Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. No petitions.
https://rfh1955.blogspot.com/
https://rfh1955.blogspot.com/
Reposted by Royal Free 1955
Het #paisprotest was indrukwekkend. Zoveel mensen lijden aan PAIS, en ook hun dierbaren dragen de last.
De politiek moet eindelijk investeren in zorg en erkenning. De klimaat- en natuurcrisis +veeindustrie vergroten helaas het risico op zulke ziekten.
Investeren in gezondheid loont altijd.💙🙏🏽
De politiek moet eindelijk investeren in zorg en erkenning. De klimaat- en natuurcrisis +veeindustrie vergroten helaas het risico op zulke ziekten.
Investeren in gezondheid loont altijd.💙🙏🏽
November 30, 2025 at 7:04 PM
Het #paisprotest was indrukwekkend. Zoveel mensen lijden aan PAIS, en ook hun dierbaren dragen de last.
De politiek moet eindelijk investeren in zorg en erkenning. De klimaat- en natuurcrisis +veeindustrie vergroten helaas het risico op zulke ziekten.
Investeren in gezondheid loont altijd.💙🙏🏽
De politiek moet eindelijk investeren in zorg en erkenning. De klimaat- en natuurcrisis +veeindustrie vergroten helaas het risico op zulke ziekten.
Investeren in gezondheid loont altijd.💙🙏🏽
Reposted by Royal Free 1955
Indrukwekkend #paisprotest vandaag voor al die mensen die #niethersteld zijn van bijvoorbeeld long covid, ME/CVS, Lyme, Q-Koorts en andere PAIS.
Vandaag kregen de mensen die in stilte lijden een stem. Nu is het aan de politiek om daar naar te luisteren.
Vandaag kregen de mensen die in stilte lijden een stem. Nu is het aan de politiek om daar naar te luisteren.
November 30, 2025 at 4:14 PM
Indrukwekkend #paisprotest vandaag voor al die mensen die #niethersteld zijn van bijvoorbeeld long covid, ME/CVS, Lyme, Q-Koorts en andere PAIS.
Vandaag kregen de mensen die in stilte lijden een stem. Nu is het aan de politiek om daar naar te luisteren.
Vandaag kregen de mensen die in stilte lijden een stem. Nu is het aan de politiek om daar naar te luisteren.
Today, thirty-four years ago.
The Calgary Herald, Canada. 1st December 1991.
#mecfs #myalgice #cfsme #myalgicencephalomyelitis
A cartoon is complained about and the newspaper admits an error in publishing it.
The Calgary Herald, Canada. 1st December 1991.
#mecfs #myalgice #cfsme #myalgicencephalomyelitis
A cartoon is complained about and the newspaper admits an error in publishing it.
December 1, 2025 at 8:47 AM
Today, thirty-four years ago.
The Calgary Herald, Canada. 1st December 1991.
#mecfs #myalgice #cfsme #myalgicencephalomyelitis
A cartoon is complained about and the newspaper admits an error in publishing it.
The Calgary Herald, Canada. 1st December 1991.
#mecfs #myalgice #cfsme #myalgicencephalomyelitis
A cartoon is complained about and the newspaper admits an error in publishing it.
December 1, 2025 at 8:45 AM
Thirty-one years ago today.
The Citizen Register, New York. 1st December 1994.
#gulfwarsyndrome #gws #myalgicencephalomyelitis #mecfs #cfsme #myalgice
The Citizen Register, New York. 1st December 1994.
#gulfwarsyndrome #gws #myalgicencephalomyelitis #mecfs #cfsme #myalgice
December 1, 2025 at 8:41 AM
Thirty-one years ago today.
The Citizen Register, New York. 1st December 1994.
#gulfwarsyndrome #gws #myalgicencephalomyelitis #mecfs #cfsme #myalgice
The Citizen Register, New York. 1st December 1994.
#gulfwarsyndrome #gws #myalgicencephalomyelitis #mecfs #cfsme #myalgice
#myalgicencephalomyelitis #myalgice #mecfs
'Oceania', December 1st 1976.
Stephen Frankel (who was of "Corpus Christie College, Cambridge U.K. Some time District Health Officer, West Sepik District, Papua New Guinea").
"Mass hysteria in the New Guinea Highlands"
"The role of women"
'Oceania', December 1st 1976.
Stephen Frankel (who was of "Corpus Christie College, Cambridge U.K. Some time District Health Officer, West Sepik District, Papua New Guinea").
"Mass hysteria in the New Guinea Highlands"
"The role of women"
December 1, 2025 at 8:39 AM
#myalgicencephalomyelitis #myalgice #mecfs
'Oceania', December 1st 1976.
Stephen Frankel (who was of "Corpus Christie College, Cambridge U.K. Some time District Health Officer, West Sepik District, Papua New Guinea").
"Mass hysteria in the New Guinea Highlands"
"The role of women"
'Oceania', December 1st 1976.
