Cynthia Johnson
@minetodo.bsky.social
Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #MEcfs since 2009
#StandByMEcfs #StillSickStillFighting #MEcfs since 2009
Pinned
Cynthia Johnson
@minetodo.bsky.social
· Jan 6
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
gofund.me
Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Reposted by Cynthia Johnson
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
October 13, 2025 at 10:51 PM
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Reposted by Cynthia Johnson
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.
We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
What's New in ME/CFS? Interview with Dr. Chris Ponting
YouTube video by SolveME
youtu.be
December 3, 2025 at 8:16 PM
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.
We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
Reposted by Cynthia Johnson
Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
gofund.me
January 6, 2025 at 10:17 PM
Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Reposted by Cynthia Johnson
WAR IS OVER! - Inspired by the Music of John & Yoko
Watch the trailer & set a reminder: youtu.be/W68-XaFepOg
The Academy-Award winning animated short Premieres on the John Lennon YouTube channel tomorrow Dec 1st, 6pm UK / 1pm NY / 10am LA. Join us & help raise donations for War Child UK. #warisover
Watch the trailer & set a reminder: youtu.be/W68-XaFepOg
The Academy-Award winning animated short Premieres on the John Lennon YouTube channel tomorrow Dec 1st, 6pm UK / 1pm NY / 10am LA. Join us & help raise donations for War Child UK. #warisover
Film: WAR IS OVER! Inspired by the Music of John & Yoko - Premieres Dec 1 on YouTube.
YouTube video by johnlennon
youtu.be
November 30, 2025 at 12:35 PM
WAR IS OVER! - Inspired by the Music of John & Yoko
Watch the trailer & set a reminder: youtu.be/W68-XaFepOg
The Academy-Award winning animated short Premieres on the John Lennon YouTube channel tomorrow Dec 1st, 6pm UK / 1pm NY / 10am LA. Join us & help raise donations for War Child UK. #warisover
Watch the trailer & set a reminder: youtu.be/W68-XaFepOg
The Academy-Award winning animated short Premieres on the John Lennon YouTube channel tomorrow Dec 1st, 6pm UK / 1pm NY / 10am LA. Join us & help raise donations for War Child UK. #warisover
Reposted by Cynthia Johnson
Donate $175+ to Bateman Horne Center and we'll send a Clinical Care Guide directly to a provider of your choice (U.S. only). bit.ly/3KfdDvj
December 2, 2025 at 9:53 PM
Donate $175+ to Bateman Horne Center and we'll send a Clinical Care Guide directly to a provider of your choice (U.S. only). bit.ly/3KfdDvj
Reposted by Cynthia Johnson
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
December 2, 2025 at 3:39 PM
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
Reposted by Cynthia Johnson
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
December 2, 2025 at 1:33 PM
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
Reposted by Cynthia Johnson
It’s Giving Tuesday! We’re raising $500k to launch BHC’s Access to Care framework, bringing informed, compassionate care to patients everywhere.
Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj
#BuildAccessNow
Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj
#BuildAccessNow
December 2, 2025 at 6:04 PM
It’s Giving Tuesday! We’re raising $500k to launch BHC’s Access to Care framework, bringing informed, compassionate care to patients everywhere.
Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj
#BuildAccessNow
Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj
#BuildAccessNow
Reposted by Cynthia Johnson
Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!
ow.ly/cWbq50XAqnk
ow.ly/cWbq50XAqnk
December 2, 2025 at 7:38 PM
Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!
ow.ly/cWbq50XAqnk
ow.ly/cWbq50XAqnk
Reposted by Cynthia Johnson
🦦 This #GivingTuesday, help us bring #seaotters home to #Oregon.
The Elakha Alliance’s work to restore a thriving population of sea otters along the #OregonCoast is only possible because of supporters like you. Thank you for making a positive impact!
💙 Donate: www.elakhaalliance.org/donate/
The Elakha Alliance’s work to restore a thriving population of sea otters along the #OregonCoast is only possible because of supporters like you. Thank you for making a positive impact!
💙 Donate: www.elakhaalliance.org/donate/
December 2, 2025 at 5:28 PM
🦦 This #GivingTuesday, help us bring #seaotters home to #Oregon.
