bexlogan.bsky.social
@bexlogan.bsky.social
Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Pinned
Two Lives, One Story
YouTube video by Hope4MEFibroNI
youtu.be
Please watch & share to raise awareness on the similarities between Long Covid & ME & how history has repeated itself in how we are treated.
youtu.be/A2CEg2PaB6A?...
youtu.be/A2CEg2PaB6A?...
Thank you for sharing 🙏🏼
1/4 Hope 4 ME Fibro, NI: Shaping the Future for M.E. & Long Covid: Collaboration for Change
Information on UK expert speakers:
-Professor Chris Ponting – Professor of Medical Bioinformatics, University of Edinburgh; Principal Investigator of DecodeME (genetics of M.E.)
Information on UK expert speakers:
-Professor Chris Ponting – Professor of Medical Bioinformatics, University of Edinburgh; Principal Investigator of DecodeME (genetics of M.E.)
February 6, 2026 at 2:08 PM
Thank you for sharing 🙏🏼
Please complete if you've tried HBOT & have ME or Long Covid. It's a straightforward survey & doesn't take long to complete...max 15 mins.
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
02 Chamber survey | Physiosforme
www.physiosforme.com
February 6, 2026 at 2:06 PM
Please complete if you've tried HBOT & have ME or Long Covid. It's a straightforward survey & doesn't take long to complete...max 15 mins.
Reposted by bexlogan.bsky.social
Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation.
The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
February 5, 2026 at 5:37 PM
Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation.
The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
After decades of medical neglect, poor service provision & appropriate care for #ME sufferers this event run by a NI all pt & volunteer led charity is going to be incredible. Amazing lineup of speakers. Book your space today ⬇️ #LongCovid #advocacy
www.eventbrite.co.uk/e/shaping-th...
www.eventbrite.co.uk/e/shaping-th...
Shaping The Future for M.E. & Long Covid - Collaboration for Change
A unique opportunity to hear from the real experts with evidence, education and practical strategies for better care and policy.
www.eventbrite.co.uk
February 6, 2026 at 12:53 PM
After decades of medical neglect, poor service provision & appropriate care for #ME sufferers this event run by a NI all pt & volunteer led charity is going to be incredible. Amazing lineup of speakers. Book your space today ⬇️ #LongCovid #advocacy
www.eventbrite.co.uk/e/shaping-th...
www.eventbrite.co.uk/e/shaping-th...
“Is it any wonder that people in this room, people who are watching at home get so angry with GPs who dismiss it, with people who say it's psychiatric… they don’t want to be ill” Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s.
January 30, 2026 at 10:53 AM
Reposted by bexlogan.bsky.social
1) Peter Novak's dysautonomia clinic in Boston reports that ME/CFS and Long Covid patients have increased rates of:
- reduced cerebral blood flow (ca 90%)
- small fiber neuropathy (ca 50%)
- postural tachycardia (ca 20%) and hypotension (ca 15%)
- preload failure (ca 90%)
- reduced cerebral blood flow (ca 90%)
- small fiber neuropathy (ca 50%)
- postural tachycardia (ca 20%) and hypotension (ca 15%)
- preload failure (ca 90%)
January 30, 2026 at 8:43 AM
1) Peter Novak's dysautonomia clinic in Boston reports that ME/CFS and Long Covid patients have increased rates of:
- reduced cerebral blood flow (ca 90%)
- small fiber neuropathy (ca 50%)
- postural tachycardia (ca 20%) and hypotension (ca 15%)
- preload failure (ca 90%)
- reduced cerebral blood flow (ca 90%)
- small fiber neuropathy (ca 50%)
- postural tachycardia (ca 20%) and hypotension (ca 15%)
- preload failure (ca 90%)
Reposted by bexlogan.bsky.social
“More than 15,000 long COVID patients in the Netherlands declared disabled” nltimes.nl/2026/01/29/150…
January 30, 2026 at 7:35 AM
“More than 15,000 long COVID patients in the Netherlands declared disabled” nltimes.nl/2026/01/29/150…
Reposted by bexlogan.bsky.social
Thanks very much to Jethren Barr for sharing his story in this in-depth article about how Myalgic Encephalomyelitis forced him to retire from his professional football career 👍
www.belfasttelegraph.co.uk/sport/footba...
