Putrino Lab
@putrinolab.bsky.social
Reposted by Putrino Lab
The incredible, indomitable, inspirational Alice Wong has left us.
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
November 15, 2025 at 6:13 AM
The incredible, indomitable, inspirational Alice Wong has left us.
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
RIP @sfdirewolf.bsky.social. Your fierce advocacy and powerful legacy will never be forgotten, and we won't stop fighting for everything you championed.🙏😔
November 15, 2025 at 12:29 PM
RIP @sfdirewolf.bsky.social. Your fierce advocacy and powerful legacy will never be forgotten, and we won't stop fighting for everything you championed.🙏😔
#LongCOVID, #MECFS, chronic #lyme scientists and clinicians: This energy! Bring it each day someone tries to force you to follow the status quo, bring it each time someone tries to slow you down just because their insecure ass can't keep up. People are depending on us. Move faster! Show urgency!
November 7, 2025 at 9:28 PM
#LongCOVID, #MECFS, chronic #lyme scientists and clinicians: This energy! Bring it each day someone tries to force you to follow the status quo, bring it each time someone tries to slow you down just because their insecure ass can't keep up. People are depending on us. Move faster! Show urgency!
Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/
November 7, 2025 at 3:29 PM
Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/
Delighted to receive this in the mail yesterday and congrats to Giorgia Lupi on getting this out. THANK YOU for taking time to discuss #LongCOVID and the need for accurate, inclusive and honest representation of the people we collect our data from. Amazing work. 🙏🏻
November 4, 2025 at 1:39 PM
Delighted to receive this in the mail yesterday and congrats to Giorgia Lupi on getting this out. THANK YOU for taking time to discuss #LongCOVID and the need for accurate, inclusive and honest representation of the people we collect our data from. Amazing work. 🙏🏻
This paper was published last week about #COVID, #LongCOVID and its parallels. First, despite the provocative title, I urge people to read the paper the whole way through, rather than making assumptions about what you presume the paper will conclude.
t.co/Mqf822zWJV
1/
t.co/Mqf822zWJV
1/
https://www.ajpmfocus.org/article/S2773-0654(25)00146-4/fulltext
t.co
October 20, 2025 at 12:35 PM
This paper was published last week about #COVID, #LongCOVID and its parallels. First, despite the provocative title, I urge people to read the paper the whole way through, rather than making assumptions about what you presume the paper will conclude.
t.co/Mqf822zWJV
1/
t.co/Mqf822zWJV
1/
Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like Visible, designed FOR patients, BY patients.
www.frontiersin.org/journals/dig...
1/
www.frontiersin.org/journals/dig...
1/
Frontiers | Wearable technology in the management of complex chronic illness: preliminary survey results on self-reported outcomes
IntroductionComplex chronic illnesses like Long Covid (LC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) are marked by fluctuating symptoms...
www.frontiersin.org
October 18, 2025 at 1:42 PM
Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like Visible, designed FOR patients, BY patients.
www.frontiersin.org/journals/dig...
1/
www.frontiersin.org/journals/dig...
1/
Reposted by Putrino Lab
1/
#Reinfections are not harmless.
As #LongCOVID researcher, David Putrino, said "There is no such thing as a #COVID infection without consequence" -
@putrinolab.bsky.social
#Reinfections are not harmless.
As #LongCOVID researcher, David Putrino, said "There is no such thing as a #COVID infection without consequence" -
@putrinolab.bsky.social
I haven't seen one single study that shows it's harmless to keep getting Covid again & again. But there are thousands of peer-reviewed studies that document long-term harms
October 6, 2025 at 3:22 PM
1/
#Reinfections are not harmless.
As #LongCOVID researcher, David Putrino, said "There is no such thing as a #COVID infection without consequence" -
@putrinolab.bsky.social
#Reinfections are not harmless.
