Holly L (First Grace28 at the other place) she/her
@hollyl.bsky.social
-personal account, opinions my own
-Interested in #MyalgicEncephalomyelitis #ChronicIlness #DisabilityJustice #Spoonie & politics (by necessity not for fun). I ❤️ reading 📚 beach ⛱️ fall 🍂nature 🌳
#pwME #StillSickStillFighting #LongCovid #MECFS
-Interested in #MyalgicEncephalomyelitis #ChronicIlness #DisabilityJustice #Spoonie & politics (by necessity not for fun). I ❤️ reading 📚 beach ⛱️ fall 🍂nature 🌳
#pwME #StillSickStillFighting #LongCovid #MECFS
Pinned
Hi all. I created this account months ago but have not had time to build it up. I am the Community Engagement and Social Media Manager for @meactnet.bsky.social.
This is my personal account so opinions are my own.
This is my personal account so opinions are my own.
Reposted by Holly L (First Grace28 at the other place) she/her
Today is Giving Tuesday! All Donations tripled!
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
December 2, 2025 at 9:06 PM
Today is Giving Tuesday! All Donations tripled!
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
Reposted by Holly L (First Grace28 at the other place) she/her
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
December 2, 2025 at 1:33 PM
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
I have been in the ME, ME/CFS community a long time. We are a community with big needs but we keep doing our best to show up for another and to grab the attention of the wider world.
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
November 30, 2025 at 4:59 AM
I have been in the ME, ME/CFS community a long time. We are a community with big needs but we keep doing our best to show up for another and to grab the attention of the wider world.
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
These two people have lived with great needs for many years & things are critical.
Share & give if able. #pwME
Reposted by Holly L (First Grace28 at the other place) she/her
Our workshop "Chronic Illness Caregiving for Youth, Teen, and Adult Children" with Denise Lopez-Majano is this Saturday - November 22nd at 3 pm ET! Get your ticket now: ow.ly/3IcV50XlbZh
All caregivers welcome! New to caregiving or a veteran at it, there is something for you!
#caregiver
All caregivers welcome! New to caregiving or a veteran at it, there is something for you!
#caregiver
November 20, 2025 at 6:23 PM
Our workshop "Chronic Illness Caregiving for Youth, Teen, and Adult Children" with Denise Lopez-Majano is this Saturday - November 22nd at 3 pm ET! Get your ticket now: ow.ly/3IcV50XlbZh
All caregivers welcome! New to caregiving or a veteran at it, there is something for you!
#caregiver
All caregivers welcome! New to caregiving or a veteran at it, there is something for you!
#caregiver
Reposted by Holly L (First Grace28 at the other place) she/her
#MEAction has been working hard this year to be a lantern in the darkness. We have had some wins, moments that stood out, and times where this community made a difference. See our list: www.meaction.net/post/meactio...
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
#MEAction's Top 10 Accomplishments of 2025
This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for...
www.meaction.net
November 20, 2025 at 7:49 PM
#MEAction has been working hard this year to be a lantern in the darkness. We have had some wins, moments that stood out, and times where this community made a difference. See our list: www.meaction.net/post/meactio...
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
Reposted by Holly L (First Grace28 at the other place) she/her
This National Family Caregivers Month, we partnered with Caregiver Wisdom to share resources for caregivers. Checkout their post with lots of helpful ideas for saying thanks: www.caregiverwisdom.net/post/thought...
You can find the graphics shared here and so much more!
You can find the graphics shared here and so much more!
Thoughtful Ways to Thank Your Family Caregiver
Family caregivers often give quietly, steadily, and without a lot of recognition. Many caregivers share that what they crave most isn’t a grand gesture — it’s simply feeling seen. Here are some low-ef...
www.caregiverwisdom.net
November 18, 2025 at 5:24 PM
This National Family Caregivers Month, we partnered with Caregiver Wisdom to share resources for caregivers. Checkout their post with lots of helpful ideas for saying thanks: www.caregiverwisdom.net/post/thought...
You can find the graphics shared here and so much more!
You can find the graphics shared here and so much more!
That spot can get so lonely! It is especially hard when just a person's energy in the room is unbearable. But it does not mean those necessities of caretaking are not appreciated!
