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Eleanor Fielding @meownersclub.bsky.social · 1h

😊🙏🏼

Eleanor Fielding @meownersclub.bsky.social · 3h

Second time of trying to donate - not to be churlish but I have ME/PEM so an ApplePay link would be so much easier than having to input all my contact details and then go find a card and input all that as well.
I will donate later once I’m up and about and can face all the typing. Kind regards 💙

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Reposted by Eleanor Fielding

Billy Hanlon @bhanlon15.bsky.social · 20h

11/22/21, Medical News Today: 'Through my eyes: Long neuro-COVID'

'My heart rate would increase further, to 170 bpm, on standing and with minimal exertion, such as getting a drink or using the bathroom.'

'I haven’t watched TV or driven in 10 months.'

www.medicalnewstoday.com/articles/thr...

My experience of living with long neuro-COVID

Dr. Kelly Ann Fearnley lives with long COVID and persistent neurological and neurocognitive symptoms. In this article, she talks about her experiences.

www.medicalnewstoday.com

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Reposted by Eleanor Fielding

Natasha Devon @natashadevon.bsky.social · 4h

…No wonder the establishment (the real one, not the pretend one Reform evoke when it suits them) are cacking their pants. This is what an actual grassroots movement looks like.

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Reposted by Eleanor Fielding

Natasha Devon @natashadevon.bsky.social · 4h

Extraordinary. The Greens are ahead of Labour in polls. Without @zackpolanski.bsky.social being given hours of airtime per week on a propaganda channel. Without the Daily Mail repeatedly calling for him to be the next PM. Without backing from the world’s richest men & the platforms they own….

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Eleanor Fielding @meownersclub.bsky.social · 4h

New study at Melbourne University is looking for #pwME to take part in research #ME #PEM #Fatiguability #LC sent out by @openmedf.bsky.social

• StudyME
Dear OMF StudyME Participant,
We are excited to present a research opportunity that might interest you.
Below, you'll find details about the study, kindly provided by the research team. Should you have any inquiries regarding the study's specifics, your participation, or eligibility criteria, please feel free to contact the study team directly.
MELBOURNE
FARMS (FUNCAP 27, A Repeat Measure Survey)
re has been a significant gap in the ability of clinicians to quantify (put a numbe eneray capacity and faticablity of peone with ME CFS and LC. This imbacts research and clinicians trying to check response to physical and medical therapies. The deve ooment of the FUNCAP 27 questionne re revo utionised now peode assess their own abilities and represents the best method of data collection.
he FUNCAP 27, is a 27 item questionnaire that asks about your ability an onsequences of completing 27 different tasks. The FUNCAP 27 was developed in close onsultation with patient advocates and represents one of the best and most usefu vestionnaires to date. We believe that the FUNCAP 27 has the ability to assess enerd tates beyond the month time frame originally intended by the tool's creators. We plan to ise the FUNCAP 27 to measure a person's percention (awareness) of their eneral capacity at a single point in time and will measure how this changes at 2 separate time points over a period of 6 weeks. Participants will have 4 hours on each occasion to complete the survey. The first measurement will be completed when you are experiencing post exertional malaise (PEM), and the other when you are well, PEM is experienced when someone with ME/CFS or LC over-exerts themselves physically, cognitively or emotionally resulting in a delayed onset worsening of symptoms that is often out of proportion in severity and duration to the initial stressor.
We are looking for people between the age o 1o and /U who nave been cagnosed with
ME/CFS and/or Long Covid to assist us in research by parti…

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Eleanor Fielding @meownersclub.bsky.social · 5h

Very silly woman - does she not know about the lawsuit against Johnson&Johnson for cancers caused by something as seemingly innocuous as talcum powder?

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Eleanor Fielding @meownersclub.bsky.social · 5h

👏💙

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Reposted by Eleanor Fielding

jaythechou.bsky.social @jaythechou.bsky.social · 3d

I Photoshop Paddington into a movie, TV show, or pop culture until I forget: Day 1673

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Reposted by Eleanor Fielding

Chris Giles @chrisgiles.ft.com · 1d

There is no need for a moral panic about the UK's welfare system.

