Sarah
@sarahnz.bsky.social
Post grad student, (former but no doubt I'll be back) teacher, parent
Reposted by Sarah
My conundrum single day with Long Covid ⬇️
“In an attempt to get fit I could do long term damage to my body, and in an attempt to avoid that I could do long term damage to my body.”
“In an attempt to get fit I could do long term damage to my body, and in an attempt to avoid that I could do long term damage to my body.”
On Hello Computer newsletter this week: "How am I doing after 18 months of Long Covid or ME/CFS?"
Read and sign up: pete.news/hellocompute...
#HelloComputer #MECFS
Read and sign up: pete.news/hellocompute...
#HelloComputer #MECFS
ME/CFS Update
How am I doing after 18 months of Long Covid or ME/CFS?
pete.news
November 10, 2025 at 1:23 PM
My conundrum single day with Long Covid ⬇️
“In an attempt to get fit I could do long term damage to my body, and in an attempt to avoid that I could do long term damage to my body.”
“In an attempt to get fit I could do long term damage to my body, and in an attempt to avoid that I could do long term damage to my body.”
Reposted by Sarah
Way more people are willing to see Covid like the flu, like it’s no big deal, than those that see flu like Covid, a way bigger deal than we thought it was.
I mask bc I know Covid causes vascular, respiratory and immune system damage + much more. Now I also mask bc flu might be doing the same 😷
I mask bc I know Covid causes vascular, respiratory and immune system damage + much more. Now I also mask bc flu might be doing the same 😷
'Long flu’ has emerged as a consequence similar to long COVID | WashU Medicine
Study shows patients hospitalized for flu or COVID-19 face increased risk of long-term health problems, death
medicine.washu.edu
November 15, 2025 at 5:44 AM
Way more people are willing to see Covid like the flu, like it’s no big deal, than those that see flu like Covid, a way bigger deal than we thought it was.
I mask bc I know Covid causes vascular, respiratory and immune system damage + much more. Now I also mask bc flu might be doing the same 😷
I mask bc I know Covid causes vascular, respiratory and immune system damage + much more. Now I also mask bc flu might be doing the same 😷
Reposted by Sarah
A.I. is an abbreviation for Assisted Incompetence
November 15, 2025 at 5:40 AM
A.I. is an abbreviation for Assisted Incompetence
Reposted by Sarah
Found out why the Wellington Hospital has been so busy at night lately.
The only 24hr Afterhours Medical Centre in Wellington is shut due to staff shortages. NZ’s health system is borked!
#NZPol
The only 24hr Afterhours Medical Centre in Wellington is shut due to staff shortages. NZ’s health system is borked!
#NZPol
November 12, 2025 at 7:05 PM
Found out why the Wellington Hospital has been so busy at night lately.
The only 24hr Afterhours Medical Centre in Wellington is shut due to staff shortages. NZ’s health system is borked!
#NZPol
The only 24hr Afterhours Medical Centre in Wellington is shut due to staff shortages. NZ’s health system is borked!
#NZPol
Reposted by Sarah
Tell us your reason for masking in the comments.
#PublicHealth #COVID #COVID19 #LongCOVID #DisabilityAwareness #MaskUp #Masking #N95 #InfectionPrevention
#PublicHealth #COVID #COVID19 #LongCOVID #DisabilityAwareness #MaskUp #Masking #N95 #InfectionPrevention
November 10, 2025 at 11:13 PM
Tell us your reason for masking in the comments.
#PublicHealth #COVID #COVID19 #LongCOVID #DisabilityAwareness #MaskUp #Masking #N95 #InfectionPrevention
#PublicHealth #COVID #COVID19 #LongCOVID #DisabilityAwareness #MaskUp #Masking #N95 #InfectionPrevention
Awesome people sharing why they mask 😷
Tell us your reason for masking in the comments.
#PublicHealth #COVID #COVID19 #LongCOVID #DisabilityAwareness #MaskUp #Masking #N95 #InfectionPrevention
#PublicHealth #COVID #COVID19 #LongCOVID #DisabilityAwareness #MaskUp #Masking #N95 #InfectionPrevention
November 12, 2025 at 3:18 AM
Awesome people sharing why they mask 😷
Reposted by Sarah
”It pretty much works all the time.”
Tom Hanks gets that masking keeps him safe and healthy. Read more about it → whn.global/youve-got-a-...
#PublicHealth #MaskUp #COVID19 #InfectionPrevention #LongCOVID
Tom Hanks gets that masking keeps him safe and healthy. Read more about it → whn.global/youve-got-a-...
#PublicHealth #MaskUp #COVID19 #InfectionPrevention #LongCOVID
November 6, 2025 at 3:51 PM
”It pretty much works all the time.”
Tom Hanks gets that masking keeps him safe and healthy. Read more about it → whn.global/youve-got-a-...
#PublicHealth #MaskUp #COVID19 #InfectionPrevention #LongCOVID
Tom Hanks gets that masking keeps him safe and healthy. Read more about it → whn.global/youve-got-a-...