#SevereME #MyalgicEncephalomyelitis #caregiving
#SevereME #MyalgicEncephalomyelitis #caregiving
We have one that someone with severe ME can use to let someone know that even though they may not be able to whisper a thank you or even acknowledge the person, it is appreciated
"This spot can get lonely. When you come in and hand me my meds or refill my cup, it means the world to me..."
"This spot can get lonely. When you come in and hand me my meds or refill my cup, it means the world to me..."
November 18, 2025 at 5:29 PM
That spot can get so lonely! It is especially hard when just a person's energy in the room is unbearable. But it does not mean those necessities of caretaking are not appreciated!
#SevereME #MyalgicEncephalomyelitis #caregiving
#SevereME #MyalgicEncephalomyelitis #caregiving
This one was inspired by my husband! The tremendous amount of electrolytes and fluids needed with POTS and ME is staggering.
I appreciate every time he mixes it just like I like in one of my preferred cups & brings it to me so my heartrate does not have to skyrocket!
#pwME #POTS #caregiver
I appreciate every time he mixes it just like I like in one of my preferred cups & brings it to me so my heartrate does not have to skyrocket!
#pwME #POTS #caregiver
We have one for your favorite electrolyte maker/ cup filler/ hydration bringer. Let them know you appreciate the constant stream of beverages!
November 18, 2025 at 5:27 PM
This one was inspired by my husband! The tremendous amount of electrolytes and fluids needed with POTS and ME is staggering.
I appreciate every time he mixes it just like I like in one of my preferred cups & brings it to me so my heartrate does not have to skyrocket!
#pwME #POTS #caregiver
I appreciate every time he mixes it just like I like in one of my preferred cups & brings it to me so my heartrate does not have to skyrocket!
#pwME #POTS #caregiver
Reposted by Holly L (First Grace28 at the other place) she/her
Do you have a family caregiver in your life? Want to tell them thanks and show your appreciation? We created some images you are welcome to save and share throughout the year with the caregivers in your life! It can be for your caregiver or for a friend who is caregiving.
#FamilyCaregiver #pwME
#FamilyCaregiver #pwME
November 18, 2025 at 5:24 PM
Do you have a family caregiver in your life? Want to tell them thanks and show your appreciation? We created some images you are welcome to save and share throughout the year with the caregivers in your life! It can be for your caregiver or for a friend who is caregiving.
#FamilyCaregiver #pwME
#FamilyCaregiver #pwME
Reposted by Holly L (First Grace28 at the other place) she/her
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
November 7, 2025 at 5:00 PM
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Reposted by Holly L (First Grace28 at the other place) she/her
November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving.
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
November 1, 2025 at 4:16 PM
November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving.
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Reposted by Holly L (First Grace28 at the other place) she/her
On day 31 of the government shutdown, Trump parties at Mar-a-Lago with his wealthy friends instead of working to reach a deal with Democrats to reopen the government.
November 1, 2025 at 2:43 AM
On day 31 of the government shutdown, Trump parties at Mar-a-Lago with his wealthy friends instead of working to reach a deal with Democrats to reopen the government.
Reposted by Holly L (First Grace28 at the other place) she/her
HCR nails it every time but love the way Neguse reframed what’s happening. Why isn’t everyone in the media doing this?
November 1, 2025 at 1:07 PM
HCR nails it every time but love the way Neguse reframed what’s happening. Why isn’t everyone in the media doing this?
Reposted by Holly L (First Grace28 at the other place) she/her
Sen. Shaheen: I had a meeting with some constituents last Friday. One was a small business owner who had cancer. He said, 'If I didn't have that insurance through the ACA, I would not have gotten my cancer treated, and I would be dead by now.' That's what this fight is about.
November 1, 2025 at 3:03 PM
Sen. Shaheen: I had a meeting with some constituents last Friday. One was a small business owner who had cancer. He said, 'If I didn't have that insurance through the ACA, I would not have gotten my cancer treated, and I would be dead by now.' That's what this fight is about.
Reposted by Holly L (First Grace28 at the other place) she/her
This is a very SCARY time! We are people with ME/CFS & Long COVID that stand against the Medicaid cuts + ACA Premium increases. $1trillion in Medicaid cuts will harm millions. ACA premium hikes will steal affordable healthcare from tens of millions.
Contact Congress: www.meaction.net/medicaid
#ACA
Contact Congress: www.meaction.net/medicaid
#ACA
October 31, 2025 at 3:41 PM
This is a very SCARY time! We are people with ME/CFS & Long COVID that stand against the Medicaid cuts + ACA Premium increases. $1trillion in Medicaid cuts will harm millions. ACA premium hikes will steal affordable healthcare from tens of millions.