Stephen Frankel (who was of "Corpus Christie College, Cambridge U.K. Some time District Health Officer, West Sepik District, Papua New Guinea").
"Mass hysteria in the New Guinea Highlands"
"The role of women"
This is from Alex Sleator, dated 1st December 1998. It's from the research briefings section of the UK Parliament website.
Twenty-seven years ago today.
researchbriefings.files.parliament.uk/documents/RP...
#myalgicencephalomyelitis #myalgice #mecfs
Twenty-seven years ago today.
researchbriefings.files.parliament.uk/documents/RP...
#myalgicencephalomyelitis #myalgice #mecfs
researchbriefings.files.parliament.uk
December 1, 2025 at 8:32 AM
This is from Alex Sleator, dated 1st December 1998. It's from the research briefings section of the UK Parliament website.
Twenty-seven years ago today.
researchbriefings.files.parliament.uk/documents/RP...
#myalgicencephalomyelitis #myalgice #mecfs
Twenty-seven years ago today.
researchbriefings.files.parliament.uk/documents/RP...
#myalgicencephalomyelitis #myalgice #mecfs
The County Gazette, Somerset, England. 1st December 2016. This refers to "Q Fever Chronic Fatigue Syndrome".
December 1, 2025 at 8:29 AM
The County Gazette, Somerset, England. 1st December 2016. This refers to "Q Fever Chronic Fatigue Syndrome".
Nineteen years ago today.
The Independent, UK. 1st December 2006.
#myalgicencephalomyelitis #fibromyalgia #ibs #myalgice #cfsme #mecfs
The Independent, UK. 1st December 2006.
#myalgicencephalomyelitis #fibromyalgia #ibs #myalgice #cfsme #mecfs
December 1, 2025 at 8:27 AM
Nineteen years ago today.
The Independent, UK. 1st December 2006.
#myalgicencephalomyelitis #fibromyalgia #ibs #myalgice #cfsme #mecfs
The Independent, UK. 1st December 2006.
#myalgicencephalomyelitis #fibromyalgia #ibs #myalgice #cfsme #mecfs
The Sunday Telegraph, UK. 1st December 1996.
Tinnitus 'is all in the mind'.
Mentions #mecfs #myalgicencephalomyelitis #cfsme #myalgice #mecfs in passing.
Tinnitus 'is all in the mind'.
Mentions #mecfs #myalgicencephalomyelitis #cfsme #myalgice #mecfs in passing.
December 1, 2025 at 8:26 AM
The Sunday Telegraph, UK. 1st December 1996.
Tinnitus 'is all in the mind'.
Mentions #mecfs #myalgicencephalomyelitis #cfsme #myalgice #mecfs in passing.
Tinnitus 'is all in the mind'.
Mentions #mecfs #myalgicencephalomyelitis #cfsme #myalgice #mecfs in passing.
"The £170m package".
It's a very worthy cause but where's the same money for post/persistent infection illness care, @ashleydaltonmp.bsky.social?
#myalgicencephalomyelitis #longcovid
www.theguardian.com/society/2025...
It's a very worthy cause but where's the same money for post/persistent infection illness care, @ashleydaltonmp.bsky.social?
#myalgicencephalomyelitis #longcovid
www.theguardian.com/society/2025...
Testing at A&Es part of plan to end new HIV cases in England by 2030
Labour announces prevention programme as well as efforts to re-engage people who have fallen out of medical care
www.theguardian.com
November 30, 2025 at 10:43 PM
"The £170m package".
It's a very worthy cause but where's the same money for post/persistent infection illness care, @ashleydaltonmp.bsky.social?
#myalgicencephalomyelitis #longcovid
www.theguardian.com/society/2025...
It's a very worthy cause but where's the same money for post/persistent infection illness care, @ashleydaltonmp.bsky.social?
#myalgicencephalomyelitis #longcovid
www.theguardian.com/society/2025...
Reposted by Royal Free 1955
ME/CFS ist die schwerste Form von Long Covid. Carmen Scheibenbogen von der Charité Berlin spricht über Ursachen, Versorgungsmangel und Hoffnung auf Medikamente.
ME/CFS: "Meine Hoffnung ist groß, dass wir bald wirksame Therapien haben"
ME/CFS ist die schwerste Form von Long Covid. Carmen Scheibenbogen von der Charité Berlin spricht über Ursachen, Versorgungsmangel und Hoffnung auf Medikamente.
www.zeit.de
November 30, 2025 at 5:30 AM
ME/CFS ist die schwerste Form von Long Covid. Carmen Scheibenbogen von der Charité Berlin spricht über Ursachen, Versorgungsmangel und Hoffnung auf Medikamente.