The Elakha Alliance’s work to restore a thriving population of sea otters along the #OregonCoast is only possible because of supporters like you. Thank you for making a positive impact!
💙 Donate: www.elakhaalliance.org/donate/
The Elakha Alliance’s work to restore a thriving population of sea otters along the #OregonCoast is only possible because of supporters like you. Thank you for making a positive impact!
💙 Donate: www.elakhaalliance.org/donate/
Reposted by Cynthia Johnson
I have been in the ME, ME/CFS community a long time. We are a community with big needs but we keep doing our best to show up for another and to grab the attention of the wider world.
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
November 30, 2025 at 4:59 AM
I have been in the ME, ME/CFS community a long time. We are a community with big needs but we keep doing our best to show up for another and to grab the attention of the wider world.
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
Reposted by Cynthia Johnson
Adding another long time member of our community in need. @minetodo.bsky.social
I know we sometimes worry we cannot give me but they appreciate the $5 , the $10 donations too. It all adds up.
www.gofundme.com/f/financial-...
I know we sometimes worry we cannot give me but they appreciate the $5 , the $10 donations too. It all adds up.
www.gofundme.com/f/financial-...
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
www.gofundme.com
November 30, 2025 at 8:43 PM
Adding another long time member of our community in need. @minetodo.bsky.social
I know we sometimes worry we cannot give me but they appreciate the $5 , the $10 donations too. It all adds up.
www.gofundme.com/f/financial-...
I know we sometimes worry we cannot give me but they appreciate the $5 , the $10 donations too. It all adds up.
www.gofundme.com/f/financial-...
Reposted by Cynthia Johnson
Please help us continue this important work, as it’s needed now more than ever.
On this Giving Tuesday, we ask you to give from the heart.🙏
Donate here:
whitefeatherfoundation.com/campaign/gen...
📺: "Takin' a Walk' Podcast (2024)
📷: "Hope, 2014" by Julian Lennon
On this Giving Tuesday, we ask you to give from the heart.🙏
Donate here:
whitefeatherfoundation.com/campaign/gen...
📺: "Takin' a Walk' Podcast (2024)
📷: "Hope, 2014" by Julian Lennon
December 2, 2025 at 12:29 AM
Please help us continue this important work, as it’s needed now more than ever.
On this Giving Tuesday, we ask you to give from the heart.🙏
Donate here:
whitefeatherfoundation.com/campaign/gen...
📺: "Takin' a Walk' Podcast (2024)
📷: "Hope, 2014" by Julian Lennon
On this Giving Tuesday, we ask you to give from the heart.🙏
Donate here:
whitefeatherfoundation.com/campaign/gen...
📺: "Takin' a Walk' Podcast (2024)
📷: "Hope, 2014" by Julian Lennon
Reposted by Cynthia Johnson
Light Up A Lantern!
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
November 25, 2025 at 6:43 PM
Light Up A Lantern!
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
Reposted by Cynthia Johnson
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
November 7, 2025 at 5:00 PM
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Reposted by Cynthia Johnson
1.3 million people became infected with AIDS in 2024—the dire need for awareness education, lifesaving drugs and medical research persists.
💉🙏🏼❤️
💉🙏🏼❤️
December 1, 2025 at 3:46 PM
1.3 million people became infected with AIDS in 2024—the dire need for awareness education, lifesaving drugs and medical research persists.
💉🙏🏼❤️
💉🙏🏼❤️
Reposted by Cynthia Johnson
On World AIDS Day, we remember and honor the lives lost to HIV/AIDS and renew our commitment to ending HIV/AIDS once and for all.
We must work together to end stigma, advance innovative treatments, and find a cure.
#WorldAIDSDay
We must work together to end stigma, advance innovative treatments, and find a cure.
#WorldAIDSDay
December 1, 2025 at 8:17 PM
On World AIDS Day, we remember and honor the lives lost to HIV/AIDS and renew our commitment to ending HIV/AIDS once and for all.
We must work together to end stigma, advance innovative treatments, and find a cure.
#WorldAIDSDay
We must work together to end stigma, advance innovative treatments, and find a cure.
#WorldAIDSDay
Reposted by Cynthia Johnson
Call to action: Congress has extended Telehealth until January 31,2026.