Contact Congress: www.meaction.net/medicaid
#ACA
Contact Congress: www.meaction.net/medicaid
#ACA
Reposted by Holly L (First Grace28 at the other place) she/her
Don't let the grim reaper steal your health insurance!
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
October 31, 2025 at 6:33 PM
Don't let the grim reaper steal your health insurance!
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases.
Congress is tackling these very issues during the govt shut-down - they need to hear from YOU!
See our call script 👇.
Reposted by Holly L (First Grace28 at the other place) she/her
TeamBlueZoo's cutest member protests for Healthcare reform
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
October 31, 2025 at 7:58 PM
TeamBlueZoo's cutest member protests for Healthcare reform
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Things are so scary, that no dressing up was required
Because the facts are the facts & they look dire
Affordable health care (ACA) has expired
#SaveMedicaid #ADA @meactnet.bsky.social
Reposted by Holly L (First Grace28 at the other place) she/her
They say you don't know what you've got til it's gone. If you don't want to envision a future that doesn't #SaveMedicaid and the #ACA, join us in contacting your Congressperson. Tell them only they can save American Healthcare! @meactnet.bsky.social
October 31, 2025 at 8:11 PM
They say you don't know what you've got til it's gone. If you don't want to envision a future that doesn't #SaveMedicaid and the #ACA, join us in contacting your Congressperson. Tell them only they can save American Healthcare! @meactnet.bsky.social
Reposted by Holly L (First Grace28 at the other place) she/her
As House Republicans continue their 6 week vacation, I’m back in Washington D.C. working to re-open the government.
It is outrageous that Republicans refuse to re-open the House!
It is outrageous that Republicans refuse to re-open the House!
October 29, 2025 at 6:07 PM
As House Republicans continue their 6 week vacation, I’m back in Washington D.C. working to re-open the government.
It is outrageous that Republicans refuse to re-open the House!
It is outrageous that Republicans refuse to re-open the House!
Reposted by Holly L (First Grace28 at the other place) she/her
Thank you Congressman Neguse for laying it plain.
October 31, 2025 at 4:14 PM
Thank you Congressman Neguse for laying it plain.
Reposted by Holly L (First Grace28 at the other place) she/her
I love how Rep. Joe Neguse reframed this question.
October 31, 2025 at 8:19 AM
I love how Rep. Joe Neguse reframed this question.
Reposted by Holly L (First Grace28 at the other place) she/her
Ben also shares a photo with his notice that his healthcare marketplace plan premium subsidies are expiring - one of this season's true horror stories!
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
October 31, 2025 at 12:52 AM
Ben also shares a photo with his notice that his healthcare marketplace plan premium subsidies are expiring - one of this season's true horror stories!
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
Millions of people will get kicked off of Medicaid.
ACA Health insurance premiums are expected to double if the tax credits expire. #ACA
Reposted by Holly L (First Grace28 at the other place) she/her
Creepy baby me says....Congress stop playing tricks with my healthcare!
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
October 31, 2025 at 12:52 AM
Creepy baby me says....Congress stop playing tricks with my healthcare!
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
#MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time!
Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid
Reposted by Holly L (First Grace28 at the other place) she/her
We just finished the amazing workshop with Marisa Renee Lee focusing on grief & chronic illness. At least 7 countries were represented & we had an amazing time together.
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
October 28, 2025 at 8:40 PM
We just finished the amazing workshop with Marisa Renee Lee focusing on grief & chronic illness. At least 7 countries were represented & we had an amazing time together.
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
We touched on the importance of finding joy & taking care of ourselves in the workshop so I thought I would add this reminder!
Reposted by Holly L (First Grace28 at the other place) she/her
This is a blood-sucking nightmare. But we can get out of it together. Our government needs to hear from us! Save #ACA. #SaveMedicaid. @MEActNet
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
October 29, 2025 at 8:53 PM
This is a blood-sucking nightmare. But we can get out of it together. Our government needs to hear from us! Save #ACA. #SaveMedicaid. @MEActNet
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid
Thanks to our executive director, Laurie Jones, & her daughters for joining in!
Contact Congress: www.meaction.net/medicaid
#pwME #Disability #LongCovid