove overload and wishing everyone a #HappyNewYear2026 - whatever '#happy' means to you 😊
#ChronicIllness #Disability #advocate
#ChronicIllness #Disability #advocate
CW: #ChildAbuse
.
“Last year I decided to tell my #mother. She learned I was #molested under her roof by a man she invited into our #home. I will never forget the #sadness in her eyes when she realized she failed to #protect her boy.": buff.ly/5j65mDv
by 1sunrisewarrior
.
“Last year I decided to tell my #mother. She learned I was #molested under her roof by a man she invited into our #home. I will never forget the #sadness in her eyes when she realized she failed to #protect her boy.": buff.ly/5j65mDv
by 1sunrisewarrior
My Second Battle With My Monster. This One Is For My Freedom! - The Sunrise Warrior
How can the worst thing that ever happened to you be the exact thing that shapes what you are most proud of? How can you truly heal from such a horrific battle? My experience.
buff.ly
December 31, 2025 at 6:30 PM
CW: #ChildAbuse
.
“Last year I decided to tell my #mother. She learned I was #molested under her roof by a man she invited into our #home. I will never forget the #sadness in her eyes when she realized she failed to #protect her boy.": buff.ly/5j65mDv
by 1sunrisewarrior
.
“Last year I decided to tell my #mother. She learned I was #molested under her roof by a man she invited into our #home. I will never forget the #sadness in her eyes when she realized she failed to #protect her boy.": buff.ly/5j65mDv
by 1sunrisewarrior
"For people living with #ChronicIllness, this myth can feel esp alienating. Yr symptoms don’t reset on #January 1..Your body carries memory, patterns & ongoing needs that don’t align with the idea of a clean slate.": buff.ly/Zc6qomo
by @thethrivingspoonie.com
#ChronicPain #disability #HappyNewYear
by @thethrivingspoonie.com
#ChronicPain #disability #HappyNewYear
Resting Through the New Year: A Spoonie’s Alternative to Resolutions
A gentler alternative to New Year’s resolutions with chronic illness, centered on rest, pacing, and sustainable routines.
buff.ly
December 31, 2025 at 4:30 PM
"For people living with #ChronicIllness, this myth can feel esp alienating. Yr symptoms don’t reset on #January 1..Your body carries memory, patterns & ongoing needs that don’t align with the idea of a clean slate.": buff.ly/Zc6qomo
by @thethrivingspoonie.com
#ChronicPain #disability #HappyNewYear
by @thethrivingspoonie.com
#ChronicPain #disability #HappyNewYear
"It still hurts my #knees when I bend to sit on the #toilet bowl even after 6 months. My hands are also always in pain from #Lupus & #Sjogrens, so pulling myself up with the railings hurt, too. My advice would be to get an adjustable toilet bowl seat.": buff.ly/epgoVb9
#mobility #disability
#mobility #disability
After Surgery Care at Home: Hygiene Resources (Part 2/6)
A comprehensive list of hygiene resources for after surgery care at home. Part of series on my major knee surgery injury and recovery.
buff.ly
December 31, 2025 at 3:30 PM
"It still hurts my #knees when I bend to sit on the #toilet bowl even after 6 months. My hands are also always in pain from #Lupus & #Sjogrens, so pulling myself up with the railings hurt, too. My advice would be to get an adjustable toilet bowl seat.": buff.ly/epgoVb9
#mobility #disability
#mobility #disability
“I hate having to exclude myself from ‘life.’ The physical pain in every inch of my #body inside and out is overwhelming me. I feel #anxious because I don’t know how long this will last, or how long I can #survive it. - Chris H”: buff.ly/eX4fkOC
via @themightysite.bsky.social
#EDS #disability
via @themightysite.bsky.social
#EDS #disability
21 People With Ehlers-Danlos Syndrome Describe What a 'Bad Pain Day' Really Looks Like
"It means so much more than just the physical pain."