Far from perfect but recent discourse is nuts

Spending is controlled, not spiralling

Worklessness is near record lows

My column www.ft.com/content/ee67...

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Reposted by Eleanor Fielding

Eleanor Fielding @meownersclub.bsky.social · 1d

Handy cut-out-and-keep for annoying relatives/friends/drs
💙💙

#ME #Disability #PEM #FanningTheFlames
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME #Plan4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social

There is an image of a cat wearing glasses and reading books. Round the cat’s neck is a pendant with the words “Wise Cat”

The title says - “Do you suffer from outdated prejudices about #ME and #Long Covid?”

Wise Cat is saying “Stuff those prejudices down and see if you can squeeze a thought into the gap - here’s a link”.

The link is - https://meassociation.org.uk

Round the outside of the cartoon is a dotted line with scissors on it and the words ‘cut out and keep for those annoying relatives/friends/doctors’

The cartoon maker is #FanningTheFlames

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Reposted by Eleanor Fielding

George Monbiot @georgemonbiot.bsky.social · 7d

This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius.

It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can:
www.totnespulse.co.uk/product/tick...

Ticket: Patchwork: A Graphic Biography of Jane Austen

Kate Evans is a writer, cartoonist, illustrator and studied English literature at the University of Sussex in Brighton. From 1995 to 1998 Evans dedicated herself to environmental activism, providing c...

www.totnespulse.co.uk

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Eleanor Fielding @meownersclub.bsky.social · 1d

Well, there’s always the option of accusing them of utter irrational prejudice for ‘unconscious’ reasons.

Though personally I think they’ve been overdetermined by ideas floating around in their subcultural soup but have yet to make a cartoon about thae Gordion knot.

#ME #IntergenerationalTrauma

Title - This Week in Disbelief..

This is a cartoon in 3 vertical sections -

Section 1 title - "The Most Hated Doctor in Britain" has been appointed by a Labour government as vice-chair of an investigation into whether mental health problems and neurodivergence are being
OVERDIAGNOSED.

Section 2 title - Prof Simon Wessely, the careerist punitive psychiatrist whose views on #MEcfs have led to decades of underfunding, medical ignorance.
unnecessary disability and definitely preventable deaths. seems wedded to these powerful persecutory roles.

Section 3 title - How can we understand this commitment to coercion from a doctor?
Does he perhaps:
• Crave recognition from powerful groups?
• Struggle with unresolved trauma?
• Chase career and social gains?
• Lack self-awareness & empathy?
• Think the ends justify the means?

In the bottom right hand corner is wise Cat who’s saying “Or perhaps he's just a dick?!”

The cartoon maker is #FanningTheFlames

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Reposted by Eleanor Fielding

Dr Melanie Zeppel @drmelz.bsky.social · 1d

Climate Attribution study from ANU shows emissions from Woodside's Scarborough project linked to 484 deaths from heatwaves in Europe alone.

#Climate 🧪

theabj.com.au/2025/10/15/s...

Scientists link emissions from Woodside’s Scarborough gas project to hundreds of heat-related deaths

A new climate attribution study has drawn a direct line between emissions from a single fossil fuel project and measurable

theabj.com.au

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Reposted by Eleanor Fielding

Anaya Malik @amjeditor.bsky.social · 1d

⚠️ New evidence shows children with rheumatologic disease who are carefully weaned off long-term steroids face fewer adrenal crises, underscoring the importance of monitored tapering in clinical practice.

www.emjreviews.com/en-us/amj/rh...

#AMJRheumatology #AutoimmuneDisease

Children Weaned Off Steroids Avoid Crises

Retrospective study finds adrenal crisis is rare after weaning high dose glucocorticoids in children with nephrotic syndrome or juvenile idiopathic arthritis, supporting protocolized tapering under sp...

www.emjreviews.com

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Reposted by Eleanor Fielding

ME Foggy Dog @mefoggydog.bsky.social · 1d

*Foggy* The JustGiving pages for
CureME/MEcfs biobank and
@smileformeuk.bsky.social
are live on the #BEDforSevereME webpages now!!!! Whoop!!!

Check it out! mefoggydog.org/bed-for-seve...