As #LongCOVID researcher, David Putrino, said "There is no such thing as a #COVID infection without consequence" -
@putrinolab.bsky.social
Reposted by Putrino Lab
Understanding Micro Clots | The Sticky Protein Behind Long COVID Symptoms.
Prof David Putrino explains why you're testing normal
#longcovid #longhauler #longcovidtheanswers @putrinolab.bsky.social
Prof David Putrino explains why you're testing normal
#longcovid #longhauler #longcovidtheanswers @putrinolab.bsky.social
Understanding Micro Clots | The Sticky Protein Behind Long COVID Symptoms. Prof David Putrino explai
YouTube video by Long Covid The Answers
youtube.com
October 7, 2025 at 7:18 PM
Understanding Micro Clots | The Sticky Protein Behind Long COVID Symptoms.
Prof David Putrino explains why you're testing normal
#longcovid #longhauler #longcovidtheanswers @putrinolab.bsky.social
Prof David Putrino explains why you're testing normal
#longcovid #longhauler #longcovidtheanswers @putrinolab.bsky.social
Two new #BCI preprints hot off the press as we wrap up our first-in-human trial testing safety and feasibility of @synchron’s Stentrode implant. The first paper, led by the incredible @chettaaay and @dougweberlab shows us the stability of the recordings
www.medrxiv.org/content/10.1...
www.medrxiv.org/content/10.1...
Signal properties and stability of a chronically implanted endovascular brain computer interface
Background Implanted brain-computer interfaces (iBCIs) establish direct communication with the brain and hold the potential to enable people with severe disability to achieve control of digital device...
www.medrxiv.org
October 4, 2025 at 1:00 PM
Two new #BCI preprints hot off the press as we wrap up our first-in-human trial testing safety and feasibility of @synchron’s Stentrode implant. The first paper, led by the incredible @chettaaay and @dougweberlab shows us the stability of the recordings
www.medrxiv.org/content/10.1...
www.medrxiv.org/content/10.1...
10 yrs ago l got to meet Daryl Davis after hearing him speak. In times like these I find myself reflecting on whether his style of advocacy can still work in 2025? I happen to believe that it still can. “When two enemies are talking they aren’t fighting”
www.npr.org/2017/08/20/5...
www.npr.org/2017/08/20/5...
How One Man Convinced 200 Ku Klux Klan Members To Give Up Their Robes
One by one, Daryl Davis has befriended KKK members over the past 30 years. The more they got to know the African-American musician, the more they realized the Klan was not for them.
www.npr.org
October 3, 2025 at 2:05 PM
10 yrs ago l got to meet Daryl Davis after hearing him speak. In times like these I find myself reflecting on whether his style of advocacy can still work in 2025? I happen to believe that it still can. “When two enemies are talking they aren’t fighting”
www.npr.org/2017/08/20/5...
www.npr.org/2017/08/20/5...
Timely @TheLancet paper about #Longcovidkids, showing that risk of developing #LongCOVID effectively doubles in kids after their second infection.
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study
Children and adolescents face a significantly higher risk of various PASC outcomes
after reinfection with SARS-CoV-2. These findings add to previous evidence linking
paediatric long COVID to multisyst...
www.thelancet.com
October 1, 2025 at 11:16 AM
Timely @TheLancet paper about #Longcovidkids, showing that risk of developing #LongCOVID effectively doubles in kids after their second infection.
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
1/
September 27, 2025 at 11:30 AM
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
1/
Reposted by Putrino Lab
This piece for @thesicktimes.org about people with Long COVID receiving diagnoses of funcitonal neurological disorder...
thesicktimes.org/2025/09/26/l...
thesicktimes.org/2025/09/26/l...
Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you. - The Sick Times
Some people with Long COVID are receiving potentially unhelpful diagnoses of functional neurological disorder (FND), a condition in which people experience neurological symptoms that cannot be attribu...
thesicktimes.org
September 26, 2025 at 4:36 PM
This piece for @thesicktimes.org about people with Long COVID receiving diagnoses of funcitonal neurological disorder...
thesicktimes.org/2025/09/26/l...
thesicktimes.org/2025/09/26/l...
