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Something Chronic

@somethingchronic.bsky.social

770 followers 1.6K following 750 posts

Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness

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Something Chronic @somethingchronic.bsky.social · May 21

Will ‘reframing my beliefs’ cure the muscle atrophy that #severeME has caused? Will it help me get downstairs in my home again after 2 years? Will it help Karen Gordon & @whitneydafoe.bsky.social? Why ignore 1000s of studies with irrefutable evidence #MECFS is physiological? @tessamunt.bsky.social

Picture of bare legs with socks just visible. The legs have significant muscle atrophy due to severe ME/CFS.

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Reposted by Something Chronic

Tom Kindlon @tomkindlon.bsky.social · 17h

Reminder: The DecodeME team want to do a related genetic study with the samples they have collected already but unfortunately don’t have the funding yet:
megenetics.org.uk/our-projects...
#MEcfs #PwME #CFS

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Reform Party UK Exposed @reformexposed.bsky.social · 1d

Reform UK-controlled Worcestershire County Council is set to slash £3m from its special educational needs and disabilities and social care capital budgets while tightening its borrowing restrictions.

£3m Midland special needs education cuts branded 'shortsighted' and 'bizarre'

Reform UK accused by Tory of cutting a secondary school but not lunches served at full council meetings

uk.news.yahoo.com

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Something Chronic @somethingchronic.bsky.social · 13h

@chrisgpackham.bsky.social me too

#SevereME #JusticeForME #TakingThePIP

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Farrukh @implausibleblog.bsky.social · 13h

Chris Packham, "This country voted in a party with a massive majority and a mandate for change"

"All we see is Labour kowtowing to the far right. This causes me enormous concern"

"I'm frustrated, I'm angry, and I've frightened"

"And I get more scared every single day"

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Something Chronic @somethingchronic.bsky.social · 13h

💙💙💙

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Ö. Ges. für ME/CFS @mecfs.at · 15h

❗Help us spread ME/CFS awareness❗

People living with #ME/CFS are severely ill, yet often don't receive welfare, specialised medical treatment and accessible education opportunities.
Furthermore, sufficient awareness in the areas of politics, healthcare and research is lacking.

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valebodi.bsky.social @valebodi.bsky.social · 15h

More and more people with ME/CFS, in Germany, see euthanasia as the only last resort option

The Intolerableness of Suffering

Sarah Buckel was 31 years old when she decided to die by euthanasia. She had ME/CFS, an incurable disease that can occur as a result of a Covid infection. Her case has

Die Unerträglichkeit des Leidens

Sarah Buckel war 31 Jahre alt, als sie sich für den Tod durch Sterbehilfe entschied. Sie hatte ME/CFS, eine unheilbare Erkrankung, die als Folge einer Covid-Infektion auftreten kann. Ihr Fall hat das ...

hpd.de

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Peter Stefanovic @peterstefanovic.bsky.social · 15h

Let’s not forget when the Tories were last in office - according to international Human Rights Watch - the UK was on course to make the list of countries that abuse rather than protect human rights

We need to protect the ECHR, not leave it

youtu.be/ceukUFLBrFo?...

🚨UK will leave the ECHR if Tories win next election Kemi Badenoch has announced

YouTube video by Peter Stefanovic

youtu.be

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Something Chronic @somethingchronic.bsky.social · 13h

Yes it’s so important! Labour have continued Tory neglect of disabled people and both the UN and EHRC rightly warned them, but unfortunately neither government seem to care very much. They’d prefer to push a rhetoric of us being spongers than support us.

www.equalityhumanrights.com/uk-governmen...

UK government failing to protect disabled people, warns equality watchdog report | EHRC

The Equality and Human Rights Commission (EHRC) has today warned of the consequences of continuing inaction from governments in addressing problems faced by disabled people.

www.equalityhumanrights.com

Something Chronic @somethingchronic.bsky.social · 14h

I wonder what might come out in the next few days in the press about it all. Given Farage has been lying about it despite whats already known, I suspect this isn’t him ‘coming clean’ but getting ahead of something with his own narrative… guess we’ll see!

Reposted by Something Chronic

Mia Farrow @miafarrow.bsky.social · 19h

Our planet’s first catastrophic climate tipping point reached, report by 160 scientists from 23 countries warns, with coral reefs facing ‘widespread dieback
www.theguardian.com/environment/...

Planet’s first catastrophic climate tipping point reached, report says, with coral reefs facing ‘widespread dieback’

Unless global heating is reduced to 1.2C ‘as fast as possible’, warm water coral reefs will not remain ‘at any meaningful scale’, a report by 160 scientists from 23 countries warns

www.theguardian.com

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@DrJoePajak CSci CChem FRSC @drjoepajak.bsky.social · 20h

As COVID-19 infections rise in England, more people appear to be turning to private tests especially now that NHS vaccines are restricted to fewer groups this winter.
Meanwhile, COVID hospitalisations (🔗 @ukhsa.bsky.social) creep up despite a mild autumn. @theipaper.com
inews.co.uk/news/health/...

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Something Chronic @somethingchronic.bsky.social · 19h

Good #MEcfs news!