29th October here we come!!

#pwME #MEcfs #SevereME

Donate to Support BED for Severe M.E. | ME Foggy Dog

Each organisation is doing vital work to support those affected by Severe M.E., and we want to help them go even further.

mefoggydog.org

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Eleanor Fielding @meownersclub.bsky.social · 1d

Handy cut-out-and-keep for annoying relatives/friends/drs
💙💙

#ME #Disability #PEM #FanningTheFlames
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME #Plan4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social

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Eleanor Fielding @meownersclub.bsky.social · 1d

Useful background research. Thank you. 🙏🏼

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Reposted by Eleanor Fielding

George Monbiot @georgemonbiot.bsky.social · 1d

I don't know, and these people are highly opaque about their motives and methods. But it was one of a tranche of sci-comm groups launched by RCP ghouls at the same time: www.monbiot.com/2003/12/09/i...

Invasion of the Entryists

How a cruel and bizarre cult colonised the interface between science and the media.

www.monbiot.com

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Reposted by Eleanor Fielding

ME/CFS Science @mecfsskeptic.bsky.social · 3d

1) 🇬🇧 For ME/CFS patients in the UK only: Action for ME has opened its 2025 Big Survey! Last time, it had more than 4000 respondents, but hopefully this one will be even bigger.

The deadline for submitting your response is 27 January 2026.

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Reposted by Eleanor Fielding

Adam @abrokenbattery.bsky.social · 1d

Transcript: hansard.parliament.uk/Commons/2025...

Postural Tachycardia Syndrome - Hansard - UK Parliament

Hansard record of the item : ' Postural Tachycardia Syndrome' on Tuesday 14 October 2025.

hansard.parliament.uk

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Reposted by Eleanor Fielding

Adam @abrokenbattery.bsky.social · 1d

Full Westminster debate on PoTS (28 mins), led by Cat Smith MP. MPs from across parties raised long waits for diagnosis, lack of NHS care. Minister Ashley Dalton responded for the Govt.

youtu.be/1Qj2umTb-3A?...

Westminster Debate on PoTS (Postural Tachycardia Syndrome)

YouTube video by Broken Battery

youtu.be

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Reposted by Eleanor Fielding

Tom Kindlon @tomkindlon.bsky.social · 1d

(MA, US)
MAESTRO Study Seeking Participants

talresearchgroup.mit.edu/mitmaestro

Screenshot from Massachusetts ME/CFS & FM Association October newsletter

#LongCovid #Lyme @immunofever.bsky.social

MAESTRO Study Seeking Participants

The Tal Research Group at MIT — headed by Dr. Mikki Tal and home of our Annual Meeting's guest speaker, Beth Pollack — is conducting the largest clinical study in MIT's history. The MAESTRO study aims to increase our understanding of the base causes of chronic infectious illness. The study is ongoing, and they are still seeking participants who have Long COVID, acute or chronic Lyme disease, and healthy controls.

If you are interested in participating in this study, you can find more information here.

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Eleanor Fielding @meownersclub.bsky.social · 1d

#ChronicIllness
#LongCovid #ChronicIllnessHumour #MCAS #PunitivePsychiatry #EnoughIsEnough

Eleanor Fielding @meownersclub.bsky.social · 2d

#ME #Disability #PEM #FanningTheFlames
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME #Plan4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@davidjoffe64.bsky.social
@drjoepajak.bsky.social

This is a cartoon pretending to be a shop coupon.

There is an image of a cat wearing glasses and reading books. Round the cat’s neck is a pendant with the words “Wise Cat”

The title says - “Do you suffer from outdated prejudices about #ME and #Long Covid?”

Wise Cat is saying “Stuff those prejudices down and see if you can squeeze a thought into the gap - here’s a link”.

The link is - https://meassociation.org.uk

Round the outside of the cartoon is a dotted line with scissors on it and the words ‘cut out and keep for those annoying relatives/friends/doctors’

The cartoon maker is #FanningTheFlames

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Reposted by Eleanor Fielding

George Monbiot @georgemonbiot.bsky.social · 1d

Why is microbial protein not OK, while this, which it aims to replace, is?

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