grumpyhobbit
@grumpyhobbit.bsky.social
I have a main account, @lattesdotter.bsky.social, but I wanted a separate account to talk about chronic illness and chronic fatigue. I have been suffering Chronic Fatigue for over 10 years and have gotten a lot of support from online communities.
Reposted by grumpyhobbit
It's eye-rolling, at a minimum, to watch what the US administration will do because it persists in the daft belief that disabled people, their families, friends, coworkers and other allies don't vote. The midterms will be interesting.
#disability #labor #fascism
#disability #labor #fascism
Attempts to abolish telework at #CDC face legal challenge, violating laws against reasonable accommodations for disabled employees.
rollcall.com/2025/12/10/l...
rollcall.com/2025/12/10/l...
Lawyers say new CDC policy may violate federal disability law - Roll Call
HHS policy would strip CDC supervisors of the ability to approve telework reasonable accommodation requests.
rollcall.com
December 12, 2025 at 9:23 PM
It's eye-rolling, at a minimum, to watch what the US administration will do because it persists in the daft belief that disabled people, their families, friends, coworkers and other allies don't vote. The midterms will be interesting.
#disability #labor #fascism
#disability #labor #fascism
Reposted by grumpyhobbit
My specialist's clinic is in the news. It has definitely improved my quality of life and helped prevent further decline. And it's cost-effective.
With their patient load skyrocketing due to COVID, cutting patient access to services now is insane.
#MECFS #longCOVID #chronicillness #healthcare #BC
With their patient load skyrocketing due to COVID, cutting patient access to services now is insane.
#MECFS #longCOVID #chronicillness #healthcare #BC
CTV News: “Patient anxiety grows as B.C. health minister plans changes to virtual group treatment”
‘The B.C. Centre for Long Covid, ME/CFS and Fibromyalgia has a hybrid model with one-on-one appointments and virtual group courses for patients..’
www.ctvnews.ca/vancouver/ar...
‘The B.C. Centre for Long Covid, ME/CFS and Fibromyalgia has a hybrid model with one-on-one appointments and virtual group courses for patients..’
www.ctvnews.ca/vancouver/ar...
Patient anxiety grows as B.C. health minister plans changes to virtual group treatment
As ministries across the provincial government scrutinize spending in an effort to curb the anticipated deficit, a move to shrink virtual group health care is prompting providers and patients alike to...
www.ctvnews.ca
December 12, 2025 at 9:38 PM
My specialist's clinic is in the news. It has definitely improved my quality of life and helped prevent further decline. And it's cost-effective.
With their patient load skyrocketing due to COVID, cutting patient access to services now is insane.
#MECFS #longCOVID #chronicillness #healthcare #BC
With their patient load skyrocketing due to COVID, cutting patient access to services now is insane.
#MECFS #longCOVID #chronicillness #healthcare #BC
Reposted by grumpyhobbit
I know who I'd nominate for the next Darwin awards.
Ignoring the ongoing deaths and disabling of millions of people due to #COVID, while catastrophizing over the rare, adverse effects of vaccines. Welcome to the mediocracy.
#vaccines #healthcare #pseudoscience
Ignoring the ongoing deaths and disabling of millions of people due to #COVID, while catastrophizing over the rare, adverse effects of vaccines. Welcome to the mediocracy.
#vaccines #healthcare #pseudoscience
There are reports that the FDA intends to put a “black box” warning on COVID-19 vaccines.
This is not in line with the science, which shows that COVID-19 are safe and have saved millions of lives.
This would be a serious abuse of power by FDA officials to further antivax political goals.
This is not in line with the science, which shows that COVID-19 are safe and have saved millions of lives.
This would be a serious abuse of power by FDA officials to further antivax political goals.
December 12, 2025 at 9:53 PM
I know who I'd nominate for the next Darwin awards.
Ignoring the ongoing deaths and disabling of millions of people due to #COVID, while catastrophizing over the rare, adverse effects of vaccines. Welcome to the mediocracy.
