Lightnews — Scholar-powered news

Reposted by Matt Lazell-Fairman

Bateman Horne Center @batemanhornecenter.bsky.social · 1d

Milestone moment for ME/CFS awareness!
The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators.

Read more: https://bit.ly/46P31vP
#MECFS #ACSM @acsm1954.bsky.social

"History Made! The American College of Sports Medicine includes ME/CFS in global exercise guidelines for the first time."

1 12 35

Reposted by Matt Lazell-Fairman

Molly Weston Williamson @mollyww.bsky.social · 1d

The Trump Administration is planning a proposal to prevent too many people, especially older adults, from qualifying for Social Security disability benefits they need.

New from @seemiaroll.bsky.social & me for @americanprogress.bsky.social www.americanprogress.org/article/the-...

The Trump Administration’s Plans To Covertly Cut Social Security Disability Benefits

An upcoming regulatory proposal would change the rules of Social Security disability programs to make it harder to qualify, particularly harming older adults.

www.americanprogress.org

1 9 18

Reposted by Matt Lazell-Fairman

ME/CFS Science @mecfsskeptic.bsky.social · 2d

1) 🇬🇧 For ME/CFS patients in the UK only: Action for ME has opened its 2025 Big Survey! Last time, it had more than 4000 respondents, but hopefully this one will be even bigger.

The deadline for submitting your response is 27 January 2026.

2 13 16

Reposted by Matt Lazell-Fairman

Solve M.E. @solveme.bsky.social · 2d

Register today for the @icancmeresearch.bsky.social online conference Nov. 4-6. The event was designed by people w/ #MECFS and the theme is “Nothing About Us Without Us.”

icancme.ca/research/202...

2025 ME Conference - ICanCME

icancme.ca

11 15

Reposted by Matt Lazell-Fairman

Andrew Perfors @perfors.net · 5d

Heartbreaking reading, but this Reddit thread gives a sense of the relentlessness of the horror inflicted by ICE, and the damage being done to so many innocent people that doesn't make the news.

From the AskReddit community on Reddit

Explore this post and more from the AskReddit community

www.reddit.com

4 230 550

Reposted by Matt Lazell-Fairman

Sheryl Gay Stolberg @sherylnyt.bsky.social · 5d

BREAKING: Friday night massacre underway at CDC. Doznes of "disease detectives," high-level scientists, entire Washington staff and editors of the MMWR (Morbidity and Mortality Weekly Report) have all been RIFed and received the following notice:

860 8.5K 15K

Reposted by Matt Lazell-Fairman

Adam @abrokenbattery.bsky.social · 5d

It’s @davetuller1.bsky.social‘s birthday today, so I’ve donated to his fundraising campaign so that he can carry on his important work calling out bad research. Happy Birthday David!

crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

7 9

Reposted by Matt Lazell-Fairman

Wilhelmina Jenkins @wilhelminaj.bsky.social · 7d

An excellent article by Laurie Jones, executive director of @meaction-mi.bsky.social, about the difficulties that proposed Medicaid work requirements would cause the ME/CFS community.

MedPage Today @medpagetoday.com · 7d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

2 16 23

Reposted by Matt Lazell-Fairman

#MEAction Network @meactnet.bsky.social · 6d

@meactnet.bsky.social's Executive Director, Laurie Jones, wrote a op-ed about the medicaid work requirements that was recently published in MedPage Today!

Thank a look below!👇

MedPage Today @medpagetoday.com · 7d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

1 17 34

Reposted by Matt Lazell-Fairman

MedPage Today @medpagetoday.com · 7d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

22 40

Reposted by Matt Lazell-Fairman

George Monbiot @georgemonbiot.bsky.social · 8d

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

58 630 1.5K

Reposted by Matt Lazell-Fairman

George Monbiot @georgemonbiot.bsky.social · 8d

This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.

2 32 290

Reposted by Matt Lazell-Fairman

Gail Drakes @gaildrakes.bsky.social · 9d

I just learned that the number of children in the U.S. navigating life with Long COVID exceeds that of the number of kids with asthma.

Wow.

Long COVID is here to stay—even in children

Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex, multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact the daily life of those...

www.thelancet.com

4 150 290

Reposted by Matt Lazell-Fairman

Senator Patty Murray @murray.senate.gov · 8d

Here are the 10 states that will see the highest premium increases for families that lose tax credits if Republicans refuse to act.

West Virginia 387%
Wyoming 382%
Alaska 346%
Tennessee 320%
Mississippi 314%
Texas 289%
South Carolina 285%
Alabama 284%
South Dakota 235%
North Dakota 234%

170 960 1.8K

Reposted by Matt Lazell-Fairman

Eric Michael Garcia @ericmgarcia.bsky.social · 10d

The Trump administration is preparing a plan that will make it harder for older Americans to qualify for Social Security disability payments, which could result in hundreds of thousands of people losing benefits, according to people familiar with the plans (GIFT LINK). wapo.st/4qa8yoq

Trump plan would limit disability benefits for older Americans

Trump administration officials are considering eliminating age as a factor in deciding whether someone is capable of working.

wapo.st

3 33 54

Reposted by Matt Lazell-Fairman

KOJAMF🤘🖤🤘 @kojamf.bsky.social · 10d

Dr. Jane Goodall filmed an interview with Netflix in March 2025 that she understood would only be released after her death.

