I'm so glad because my ME/CFS and fibromyalgia flared yesterday, so I was unable to attend the protest near my city today. My husband was going to take me, and sit on a camping chair while I sat in my wheelchair. My signs:
October 18, 2025 at 8:14 PM
Everybody can reply
1 reposts
I increasingly believe something has gone awry in fibromyalgia that means we need extra supplements even with a healthy diet & suitable pharmaceutical medications.
Many see benefit from any combination of
Vitamin D3,
Coenzyme Q10 as Ubiquinol,
Folate,
Magnesium of some type,
and seemingly many more.
Many see benefit from any combination of
Vitamin D3,
Coenzyme Q10 as Ubiquinol,
Folate,
Magnesium of some type,
and seemingly many more.
October 18, 2025 at 7:32 PM
Everybody can reply
1 likes
Supplements and CBD experiment for fibromyalgia continues.
I've had folate supplements added by a GP which is very interesting. Only a bit low, the term deficiency wasn't used.
I had such a bad extended migraine I thought I had brain cancer. Possibly related to low folate levels on an online search.
I've had folate supplements added by a GP which is very interesting. Only a bit low, the term deficiency wasn't used.
I had such a bad extended migraine I thought I had brain cancer. Possibly related to low folate levels on an online search.
October 18, 2025 at 7:32 PM
Everybody can reply
3 likes
RSO oil really helped Cancer fibromyalgia anxiety depression PTSD. I have been coping well since I started using RSO OIL I usually get it from “SPORESVAULT” ON TELEGRAM__ his a mycologist he guided me through the journey of getting better I think you should try it would be worth your time
October 18, 2025 at 7:20 PM
Everybody can reply
Shrooms&lsd&dmt are very spiritual, bring a lot of truth to the light, make the outside look really beautiful. It’s like a natural Depression , ADHD, Fibromyalgia and Anxiety blocker. I get mine from “Sporesvault” on TELEGRAM_
October 18, 2025 at 7:06 PM
Everybody can reply
Now that Im home the headache is beginning & I know I'll be in a fibromyalgia flare up.
But today was worth it. I danced in my inflatable costume & had fun supporting our country & what it means to be American together.💕
Feeling extra emotional now, love you all! No kings, indeed!
But today was worth it. I danced in my inflatable costume & had fun supporting our country & what it means to be American together.💕
Feeling extra emotional now, love you all! No kings, indeed!
October 18, 2025 at 6:35 PM
Everybody can reply
2 likes
Shrooms&lsd&dmt are very spiritual, bring a lot of truth to the light, make the outside look really beautiful. It’s like a natural Depression , ADHD, Fibromyalgia and Anxiety blocker. I get mine from “Sporesvault” on TELEGRAM_
October 18, 2025 at 6:29 PM
Everybody can reply
"Good Sleep Practices for #ChronicFatigueSyndrome and Fibromyalgia"
www.healthrising.org/treating-chr...
Comment: I'm not convinced exercising helps sleep in ME/CFS but that is only one of many suggestions
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #Fibromyalgia #Fibro #FMS
www.healthrising.org/treating-chr...
Comment: I'm not convinced exercising helps sleep in ME/CFS but that is only one of many suggestions
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #Fibromyalgia #Fibro #FMS
October 18, 2025 at 6:16 PM
Everybody can reply
1 reposts
6 likes
1 saves
8 and 12 hours is because the needs shift and change depending on my fibromyalgia), etc.
also: sleep apnea. it's not just snoring. PLEASE get tested for it! so many of my friends lately have been diagnosed and getting a cpap has CHANGED THEIR LIVES.
also: sleep apnea. it's not just snoring. PLEASE get tested for it! so many of my friends lately have been diagnosed and getting a cpap has CHANGED THEIR LIVES.
October 18, 2025 at 6:14 PM
Everybody can reply
Honestly, that sounds a lot like a bad fibromyalgia flare. But I'm not a doctor. I know they are difficult to deal with, but perhaps it's time to think about talking to one? 🫂 💜
October 18, 2025 at 6:04 PM
Everybody can reply
2 likes
If you are an #author of a book (about any topic) who has #MECFS #LongCovid #POTS #fibromyalgia #EDS or a related illness & would like your book to be included on Chronic Market’s new book webpage for people to purchase or know of, fill out your book’s details here:
docs.google.com/forms/d/e/1F...
docs.google.com/forms/d/e/1F...
docs.google.com
October 18, 2025 at 5:59 PM
Everybody can reply
8 reposts
17 likes
(BTW I had no serious respiratory problems. I was mostly wiped out more severely than is normal for me with just my fibromyalgia. Sometimes, if I found myself on the floor, I had difficulty getting off the floor and would be there a fair amount of time.
I am fat but not of the sort who needs […]
I am fat but not of the sort who needs […]
Original post on masto.ai
masto.ai
October 18, 2025 at 5:38 PM
Everybody can reply
I rammed my shoulder into a sharp object at work, this week.
