Dalila
@dalilatm.bsky.social
220 followers 300 following 170 posts
Interested in research ethics and all about #lupus #lupusnephritis | Running support group #Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿| Views my own | We need a cure for Lupus 🦋
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That's a wrap #2024Wrapped! 🎉 It’s been a year of amazing guest speakers from around the globe sharing unique perspectives on lupus, plus our first F2F meeting in #Swansea 🏴󠁧󠁢󠁷󠁬󠁳󠁿🙌 Huge thanks to them & our group members. Here's to an even brighter 2025! 🌟 #lupus #Wales
Reposted by Dalila
📰NEWS ALERT!

#EULAR has published amended recommendations on the treatment of systemic lupus erythematosus (SLE) with kidney involvement.

📖Read the full #eularPressRelease here 👉 https://pulse.ly/27xegpnr5k

#LupusNephritis #CKD #SLE
Reposted by Dalila
Upstate is hosting a multidisciplinary symposium Oct. 17-18 focused on cutting-edge research, clinical insights and collaborative strategies aimed at advancing the diagnosis, treatment and long-term management of lupus and related autoimmune conditions. www.upstate.edu/news/article...
Reposted by Dalila
In a trial involving participants with systemic lupus erythematosus, the incidence of a clinical response was higher with telitacicept than with placebo, although infections and reduced immunoglobulin levels were more common. Full 18C010 phase 3 trial results: nej.md/42EmA7I

#MedSky #Rheumatology
A graph showing the response on the modified SRI-4 over time (full analysis population).
🌟 Great to have attended yesterday’s @daringtodream.bsky.social ‘Making Space’ event! Inspiring to learn about their work on emotional support through new spaces & music. We even learned about recent Cardiff Met research & their supportive dancing robots across hospitals in #Wales 🤖
🦋 Lupus Webinar this Thursday! #lupusnephritis #lupus #SLE
Hosted by the JIR Academy: “Lupus Nephritis: From Guidelines to Paediatric Practice”

🗓 Oct 16 | 13:00 CET
Talks by Pr Kamphuis & Pr Aggarwal + clinical cases by Dr Yasaswini & Dr Nolan
🔗 www.jircohorte.org/jirevents
Reposted by Dalila
Multimorbidity in SLE: metanalysis of 3 studies (1175 pts) saw Multimorbidity (by higher Charlson comorbidity index/CCI), is a strong independent predictor of mortality in SLE (OR 3.92). In SLE, the most freq comorbidities were DM, CVD, COPD, renal/lung/CNS Dz www.mdpi.com/2227-9032/13...
www.mdpi.com
Reposted by Dalila
Diagnosis in lupus nephritis currently relies on an invasive kidney biopsy.

ASCI member Chandra Mohan & team assessed urine samples collected at the time of kidney biopsies, reporting signatures associated with active and/or chronic renal damage in lupus nephritis: www.jci.org/articles/vie...
Happening this month: ENCA Online Event 2025

💻 An interactive online event for health professionals, patient representatives, and families in paediatric rheumatology.

📅 Saturday, 25 October 2025
🕤 09:30 – 13:00 (CET)

encanetwork.org/event/
An interesting read, especially when thinking about the complexities and challenges of #lupus.

“Our study findings suggest that physicians should avoid excessive perfectionism and instead focus on patient dialogue and flexibility, which could improve SDM.”
academic.oup.com/rheumatology...
Association of physicians’ Big Five personality traits with shared decision-making in patients with SLE
AbstractObjectives. Recent European League Against Rheumatism guidelines highlight the importance of shared decision-making (SDM) in SLE treatment. This st
academic.oup.com
From Wales to Australia! 🌍 We were thrilled to have Chloe Bayliss join our group meeting and share her inspiring #lupus journey 💜 Her story featured in our report for @lupusuk.bsky.social’s magazine — and now she has a copy all the way in Australia! 🇦🇺 So exciting! #Cardiff
Reposted by Dalila
New study finds women with systemic #lupus erythematosus and with mild cognitive impairment exhibit measurable brain changes. Read the study: buff.ly/EYappPE
Reposted by Dalila
Magnificent overview by dr Weber at
#LupusAcademy2025 on diverse manifestations of CV disease in #Lupus, including athersclerosis, pericarditis, heart failure and microvascular dysfunction. Multimodality imaging can improve screening, detection and monitoring of cardiac function. #cardiorheum
🇩🇪 #Berlin It's #LupusAcademy Meeting time! 🩺 Three days dedicated to all things lupus. Just kicked off with Prof. Maria Dall’Era @UCSF sharing the latest updates on lupus nephritis #lupus #LupusNephritis
Reposted by Dalila
Lupus is a complex autoimmune condition that affects thousands of people globally 🌍

This #LupusAwarenessMonth, learn how our scientists are advancing understanding through genetics and immune research 🧬

https://sangerinstitute.blog/2025/10/07/five-questions-on-lupus-with-catherine-sutherland/
Catherine Sutherland at her desk working.
Reposted by Dalila
In case you missed our Grand Rounds session today, 10/7/25, you can watch Dr. Timothy Niewold’s talk on “Type I Interferons in the Pathogenesis of Systemic Lupus Erythematosus”, here: rheumatology.uw.edu/index.php/gr...
#UWRheum
Type I Interferons in the Pathogenesis of Systemic Lupus Erythematosus | Division of Rheumatology
rheumatology.uw.edu
Reposted by Dalila
🧬 Updated lupus criteria improve diagnosis in autoimmune lung disease. Researchers found EULAR/ACR standards identified SLE more effectively than SLICC in patients with interstitial pneumonia with autoimmune features.

www.emjreviews.com/en-us/amj/rh...

#AMJRheumatology #AutoimmuneDisease #Lupus
New Criteria Improve Lupus Detection in Autoimmune Lung Disease
A new study finds that EULAR/ACR criteria identify more systemic lupus erythematosus cases among patients with interstitial pneumonia with autoimmune features than older methods.
www.emjreviews.com
Reposted by Dalila
📢 Join us for a vital webinar on improving childhood admissions to mental health units!

🗓️ 4 Nov 2025 | 🕛 12 - 1pm

Featuring new resources to support young people, families & healthcare professionals.

Full story: tinyurl.com/yv838w92
Register here: tinyurl.com/sddh48n2
💡 A fantastic October to explore childhood-onset lupus and get involved in the discussion! #cSLE #lupus #paediatric Coming-up events:

☑️ Thur, 16 Oct | 13:00–15:00 CEST, JIR Academy

☑️ Tue, 21 OCT | 12:00 CEST, PrES School

☑️ Sat, 25 OCT | 9:30-13:00 CEST, ENCA Network Event
Reposted by Dalila
Join us tomorrow, 10/7 at 8:00AM PT, when we welcome Dr. Timothy Niewold as our Grand Rounds Speaker! Dr. Niewold will be presenting on “Type I Interferons in the Pathogenesis of Systemic Lupus Erythematosus.” Register to watch here: washington.zoom.us/webinar/regi...
#UWRheum
Reposted by Dalila
Selena Gomez has shared her experiences living with #lupus since 2015 - writes Foundation-funded researcher @bcellsrosser.bsky.social for @uk.theconversation.com.

To learn more, you can meet Dr Lizzy Rosser at our New Scientist Live stand (C20) on 18-19 October! shorturl.at/BusFG