Incredible talk here at the #UNGA80 #indoorair call to action from our very own Violet Affleck! Reminding us that #longcovid affects all of us, the #covid19 pandemic is ongoing and we have failed to protect our children. Thank you, Violet, for speaking the truth to this room 🙏🏻
September 24, 2025 at 12:27 PM
Incredible talk here at the #UNGA80 #indoorair call to action from our very own Violet Affleck! Reminding us that #longcovid affects all of us, the #covid19 pandemic is ongoing and we have failed to protect our children. Thank you, Violet, for speaking the truth to this room 🙏🏻
I know a lot of folks were asking, so here is last week's RECOVER-TLC programming freely available on youtube:
youtube.com/playlist?lis...
I sincerely hope that the NIH will be taking action on some of the ideas I expressed here for use of monoclonals in #LongCOVID research.
youtube.com/playlist?lis...
I sincerely hope that the NIH will be taking action on some of the ideas I expressed here for use of monoclonals in #LongCOVID research.
Pathways to Treatments, second annual RECOVER-TLC workshop - YouTube
This workshop updated the community on the progress made so far through RECOVER-TLC and solicited feedback on key aspects that will be essential for successf...
youtube.com
September 16, 2025 at 11:31 PM
I know a lot of folks were asking, so here is last week's RECOVER-TLC programming freely available on youtube:
youtube.com/playlist?lis...
I sincerely hope that the NIH will be taking action on some of the ideas I expressed here for use of monoclonals in #LongCOVID research.
youtube.com/playlist?lis...
I sincerely hope that the NIH will be taking action on some of the ideas I expressed here for use of monoclonals in #LongCOVID research.
Happy to share some new #LongCOVID data that went to pre-print today. Before we begin breaking this down, one caveat: this work MUST be validated by a well-powered placebo-controlled randomized controlled trial before we can get too excited, but this is
www.researchsquare.com/article/rs-7...
1/
www.researchsquare.com/article/rs-7...
1/
Comparison of IMC-2 alone and IMC-2 and Paxlovid® shows substantial short and long-term efficacy in reducing symptoms of Long COVID with combination therapy: a case series
IntroductionLong COVID (LC), an infection-associated chronic illness (IACI) with no currently approved treatments. In order to address SARS-CoV-2 persistence and herpesvirus reactivation, which have b...
www.researchsquare.com
September 3, 2025 at 12:50 PM
Happy to share some new #LongCOVID data that went to pre-print today. Before we begin breaking this down, one caveat: this work MUST be validated by a well-powered placebo-controlled randomized controlled trial before we can get too excited, but this is
www.researchsquare.com/article/rs-7...
1/
www.researchsquare.com/article/rs-7...
1/
Reposted by Putrino Lab
Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social & @putrinolab.bsky.social discuss how patients are reshaping research.
Watch: https://ow.ly/xcAE50WNhXP
Watch: https://ow.ly/xcAE50WNhXP
August 28, 2025 at 12:36 AM
Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social & @putrinolab.bsky.social discuss how patients are reshaping research.
Watch: https://ow.ly/xcAE50WNhXP
Watch: https://ow.ly/xcAE50WNhXP
Reposted by Putrino Lab
Mount Sinai’s new manual for the treatment of infection-associated chronic diseases is an important step: not a cure-all, sure, but an important instance of a medical institution taking IACD seriously—including Lyme & TBDs—and introducing frameworks for care. Thx @putrinolab.bsky.social & CORE!
August 21, 2025 at 2:09 PM
Mount Sinai’s new manual for the treatment of infection-associated chronic diseases is an important step: not a cure-all, sure, but an important instance of a medical institution taking IACD seriously—including Lyme & TBDs—and introducing frameworks for care. Thx @putrinolab.bsky.social & CORE!
