grumpyhobbit
@grumpyhobbit.bsky.social
I have a main account, @lattesdotter.bsky.social, but I wanted a separate account to talk about chronic illness and chronic fatigue. I have been suffering Chronic Fatigue for over 10 years and have gotten a lot of support from online communities.
Reposted by grumpyhobbit
Unfortunately I was too ill to get stocked up as much as I wanted so Xmas orders were limited, but I'm doing what I can - I often get some late/post-Xmas folks so keeping fingers crossed.
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
International: Xmas shipping deadline has passed, but I will do everything I can to get your orders out ASAP. (Select Gift at checkout and you can get a gift receipt with picture to print.)
UK: Get your orders in by Thurs 18th (to ship Fri).
oishiny.etsy.com
#Handmade #ShopIndie #DisabledArtist
UK: Get your orders in by Thurs 18th (to ship Fri).
oishiny.etsy.com
#Handmade #ShopIndie #DisabledArtist
December 14, 2025 at 1:47 AM
Unfortunately I was too ill to get stocked up as much as I wanted so Xmas orders were limited, but I'm doing what I can - I often get some late/post-Xmas folks so keeping fingers crossed.
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
Need to cover last of rent, and restock of shipping supplies.
#Helpsky #DisabledArtist
Reposted by grumpyhobbit
“We’re trying”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
December 14, 2025 at 3:57 AM
“We’re trying”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
“Are kids still getting shot?”
“Yes”
“Then we ain’t trying hard enough”
Reposted by grumpyhobbit
Amazon PSA: Zon is now feeding Kindle ebooks into to a gen ai chatbot without author's consent.
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Kindle's New Gen AI-Powered "Ask This Book" Feature Raises Rights Concerns - Writer Beware
In a recent press release, Amazon noted that some new features were coming to Kindle. We’re adding new AI-powered reading features that preserve the magic of reading on Kindle. Story So Far lets you c...
writerbeware.blog
December 14, 2025 at 3:30 AM
Amazon PSA: Zon is now feeding Kindle ebooks into to a gen ai chatbot without author's consent.
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Indie authors; the only way to opt out at this time is pulling your books from Zon
If you missed it, the Recap feature also involves feeding your book to gen ai: www.aboutamazon.com/news/books-a...
Reposted by grumpyhobbit
Love that the disabled kid also said "you know, instead of banning by age they could try banning by behavior, which they never seem to do"
December 13, 2025 at 4:52 PM
Love that the disabled kid also said "you know, instead of banning by age they could try banning by behavior, which they never seem to do"
Reposted by grumpyhobbit
Very telling that the Guardian Weekly article showing teenagers' reactions to Australia's social media ban have a bunch of healthy kids saying "Annoying but no biggie, I can wait two years" and one very disabled one saying "welp there goes my entire world."
December 13, 2025 at 4:50 PM
Very telling that the Guardian Weekly article showing teenagers' reactions to Australia's social media ban have a bunch of healthy kids saying "Annoying but no biggie, I can wait two years" and one very disabled one saying "welp there goes my entire world."
Reposted by grumpyhobbit
The RFK, jr effect.
December 13, 2025 at 9:40 PM
The RFK, jr effect.
Today was a good day. I made it to the copy center to make copies of the info handouts about #ME/CFS. I also made it to a social event and then walked for a short ways along a street I really like - it had lots of great little stores and I did some window shopping. Stopped in a wonderful coffeeshop.
December 14, 2025 at 4:11 AM
Today was a good day. I made it to the copy center to make copies of the info handouts about #ME/CFS. I also made it to a social event and then walked for a short ways along a street I really like - it had lots of great little stores and I did some window shopping. Stopped in a wonderful coffeeshop.
I need to organize my past medical tests again - I made copies and have them in a folder, but someone here online mentioned having a three ring binder with their records and notes. I think that would be great. I coukd organize medical tests and #CFS info by section, and keep adding to the binder.
