As a mom to a chronically ill kid with lots of hospital time, I completely agree! I've mostly found staff to be responsive if you say, do we need this blood pressure cuff to inflate every 15 min? Can you limit your nighttime assessments? They nearly always say yes & nurses appreciate the advocacy.
December 19, 2025 at 4:59 AM
As a mom to a chronically ill kid with lots of hospital time, I completely agree! I've mostly found staff to be responsive if you say, do we need this blood pressure cuff to inflate every 15 min? Can you limit your nighttime assessments? They nearly always say yes & nurses appreciate the advocacy.
the first chronically ill person i remember having in my life was a friend my mom met through avon. she had lupus and MS and multiple other conditions. she passed from cancer when i was in high school or college.
December 19, 2025 at 4:58 AM
the first chronically ill person i remember having in my life was a friend my mom met through avon. she had lupus and MS and multiple other conditions. she passed from cancer when i was in high school or college.
Like this is so mentally ill, chronically online shit.. I am self awar enough to know this.. but fucking hell... xbsjxbzkka
This is so stupid dude xjbxja
Like I'm giggling and laughing about how I'm handling this...
This is so stupid dude xjbxja
Like I'm giggling and laughing about how I'm handling this...
December 19, 2025 at 4:57 AM
Like this is so mentally ill, chronically online shit.. I am self awar enough to know this.. but fucking hell... xbsjxbzkka
This is so stupid dude xjbxja
Like I'm giggling and laughing about how I'm handling this...
This is so stupid dude xjbxja
Like I'm giggling and laughing about how I'm handling this...
chronically ill, can confirm ✅
December 19, 2025 at 4:40 AM
chronically ill, can confirm ✅
actually as always i dont eat too much in general(chronically underweight), but this being the core of my diet this week is 😵💫
December 19, 2025 at 4:29 AM
actually as always i dont eat too much in general(chronically underweight), but this being the core of my diet this week is 😵💫
Morning came, and our bones are aching from the intense cold. We haven't slept a wink, haven't had a moment's warmth, and we have nothing left. My mother and father are elderly and chronically ill; I'm about to lose them, and I can't keep them warm. My family consists of 15 people. 💔💔🥶🥶🥹
December 19, 2025 at 4:08 AM
Morning came, and our bones are aching from the intense cold. We haven't slept a wink, haven't had a moment's warmth, and we have nothing left. My mother and father are elderly and chronically ill; I'm about to lose them, and I can't keep them warm. My family consists of 15 people. 💔💔🥶🥶🥹
It is interesting to me the huge gap in understanding between folks who are not chronically ill and those who are, especially those with rare illnesses
Likeas a rule just about anyone who is chronically ill, especially those with rare illnesses **knows** how valuable talking with other spoonies is
Likeas a rule just about anyone who is chronically ill, especially those with rare illnesses **knows** how valuable talking with other spoonies is
December 19, 2025 at 4:04 AM
It is interesting to me the huge gap in understanding between folks who are not chronically ill and those who are, especially those with rare illnesses
Likeas a rule just about anyone who is chronically ill, especially those with rare illnesses **knows** how valuable talking with other spoonies is
Likeas a rule just about anyone who is chronically ill, especially those with rare illnesses **knows** how valuable talking with other spoonies is
Hehe! The world IS GRIM AF! You right! I'm chronically ill and disabled -- I don't have the bandwidth for this shizzle! Just give me cute Kpop boys and good vibes PLEASE 😔😂
December 19, 2025 at 4:01 AM
Hehe! The world IS GRIM AF! You right! I'm chronically ill and disabled -- I don't have the bandwidth for this shizzle! Just give me cute Kpop boys and good vibes PLEASE 😔😂
She'll not just run between my legs, but she will also magically appear behind me, without a single sound. I have autism and dyspraxia, which means that my spatial awareness is shot and I am chronically clumsy. It's an accident waiting to happen! 😫
December 19, 2025 at 3:53 AM
She'll not just run between my legs, but she will also magically appear behind me, without a single sound. I have autism and dyspraxia, which means that my spatial awareness is shot and I am chronically clumsy. It's an accident waiting to happen! 😫
I hate to be chronically online but dni Hazbin hotel stuff I literally hate that show so much lmao
December 19, 2025 at 3:51 AM
I hate to be chronically online but dni Hazbin hotel stuff I literally hate that show so much lmao
>user chronically online witch hunting NSFW content creators
>look at their main
>posting the exact same stuff
What
>look at their main
>posting the exact same stuff
What
December 19, 2025 at 3:39 AM
>user chronically online witch hunting NSFW content creators
>look at their main
>posting the exact same stuff
What
>look at their main
>posting the exact same stuff
What
You know you are chronically ill when a recliner and a heating pad is your idea of a hot date.
December 19, 2025 at 3:36 AM
You know you are chronically ill when a recliner and a heating pad is your idea of a hot date.