Reposted by Royal Free 1955
Thanks from Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social to @guusontheinternet.bsky.social and the organisers at @niethersteld.bsky.social
November 30, 2025 at 2:36 PM
Thanks from Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social to @guusontheinternet.bsky.social and the organisers at @niethersteld.bsky.social
Reposted by Royal Free 1955
There was a program of speakers, performers and recorded messages performed from a stage
November 30, 2025 at 2:34 PM
There was a program of speakers, performers and recorded messages performed from a stage
Reposted by Royal Free 1955
Some photos from the #PAISProtest now happening at the Malieveld in The Hague.
Looks like a nice crowd has gathered.
Looks like a nice crowd has gathered.
November 30, 2025 at 2:32 PM
Some photos from the #PAISProtest now happening at the Malieveld in The Hague.
Looks like a nice crowd has gathered.
Looks like a nice crowd has gathered.
Reposted by Royal Free 1955
De organisatie heeft 100 rolstoelen geplaatst met portretten van mensen met PAIS. Zij kunnen vandaag niet aanwezig zijn: velen zijn al jaren aan bed gekluisterd.
De installatie trekt veel bekijks. Erg mooi en indrukwekkend symbool.
#NietHersteld
De installatie trekt veel bekijks. Erg mooi en indrukwekkend symbool.
#NietHersteld
November 30, 2025 at 1:57 PM
De organisatie heeft 100 rolstoelen geplaatst met portretten van mensen met PAIS. Zij kunnen vandaag niet aanwezig zijn: velen zijn al jaren aan bed gekluisterd.
De installatie trekt veel bekijks. Erg mooi en indrukwekkend symbool.
#NietHersteld
De installatie trekt veel bekijks. Erg mooi en indrukwekkend symbool.
#NietHersteld
Two years ago today.
The Republican, Massachusetts, US. 30th November 2022.
About brainfog so mentions #longcovid #mecfs #cfsme #myalgicencephalomyelitis #myalgice
The Republican, Massachusetts, US. 30th November 2022.
About brainfog so mentions #longcovid #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 30, 2025 at 11:11 AM
Two years ago today.
The Republican, Massachusetts, US. 30th November 2022.
About brainfog so mentions #longcovid #mecfs #cfsme #myalgicencephalomyelitis #myalgice
The Republican, Massachusetts, US. 30th November 2022.
About brainfog so mentions #longcovid #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 30, 2025 at 11:08 AM
The Democrat and Chronicle, New York.
30th November 2001.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
30th November 2001.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 30, 2025 at 9:39 AM
The Democrat and Chronicle, New York.
30th November 2001.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
30th November 2001.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
This day, thirty-four years ago.
The Bellingham Herald, Washington, US. 30th November 1991.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
The Bellingham Herald, Washington, US. 30th November 1991.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
November 30, 2025 at 9:35 AM
This day, thirty-four years ago.
The Bellingham Herald, Washington, US. 30th November 1991.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
The Bellingham Herald, Washington, US. 30th November 1991.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
The Spokesman-Review, Washington, US.
30th November 2023.
#longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs
30th November 2023.
#longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs
November 30, 2025 at 9:31 AM
The Spokesman-Review, Washington, US.
30th November 2023.
#longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs
30th November 2023.
#longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs
November 30, 2025 at 9:29 AM
Today, eight years ago.
The Warrington Guardian, England. 30th November 2017.
#mecfs #myalgice #myalgicencephalomyelitis #cfsme #lymedisease #lyme #chroniclyme
The Warrington Guardian, England. 30th November 2017.
#mecfs #myalgice #myalgicencephalomyelitis #cfsme #lymedisease #lyme #chroniclyme
November 30, 2025 at 12:21 AM
Today, eight years ago.
The Warrington Guardian, England. 30th November 2017.
#mecfs #myalgice #myalgicencephalomyelitis #cfsme #lymedisease #lyme #chroniclyme
The Warrington Guardian, England. 30th November 2017.
#mecfs #myalgice #myalgicencephalomyelitis #cfsme #lymedisease #lyme #chroniclyme
Nine years ago today.
The Oxford Mail, England. 30th November 2016.
Mitochondria gets a mention.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
The Oxford Mail, England. 30th November 2016.
Mitochondria gets a mention.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
November 30, 2025 at 12:18 AM
Nine years ago today.
The Oxford Mail, England. 30th November 2016.
Mitochondria gets a mention.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
The Oxford Mail, England. 30th November 2016.
Mitochondria gets a mention.
#mecfs #cfsme #myalgice #myalgicencephalomyelitis
Thirty-one years ago today. The Guardian, UK.
30th November 1994.
#cfsme #myalgicencephalomyelitis #mecfs #myalgice
30th November 1994.
#cfsme #myalgicencephalomyelitis #mecfs #myalgice
November 30, 2025 at 12:14 AM
Thirty-one years ago today. The Guardian, UK.
30th November 1994.
#cfsme #myalgicencephalomyelitis #mecfs #myalgice
30th November 1994.
#cfsme #myalgicencephalomyelitis #mecfs #myalgice