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International Journal of MS Care @ijmsc.bsky.social · 7h

"I lost a few night's sleep over this, just a few. Will I be able to tell if somebody used #AI to #write a scientific article or not?" ~Francois Bethoux, IJMSC editor in chief
www.ijmsc.org/view/ijmsc-i...

International Journal of MS Care @ijmsc.bsky.social · 1d

"Understanding facilitators of and barriers to #diet adaptation among people with #MultipleSclerosis and their #support persons may provide important information to better design future clinical trials."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 2d

" #BackwardWalking could represent a quick, simple, and sensitive #fall prediction tool in [people with #MultipleSclerosis], although this needs to be confirmed in further studies."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 3d

"[P]eople with #MS still experience significant challenges managing their symptoms.... #rehabilitation is intrinsically holistic & interdisciplinary, and it aims to enhance overall function &[QOL]. By supporting independence, rehabilitation enables [PwMS] to remain active..."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 6d

"...we hear from a cross section of #women... discussing their #science and the process of setting up a lab as an independent #researcher. As well as being able to celebrate the positives...we would also like to use this platform to discuss the unique challenges..." rupress.org/jem/article/...

International Journal of MS Care @ijmsc.bsky.social · 7d

"[W]e assessed infections and malignancies, use of skilled nursing facilities, use of MRI, and mobility impairment in people 50 years or older, both with and without MS, to investigate whether health-related events were primarily associated with #MS or with #aging itself."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 8d

"This qualitative descriptive pilot study explores the feasibility and outcomes of a #virtual support group for #YAs with #MultipleSclerosis receiving care from an adult MS center."
doi.org/10.7224/1537...

Developing and Piloting a Dedicated Support Group for Young Adults With Multiple Sclerosis

doi.org

International Journal of MS Care @ijmsc.bsky.social · 9d

"The MSDA test uses #NfL &17 other #proteins to create algorithm of [ #MS] disease activity that controls for age & sex....[It's] multiprotein panel outperformed NfL in terms of identifying risk of developing Gd+ lesions, new & enlarging T2 lesions & active vs stable status." doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 10d

"Qualitative studies exploring #pregnancy & #motherhood in [Pw] #MS highlight information gaps & need for holistic, multidisciplinary care. Uncertainty impacts mental health.... Our aim is to explore pregnancy experiences to identify opportunities to improve clinical care." doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 13d

#Science #Openness #Courage
#NeuroArtFriday

Saganism @sagan.bsky.social · 23d

"Science is based on experiment, on a willingness to challenge old dogma, on an openness to see the universe as it really is. Accordingly, science sometimes requires courage - at the very least the courage to question the conventional wisdom."
-Carl Sagan

International Journal of MS Care @ijmsc.bsky.social · 14d

Will you share your opinion with us? #AI is here and we want to know how you are using it and what you think its future is in #MultipleSclerosis care.
www.ijmsc.org/view/ijmsc-i...

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International Journal of MS Care @ijmsc.bsky.social · 15d

"I have become convinced that medical treatment alone is not enough. Many people had to cope with uncertainty, loss of independence & emotional difficulties that required more than clinical care. This led me to explore the potential of" #TherapeuticPatientEducation."
www.ijmsc.org/view/ijmsc-a...

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International Journal of MS Care @ijmsc.bsky.social · 17d

Primary hypothesis: "(1) poorer self-reported #sleep quality (in line with prior research) and (2) a greater degree of dysfunctional sleep beliefs would be significantly associated with worse #MultipleSclerosis -related HRQOL/F."
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 20d

#NeuroArtFriday #poetry

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International Journal of MS Care @ijmsc.bsky.social · 21d

Literature review "of #psychosocial impact of having parent with #MultipleSclerosis on #children & adolescents. Most of 28 studies reported negative impact, but there is also evidence for positive associations as well as studies claiming no association...."
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 22d

"All 6 individuals with #MultipleSclerosis had severe #incontinence that had been refractory to therapies that included medications & pelvic floor physical therapy.... Each patient was successfully treated with" #SacralNeuromodulation.
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 23d

"There is urgent need to introduce #MusicTherapy, either alone or in combination with #PhysicalTherapy, into clinical practice to achieve synergy with [DMTs]. A holistic approach to rehabilitation for [Pw #MultipleSclerosis] may mitigate symptoms & reduce polypharmacy..."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 24d

"This qualitative study examines how much group of health care professionals ( #HCPs) knows about #osteoporosis as #MultipleSclerosis comorbidity, as well as current practices, barriers to effective #BoneHealth management in people with MS & recommendations for improvement." doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 27d

#NeuroArtFriday #BrainArt

Batool Rizvi @neurobatool.bsky.social · Jul 8

I forget to post (sometimes) my brain art on bluesky, but feel free to find my art Instagram too! 🥰 🎨 (IG: @batool.neuroart)

Cacti with a blend of colors in the background.

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International Journal of MS Care @ijmsc.bsky.social · 28d

2024 #McDonald criteria
1)Optic nerve increases diagnostic sensitivity
2)Move toward biological approach
3)Diagnosis of exclusion: always consider new data
4)Reconsider dissemination in time for oligoclonal bands
5)Single disease continuum
6)Age: misdiagnosis esp children
doi.org/10.1016/S147...

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International Journal of MS Care @ijmsc.bsky.social · 29d

"This project creates an online #caregiver #resource that will benefit caregivers, enable #MultipleSclerosis clinicians to offer caregivers the support and resources they need in a timely and time-efficient way, and thereby benefit individuals with MS as well."
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · Sep 16

Study's hypothesis: people "with #MultipleSclerosis in the #CBT group, relative to...MS-related education [grp], would demonstrate significant improvements in pain severity, with secondary improvements in #pain interference &depressive symptom severity."
doi.org/10.7224/1537...
#PainAwarenessMonth

International Journal of MS Care @ijmsc.bsky.social · Sep 15

"This study aimed to use a combination of qualitative and quantitative methods to compare #physician and #computer-based identification of new/enlarging brain T2 #lesions obtained during a clinical trial."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · Sep 12

#NeuroArtFriday #Results

ErrantScience @errantscience.com · Jul 29

In the Venn diagram of results, my results never seem to overlap with sense

International Journal of MS Care @ijmsc.bsky.social · Sep 11

"...health care providers should consider how clinical factors (eg, disability level) and psychological factors (eg, coping skills, social support) can affect the #MentalHealth and well-being of #parents with" #MultipleSclerosis.
doi.org/10.7224/1537...