Jacy Sonne ♿️
jacysonne.bsky.social
Jacy Sonne ♿️
@jacysonne.bsky.social
Disability Advocacy ♿️ #FMMECFS #Migraineur #POTS #Dystonia #Spoonie #MyotonicDystrophy
Rare brain tumor survivor
Too many med dx to list here
Domestic Violence and the Disabled
Pro: Science
LGBTQ
BIPOC
AAPI
Pinned
💙
So...I took Tylenol that doesn't work at all for my myriad of painful medical dx's, before stepping on a sewing needle that went in a inch into my toe. 😬😭
#NEISvoid #KillMeMeow
November 25, 2025 at 12:40 AM
Reposted by Jacy Sonne ♿️
Turns out this was all much ado about nothing and Google isn’t using your Gmail to train AI and if wanna turn all that stuff back on you can get your spam filters back
Looks like the article has been updated to suggest maybe they misread the policy.

I see people complaining that this also disabled their spam filters, though I still see new messages showing up in spam so it's still working fine for me after disabling things.
[Correction] Gmail can read your emails and attachments to power "smart features"
Did you know that Gmail can use your emails and attachments for its smart features? Here's how to check your settings.
www.malwarebytes.com
November 22, 2025 at 11:06 PM
Yes, please.
November 21, 2025 at 5:29 AM
Central Sensitization and Hyperalgesia Are Bogus Medical Terms — Pain News Network share.google/EOjS0ltoBluF...
Central Sensitization and Hyperalgesia Are Bogus Medical Terms — Pain News Network
By Dr. Forest Tennant Some 15 years ago, “central sensitization” was a term I first started seeing when I was editor of Practical Pain Management. It was defined as experiencing a pain level above ...
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November 21, 2025 at 4:36 AM
This is a big deal, research linking #LupusSLE #MS to Epstein-Barr Virus #EBV

Epstein-Barr virus reprograms autoreactive B cells as antigen-presenting cells in systemic lupus erythematosus | Science Translational Medicine share.google/6qNf3frEDruX...
Epstein-Barr virus reprograms autoreactive B cells as antigen-presenting cells in systemic lupus erythematosus
Epstein-Barr virus reprograms autoreactive B cells as antigen-presenting cells to promote pathogenic antinuclear T and B cell responses in lupus.
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November 21, 2025 at 4:35 AM
Hallelujah and blessed be to bsky...I finally got my account access back!! That only took months, tons of emails, even an attempted phone call.
November 21, 2025 at 2:57 AM
Reposted by Jacy Sonne ♿️
DOGE put the personal data of millions of Americans — including Social Security numbers — on a vulnerable server in June, according to a new whistleblower complaint.

The report alleges that the actions of DOGE staffers "constitute violations of laws, rules, and regulations, abuse of authority."
August 27, 2025 at 6:55 PM
August 27, 2025 at 6:21 PM
Reposted by Jacy Sonne ♿️
free idea: an app that makes a phone throw itself at a wall whenever a politician who's done nothing to stop mass shootings types out “thoughts and prayers”
Breaking: According to Minneapolis police, two children — ages 8 and 10 — have been killed in the church shooting.

14 children and three adults injured.

Minneapolis mayor Frey: "Don't just say this is about thoughts and prayers right now. These kids were literally praying."
August 27, 2025 at 4:25 PM
Reposted by Jacy Sonne ♿️
Your periodic reminder that people who blame “mental illness” for every mass shooting want to make it easier for people to get guns and harder for people to get mental healthcare.
August 27, 2025 at 5:12 PM
Reposted by Jacy Sonne ♿️
CDC is no longer surveilling outbreaks caused by campylobacter, cyclospora, listeria, shigella, vibrio and Yersinia. What could go wrong?
The CDC quietly scaled back a surveillance program for foodborne illnesses.
As of July 1, a critical surveillance program is monitoring for only two pathogens instead of the usual eight.
www.nbcnews.com/health/healt...
The CDC quietly scaled back a surveillance program for foodborne illnesses
As of July 1, a critical surveillance program is monitoring for only two pathogens instead of the usual eight.
www.nbcnews.com
August 27, 2025 at 5:02 AM
Reposted by Jacy Sonne ♿️
wow. we’d heard rumors to this effect. now it’s more than rumor.
Wow. On NPR, @gbrumfiel.bsky.social reports a Social Security official “copied the Social Security numbers, names and birthdays of over 300 million Americans to a private section of the agency's cloud.”

The source is a whistleblower, who is named: Charles Borges, SSN chief data officer.
August 27, 2025 at 1:46 AM
Reposted by Jacy Sonne ♿️
Google issues warning to billions of Gmail users over password hack
Billions of Gmail users advised to change passwords
Cyber criminals known as ‘ShinyHunters’ have previously targeted AT&T Wireless, Microsoft, Santander and Ticketmaster
www.independent.co.uk
August 26, 2025 at 2:28 PM
was just told by a doctor that I need to "limit and reduce stress" in my life but then he refused to put me in a medically induced coma -- pick a side, man
August 26, 2025 at 9:48 AM
Reposted by Jacy Sonne ♿️
See what and who Prager U is in the comments.
August 23, 2025 at 5:37 PM
J.B. Pritzker smashing through the fascism wall like he's the Kool Aid Man
August 26, 2025 at 12:47 AM
August 25, 2025 at 11:45 PM
Instead of The X Files, it's The Med-X Files.
August 25, 2025 at 11:01 PM
And the chronic pain of it all.

#NEISvoid
August 25, 2025 at 10:47 PM
Reposted by Jacy Sonne ♿️
Via today's @msmagazine.com newsletter:

“I am deeply alarmed by news reports that Costco is refusing to sell safe, effective, and legal medication for no other reason than to appease the politics of antiabortion fanatics,” said Sen. Patty Murray (D-Wash.).

So much for Costco being on our side🙄
August 25, 2025 at 10:04 PM
Does anyone have tips for why I'm not seeing mutuals or accounts I follow. I can like, comment, and I still have to constantly look up Molly Jong-Fast, or emrazz, or Allison.

This is ridiculous.
August 25, 2025 at 10:24 PM
96*F
Feels like a hundred and hell degrees.

#POTS
August 25, 2025 at 10:20 PM
Reposted by Jacy Sonne ♿️
They call your Social Security & Medicare 'Entitlements' so you don't call them something silly like 'Earned Benefits.'
August 23, 2025 at 9:36 PM
Reposted by Jacy Sonne ♿️
Today's newsletter: From Cracker Barrel to Sydney Sweeney's jeans: How right-wing influencers manufacture controversies, then cite them as proof that "wokeness" destroys companies. www.readtpa.com/p/the-right-...
The Right Is So Desperate to Prove 'Go Woke, Go Broke' That They're Inventing 'Woke' Controversies Out of Thin Air
From Cracker Barrel to Sydney Sweeney's jeans: How right-wing influencers manufacture controversies, then cite them as proof that "wokeness" destroys companies.
www.readtpa.com
August 25, 2025 at 7:24 PM
Just saying...

The Trouble With MeidasTouch share.google/zJNffckc5arM...
The Trouble With MeidasTouch
The brothers behind the anti-Trump PAC are stars of the #Resistance, but faced with scrutiny, their response turned Trumpian
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August 25, 2025 at 4:27 AM