Marrok Sedgwick
@ms-pats-anmls.bsky.social
Learning scientist/ethnographic filmmaker. Rather be outside. I will pat any animal that likes pats. Wildlife rehab and HQHVSN volunteer. WFR. Creative writing on the side! Opinions my own.
Reposted by Marrok Sedgwick
I do wonder sometimes how much of the cultural pandering to Silicon Valley techbros, of being framed as lovable quirky nerds who wouldn’t hurt a fly, has allowed them to do some truly heinous shit.
That and capitalism, rampant greed, lack of any regulation, and political pandering, that is
That and capitalism, rampant greed, lack of any regulation, and political pandering, that is
December 13, 2025 at 9:53 PM
I do wonder sometimes how much of the cultural pandering to Silicon Valley techbros, of being framed as lovable quirky nerds who wouldn’t hurt a fly, has allowed them to do some truly heinous shit.
That and capitalism, rampant greed, lack of any regulation, and political pandering, that is
That and capitalism, rampant greed, lack of any regulation, and political pandering, that is
Candy from the farmer’s market is the best candy—it’s fruit leather made from fruit they got from previous farmers markets. It’s also the most expensive candy but it’s worth every penny.
December 14, 2025 at 2:01 AM
Candy from the farmer’s market is the best candy—it’s fruit leather made from fruit they got from previous farmers markets. It’s also the most expensive candy but it’s worth every penny.
Reposted by Marrok Sedgwick
If a holiday tradition makes your autistic child (or self) miserable or unsettled, try to opt out. Please.
I know change can be hard. And it can be especially difficult to let go of how things "should" be. But if taking a picture with Santa or lighting a menorah isn't realistic, that's OK. #autism
I know change can be hard. And it can be especially difficult to let go of how things "should" be. But if taking a picture with Santa or lighting a menorah isn't realistic, that's OK. #autism
December 14, 2025 at 1:11 AM
If a holiday tradition makes your autistic child (or self) miserable or unsettled, try to opt out. Please.
I know change can be hard. And it can be especially difficult to let go of how things "should" be. But if taking a picture with Santa or lighting a menorah isn't realistic, that's OK. #autism
I know change can be hard. And it can be especially difficult to let go of how things "should" be. But if taking a picture with Santa or lighting a menorah isn't realistic, that's OK. #autism
Reposted by Marrok Sedgwick
motorists regard other motorists’ aggressive behavior as obnoxious. as a cyclist i regard it as a direct threat to my life, because all too often it is
December 13, 2025 at 3:36 AM
motorists regard other motorists’ aggressive behavior as obnoxious. as a cyclist i regard it as a direct threat to my life, because all too often it is
Reposted by Marrok Sedgwick
WHO: THERE IS NO EVIDENCE OF A CAUSAL RELATIONSHIP BETWEEN VACCINES AND AUTISM SPECTRUM DISORDER.
December 11, 2025 at 10:29 AM
WHO: THERE IS NO EVIDENCE OF A CAUSAL RELATIONSHIP BETWEEN VACCINES AND AUTISM SPECTRUM DISORDER.
Reposted by Marrok Sedgwick
Please avoid the label #ProfoundAutism, as "There is a clear risk that 'Profound Autism' will lead to clinical and research confusion." Instead, we need to describe autistic people's support needs individually, to ensure they get the right accommodations.
thinkingautismguide.com/2023/09/grav...
thinkingautismguide.com/2023/09/grav...
December 8, 2025 at 5:30 PM
Please avoid the label #ProfoundAutism, as "There is a clear risk that 'Profound Autism' will lead to clinical and research confusion." Instead, we need to describe autistic people's support needs individually, to ensure they get the right accommodations.
thinkingautismguide.com/2023/09/grav...
thinkingautismguide.com/2023/09/grav...
Reposted by Marrok Sedgwick
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
The relative contribution of close-proximity contacts, shared classroom exposure and indoor air quality to respiratory virus transmission in schools - Nature Communications
The relative importance of close-proximity interactions, shared space and air quality to the transmission of respiratory viruses is not well understood. Here, the authors investigate this question by ...
www.nature.com
December 8, 2025 at 4:23 AM
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
Reposted by Marrok Sedgwick
What I always hear: “We can’t afford to pay our workers more than $15 an hour.”