#PublicHealth #MaskUp #COVID19 #InfectionPrevention #LongCOVID
Reposted by Sarah
I can't do the 9 books thing. It's fun but I just can't get past the should.
Read whatever brings you joy. With your eyes, your ears or your fingers.
Engage with story and don't let anyone ever tell you that the stories you connect with aren't enough.
Read whatever brings you joy. With your eyes, your ears or your fingers.
Engage with story and don't let anyone ever tell you that the stories you connect with aren't enough.
November 11, 2025 at 6:38 AM
I can't do the 9 books thing. It's fun but I just can't get past the should.
Read whatever brings you joy. With your eyes, your ears or your fingers.
Engage with story and don't let anyone ever tell you that the stories you connect with aren't enough.
Read whatever brings you joy. With your eyes, your ears or your fingers.
Engage with story and don't let anyone ever tell you that the stories you connect with aren't enough.
I know too many of these 😱
have you turned in the assignment? it goes on brightspace. it's just a flipboard. it's like padlet for video. don't forget to do the kahoot. there's also a blooket. we're running a gimkit. chime in on vevox! submit it on bongo. log onto bongo. dive into bongo. you can bongo it. bongo has it for you.
November 10, 2025 at 6:40 AM
I know too many of these 😱
Reposted by Sarah
The big science accounts are talking about immune dysregulation due to COVID-19 now.
I. Told. You. So.
Infection does confer antibodies and T cells against C19… but it also takes a wrecking ball to the immune system as a whole.
Stop burning down your house. (Metaphorically.)
I. Told. You. So.
Infection does confer antibodies and T cells against C19… but it also takes a wrecking ball to the immune system as a whole.
Stop burning down your house. (Metaphorically.)
November 8, 2025 at 3:13 AM
The big science accounts are talking about immune dysregulation due to COVID-19 now.
I. Told. You. So.
Infection does confer antibodies and T cells against C19… but it also takes a wrecking ball to the immune system as a whole.
Stop burning down your house. (Metaphorically.)
I. Told. You. So.
Infection does confer antibodies and T cells against C19… but it also takes a wrecking ball to the immune system as a whole.
Stop burning down your house. (Metaphorically.)
Reposted by Sarah
Recent research in New Zealand shows that Long Covid sufferers feel let down by the health system:
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
Researchers say healthcare system failing long Covid patients
A researcher is calling on the government to provide dedicated funding for long Covid.
www.rnz.co.nz
November 7, 2025 at 3:48 AM
Recent research in New Zealand shows that Long Covid sufferers feel let down by the health system:
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
Reposted by Sarah
Exactly this. It takes a long time to establish the base line - and then it’s all about protecting it.
I totally get this. I have a baseline that I have reached an acceptance over. I am very protective of that baseline.
People often push the disabled to take risks with our health.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
November 6, 2025 at 8:43 AM
Exactly this. It takes a long time to establish the base line - and then it’s all about protecting it.
Reposted by Sarah
Beckie's fundraiser hit a hill for a while, but progress now looks most encouraging. If you can afford to pledge a little, it would make all the difference to the life of a very fine person.
givealittle.co.nz/cause/beckie...
givealittle.co.nz/cause/beckie...
Beckie's Fund-raiser For A Partial Denture
Beckie needs a partial denture to restore function and visual alignment of her bottom teeth.
givealittle.co.nz
November 6, 2025 at 6:07 AM
Beckie's fundraiser hit a hill for a while, but progress now looks most encouraging. If you can afford to pledge a little, it would make all the difference to the life of a very fine person.
givealittle.co.nz/cause/beckie...
givealittle.co.nz/cause/beckie...
Reposted by Sarah
AAHHHHHHHHHHH
November 6, 2025 at 5:46 AM
AAHHHHHHHHHHH
I totally get this. I have a baseline that I have reached an acceptance over. I am very protective of that baseline.
People often push the disabled to take risks with our health.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
November 6, 2025 at 6:09 AM
I totally get this. I have a baseline that I have reached an acceptance over. I am very protective of that baseline.
Reposted by Sarah
People often push the disabled to take risks with our health.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
November 6, 2025 at 5:24 AM
People often push the disabled to take risks with our health.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
They think if it’s already “that bad” who cares if it gets worse
We care.
Our baselines mean everything to us.
Whatever limited function we have left is always worth protecting.
You don’t get it until you get it.
Reposted by Sarah
Large Increase In Numbers Of People Diagnosed With Something That Totally Wasn’t Caused By That Thing
November 5, 2025 at 8:27 PM
Large Increase In Numbers Of People Diagnosed With Something That Totally Wasn’t Caused By That Thing
Reposted by Sarah
“You still wearing a mask? Bro, it’s 2025.”
Me: “You still huffing a vasculopathic, neuroinvasive biohazard?”
Me: “You still huffing a vasculopathic, neuroinvasive biohazard?”
November 6, 2025 at 1:17 AM
“You still wearing a mask? Bro, it’s 2025.”
Me: “You still huffing a vasculopathic, neuroinvasive biohazard?”
Me: “You still huffing a vasculopathic, neuroinvasive biohazard?”
Reposted by Sarah
When asked by Stephen Colbert why he was wearing a mask in public, Tom Hanks said..
