Hochsen
@hochsen.bsky.social
I got a virus, I didn’t die, but I never recovered. That was years ago. I have ME (me/cfs). Miss a lot that I have lost. Profile picture from favourite band: Mono (monoofjapan)
Reposted by Hochsen
Reposted by Hochsen
Reposted by Hochsen
Some in the Swedish medical community insist on using GET/CBT for post-viral illnesses. Do not get fooled by CBT in the name. It is based on the pseudoscience of BPS model, a revival of hysteria.
Some doctors published in The Medical Journal some pseudoscience.
themeinquiryreport.com/2025/09/26/p...
Some doctors published in The Medical Journal some pseudoscience.
themeinquiryreport.com/2025/09/26/p...
Pseudovetenskaplig trend sprids av Läkartidningen
Carl Sjöström, läkaren som intervjuades i Svensk förening för allmänmedicins podd SFAMpen om funktionella symtom, skriver nu i Läkartidningen på samma tema tillsammans med kollegorna Arwa Josefsson…
themeinquiryreport.com
September 26, 2025 at 10:32 AM
Some in the Swedish medical community insist on using GET/CBT for post-viral illnesses. Do not get fooled by CBT in the name. It is based on the pseudoscience of BPS model, a revival of hysteria.
Some doctors published in The Medical Journal some pseudoscience.
themeinquiryreport.com/2025/09/26/p...
Some doctors published in The Medical Journal some pseudoscience.
themeinquiryreport.com/2025/09/26/p...
Reposted by Hochsen
Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device.
#wearlumia #pots #mecfs
#wearlumia #pots #mecfs
February 18, 2025 at 7:21 PM
Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device.
#wearlumia #pots #mecfs
#wearlumia #pots #mecfs
Reposted by Hochsen
We're all just one moment away from a different life. One diagnosis, one crisis, or one accident away from a completely different life. Life doesn’t ask before it changes, so this is just a reminder to not take your health or physical abilities for granted.
August 28, 2025 at 9:06 PM
We're all just one moment away from a different life. One diagnosis, one crisis, or one accident away from a completely different life. Life doesn’t ask before it changes, so this is just a reminder to not take your health or physical abilities for granted.
Reposted by Hochsen
070 - Why ME/CFS "fatigue" is not normal fatigue
YouTube video by Jarred Younger, PhD
youtu.be
August 26, 2025 at 9:04 AM
Reposted by Hochsen
Scientists find link between genes and ME/chronic fatigue syndrome
Scientists find link between genes and ME/chronic fatigue syndrome
Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness
Scientists have found the first robust evidence that people’s genes affect their chances of developing myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious and debilitating illness that has been neglected and dismissed for decades by many in the medical community.
Early findings from the world’s largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. Continue reading...
www.theguardian.com
August 6, 2025 at 6:15 PM
Scientists find link between genes and ME/chronic fatigue syndrome
Reposted by Hochsen
Have been losing my mind all morning at this absolutely bowel-crushing Franco-Ethiopian jazz-funk cover of War Pigs. Holy shit. www.youtube.com/watch?v=8kVY...
uKanDanZ - WAR PIGS (Official Music Video)
YouTube video by ukandanz
www.youtube.com
July 2, 2025 at 1:43 PM
Have been losing my mind all morning at this absolutely bowel-crushing Franco-Ethiopian jazz-funk cover of War Pigs. Holy shit. www.youtube.com/watch?v=8kVY...
Önskar Försäkringskassan kunde respektera att det är min fru som ska kontaktas (registrerat hos dem) då jag i min ME-sjukdom ej klarar kognitivt att hantera den typen av samtal. Men nej - de ringde mig med en massa svåra frågor.
Känner mig anklagad, misslyckad o rädd. Gråter o skakar.
Känner mig anklagad, misslyckad o rädd. Gråter o skakar.
June 18, 2025 at 12:01 PM
Önskar Försäkringskassan kunde respektera att det är min fru som ska kontaktas (registrerat hos dem) då jag i min ME-sjukdom ej klarar kognitivt att hantera den typen av samtal. Men nej - de ringde mig med en massa svåra frågor.
Känner mig anklagad, misslyckad o rädd. Gråter o skakar.
Känner mig anklagad, misslyckad o rädd. Gråter o skakar.
Reposted by Hochsen
Reposted by Hochsen
Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot
May 12, 2025 at 8:34 AM
Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot
Reposted by Hochsen
Oops.
Turns out that bullshit may work on people, but it doesn't work on reality. Decades of bullshit doesn't work any better either.
The belief that rehabilitation must work here has been just that: a belief. A blatant, fraudulent lie.
It never worked. They knew that. They didn't care.
Turns out that bullshit may work on people, but it doesn't work on reality. Decades of bullshit doesn't work any better either.
The belief that rehabilitation must work here has been just that: a belief. A blatant, fraudulent lie.
It never worked. They knew that. They didn't care.
🧵
"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."
www.sciencenorway.no/chronic-fati...
#MEcfs #CFS #PwME
1/
"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."
www.sciencenorway.no/chronic-fati...
#MEcfs #CFS #PwME
1/
March 21, 2025 at 4:02 PM
Oops.
Turns out that bullshit may work on people, but it doesn't work on reality. Decades of bullshit doesn't work any better either.
The belief that rehabilitation must work here has been just that: a belief. A blatant, fraudulent lie.
It never worked. They knew that. They didn't care.
Turns out that bullshit may work on people, but it doesn't work on reality. Decades of bullshit doesn't work any better either.
The belief that rehabilitation must work here has been just that: a belief. A blatant, fraudulent lie.
It never worked. They knew that. They didn't care.
Reposted by Hochsen
Das beste Bild des Tages. #NieWieder ❗️
January 25, 2025 at 4:56 PM
Das beste Bild des Tages. #NieWieder ❗️
Reposted by Hochsen
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot
Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot
www.theguardian.com
October 18, 2024 at 6:39 AM
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...
Reposted by Hochsen
Reposted by Hochsen
It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
October 18, 2023 at 11:14 AM
It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid