I just donated, again. One week to go before Judicial Review deadline. Please support these brave families www.crowdjustice.com/case/justice...

People continue to call COVID advocates’ pleas for masking “unreasonable”.

Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.

My latest:
substack.com/home/post/p-...

How can we get people to become conscious of the fact that

there is a disease that they don't know exists

that will absolutely destroy your life,

help is nonexistent and

you'll be screaming into an abyss for the rest of your torturous life if it takes you down

by a roll of the dice.

#MEcfs

Clip: BBC Radio Nottingham, Nyrobi Beckett-Messam from ALT BLK ERA says she hid her #MECFS diagnosis for the first few years, fearing stigma and discrimination.

Fassen wir überspitzt zusammen:

Für normale Versorgung von #MECFS ist kein Geld da und man ist mancherorts nicht bereit, vom überholten Dogma von ME/CFS als psychiatrischer Erkrankung abzuweichen.

Es ist ein trauriges Schauspiel.

www.sn.at/panorama/wis...

And at 40y old I have my fair share of experiences, both in health, sickness, ups and downs, physical/mental streches, etc, pretty much fair share of whatever a life experience is made of, and NOTHING compares to #PEM. It cannot be mistaken for anything else once you have it, less of it 'fatigue'.

#PEM is a very specific physiological abnormal reaction to exertion of any kind, not only physical. The difficulty in recognizing and defining it is due to a longstanding misconception that equals it to fatigue. The core difference between the two is qualitative & quantitative.

This thread is perfect.

I will add that #PEM might seem 'difficult' to grasp/differentiate in theory but in pratice it feels crystal clear. I think it is actually impossible for someone with #PEM to confuse it with fatigue as if feels 100% different/new of anything experienced in a lifetime.