Maybe it's just the holidays & all, but this place has been a whole lot quiet recently in my feed 🙃
But I guess thats what I get for being chronically online these days 💀😂
But I guess thats what I get for being chronically online these days 💀😂
December 19, 2025 at 3:16 AM
Maybe it's just the holidays & all, but this place has been a whole lot quiet recently in my feed 🙃
But I guess thats what I get for being chronically online these days 💀😂
But I guess thats what I get for being chronically online these days 💀😂
Culture?
Look around, what culture?
Chronically online but still disconnected. Isolated. Fed on algorithms and ai rage-bait.
This generation will grow old with more influencer-related core memories than not.
Culture will result around the flames of social media.
Let it burn.
Look around, what culture?
Chronically online but still disconnected. Isolated. Fed on algorithms and ai rage-bait.
This generation will grow old with more influencer-related core memories than not.
Culture will result around the flames of social media.
Let it burn.
December 19, 2025 at 2:35 AM
Culture?
Look around, what culture?
Chronically online but still disconnected. Isolated. Fed on algorithms and ai rage-bait.
This generation will grow old with more influencer-related core memories than not.
Culture will result around the flames of social media.
Let it burn.
Look around, what culture?
Chronically online but still disconnected. Isolated. Fed on algorithms and ai rage-bait.
This generation will grow old with more influencer-related core memories than not.
Culture will result around the flames of social media.
Let it burn.
Why the fuck would healthcare insurance carriers compete for the business of the chronically ill?!…
www.instagram.com/reel/DSQ2fX_...
www.instagram.com/reel/DSQ2fX_...
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December 19, 2025 at 2:27 AM
Why the fuck would healthcare insurance carriers compete for the business of the chronically ill?!…
www.instagram.com/reel/DSQ2fX_...
www.instagram.com/reel/DSQ2fX_...
I am sure it will also make me better at understanding testing coverage, my day job has chronically neglected such.
December 19, 2025 at 2:18 AM
I am sure it will also make me better at understanding testing coverage, my day job has chronically neglected such.
I’m not chronically online buddy sorry I didn’t respond immediately. My point is there is no world where anyone with a brain would think Trump would do a better job of ending this conflict than Harris so I don’t know why people keep bringing that up as a gotcha
December 19, 2025 at 2:08 AM
I’m not chronically online buddy sorry I didn’t respond immediately. My point is there is no world where anyone with a brain would think Trump would do a better job of ending this conflict than Harris so I don’t know why people keep bringing that up as a gotcha
I may be chronically exhausted but at least our tits are growing again
December 19, 2025 at 1:44 AM
I may be chronically exhausted but at least our tits are growing again
I get it. It's tough to stay in touch when someone's is chronically ill. I don't go out and do stuff, and most people are bored by what I do occupy myself with. I'm not fun. I'm not interesting. I'm not useful. I have lost my value as a friend.
The quiet of celebrations brings it into sharp focus.
The quiet of celebrations brings it into sharp focus.
December 19, 2025 at 1:35 AM
I get it. It's tough to stay in touch when someone's is chronically ill. I don't go out and do stuff, and most people are bored by what I do occupy myself with. I'm not fun. I'm not interesting. I'm not useful. I have lost my value as a friend.
The quiet of celebrations brings it into sharp focus.
The quiet of celebrations brings it into sharp focus.
Urgent #directaid support needed
Leigh is a New Digital Artist working for equality.
#disabled chronically ill, awesome, and silly says their #kofipage
They have 12 days to raise $1700 or they will be unhoused!!!
https://ko-fi.com/leigh87559/goal
Please help by sharing or contributing
#boost […]
Leigh is a New Digital Artist working for equality.
#disabled chronically ill, awesome, and silly says their #kofipage
They have 12 days to raise $1700 or they will be unhoused!!!
https://ko-fi.com/leigh87559/goal
Please help by sharing or contributing
#boost […]
Original post on mastodon.social
mastodon.social
December 19, 2025 at 1:28 AM
Urgent #directaid support needed
Leigh is a New Digital Artist working for equality.
#disabled chronically ill, awesome, and silly says their #kofipage
They have 12 days to raise $1700 or they will be unhoused!!!
https://ko-fi.com/leigh87559/goal
Please help by sharing or contributing
#boost […]
Leigh is a New Digital Artist working for equality.
#disabled chronically ill, awesome, and silly says their #kofipage
They have 12 days to raise $1700 or they will be unhoused!!!
https://ko-fi.com/leigh87559/goal
Please help by sharing or contributing
#boost […]
You’re the definition of being pedantic. This is such a chronically online conversation that I won’t be replying to again.
December 19, 2025 at 1:11 AM
You’re the definition of being pedantic. This is such a chronically online conversation that I won’t be replying to again.
I would tell her my frustration. Chronically late people don’t even consider how they inconvenience you.
December 19, 2025 at 12:56 AM
I would tell her my frustration. Chronically late people don’t even consider how they inconvenience you.