#vaccines #healthcare #pseudoscience
Ignoring the ongoing deaths and disabling of millions of people due to #COVID, while catastrophizing over the rare, adverse effects of vaccines. Welcome to the mediocracy.
#vaccines #healthcare #pseudoscience
Reposted by grumpyhobbit
Sadly, ME and Long Covid have taken another bright light.
Megan was creative, spunky, intelligent, kind, and beautiful. In the end, she was barely able to exist because of severe ME and Long Covid.
Please don’t let anyone convince you that viruses are harmless
#RIPMegan🕊️
Megan was creative, spunky, intelligent, kind, and beautiful. In the end, she was barely able to exist because of severe ME and Long Covid.
Please don’t let anyone convince you that viruses are harmless
#RIPMegan🕊️
December 12, 2025 at 10:00 PM
Reposted by grumpyhobbit
Important share right here from #MEAction: a list of crisis resources. www.meaction.net/crisis-resou...
#MECFS #disability #chronicillness #MillionsMissing
#MECFS #disability #chronicillness #MillionsMissing
Reminder that #MEAction has crisis resources here: www.meaction.net/crisis-resou...
This is not meant to substitute for an ethical healthcare system but just as a reminder that we keep this list up to date for whoever, whenever they may want or need it.
This is not meant to substitute for an ethical healthcare system but just as a reminder that we keep this list up to date for whoever, whenever they may want or need it.
CRISIS RESOURCES | #MEAction
Living with ME can be extremely difficult. #MEAction strives to create spaces of support.
www.meaction.net
December 14, 2025 at 6:47 PM
Important share right here from #MEAction: a list of crisis resources. www.meaction.net/crisis-resou...
#MECFS #disability #chronicillness #MillionsMissing
#MECFS #disability #chronicillness #MillionsMissing
Reposted by grumpyhobbit
Unfortunately I was too ill to get stocked up as much as I wanted so Xmas orders were limited, but I'm doing what I can - I often get some late/post-Xmas folks so keeping fingers crossed.
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
International: Xmas shipping deadline has passed, but I will do everything I can to get your orders out ASAP. (Select Gift at checkout and you can get a gift receipt with picture to print.)
UK: Get your orders in by Thurs 18th (to ship Fri).
oishiny.etsy.com
#Handmade #ShopIndie #DisabledArtist
UK: Get your orders in by Thurs 18th (to ship Fri).
oishiny.etsy.com
#Handmade #ShopIndie #DisabledArtist
December 14, 2025 at 1:47 AM
Unfortunately I was too ill to get stocked up as much as I wanted so Xmas orders were limited, but I'm doing what I can - I often get some late/post-Xmas folks so keeping fingers crossed.
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
Reposted by grumpyhobbit
“We’re trying”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
December 14, 2025 at 3:57 AM
“We’re trying”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
Reposted by grumpyhobbit
Amazon PSA: Zon is now feeding Kindle ebooks into to a gen ai chatbot without author's consent.
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Kindle's New Gen AI-Powered "Ask This Book" Feature Raises Rights Concerns - Writer Beware
In a recent press release, Amazon noted that some new features were coming to Kindle. We’re adding new AI-powered reading features that preserve the magic of reading on Kindle. Story So Far lets you c...
writerbeware.blog
December 14, 2025 at 3:30 AM
Amazon PSA: Zon is now feeding Kindle ebooks into to a gen ai chatbot without author's consent.
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Reposted by grumpyhobbit
Love that the disabled kid also said "you know, instead of banning by age they could try banning by behavior, which they never seem to do"
December 13, 2025 at 4:52 PM
Love that the disabled kid also said "you know, instead of banning by age they could try banning by behavior, which they never seem to do"
Reposted by grumpyhobbit
Very telling that the Guardian Weekly article showing teenagers' reactions to Australia's social media ban have a bunch of healthy kids saying "Annoying but no biggie, I can wait two years" and one very disabled one saying "welp there goes my entire world."
