Ich würde mich u.a. mit #CCI #hEDS #FQAD #ChronicLyme #VielenReiseimpfungen in meiner Geschichte ( 1 x mit anaphylaktischem Schock reagiert und das als ich noch vermeintlich gesund war, nie wieder impfen lassen. Egal mit was für ner Impfung. Übrigens 22. Oktober FQTAwarenessDay!
October 20, 2025 at 7:34 PM
Ich würde mich u.a. mit #CCI #hEDS #FQAD #ChronicLyme #VielenReiseimpfungen in meiner Geschichte ( 1 x mit anaphylaktischem Schock reagiert und das als ich noch vermeintlich gesund war, nie wieder impfen lassen. Egal mit was für ner Impfung. Übrigens 22. Oktober FQTAwarenessDay!
#mecfs, #cfs, #LongCovid, #fibromyalgia, #chronicLyme, #MCAS: a skeetorial I just wrote on #SexDifferences, #allergy, and the infection-associated chronic illnesses
The absolute best post of the day, possibly of the entire month!
This public atlas came online to relate disease to protein levels found in the blood from thousands of people across many diseases, searchable by sex. 1/9
bsky.app/profile/chil...
This public atlas came online to relate disease to protein levels found in the blood from thousands of people across many diseases, searchable by sex. 1/9
bsky.app/profile/chil...
Atlas of the plasma proteome in health and disease in 53,026 adults 👩🔬🥼👨🔬🧪. #proteomics #proteome #plasma #MedSky 👇👇
www.cell.com/cell/fulltex...
www.cell.com/cell/fulltex...
November 23, 2024 at 10:06 PM
#mecfs, #cfs, #LongCovid, #fibromyalgia, #chronicLyme, #MCAS: a skeetorial I just wrote on #SexDifferences, #allergy, and the infection-associated chronic illnesses
Mixed emotions about how, but Lyme Disease is now on the national stage 💚 hopefully it makes a change in the way the medical industry views/handles it
#lymedisease #lymewarrior #lyme #chroniclyme
#lymedisease #lymewarrior #lyme #chroniclyme
December 12, 2024 at 2:05 PM
Mixed emotions about how, but Lyme Disease is now on the national stage 💚 hopefully it makes a change in the way the medical industry views/handles it
#lymedisease #lymewarrior #lyme #chroniclyme
#lymedisease #lymewarrior #lyme #chroniclyme
The most painful part of any chronic illness is to not be believed. #chronicillness #epilepsy #lymedisease #chroniclyme #pyodermagangrenosum #autoimmune
March 25, 2025 at 1:19 PM
The most painful part of any chronic illness is to not be believed. #chronicillness #epilepsy #lymedisease #chroniclyme #pyodermagangrenosum #autoimmune
Lyme patients deserve
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
March 22, 2025 at 2:29 AM
Lyme patients deserve
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
For context this is a care guide centered on multiple conditions including #POTS #ChronicLyme as well as #MECFS and #LongCovid
For some exercise will help.
If you have ME like me, it’s a no go. Even though I know my dysautonomia could improve, it will cost me my baseline.
For some exercise will help.
If you have ME like me, it’s a no go. Even though I know my dysautonomia could improve, it will cost me my baseline.
August 16, 2025 at 2:14 AM
For context this is a care guide centered on multiple conditions including #POTS #ChronicLyme as well as #MECFS and #LongCovid
For some exercise will help.
If you have ME like me, it’s a no go. Even though I know my dysautonomia could improve, it will cost me my baseline.
For some exercise will help.
If you have ME like me, it’s a no go. Even though I know my dysautonomia could improve, it will cost me my baseline.
The Berkshire Eagle, Massachusetts, US. 5th March 1989. About #lymedisease #chroniclyme but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
March 5, 2025 at 10:35 PM
The Berkshire Eagle, Massachusetts, US. 5th March 1989. About #lymedisease #chroniclyme but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
The Philadelphia Daily News, US. 28th November 1994. About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice #lymedisease #chroniclyme #lyme
November 28, 2024 at 8:16 PM
The Philadelphia Daily News, US. 28th November 1994. About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice #lymedisease #chroniclyme #lyme
You know what's the most fun?
Having paradoxical side effects from most medications.
Doctors don't usually believe me & make me "try again because things could change."...
They don't.
#chronicillness #chroniclyme #lymedisease
Having paradoxical side effects from most medications.
Doctors don't usually believe me & make me "try again because things could change."...
They don't.
#chronicillness #chroniclyme #lymedisease
December 3, 2024 at 4:55 AM
You know what's the most fun?
Having paradoxical side effects from most medications.
Doctors don't usually believe me & make me "try again because things could change."...
They don't.
