Gillian Kent
@cambridgegill.bsky.social
Thanks for dropping by! Interests: social justice, humour, art, archaeology & architecture, climate crisis & ecology; ME/CFS since 1998. UK based, UK and USA raised. (She/her).
Agreed! The Ang Lee version would have worked better as audio. If you read S and S in your teens, (& esp if you had an over emotional kidult Ma as I did), the subtlety of the story, and the harshness of Elinor's circumstances were undermined by age of main cast.
Watching another Jane Austen adaptation, screenplay by Andrew Davies: Sense and Sensibility. I am loving this version. ❤️❤️❤️ The movie version, all the actors were too old for the parts they played, IMHO. And I usually love Emma Thompson & Kate Winslet.
December 2, 2025 at 8:20 AM
Agreed! The Ang Lee version would have worked better as audio. If you read S and S in your teens, (& esp if you had an over emotional kidult Ma as I did), the subtlety of the story, and the harshness of Elinor's circumstances were undermined by age of main cast.
Reposted by Gillian Kent
ME Research UK:
ME Research UK's November e-newsletter will have been delivered today to the inboxes of everyone on our e-newsletter list.
The e-newsletter is also available online (tinyurl.com/5n78cbf4) but why not SIGN UP? - tinyurl.com/446tx7w5 As with all our publications - it is FREE.
#MEcfs
ME Research UK's November e-newsletter will have been delivered today to the inboxes of everyone on our e-newsletter list.
The e-newsletter is also available online (tinyurl.com/5n78cbf4) but why not SIGN UP? - tinyurl.com/446tx7w5 As with all our publications - it is FREE.
#MEcfs
November 30, 2025 at 4:21 PM
ME Research UK:
ME Research UK's November e-newsletter will have been delivered today to the inboxes of everyone on our e-newsletter list.
The e-newsletter is also available online (tinyurl.com/5n78cbf4) but why not SIGN UP? - tinyurl.com/446tx7w5 As with all our publications - it is FREE.
#MEcfs
ME Research UK's November e-newsletter will have been delivered today to the inboxes of everyone on our e-newsletter list.
The e-newsletter is also available online (tinyurl.com/5n78cbf4) but why not SIGN UP? - tinyurl.com/446tx7w5 As with all our publications - it is FREE.
#MEcfs
Reposted by Gillian Kent
Not up to doing full alt text but headline of image (a chart of data) is “Four years after their publication in 2021, 70% of adult NHS ME/CFS services in the UK are still not following the latest NICE guidelines” [which reject Graded Exercise “Therapy” — GET]
November 29, 2025 at 2:21 PM
Not up to doing full alt text but headline of image (a chart of data) is “Four years after their publication in 2021, 70% of adult NHS ME/CFS services in the UK are still not following the latest NICE guidelines” [which reject Graded Exercise “Therapy” — GET]
Reposted by Gillian Kent
3/
page 3 of this 3 page article.
Find the full magazine and other back issues of Breakthrough, the magazine of ME Research UK here:
www.meresearch.org.uk/research/bre...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
page 3 of this 3 page article.
Find the full magazine and other back issues of Breakthrough, the magazine of ME Research UK here:
www.meresearch.org.uk/research/bre...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 29, 2025 at 11:06 PM
3/
page 3 of this 3 page article.
Find the full magazine and other back issues of Breakthrough, the magazine of ME Research UK here:
www.meresearch.org.uk/research/bre...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
page 3 of this 3 page article.
Find the full magazine and other back issues of Breakthrough, the magazine of ME Research UK here:
www.meresearch.org.uk/research/bre...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Reposted by Gillian Kent
November 19, 2025 at 8:35 PM
Reposted by Gillian Kent
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Reposted by Gillian Kent
What Martin said. Independent SAGE were not cranks, not extremists, not over-reacting. #covidinquiry
1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness
November 20, 2025 at 5:24 PM
What Martin said. Independent SAGE were not cranks, not extremists, not over-reacting. #covidinquiry
Reposted by Gillian Kent
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
November 20, 2025 at 4:49 PM
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
Reposted by Gillian Kent
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
Reposted by Gillian Kent
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
November 23, 2025 at 9:40 AM
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Reposted by Gillian Kent
A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.
May 14, 2025 at 9:07 PM
A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.
Reposted by Gillian Kent
Really moving artistic visual of a POTS experience
The Glitch
YouTube video by unicorneliaw
youtu.be
November 3, 2025 at 6:13 PM
Really moving artistic visual of a POTS experience
Reposted by Gillian Kent
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 23, 2025 at 6:23 PM
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by Gillian Kent
Not an ME/CFS researcher? Perfect. That's exactly who we need.
The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc.
#MECFS #LongCOVID #AcademicSky 🧪
The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc.
#MECFS #LongCOVID #AcademicSky 🧪
November 3, 2025 at 4:12 PM
Not an ME/CFS researcher? Perfect. That's exactly who we need.