buff.ly
December 31, 2025 at 2:30 PM
“I hate having to exclude myself from ‘life.’ The physical pain in every inch of my #body inside and out is overwhelming me. I feel #anxious because I don’t know how long this will last, or how long I can #survive it. - Chris H”: buff.ly/eX4fkOC
via @themightysite.bsky.social
#EDS #disability
via @themightysite.bsky.social
#EDS #disability
“No matter what level of #fitness you’re at, whether you’re a world-class #athlete or someone who’s just starting to become #active, it’s really important to approach each of these phases with intention.”: buff.ly/6CoVp1g
via @ClevelandClinic.bsky.social
#exercise #StrengthTraining #ActiveLifestyle
via @ClevelandClinic.bsky.social
#exercise #StrengthTraining #ActiveLifestyle
Eccentric vs. Concentric Movement
Eccentric actions are slow and steady, while concentric ones are fast and controlled. A sports medicine specialist explains how, together, these movements complete a full-body workout.
buff.ly
December 31, 2025 at 12:30 PM
“No matter what level of #fitness you’re at, whether you’re a world-class #athlete or someone who’s just starting to become #active, it’s really important to approach each of these phases with intention.”: buff.ly/6CoVp1g
via @ClevelandClinic.bsky.social
#exercise #StrengthTraining #ActiveLifestyle
via @ClevelandClinic.bsky.social
#exercise #StrengthTraining #ActiveLifestyle
“And this #grief? It's not just for what's gone.
It's for what might've been.
The parts of me that never got to grow.
The lives I could've lived if only…”: buff.ly/jR68CDP
By @stillrollingout.stillrollingoutdoors.com
#loss #SelfIdentity #ChronicIllness #disability
It's for what might've been.
The parts of me that never got to grow.
The lives I could've lived if only…”: buff.ly/jR68CDP
By @stillrollingout.stillrollingoutdoors.com
#loss #SelfIdentity #ChronicIllness #disability
The Paradox of Necessary Grief: Grief Lives Alongside Joy
Grief doesn't fade. It learns to live alongside joy. That's not failure, that's the work.
buff.ly
December 31, 2025 at 10:30 AM
“And this #grief? It's not just for what's gone.
It's for what might've been.
The parts of me that never got to grow.
The lives I could've lived if only…”: buff.ly/jR68CDP
By @stillrollingout.stillrollingoutdoors.com
#loss #SelfIdentity #ChronicIllness #disability
It's for what might've been.
The parts of me that never got to grow.
The lives I could've lived if only…”: buff.ly/jR68CDP
By @stillrollingout.stillrollingoutdoors.com
#loss #SelfIdentity #ChronicIllness #disability
“ #Healthy people make roughly 35,000 #decisions a day. But when you’re managing a #ChronicCondition, that num skyrockets & the stakes feel..higher. Miss a medication window, & u might trigger a flare. Push through fatigue..& u could be bedbound.”: buff.ly/kQjFvP0
By @remotetherapy.space
#spoonie
By @remotetherapy.space
#spoonie
Understanding Decision Fatigue in Chronic Illness
Welcome to this week’s post!
buff.ly
December 31, 2025 at 9:30 AM
“ #Healthy people make roughly 35,000 #decisions a day. But when you’re managing a #ChronicCondition, that num skyrockets & the stakes feel..higher. Miss a medication window, & u might trigger a flare. Push through fatigue..& u could be bedbound.”: buff.ly/kQjFvP0
By @remotetherapy.space
#spoonie
By @remotetherapy.space
#spoonie
“ #ChronicIllness has a way of stripping abstraction away until all that remains is what the #body can actually carry, and for how long. Some days the range was wide. Other days, it narrowed to the space between breaths.”: buff.ly/s3Zst6K
By @stillrollingout.stillrollingoutdoors.com
#ChronicPain
By @stillrollingout.stillrollingoutdoors.com
#ChronicPain
On Arrival: Without A Map
Clarity didn't arrive as certainty. It arrived as capacity.