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
December 7, 2025 at 10:01 PM
What I always hear: “We can’t afford to pay our workers more than $15 an hour.”
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
Reposted by Marrok Sedgwick
Our Board Member Toby Latham successfully advocated with the Virginia legislature to require educators to be trained to support each individual student’s unique #AAC-related needs before the school year starts! The VDOE released this 2-pager to explain the new law: lnk.to/vdoe.
[Image: A…
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![[Image: A selfie of Toby Latham, his wife Lindsay, and their young son who is an AAC user. With the U.S. Capitol and clear blue skies in the background, the three of them smile widely.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreid4y4ldsctn2rahbh5gxrza4ydcojiykzt3fvafjri4rdqownxdoi@jpeg)
December 7, 2025 at 11:53 PM
Our Board Member Toby Latham successfully advocated with the Virginia legislature to require educators to be trained to support each individual student’s unique #AAC-related needs before the school year starts! The VDOE released this 2-pager to explain the new law: lnk.to/vdoe.
[Image: A…
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[Image: A…
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Reposted by Marrok Sedgwick
Somebody somewhere
Needs flowers tonight
Needs flowers tonight
November 28, 2025 at 5:28 AM
Somebody somewhere
Needs flowers tonight
Needs flowers tonight
Vaccines do not cause autism.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
November 27, 2025 at 3:56 PM
Vaccines do not cause autism.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
Finally got to reading my copy of #TheSerpentCalledMercy by @roannelau.bsky.social and OMFG most lovely monsters I’ve read/seen in a long time.
November 27, 2025 at 5:04 AM
Finally got to reading my copy of #TheSerpentCalledMercy by @roannelau.bsky.social and OMFG most lovely monsters I’ve read/seen in a long time.
Reposted by Marrok Sedgwick
Though the CDC website now states: “‘vaccines do not cause autism. This is not an evidence-based claim,” This is false. Nearly 3 decades of scientific research has repeatedly confirmed there is no causal link between vaccines & autism.” By @autisticadvocacy.org:
autisticadvocacy.org/2025/11/lead...
autisticadvocacy.org/2025/11/lead...
Leading Autism and Disability Organizations Statement on CDC's Vaccines and Autism Page
As national organizations dedicated to advancing the well-being of autistic individuals and partners across the disability and public health sectors, we are deeply disappointed by the latest update to...
autisticadvocacy.org
November 26, 2025 at 4:06 AM
Though the CDC website now states: “‘vaccines do not cause autism. This is not an evidence-based claim,” This is false. Nearly 3 decades of scientific research has repeatedly confirmed there is no causal link between vaccines & autism.” By @autisticadvocacy.org:
autisticadvocacy.org/2025/11/lead...
autisticadvocacy.org/2025/11/lead...
Reposted by Marrok Sedgwick
Remember: "Don't let the bastards grind you down!"
November 15, 2025 at 9:25 AM
Remember: "Don't let the bastards grind you down!"
Reposted by Marrok Sedgwick
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:57 AM
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Reposted by Marrok Sedgwick
Welcome our new Director of Policy & Legal Advocacy, Sam Crane! Sam is a Harvard-trained lawyer with particular legal & policy experience in #CommunicationRights, long-term supports & services, & supported decision-making as an alternative to guardianship. lnk.to/crane
@samanticka.bsky.social
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@samanticka.bsky.social
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![[Image: A fair-skinned person with light brown, shoulder-length hair, and dark brown eyes sits looking at the camera with a slight smile. She is wearing glasses and a knitted shawl fastened by a clasp.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreiar35nve7emy5dc3rgqio67t4g5enf25kjib7mazr77yla7i2zefe@jpeg)
November 14, 2025 at 8:10 PM
Welcome our new Director of Policy & Legal Advocacy, Sam Crane! Sam is a Harvard-trained lawyer with particular legal & policy experience in #CommunicationRights, long-term supports & services, & supported decision-making as an alternative to guardianship. lnk.to/crane
@samanticka.bsky.social
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@samanticka.bsky.social
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Reposted by Marrok Sedgwick
me: *taps the sign*
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
November 14, 2025 at 12:51 AM
me: *taps the sign*
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
Reposted by Marrok Sedgwick
Alright, look, ideally Guillermo del Toro will make another aquatic monster romance. Personally, I feel we're overdue for one of those, but if he must remake classics, can we get that guy on Beauty and the Beast? I bet he could give us the ending we all deserve for that one.