Archive:
archive.is/wu7ZP
#MEcfs #MyalgicEncephalomyelitis #CFS #PwME
www.belfasttelegraph.co.uk/sport/footba...
Archive:
archive.is/wu7ZP
#MEcfs #MyalgicEncephalomyelitis #CFS #PwME
January 24, 2026 at 7:09 PM
Thanks very much to Jethren Barr for sharing his story in this in-depth article about how Myalgic Encephalomyelitis forced him to retire from his professional football career 👍
www.belfasttelegraph.co.uk/sport/footba...
Archive:
archive.is/wu7ZP
#MEcfs #MyalgicEncephalomyelitis #CFS #PwME
www.belfasttelegraph.co.uk/sport/footba...
Archive:
archive.is/wu7ZP
#MEcfs #MyalgicEncephalomyelitis #CFS #PwME
Reposted by bexlogan.bsky.social
TW: Medical neglect, severe ME/CFS
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
https://www.thecanary.co/uk/analysis/2026/01/22/severe-me-savannah/
January 23, 2026 at 12:37 PM
TW: Medical neglect, severe ME/CFS
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
Reposted by bexlogan.bsky.social
www.thereforme.uk/p/too-ill-to...
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
Too ill to treat?
A former nurse shares her experiences campaigning for better care in Northern Ireland
www.thereforme.uk
January 22, 2026 at 2:49 PM
www.thereforme.uk/p/too-ill-to...
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
Reposted by bexlogan.bsky.social
🚨 One week left to contribute to ME research and fill in our 2025/26 Big Survey!
If you've got ME or ME-like symptoms as part of long Covid, we want to hear from you 🙏
🔗 Take part, and find out more: www.actionforme.org.uk/research-cam...
Thank you!
If you've got ME or ME-like symptoms as part of long Covid, we want to hear from you 🙏
🔗 Take part, and find out more: www.actionforme.org.uk/research-cam...
Thank you!
January 20, 2026 at 3:49 PM
🚨 One week left to contribute to ME research and fill in our 2025/26 Big Survey!
If you've got ME or ME-like symptoms as part of long Covid, we want to hear from you 🙏
🔗 Take part, and find out more: www.actionforme.org.uk/research-cam...
Thank you!
If you've got ME or ME-like symptoms as part of long Covid, we want to hear from you 🙏
🔗 Take part, and find out more: www.actionforme.org.uk/research-cam...
Thank you!
Reposted by bexlogan.bsky.social
Our Digivan has started its journey!
First stop Department of Work and Pensions!
It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃
Full route in photo attached.
First stop Department of Work and Pensions!
It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃
Full route in photo attached.
March 18, 2025 at 10:39 AM
Our Digivan has started its journey!
First stop Department of Work and Pensions!
It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃
Full route in photo attached.
First stop Department of Work and Pensions!
It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃
Full route in photo attached.
Reposted by bexlogan.bsky.social
We were trending on Twitter/X earlier!
Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
March 18, 2025 at 11:46 PM
We were trending on Twitter/X earlier!
Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
Please watch & share to raise awareness on the similarities between Long Covid & ME & how history has repeated itself in how we are treated.
youtu.be/A2CEg2PaB6A?...
youtu.be/A2CEg2PaB6A?...
Two Lives, One Story
YouTube video by Hope4MEFibroNI
youtu.be
January 22, 2026 at 3:09 PM
Please watch & share to raise awareness on the similarities between Long Covid & ME & how history has repeated itself in how we are treated.
youtu.be/A2CEg2PaB6A?...
youtu.be/A2CEg2PaB6A?...
www.thereforme.uk/p/too-ill-to...
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
Too ill to treat?
A former nurse shares her experiences campaigning for better care in Northern Ireland
www.thereforme.uk
January 22, 2026 at 2:49 PM
www.thereforme.uk/p/too-ill-to...
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social