‘The UK Medical Research Council recently awarded £800,000 over four years to PRIME, a partnership between Action For ME and the University of Edinburgh. PRIME will seek to develop a research infrastructure to pursue investigations into ME/CFS. The funding starts this month.’

David Tuller @davetuller1.bsky.social · 20h

An interview with University of Edinburgh's Chris Ponting @cgatist.bsky.social about the PRIME project to increase ME/CFS research infrastructure;
virology.ws/2025/10/13/t...

Trial By Error: Interview with Professor Chris Ponting on Building ME/CFS Research Infructure with PRIME | Virology Blog

By David Tuller, DrPH This is a crowdfunding month for UC Berkekely and Trial By Error. If you'd like to support my work, here's the link: https:/ ...

virology.ws

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Zoë Grünewald @zoegrunewald.bsky.social · 21h

"Until now, public knowledge about the relationship between Reform U.K. and the A.D.F. was limited to a single quote Mr. Farage gave to the group, which they pushed out in a press statement. But the A.D.F. has quietly been courting the party since at least 2024."

www.nytimes.com/2025/10/13/w...

They Helped Topple Roe v. Wade. Now Their Sights Are Set on Britain.

www.nytimes.com

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Something Chronic @somethingchronic.bsky.social · 1d

What rubbish but I wouldn’t expect anything else from the Editor of the Spectator, it’s an abhorrent far right mouthpiece.

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Ricardo Levins Morales Art Studio @rlmartstudio.bsky.social · 1d

This week in 1988: 1,000+ ACT UP demonstrators shut down the FDA headquarters, demanding (and eventually winning) action on developing HIV/AIDS treatments. ACT UP's militant and creative actions always included powerful visual artwork, and paved the way for movements in the decades to come.

A photograph from the 1988 ACT UP demonstration outside the FDA. Many people are participating in a die-in on the front steps, holding mock tombstones with messages like "RIP - killed by the FDA" and "Dead from lack of drugs." A line of police officers (some with classic 80s mustaches) wearing riot helmets stands between them and the building; one cop wearing white gloves is walking through the demonstrators. Affixed to the 2nd story windows of the building is a series of posters and a large blank banner reading Silence = Death.

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Something Chronic @somethingchronic.bsky.social · 1d

Totally agree! I’ve also never understood why political parties don’t have to show their budget calculations when they claim they’ll fund x, y+z. So often they scrap it all when in power as it was never realistic in the first place. No company would ever work like this so why does the UK government?

Reposted by Something Chronic

valebodi.bsky.social @valebodi.bsky.social · 1d

Prolonged acetylcholine-induced vasodilatation in the peripheral microcirculation of #pwME

www.meresearch.org.uk/research/ace...

These findings are further evidence of a disturbance to acetylcholine in ME/CFS, and suggest that a cholinesterase abnormality is involved, Khan et al. 2003)

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Peter Stefanovic @peterstefanovic.bsky.social · 2d

These national heroes have now waited more than a year for a meeting with Keir Starmer to discuss the justice & compensation Labour committed to in opposition. They are now in their eighties and are dying waiting for justice. This is no way to treat veterans Prime Minister

youtu.be/hSQNLn2Ocr8?...

Video emerges of Deputy PM,Defence Secretary & other Ministers BACKING compensation for Nuclear Vets

YouTube video by Peter Stefanovic

youtu.be

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Dave Vetter @davidrvetter.bsky.social · 1d

Every day is a good day to point out that 92% of Reform's donations were found to come from figures and groups linked to the fossil fuel industry. @desmog.com

Nigel Farage’s Reform Party Has Accepted £2.3 Million from Fossil Fuel Interests, Climate Deniers, and Polluters Since 2019 Election

Reform UK has received more than £2.3 million from oil and gas interests, highly polluting industries, and climate science deniers since December 2019, amounting to 92 percent of the party’s donations...

www.desmog.com

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Something Chronic @somethingchronic.bsky.social · 1d

🎶💖

Something Chronic @somethingchronic.bsky.social · 1d

2/2
www.theguardian.com/politics/201...

bylinetimes.com/2024/06/19/t...

The Five Questions Nigel Farage is Never Asked About Brexit, Trump and Russia

As the media provides the Reform Leader with a prominent platform, Peter Jukes considers all the concerning lines of enquiry that journalists never confront him with

bylinetimes.com

Something Chronic @somethingchronic.bsky.social · 1d

Remember when Farage visited the Ecuadorean embassy when WikiLeaks’ Julian Assange was living there? @carolecadwalla.bsky.social wrote & tweeted about it. Others have too – good questions for Farage in @bylinetimes.bsky.social article. 1/2

www.theguardian.com/politics/201...

x.com/carolecadwal...

When Nigel Farage met Julian Assange

Why did Ukip’s ex-leader want to slip in unnoticed to meet the WikiLeaks chief at the Ecuadorian embassy?

www.theguardian.com

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Adam Fare 🖤🤍💜 @adamfare1996.bsky.social · 2d

Disability benefits processes, “reforms”, and cuts kill people.

They kill disabled people through poverty.
They kill disabled people through fear.

And all the current rhetoric, hate, and misinformation kills more.

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Something Chronic @somethingchronic.bsky.social · 2d

I think #PhysicsGirl said it really helped her