810 17K 38K

Reposted by Matt Lazell-Fairman

🎃 public HELLth guy 🎃 @publichealthguy1.bsky.social · 10d

a respected senior CDC official telling the public that the federal agency has undergone a hostile takeover and it barely makes the news because that’s the state of the world today

Prof Sheena Cruickshank @sheencr.bsky.social · 10d

This is another damning picture of Kennedy refusing to meet with senior scientists and get advice about infections or vaccines whilst he spreads disinformation #healthpolicy

A ‘hostile takeover’: ousted CDC official raises alarm over RFK Jr approach to infectious disease

Debra Houry speaks after testifying on eight months under Kennedy, who critics say shuns science and spreads falsehoods

www.theguardian.com

4 270 760

Reposted by Matt Lazell-Fairman

Verena Hackl @verhac.bsky.social · 14d

"Oldie" but goldie: einfach sehr guter Text über #PEM, #MECFS, #LongCovid, etc. von Ed Yong.

Re-Leseempfehlung.

www.theatlantic.com/health/archi...

Fatigue Can Shatter a Person

Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.

www.theatlantic.com

9 19

Reposted by Matt Lazell-Fairman

Waldo Jaquith, but Spooky @waldo.net · 10d

The Trump administration has cancelled 4,304 deliveries to food banks so far this year, refusing to deliver 94 million pounds of contracted-for food. Food banks simply can’t feed people enough anymore. Millions of Americans are going hungry as a result.

Trump Canceled 94 Million Pounds of Food Aid. Here’s What Never Arrived.

ProPublica obtained records from the Department of Agriculture that detail the millions of pounds of food, down to the number of eggs, that never reached food banks because of the administration’s cut...

projects.propublica.org

47 610 860

Reposted by Matt Lazell-Fairman

Jacqueline Antonovich @jackiantonovich.bsky.social · 10d

Not to be *that* obnoxious academic, but the term "moron" was invented by eugenicists to classify high-functioning "feebleminded" people, and most often targeted at women who were sexually promiscuous.

Molly Jong-Fast @mollyjongfast.bsky.social · 10d

It almost ceases to be ideological, I think anti-moron could be a lane for a political party.

6 76 350

Reposted by Matt Lazell-Fairman

Dr. Genevieve Guenther (she/they) @doctorvive.bsky.social · 10d

And, to be clear, some models have us reaching 3°C over preindustrial as soon as 2060. (Tweet from @hausfath.bsky.social.)

Zeke Hausfather • @hausfath • Sep 28 However, if we constrain CMIP6 to match recent observed global temperatures, we see no models reaching 3C until at least 2060:

1 3 19

Reposted by Matt Lazell-Fairman

Tom Kindlon @tomkindlon.bsky.social · 11d

🧵
"The Trouble With Recovery Stories" by Naomi Whittingham @naomiwhitt.bsky.social (with severe ME for decades)

alifehidden.com/2024/11/05/r...

An excellent, articulate article discussing “Recovery Stories” and the complex impressions and impacts they bring about

#MEcfs #CFS #PwME

1/

The Trouble With Recovery Stories
Posted on 5th Nov 2024

Photo of somebody up a tall mountain near the edge

1 23 54

Reposted by Matt Lazell-Fairman

Fergus Murray @fergus.oolong.co.uk · 12d

Fun fact: he's talking about the bizarre and horrifying history of ME/CFS here, but this is almost exactly what's happened with the anti-trans movement as well, and this time the British media are even more culpable.

George Monbiot @georgemonbiot.bsky.social · Oct 18

I see my own profession, the media, as being as culpable as any. How did we allow a bizarre sect, with a phenomenally cruel and brutal agenda, to set the prevailing view of this and other issues?
And it was right across the board: just about every major outlet in the UK.

1 17 43

Reposted by Matt Lazell-Fairman

PZ @itsmepz.bsky.social · 17d

It's 2025, 6 years into a pandemic that has caused an epidemic of new cases of #MECFS.

There have never been so many advocacy orgs and quality resources available to inform on MECFS.

And still, media pieces that mention #MyalgicEncephalomyelitis are misinformed and incorrect.

#pwME

1 17 40

Reposted by Matt Lazell-Fairman

Assigned Media @assignedmedia.org · 14d

On Friday 18 blue state attorneys general BLASTED the Federal Trade Commission, telling it to back off trans youth healthcare and warning of an insidious attempt to reshape the regulation of medicine in the US.

And nobody covered it.

www.assignedmedia.org/breaking-new...

State AGs Defend Trans Americans in Stunning Rebuke to Trump’s FTC — Assigned

Eighteen state Attorneys General unite to stand up in defense of trans Americans, in opposition to a Federal Trade Commission investigation into trans healthcare.

www.assignedmedia.org

31 1.5K 2.7K