This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent.
Call now using our call script: www.meaction.net/telehealth
#Telehealth #PwME #MECFS #LongCovid
This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent.
Call now using our call script: www.meaction.net/telehealth
#Telehealth #PwME #MECFS #LongCovid
November 19, 2025 at 9:27 PM
Call to action: Congress has extended Telehealth until January 31,2026.
This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent.
Call now using our call script: www.meaction.net/telehealth
#Telehealth #PwME #MECFS #LongCovid
This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent.
Call now using our call script: www.meaction.net/telehealth
#Telehealth #PwME #MECFS #LongCovid
Reposted by Cynthia Johnson
⏳There’s only ONE WEEK LEFT to triple your impact. Every dollar you donate to OMF will be TRIPLED—up to $1 million—through December 2, 2025!
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
November 25, 2025 at 7:19 PM
⏳There’s only ONE WEEK LEFT to triple your impact. Every dollar you donate to OMF will be TRIPLED—up to $1 million—through December 2, 2025!
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
Act now before the match runs out! Donate hope 👉 www.omf.ngo?form=donate-....
Reposted by Cynthia Johnson
🚨 Oregonians: Medicare Open Enrollment runs from October 15 to December 7. During this time, you can compare, drop, or switch plans ahead of 2026.
To learn more, visit www.medicare.gov.
To learn more, visit www.medicare.gov.
Welcome to Medicare
The official U.S. government website for Medicare, a health insurance program for people age 65 or older and younger people with disabilities.
www.medicare.gov
November 23, 2025 at 10:29 PM
🚨 Oregonians: Medicare Open Enrollment runs from October 15 to December 7. During this time, you can compare, drop, or switch plans ahead of 2026.
To learn more, visit www.medicare.gov.
To learn more, visit www.medicare.gov.
Reposted by Cynthia Johnson
To learn more about ME/CFS, check out:
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
May 13, 2025 at 10:44 PM
To learn more about ME/CFS, check out:
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
Reposted by Cynthia Johnson
Stand By ME/CFS!
Please watch my Stand By ME/CFS video. Hear my story.
I suffer from ME/CFS along with millions of others.
We need your voice and support.
Become an ally in 2025!
#StandByMEcfs 2025
#StillSickStillFighting since 2009
#MillionsMissing of all ages
www.youtube.com/watch?v=s9cM...
Please watch my Stand By ME/CFS video. Hear my story.
I suffer from ME/CFS along with millions of others.
We need your voice and support.
Become an ally in 2025!
#StandByMEcfs 2025
#StillSickStillFighting since 2009
#MillionsMissing of all ages
www.youtube.com/watch?v=s9cM...
Stand By ME/CFS | Cynthia Johnson, Edge Prize 2023
YouTube video by The Edge Prize
www.youtube.com
May 13, 2025 at 10:41 PM
Stand By ME/CFS!
Please watch my Stand By ME/CFS video. Hear my story.
I suffer from ME/CFS along with millions of others.
We need your voice and support.
Become an ally in 2025!
#StandByMEcfs 2025
#StillSickStillFighting since 2009
#MillionsMissing of all ages
www.youtube.com/watch?v=s9cM...
Please watch my Stand By ME/CFS video. Hear my story.
I suffer from ME/CFS along with millions of others.
We need your voice and support.
Become an ally in 2025!
#StandByMEcfs 2025
#StillSickStillFighting since 2009
#MillionsMissing of all ages
www.youtube.com/watch?v=s9cM...
Reposted by Cynthia Johnson
A federal contractor representing U.S. Immigration and Customs Enforcement told Oregon officials last week that they are preparing an analysis of an unspecified project that would have significant environmental ramifications for the coastal city of Newport.
ICE contractor informs Oregon agency of incoming Newport action: ‘Something’s going on’ • Oregon Capital Chronicle
It’s the clearest sign yet that a detention center could be coming to the fishing city, where residents have vowed to resist those plans.
buff.ly
November 25, 2025 at 9:23 PM
A federal contractor representing U.S. Immigration and Customs Enforcement told Oregon officials last week that they are preparing an analysis of an unspecified project that would have significant environmental ramifications for the coastal city of Newport.