December 14, 2025 at 4:07 AM
I need to organize my past medical tests again - I made copies and have them in a folder, but someone here online mentioned having a three ring binder with their records and notes. I think that would be great. I coukd organize medical tests and #CFS info by section, and keep adding to the binder.
I hope that having summary handouts will help educate people who are supposed to be helping me. Also, as I look for a psychiatrist, therapist and primary care doctor in Madison, I want to have something to give them. At the very least, I can make a note that I gave them information. #NEISvoid #CFS.
December 14, 2025 at 4:05 AM
About a year ago, I had a cleaner every two weeks and someone helping with laundry and driving me places. I would explain CFS to them, and they would say that they understood, but it was pretty clear that they really had no idea how bad CFS could be. It was annoying and hurtful. #CFS #NEISvoid.
December 14, 2025 at 4:02 AM
I made photocopies of short two page explainers about ME/CFS. These are handouts that I found at Whitney Dafoe's website. I am trying to get back into a regular schedule with someone to clean my apt, and someone to help me with errands and doctor's appointments.
December 14, 2025 at 3:58 AM
I made photocopies of short two page explainers about ME/CFS. These are handouts that I found at Whitney Dafoe's website. I am trying to get back into a regular schedule with someone to clean my apt, and someone to help me with errands and doctor's appointments.
Reposted by grumpyhobbit
Stratification is a fancy way of saying that participants in a research study are divided into subgroups, or stratified, based on specific characteristics (like sex or age). It helps researchers determine how those characteristics influence the results.
Learn more👉 www.omf.ngo/what-is-stra...
Learn more👉 www.omf.ngo/what-is-stra...
December 10, 2025 at 3:58 PM
Stratification is a fancy way of saying that participants in a research study are divided into subgroups, or stratified, based on specific characteristics (like sex or age). It helps researchers determine how those characteristics influence the results.
Learn more👉 www.omf.ngo/what-is-stra...
Learn more👉 www.omf.ngo/what-is-stra...
Reposted by grumpyhobbit
Reposted by grumpyhobbit
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
November 18, 2025 at 5:32 PM
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Reposted by grumpyhobbit
December 7, 2025 at 10:14 PM
Reposted by grumpyhobbit
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
December 12, 2025 at 1:49 PM
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
Reposted by grumpyhobbit
just the slightest whiff of pink sunrise to greet my insomnia this morning.
#birds #CouchBirding #corvids
#birds #CouchBirding #corvids
December 9, 2025 at 2:30 PM
just the slightest whiff of pink sunrise to greet my insomnia this morning.
#birds #CouchBirding #corvids
#birds #CouchBirding #corvids
Reposted by grumpyhobbit
Homeland Security after going back 5 years on my social media
December 14, 2025 at 1:30 AM
Homeland Security after going back 5 years on my social media
Reposted by grumpyhobbit
This is why I read comments on animal posts. There are more animal pics. Like this gem I missed a month ago. This cat understands. He's seen things.
December 11, 2025 at 4:03 AM
This is why I read comments on animal posts. There are more animal pics. Like this gem I missed a month ago. This cat understands. He's seen things.
Reposted by grumpyhobbit
Tell me about some kindness you've seen or experienced in the world recently?
December 11, 2025 at 6:52 AM
Tell me about some kindness you've seen or experienced in the world recently?
Reposted by grumpyhobbit
Hear me out. An advent calendar, but it's cats. Open your door each day and let a new cat in.
December 12, 2025 at 11:10 PM
Hear me out. An advent calendar, but it's cats. Open your door each day and let a new cat in.
Reposted by grumpyhobbit
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
December 12, 2025 at 5:31 PM
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Reposted by grumpyhobbit
Posting more animals lately because a lot of us need a tiny bit of something nice right now.
Sending love to anyone having a hard time. You aren't alone. 🫂
Sending love to anyone having a hard time. You aren't alone. 🫂
December 13, 2025 at 6:05 AM
Posting more animals lately because a lot of us need a tiny bit of something nice right now.
Sending love to anyone having a hard time. You aren't alone. 🫂
Sending love to anyone having a hard time. You aren't alone. 🫂