November 9, 2025 at 10:04 PM
Alright, look, ideally Guillermo del Toro will make another aquatic monster romance. Personally, I feel we're overdue for one of those, but if he must remake classics, can we get that guy on Beauty and the Beast? I bet he could give us the ending we all deserve for that one.
Reposted by Marrok Sedgwick
So it turns out... the US air travel system was incredibly, deeply dependent on federal funding to just run day-to-day all this time, to the benefit of private airline shareholders, when everyone thinks that state-run trains are leeching off the government. Weird!
November 9, 2025 at 12:10 AM
So it turns out... the US air travel system was incredibly, deeply dependent on federal funding to just run day-to-day all this time, to the benefit of private airline shareholders, when everyone thinks that state-run trains are leeching off the government. Weird!
Started my day off with a kayak rescue/self rescue lesson and ended it with an afternoon volunteering at the weekend spay and neuter clinic and it was a great day. Thinking back at the many years I spent working 6-7 days a week to be a student/grad student like eww why lol
November 9, 2025 at 2:58 AM
Started my day off with a kayak rescue/self rescue lesson and ended it with an afternoon volunteering at the weekend spay and neuter clinic and it was a great day. Thinking back at the many years I spent working 6-7 days a week to be a student/grad student like eww why lol
Reposted by Marrok Sedgwick
As Americans go hungry, Trump’s out golfing on your dime using your tax dollars. Don’t worry, it’s only about $3–4 million per trip.
November 8, 2025 at 6:02 PM
As Americans go hungry, Trump’s out golfing on your dime using your tax dollars. Don’t worry, it’s only about $3–4 million per trip.
Reposted by Marrok Sedgwick
An “ally” is something you let *other* people label you.
November 6, 2025 at 12:43 AM
An “ally” is something you let *other* people label you.
Still utterly in awe of the killer whales I saw a couple weekends ago.
November 6, 2025 at 5:25 AM
Still utterly in awe of the killer whales I saw a couple weekends ago.
Reposted by Marrok Sedgwick
Our Board Chair Jordyn Zimmerman advocates that people who need & use AAC must be leaders & co-designers of AAC technologies. She writes about this in Impact, a journal from the Institute on Community Integration. She's featured in its 40 Big Ideas issue! lnk.to/bigidea @jordynbzim.bsky.social
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![[Image: A smiling Jordyn Zimmerman takes her place at a conference table. On the table in front of Jordyn is her AAC device, an iPad.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreied7pno5d2hzcinkryphfsfv2k3ujhwkfvyhzwia6gswrh5cnh53m@jpeg)
October 27, 2025 at 10:27 PM
Our Board Chair Jordyn Zimmerman advocates that people who need & use AAC must be leaders & co-designers of AAC technologies. She writes about this in Impact, a journal from the Institute on Community Integration. She's featured in its 40 Big Ideas issue! lnk.to/bigidea @jordynbzim.bsky.social
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Reposted by Marrok Sedgwick
It’s been 100 years since DC’s #ForestHaven institution for people with I/DD opened. Watch our webinar on its closure, featuring two former residents & our own Bob Williams, an advocate for #CommunityLiving & the #Medicaid programs that make it possible. lnk.to/fhyt
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October 31, 2025 at 6:00 PM
It’s been 100 years since DC’s #ForestHaven institution for people with I/DD opened. Watch our webinar on its closure, featuring two former residents & our own Bob Williams, an advocate for #CommunityLiving & the #Medicaid programs that make it possible. lnk.to/fhyt
[Video: Webinar…
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[Video: Webinar…
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