It hurt so bad that I sat and cried for a few minutes.
It didn't tear my shirt, but it tore my skin and bled through my shirt.
I've been feeling 'off' ever since and my arm has been on fire.
It's on tender point #8. That's why 🙄🤦🏻♀️
It hurt so bad that I sat and cried for a few minutes.
It didn't tear my shirt, but it tore my skin and bled through my shirt.
I've been feeling 'off' ever since and my arm has been on fire.
It's on tender point #8. That's why 🙄🤦🏻♀️
October 18, 2025 at 5:31 PM
Everybody can reply
Only got to stay for about 45 minutes before my back and my fibromyalgia got the best of me. Still was wonderful to see people out!! #nokingsstillwater
October 18, 2025 at 5:11 PM
Everybody can reply
Fibromyalgia is a bit like buckaroo I think. One day you do something, it’s fine, leave it a week, repeat: nope!
a cartoon character is standing in front of a green and white star with the letter a on it
ALT: a cartoon character is standing in front of a green and white star with the letter a on it
media.tenor.com
October 18, 2025 at 5:06 PM
Everybody can reply
I got sick, had a massive traumatic event, moved across the ocean, & my health fell to bits all in less than a year. I’ll probably never know the cause, but I’ve had Dx’d me/cfs & fibromyalgia for 20yrs & they are absolutely real. I’ve seen rheumatologists & neurologists who all gave me the same Dx.
October 18, 2025 at 4:50 PM
Everybody can reply
doctors hate him! this cat can diagnose fibromyalgia
October 18, 2025 at 3:43 PM
Everybody can reply
2 likes
Just realized my fingers & toes no longer wrinkle when wet or submerged for any length of time. I have diagnoses of Long Covid, dysautonomia, fibromyalgia, & post-viral chronic fatigue (OHIP does not have a billing code for M.E.), & spondylitis. Does anyone else w one or these have this issue?
October 18, 2025 at 2:58 PM
Everybody can reply
1 reposts
3 likes
You'll never get what you truly deserve if you remain attached to what you're supposed to let go of. #recovered #anxiety #irondeficiency #nevergiveup #AlwaysKeepFighting #fibromyalgia #MECFS #raynauds
October 18, 2025 at 2:54 PM
Everybody can reply
1 likes
The Autumn Slide. New blog post: kathrynmcrowley.com/2025/10/18/t... #chronicpain #fibromyalgia #sleep #wellbeing #Autumn 🧪🍂
The Autumn slide
Autumn has arrived to the northern hemisphere. I love the colours of this season and the crisp air, even if my body feels more stiff lately! Autumn brings challenges to some. We’ll have less …
kathrynmcrowley.com
October 18, 2025 at 2:35 PM
Everybody can reply
Fibromyalgia in PsO & PsA is linked to greater treatment complexity and shorter biologic therapy survival. Retro matched 1:4 cohort study 61K PsO& 244K controls. FM prevalence 3.3% (OR 1.45). In PsA decr biologic survival (6 vs 10yrs) w/ incr switching (HR 1.82)
buff.ly
October 18, 2025 at 2:00 PM
Everybody can reply
1 likes
Similar story here, although it goes back to the old days of Usenet. My inflammatory arthritis kept getting worse, while my Dr insisted it wasn't progressive. Eventually I heard about fibromyalgia—almost unknown in the 1980s. I asked my Dr, he pressed some tender points, and said Yes, you have it.
October 18, 2025 at 1:58 PM
Everybody can reply
2 likes
- 18% both ME/CFS and Long COVID
- 10% other complex chronic illness diagnoses such as EDS, fibromyalgia, POTS, MCAS and chronic Lyme.
- Average age of respondent: 46
- 82% of the respondents were female
When we dug into how people felt after using the app
4/
- 10% other complex chronic illness diagnoses such as EDS, fibromyalgia, POTS, MCAS and chronic Lyme.
- Average age of respondent: 46
- 82% of the respondents were female
When we dug into how people felt after using the app
4/
October 18, 2025 at 1:42 PM
Everybody can reply
6 likes
💜 I know. We aren't ready. My son really isn't ready. He has had to move everything and with his Fibromyalgia, it has been really rough! Along with his other health problems, just wish this would be over already! We will find something! Hopefully, it is close by so Dex doesn't have a long ride!
🩶😿🤍
🩶😿🤍
October 18, 2025 at 12:50 PM
Everybody can reply
2 likes
Afternoon. Day 5 no alcohol continues. I did a 40 minute walk at sunrise, got another 30 minutes in just now but the wind is bitingly cold now.
Might get another 20 minutes in later or stop there for now. We'll see.
Else definitely better from that awful migraine, just fibromyalgia to cope with now!
Might get another 20 minutes in later or stop there for now. We'll see.
Else definitely better from that awful migraine, just fibromyalgia to cope with now!
October 18, 2025 at 12:46 PM
Everybody can reply
2 reposts
21 likes