“I’ve had Covid enough in my life I don’t need to do that again. I’m wearing this for health reasons”
More celebrities need to speak out like this.
“I’ve had Covid enough in my life I don’t need to do that again. I’m wearing this for health reasons”
More celebrities need to speak out like this.
November 5, 2025 at 9:09 AM
When asked by Stephen Colbert why he was wearing a mask in public, Tom Hanks said..
“I’ve had Covid enough in my life I don’t need to do that again. I’m wearing this for health reasons”
More celebrities need to speak out like this.
“I’ve had Covid enough in my life I don’t need to do that again. I’m wearing this for health reasons”
More celebrities need to speak out like this.
Reposted by Sarah
A school in Manchester is promoting “No Days Off November” to reward kids with perfect attendance.
It’s devastating for public health, it discriminates against disabled and chronically ill kids.
It shames them for needing time off & reinforces the ableist narrative of playing through the pain
It’s devastating for public health, it discriminates against disabled and chronically ill kids.
It shames them for needing time off & reinforces the ableist narrative of playing through the pain
November 5, 2025 at 9:09 AM
A school in Manchester is promoting “No Days Off November” to reward kids with perfect attendance.
It’s devastating for public health, it discriminates against disabled and chronically ill kids.
It shames them for needing time off & reinforces the ableist narrative of playing through the pain
It’s devastating for public health, it discriminates against disabled and chronically ill kids.
It shames them for needing time off & reinforces the ableist narrative of playing through the pain
Reposted by Sarah
What if we did tho, what if we didn’t means test disabled people on the SLP and just paid it like we do for NZ Super? Not related to your partner’s income, not related to your income, and just, well, supported people?!
#nzpol
open.substack.com/pub/drbex/p/...
#nzpol
open.substack.com/pub/drbex/p/...
What if we paid the Supported Living Payment like we pay the pension?
A simple policy change that could dramatically lift disabled households out of poverty
open.substack.com
November 4, 2025 at 8:46 PM
What if we did tho, what if we didn’t means test disabled people on the SLP and just paid it like we do for NZ Super? Not related to your partner’s income, not related to your income, and just, well, supported people?!
#nzpol
open.substack.com/pub/drbex/p/...
#nzpol
open.substack.com/pub/drbex/p/...
Reposted by Sarah
I have been saying for years, due to the unique nature of the disabilities, a pension is more accurate and just allow those of us who can do intermittent part time work to not lose out on that either
What if we did tho, what if we didn’t means test disabled people on the SLP and just paid it like we do for NZ Super? Not related to your partner’s income, not related to your income, and just, well, supported people?!
#nzpol
open.substack.com/pub/drbex/p/...
#nzpol
open.substack.com/pub/drbex/p/...
What if we paid the Supported Living Payment like we pay the pension?
A simple policy change that could dramatically lift disabled households out of poverty
open.substack.com
November 4, 2025 at 9:20 PM
I have been saying for years, due to the unique nature of the disabilities, a pension is more accurate and just allow those of us who can do intermittent part time work to not lose out on that either
Reposted by Sarah
If you, or someone you know has come into contact with Seymour, please isolate for 7 days. Read more here: yeehawtheboys.substack.com/p/the-other-...
November 4, 2025 at 5:43 AM
If you, or someone you know has come into contact with Seymour, please isolate for 7 days. Read more here: yeehawtheboys.substack.com/p/the-other-...
Reposted by Sarah
We shouldn’t need a blood test to Stop the Stigma of chronic illness, but I’m grateful one has been discovered.
Science is catching up to what those who’s suffer have long known:
We can’t try harder.
We aren’t faking.
We aren’t gaming the system.
ME/CFS & Long Covid are real & debilitating.
Science is catching up to what those who’s suffer have long known:
We can’t try harder.
We aren’t faking.
We aren’t gaming the system.
ME/CFS & Long Covid are real & debilitating.
Well, this is some good news.
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...
Breakthrough blood test finally confirms Chronic Fatigue Syndrome
A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. For millions who’ve ...
www.sciencedaily.com
November 3, 2025 at 10:38 PM
We shouldn’t need a blood test to Stop the Stigma of chronic illness, but I’m grateful one has been discovered.
Science is catching up to what those who’s suffer have long known:
We can’t try harder.
We aren’t faking.
We aren’t gaming the system.
ME/CFS & Long Covid are real & debilitating.
Science is catching up to what those who’s suffer have long known:
We can’t try harder.
We aren’t faking.
We aren’t gaming the system.
ME/CFS & Long Covid are real & debilitating.
Reposted by Sarah
Well, this is some good news.
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...
Breakthrough blood test finally confirms Chronic Fatigue Syndrome
A team of scientists has developed a highly accurate blood test for Chronic Fatigue Syndrome. The test reads tiny DNA patterns that reveal the biological signature of the illness. For millions who’ve ...
www.sciencedaily.com
November 3, 2025 at 4:15 PM
Well, this is some good news.
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...
Breakthrough blood test finally confirms Chronic Fatigue Syndrome www.sciencedaily.com/releases/202...