#chronicillness #chroniclyme #lymedisease
Having paradoxical side effects from most medications.
Doctors don't usually believe me & make me "try again because things could change."...
They don't.
#chronicillness #chroniclyme #lymedisease
Now a Jane Coffin Childs postdoc at Stanford, @scienceyael.bsky.social studies how infections like Epstein–Barr, COVID, & Lyme trigger long-term neurological disease. We talk science, survival, solidarity, & making academia accessible for those without a safety net. #LongCOVID #ChronicLyme 5/
July 1, 2025 at 10:51 PM
Now a Jane Coffin Childs postdoc at Stanford, @scienceyael.bsky.social studies how infections like Epstein–Barr, COVID, & Lyme trigger long-term neurological disease. We talk science, survival, solidarity, & making academia accessible for those without a safety net. #LongCOVID #ChronicLyme 5/
Lyme patients deserve
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
February 23, 2025 at 4:14 AM
Lyme patients deserve
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
EQUAL RECOGNITION
that is EQUITABLE
TO all OTHER
CRITICAL HEALTH CONDITIONS
in ALL PUBLIC LISTINGS.
FAILURE TO TREAT = HARM!!!
#Lyme
#LymeDisease
#LymeRightsNOW
#LymeReperations
#ChronicLyme
#LongLyme
#PTLD
#Bitten
#BioWeapon
#UnderOurSkin
#IDSACrymes
The Santa Cruz Sentinel, US. 4th December 2003. About #lymedisease #chroniclyme #lyme but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
December 4, 2024 at 2:33 PM
The Santa Cruz Sentinel, US. 4th December 2003. About #lymedisease #chroniclyme #lyme but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
When you're so out of it for a whole day that you can't even [fill in the blank]. [pick up the knitting needles] Raise your hand if you've been there. #chronicillness #epilepsy #lymedisease #chroniclyme #autoimmune
April 24, 2025 at 1:26 PM
When you're so out of it for a whole day that you can't even [fill in the blank]. [pick up the knitting needles] Raise your hand if you've been there. #chronicillness #epilepsy #lymedisease #chroniclyme #autoimmune
Fuck #MEcfs (and #LongCovid, #ChronicLyme et al). The world is spiralling down the toilet and it needs voices of fierce compassion and, crucially, scrutiny and fact checking. And I can do precisely fuck all but survive this disease to keep a roof over my head.
November 19, 2024 at 1:37 PM
Fuck #MEcfs (and #LongCovid, #ChronicLyme et al). The world is spiralling down the toilet and it needs voices of fierce compassion and, crucially, scrutiny and fact checking. And I can do precisely fuck all but survive this disease to keep a roof over my head.
The mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us all
The mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us all
New research shows western medicine’s traditional split between brain and body is, in fact, far from clear cut – and could provide a breakthrough for many complex conditions
Some years ago Camilla Nord suffered such persistent pain at the site of an old…
www.theguardian.com
January 26, 2025 at 5:05 PM
About #lymedisease #lyme #chroniclyme but mentions #myalgicencephalomyelitis #myalgice #cfsme #mecfs
The Vancouver Sun, Canada. 29th March 2011.
The Vancouver Sun, Canada. 29th March 2011.
March 29, 2025 at 10:11 PM
About #lymedisease #lyme #chroniclyme but mentions #myalgicencephalomyelitis #myalgice #cfsme #mecfs
The Vancouver Sun, Canada. 29th March 2011.
The Vancouver Sun, Canada. 29th March 2011.
#pwHS, #cancer, #IBD, #crohns, #colitis, #Lyme, #pwLyme, #ChronicLyme, #postLyme, #bartonella, #EBV, #EpsteinBarVirus, #Polymyalgia, #MyofascialPainSyndrome, #MusculoskeletalPainSyndrome, #PostExertionalMalaise, #PostExertionalSymptomExacerbation, #PESE,
3/6
3/6
December 2, 2024 at 4:34 AM
The Hartford Courant, Connecticut, US. 4th February 2021. #longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs #lymedisease #lyme #chroniclyme
February 4, 2025 at 10:24 PM
The Hartford Courant, Connecticut, US. 4th February 2021. #longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs #lymedisease #lyme #chroniclyme
I've been thinking about this all week. Just what we didn't need at this point in time in the development of science in #IACCs #MEcfs #LondCovid #ChronicLyme I hope we have enough established starting points for researchers and NGOs to carry on these next 4 years.
It’s also important to note that the politicians who are leading the charge on passing Long COVID research funding are progressive Democrats like Bernie Sanders, Ayanna Pressley, and Ilhan Omar.
A GOP-controlled White House and Congress will squash Long COVID bills like these.
A GOP-controlled White House and Congress will squash Long COVID bills like these.