The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc.
#MECFS #LongCOVID #AcademicSky 🧪
The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc.
#MECFS #LongCOVID #AcademicSky 🧪
Reposted by Gillian Kent
Please share with people with #LongCOVID in your life. It would be incredible to hit 1000 in the next week! (They are already over 700 since this post!)
We are up to 688 LoCITT participants!
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 24, 2025 at 8:47 PM
Please share with people with #LongCOVID in your life. It would be incredible to hit 1000 in the next week! (They are already over 700 since this post!)
Reposted by Gillian Kent
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Questionnaire | page 1
www.soscisurvey.de
November 22, 2025 at 8:36 AM
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Reposted by Gillian Kent
Beautiful @thesicktimes.org essay on how to be a friend to your friends who are affected by Long Covid—and why you should.
Def worth a few minutes of your time.
Def worth a few minutes of your time.
The Sick Times: 'You know someone with Long COVID. They need you to ask about it genuinely.'
Written by Philip Hoover
'If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.'
thesicktimes.org/2025/11/28/y...
Written by Philip Hoover
'If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.'
thesicktimes.org/2025/11/28/y...
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
thesicktimes.org
November 28, 2025 at 9:33 PM
Beautiful @thesicktimes.org essay on how to be a friend to your friends who are affected by Long Covid—and why you should.
Def worth a few minutes of your time.
Def worth a few minutes of your time.
Reposted by Gillian Kent
"Agree to disagree" is reserved for things like "I don't like coffee." Not racism, homophobia, sexism, human rights, nor basic common decency. We do NOT have a difference of opinion. We have a difference in morality. (not my original quote, unable to locate the author)
October 17, 2024 at 5:20 PM
"Agree to disagree" is reserved for things like "I don't like coffee." Not racism, homophobia, sexism, human rights, nor basic common decency. We do NOT have a difference of opinion. We have a difference in morality. (not my original quote, unable to locate the author)
Reposted by Gillian Kent
Medicare for All would save $450B a year.
Every dollar spent on food stamps generates $1.50-$1.80 in economic activity.
Each dollar going to low-wage workers adds $1.20 to the economy overall.
It’s not about what this country can or can’t afford.
It’s about priorities.
Every dollar spent on food stamps generates $1.50-$1.80 in economic activity.
Each dollar going to low-wage workers adds $1.20 to the economy overall.
It’s not about what this country can or can’t afford.
It’s about priorities.
November 18, 2025 at 10:45 PM
Medicare for All would save $450B a year.
Every dollar spent on food stamps generates $1.50-$1.80 in economic activity.
Each dollar going to low-wage workers adds $1.20 to the economy overall.
It’s not about what this country can or can’t afford.
It’s about priorities.
Every dollar spent on food stamps generates $1.50-$1.80 in economic activity.
Each dollar going to low-wage workers adds $1.20 to the economy overall.
It’s not about what this country can or can’t afford.
It’s about priorities.
Reposted by Gillian Kent
I’ve got a public question this evening at full council for Cambridge City Council Cllrs on the future of this building cambridgetownowl.com/2025/11/21/a...
A reprieve for the Art Deco Hobson Street Cinema – and a new big test for Cambridge civic society
The Planning Inspector hearing the appeal from Messrs Richer against refusal of planning permission from Cambridge City Council to demolish one of the few iconic town buildings left in our city pro…
cambridgetownowl.com
November 27, 2025 at 9:08 AM
I’ve got a public question this evening at full council for Cambridge City Council Cllrs on the future of this building cambridgetownowl.com/2025/11/21/a...
Is anyone reserearching the effect of gammaglobulin on #ME/CFS symptoms now? Thanks @rfh1955.bsky.social
Thirty-five years ago today. The Sydney Morning Herald. 27th November 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 27, 2025 at 8:32 AM
Is anyone reserearching the effect of gammaglobulin on #ME/CFS symptoms now? Thanks @rfh1955.bsky.social
Reposted by Gillian Kent
Thirty-five years ago today. The Sydney Morning Herald. 27th November 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 27, 2025 at 6:53 AM
Thirty-five years ago today. The Sydney Morning Herald. 27th November 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
Reposted by Gillian Kent
Watching, digesting, processing, contextualizing, & writing about these conferences is intense work, but @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social never miss a beat. They're consistently doing journalism that no one else is doing.
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:14 PM
Watching, digesting, processing, contextualizing, & writing about these conferences is intense work, but @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social never miss a beat. They're consistently doing journalism that no one else is doing.
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Help @thesicktimes.org keep going? bit.ly/49AUf4t
Reposted by Gillian Kent
Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon.bsky.social on Wednesday, December 3.
Hopefully we’ll see some of you there irishmecfs.org/blog/wednesd...
Carers/parents/similar welcome.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Hopefully we’ll see some of you there irishmecfs.org/blog/wednesd...
Carers/parents/similar welcome.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 26, 2025 at 2:09 PM