buff.ly
December 31, 2025 at 7:30 AM
“ #ChronicIllness has a way of stripping abstraction away until all that remains is what the #body can actually carry, and for how long. Some days the range was wide. Other days, it narrowed to the space between breaths.”: buff.ly/s3Zst6K
By @stillrollingout.stillrollingoutdoors.com
#ChronicPain
By @stillrollingout.stillrollingoutdoors.com
#ChronicPain
“ #BakersCyst wasn’t even on my radar with inflammatory #arthritis. I’ve lived 18 years with this disease & I’m still learning. This is what ended up being 1 of the worst aspects of extreme #LegPain in 2025.”: buff.ly/a2SVDDf
by @carriekellenberger.bsky.social
#ChronicPain
by @carriekellenberger.bsky.social
#ChronicPain
December 31, 2025 at 5:11 AM
“ #BakersCyst wasn’t even on my radar with inflammatory #arthritis. I’ve lived 18 years with this disease & I’m still learning. This is what ended up being 1 of the worst aspects of extreme #LegPain in 2025.”: buff.ly/a2SVDDf
by @carriekellenberger.bsky.social
#ChronicPain
by @carriekellenberger.bsky.social
#ChronicPain
“the #numbness fr the local #anesthesia is slowly dissipating..I am trading strange, tingly #sensations for ‘no sensations’. By ‘no sensations’ I mean regular sensations - which I now know is ‘regular’ simply bcos that’s all I’ve ever known.": buff.ly/myGOglQ
by @achronicvoice.com
by @achronicvoice.com
December 31, 2025 at 4:30 AM
“the #numbness fr the local #anesthesia is slowly dissipating..I am trading strange, tingly #sensations for ‘no sensations’. By ‘no sensations’ I mean regular sensations - which I now know is ‘regular’ simply bcos that’s all I’ve ever known.": buff.ly/myGOglQ
by @achronicvoice.com
by @achronicvoice.com
Reposted by A Chronic Voice
@achronicvoice.com I found what I was looking for. it is a spread sheet that works with google docs I am sending you a link incase you get this question again. I hope it works as tech and I don't always get along. shop.stephaniecervi.design/products/sym...
Symptom Tracker Template
My symptom tracker template allows you to see all your health trends in one place, and puts equal value on qualitative experience and quantitative data.
shop.stephaniecervi.design
December 28, 2025 at 7:29 PM
@achronicvoice.com I found what I was looking for. it is a spread sheet that works with google docs I am sending you a link incase you get this question again. I hope it works as tech and I don't always get along. shop.stephaniecervi.design/products/sym...
“ #Nature doesn't ask permission to rest.
The ground doesn't earn its #stillness after a season of growth.
It just is. It rests so it can rise again.”: buff.ly/HlRH0cs
#mindfulness #SelfCare #ChronicIllness
by @stillrollingout.stillrollingoutdoors.com
The ground doesn't earn its #stillness after a season of growth.
It just is. It rests so it can rise again.”: buff.ly/HlRH0cs
#mindfulness #SelfCare #ChronicIllness
by @stillrollingout.stillrollingoutdoors.com
When Rest Isn't a Reward: You Don't Have to Earn Stillness
Rest isn't something you earn. It's something you require. Like the ground after a season of growth. You don't need permission to be still.
buff.ly
December 31, 2025 at 1:30 AM
“ #Nature doesn't ask permission to rest.
The ground doesn't earn its #stillness after a season of growth.
It just is. It rests so it can rise again.”: buff.ly/HlRH0cs
#mindfulness #SelfCare #ChronicIllness
by @stillrollingout.stillrollingoutdoors.com
The ground doesn't earn its #stillness after a season of growth.
It just is. It rests so it can rise again.”: buff.ly/HlRH0cs
#mindfulness #SelfCare #ChronicIllness
by @stillrollingout.stillrollingoutdoors.com