November 10, 2024 at 1:06 PM
I've been thinking about this all week. Just what we didn't need at this point in time in the development of science in #IACCs #MEcfs #LondCovid #ChronicLyme I hope we have enough established starting points for researchers and NGOs to carry on these next 4 years.
The Oxford Times, England. 14th November 2019. About #lymedisease #lyme #chroniclyme but mentions #myalgicencephalomyelitis #myalgice #cfsme #mecfs.
November 14, 2024 at 1:54 AM
The Oxford Times, England. 14th November 2019. About #lymedisease #lyme #chroniclyme but mentions #myalgicencephalomyelitis #myalgice #cfsme #mecfs.
Book research on how names shift science.
How do controversial ideas become accepted in medical research and medicine?
T-suppressor cells were "debunked" and then rebranded as #Tregs.
Chronic Fatigue Syndrome now ME w/ #ChronicLyme to #IACI following #LongCOVID.
I want to hear your stories!!
How do controversial ideas become accepted in medical research and medicine?
T-suppressor cells were "debunked" and then rebranded as #Tregs.
Chronic Fatigue Syndrome now ME w/ #ChronicLyme to #IACI following #LongCOVID.
I want to hear your stories!!
May 31, 2025 at 7:21 PM
Book research on how names shift science.
How do controversial ideas become accepted in medical research and medicine?
T-suppressor cells were "debunked" and then rebranded as #Tregs.
Chronic Fatigue Syndrome now ME w/ #ChronicLyme to #IACI following #LongCOVID.
I want to hear your stories!!
How do controversial ideas become accepted in medical research and medicine?
T-suppressor cells were "debunked" and then rebranded as #Tregs.
Chronic Fatigue Syndrome now ME w/ #ChronicLyme to #IACI following #LongCOVID.
I want to hear your stories!!
#Massachusetts
2 studies still recruiting
talresearchgroup.mit.edu/mitmaestro
www.omf.ngo/mecfs-sleep-...
From the MassME newsletter
massmecfs.org/newsletters/...
#ChronicLyme #Lyme #LongCOVID #MEcfs #CFS #PwME @openmedf.bsky.social
2 studies still recruiting
talresearchgroup.mit.edu/mitmaestro
www.omf.ngo/mecfs-sleep-...
From the MassME newsletter
massmecfs.org/newsletters/...
#ChronicLyme #Lyme #LongCOVID #MEcfs #CFS #PwME @openmedf.bsky.social
October 10, 2024 at 10:15 PM
#Massachusetts
2 studies still recruiting
talresearchgroup.mit.edu/mitmaestro
www.omf.ngo/mecfs-sleep-...
From the MassME newsletter
massmecfs.org/newsletters/...
#ChronicLyme #Lyme #LongCOVID #MEcfs #CFS #PwME @openmedf.bsky.social
2 studies still recruiting
talresearchgroup.mit.edu/mitmaestro
www.omf.ngo/mecfs-sleep-...
From the MassME newsletter
massmecfs.org/newsletters/...
#ChronicLyme #Lyme #LongCOVID #MEcfs #CFS #PwME @openmedf.bsky.social
The Wisconsin State Journal, US. 14th March 2022. #lyme #lymedisease #chroniclyme #myalgicencephalomyelitis #myalgice #mecfs #cfsme
March 14, 2025 at 9:50 PM
The Wisconsin State Journal, US. 14th March 2022. #lyme #lymedisease #chroniclyme #myalgicencephalomyelitis #myalgice #mecfs #cfsme
Were you dismissed like my first Lyme disease patients? Share your story below. #LymeDisease #LymeAwareness #ChronicLyme #LymeDoctor #LymeWarrior #TickBorneIllness #MedicalJourney #PatientStory #case #explainer #lymephysician
May 22, 2025 at 11:05 PM
Were you dismissed like my first Lyme disease patients? Share your story below. #LymeDisease #LymeAwareness #ChronicLyme #LymeDoctor #LymeWarrior #TickBorneIllness #MedicalJourney #PatientStory #case #explainer #lymephysician
Today's Lyme Awareness Month post is a little bit of hope from Northwestern. #ChronicLyme #LymeDisease #LymeDiseaseAwareness
news.northwestern.edu/stories/2025...
news.northwestern.edu/stories/2025...
Taking the bite out of Lyme disease
New studies offer insight into disease’s treatment, lingering symptoms
news.northwestern.edu
May 16, 2025 at 2:27 PM
Today's Lyme Awareness Month post is a little bit of hope from Northwestern. #ChronicLyme #LymeDisease #LymeDiseaseAwareness
news.northwestern.edu/stories/2025...
news.northwestern.edu/stories/2025...