December 13, 2025 at 4:50 PM
Very telling that the Guardian Weekly article showing teenagers' reactions to Australia's social media ban have a bunch of healthy kids saying "Annoying but no biggie, I can wait two years" and one very disabled one saying "welp there goes my entire world."
Reposted by grumpyhobbit
The RFK, jr effect.
December 13, 2025 at 9:40 PM
The RFK, jr effect.
Today was a good day. I made it to the copy center to make copies of the info handouts about #ME/CFS. I also made it to a social event and then walked for a short ways along a street I really like - it had lots of great little stores and I did some window shopping. Stopped in a wonderful coffeeshop.
December 14, 2025 at 4:11 AM
Today was a good day. I made it to the copy center to make copies of the info handouts about #ME/CFS. I also made it to a social event and then walked for a short ways along a street I really like - it had lots of great little stores and I did some window shopping. Stopped in a wonderful coffeeshop.
I need to organize my past medical tests again - I made copies and have them in a folder, but someone here online mentioned having a three ring binder with their records and notes. I think that would be great. I coukd organize medical tests and #CFS info by section, and keep adding to the binder.
December 14, 2025 at 4:07 AM
I need to organize my past medical tests again - I made copies and have them in a folder, but someone here online mentioned having a three ring binder with their records and notes. I think that would be great. I coukd organize medical tests and #CFS info by section, and keep adding to the binder.
I hope that having summary handouts will help educate people who are supposed to be helping me. Also, as I look for a psychiatrist, therapist and primary care doctor in Madison, I want to have something to give them. At the very least, I can make a note that I gave them information. #NEISvoid #CFS.
December 14, 2025 at 4:05 AM
About a year ago, I had a cleaner every two weeks and someone helping with laundry and driving me places. I would explain CFS to them, and they would say that they understood, but it was pretty clear that they really had no idea how bad CFS could be. It was annoying and hurtful. #CFS #NEISvoid.
December 14, 2025 at 4:02 AM
I made photocopies of short two page explainers about ME/CFS. These are handouts that I found at Whitney Dafoe's website. I am trying to get back into a regular schedule with someone to clean my apt, and someone to help me with errands and doctor's appointments.
December 14, 2025 at 3:58 AM
I made photocopies of short two page explainers about ME/CFS. These are handouts that I found at Whitney Dafoe's website. I am trying to get back into a regular schedule with someone to clean my apt, and someone to help me with errands and doctor's appointments.
Reposted by grumpyhobbit
Stratification is a fancy way of saying that participants in a research study are divided into subgroups, or stratified, based on specific characteristics (like sex or age). It helps researchers determine how those characteristics influence the results.
Learn more👉 www.omf.ngo/what-is-stra...
Learn more👉 www.omf.ngo/what-is-stra...
December 10, 2025 at 3:58 PM
Stratification is a fancy way of saying that participants in a research study are divided into subgroups, or stratified, based on specific characteristics (like sex or age). It helps researchers determine how those characteristics influence the results.
Learn more👉 www.omf.ngo/what-is-stra...
Learn more👉 www.omf.ngo/what-is-stra...
Reposted by grumpyhobbit
Reposted by grumpyhobbit
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
November 18, 2025 at 5:32 PM
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Reposted by grumpyhobbit
December 7, 2025 at 10:14 PM
Reposted by grumpyhobbit
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
December 12, 2025 at 1:49 PM
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
Reposted by grumpyhobbit
just the slightest whiff of pink sunrise to greet my insomnia this morning.
#birds #CouchBirding #corvids
#birds #CouchBirding #corvids
December 9, 2025 at 2:30 PM
just the slightest whiff of pink sunrise to greet my insomnia this morning.
#birds #CouchBirding #corvids
#birds #CouchBirding #corvids
Reposted by grumpyhobbit
Homeland Security after going back 5 years on my social media
December 14, 2025 at 1:30 AM
Homeland Security after going back 5 years on my social media