I’ve said it before and I’ll say it again. I love this podcast from @BayAreaLyme. Every time I listen I learn so much about chronic tick- and vector-borne illnesses like chronic #lyme as well as other IACIs, and @danaparish asks such great questions! 🙏🏻
podcasts.apple.com/us/podcast/t...
podcasts.apple.com/us/podcast/t...
Ticktective
Medicine Podcast · Ticktective podcast, a Bay Area Lyme Foundation program, investigates the latest scientific knowledge and advances in Lyme and tick-borne diseases, and offers insightful discussion ...
podcasts.apple.com
August 16, 2025 at 8:06 AM
I’ve said it before and I’ll say it again. I love this podcast from @BayAreaLyme. Every time I listen I learn so much about chronic tick- and vector-borne illnesses like chronic #lyme as well as other IACIs, and @danaparish asks such great questions! 🙏🏻
podcasts.apple.com/us/podcast/t...
podcasts.apple.com/us/podcast/t...
Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
1/
www.beckershospitalreview.com/quality/pati...
1/
Mount Sinai publishes 1st US guide for infection-linked chronic illnesses - Becker's Hospital Review | Healthcare News & Analysis
New York City-based Mount Sinai Health System has released the country’s first clinical manual for treating infection-associated chronic illnesses, according to an Aug. 13 news release. The clinical ...
www.beckershospitalreview.com
August 14, 2025 at 12:30 AM
Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
1/
www.beckershospitalreview.com/quality/pati...
1/
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
August 7, 2025 at 6:19 PM
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
Reposted by Putrino Lab
I watched Quad Gods on my flight yesterday and happy to see it was starring @putrinolab.bsky.social 🤩
What can’t this guy do? From international researcher extraordinaire to actor to helping persons with quadriplegia get their groove back!
What can’t this guy do? From international researcher extraordinaire to actor to helping persons with quadriplegia get their groove back!
July 29, 2025 at 12:47 PM
I watched Quad Gods on my flight yesterday and happy to see it was starring @putrinolab.bsky.social 🤩
What can’t this guy do? From international researcher extraordinaire to actor to helping persons with quadriplegia get their groove back!
What can’t this guy do? From international researcher extraordinaire to actor to helping persons with quadriplegia get their groove back!
We are so excited to get to work with the Nancy Lieberman Back to Life Center at Mount Sinai and to welcome @stevenspohn.bsky.social as our Director. Although we're starting with spinal cord injury, we are hoping that this is an idea that will rapidly 1/
reports.mountsinai.org/article/reha...
reports.mountsinai.org/article/reha...
First-of-Its-Kind Center Aims to Get Patients With Spinal Cord Injuries Back to Life
Offering assistive technology, back to school and work services and workshops, a new center helps people with spinal cord injuries
reports.mountsinai.org
July 24, 2025 at 1:17 PM
We are so excited to get to work with the Nancy Lieberman Back to Life Center at Mount Sinai and to welcome @stevenspohn.bsky.social as our Director. Although we're starting with spinal cord injury, we are hoping that this is an idea that will rapidly 1/
reports.mountsinai.org/article/reha...
reports.mountsinai.org/article/reha...
Ten years in the making: I'm so damn proud of my team and grateful to the Lazarus family for making this a reality. The work we will complete over the next 5 years will bring transformative technologies to the forefront of pediatric rehab. Cannot wait.👏🦾
www.mountsinai.org/about/newsro...
www.mountsinai.org/about/newsro...
Mount Sinai Receives $3 Million Gift to Help Children With Spinal Cord Injuries and Cerebral Palsy Regain Mobility
www.mountsinai.org
July 22, 2025 at 8:42 AM
Ten years in the making: I'm so damn proud of my team and grateful to the Lazarus family for making this a reality. The work we will complete over the next 5 years will bring transformative technologies to the forefront of pediatric rehab. Cannot wait.👏🦾
www.mountsinai.org/about/newsro...
www.mountsinai.org/about/newsro...