@unicorncancer159.bsky.social
Husband with cancer. Chordoma cancer patient. Weenie dog costumer. Aspiring senior citizen pole dancer. Bad ass bookworm. Black belt tightwad. Repository of cheap recipes.
No DMs. No replies about alternative medicine and junk science.
No DMs. No replies about alternative medicine and junk science.
The new Alexa is entirely too chatty and offers me info and help I did not request. I just told her to shut the fuck up and stay of of the talk I was having with the dog.
November 10, 2025 at 1:17 AM
The new Alexa is entirely too chatty and offers me info and help I did not request. I just told her to shut the fuck up and stay of of the talk I was having with the dog.
It's a three dog night. I have two dachshunds so I'll have to make up the difference with a hot water bottle.
Wind chill will be 16 when I wake up. Thank goodness I didn't put the long underwear up in the attic.
Wind chill will be 16 when I wake up. Thank goodness I didn't put the long underwear up in the attic.
November 10, 2025 at 1:09 AM
It's a three dog night. I have two dachshunds so I'll have to make up the difference with a hot water bottle.
Wind chill will be 16 when I wake up. Thank goodness I didn't put the long underwear up in the attic.
Wind chill will be 16 when I wake up. Thank goodness I didn't put the long underwear up in the attic.
I got a fifteen minute respite where I didn't think of the drama in my life. Friend of mine on Facebook and I swapped some recipes. He's thinking of people not getting their food stamps and how to eat well on limited budgets.
November 10, 2025 at 12:04 AM
I got a fifteen minute respite where I didn't think of the drama in my life. Friend of mine on Facebook and I swapped some recipes. He's thinking of people not getting their food stamps and how to eat well on limited budgets.
Checked claims status on both private insurance and Medicare. The hospital hasn't even filed a claim for the hospital stay but all the various and sundry providers have.
It appears that this nursing home stay is 100% covered since we met the deductible and out-of-pocket expenses.
It appears that this nursing home stay is 100% covered since we met the deductible and out-of-pocket expenses.
November 9, 2025 at 11:16 PM
Checked claims status on both private insurance and Medicare. The hospital hasn't even filed a claim for the hospital stay but all the various and sundry providers have.
It appears that this nursing home stay is 100% covered since we met the deductible and out-of-pocket expenses.
It appears that this nursing home stay is 100% covered since we met the deductible and out-of-pocket expenses.
I learned in college accounting that when preparing a statement of net worth, assets and liabilities are included.
This contract doesn't have a place to list liabilities.
This hospital stay wasn't free and those bills are going to be due. So I added a liability worksheet to Attachment C.
This contract doesn't have a place to list liabilities.
This hospital stay wasn't free and those bills are going to be due. So I added a liability worksheet to Attachment C.
November 9, 2025 at 11:06 PM
I learned in college accounting that when preparing a statement of net worth, assets and liabilities are included.
This contract doesn't have a place to list liabilities.
This hospital stay wasn't free and those bills are going to be due. So I added a liability worksheet to Attachment C.
This contract doesn't have a place to list liabilities.
This hospital stay wasn't free and those bills are going to be due. So I added a liability worksheet to Attachment C.
I just checked claims made for my husband. The big hospital bill hasn't been submitted yet. There are dozens of claims for surgeons, anesthesiologists, oncologists that are pending.
All that has to be paid and that offsets what is in the checking account.
Worth doing. Time consuming.
All that has to be paid and that offsets what is in the checking account.
Worth doing. Time consuming.
November 9, 2025 at 5:54 PM
I just checked claims made for my husband. The big hospital bill hasn't been submitted yet. There are dozens of claims for surgeons, anesthesiologists, oncologists that are pending.
All that has to be paid and that offsets what is in the checking account.
Worth doing. Time consuming.
All that has to be paid and that offsets what is in the checking account.
Worth doing. Time consuming.
This nursing home contract wants to know the value of our home that hasn't been appraised since 2008. It also wants me to find the Blue Book value on a 14 and 12 year old Nissan. For that, I have to go copy down the VIN number and look it up.
It's been 18 days and I'm very tired.
It's been 18 days and I'm very tired.
November 9, 2025 at 3:23 PM
This nursing home contract wants to know the value of our home that hasn't been appraised since 2008. It also wants me to find the Blue Book value on a 14 and 12 year old Nissan. For that, I have to go copy down the VIN number and look it up.
It's been 18 days and I'm very tired.
It's been 18 days and I'm very tired.
Word of mouth recommendation for a palliative care specialist and I am going to ask for a referral. Cancer clinic doesn't have one on staff. It doesn't have to be one of their staff. It can be someone not associated with that hospital.
He's worn out tired this morning. Talked to him.
He's worn out tired this morning. Talked to him.
November 9, 2025 at 2:37 PM
Word of mouth recommendation for a palliative care specialist and I am going to ask for a referral. Cancer clinic doesn't have one on staff. It doesn't have to be one of their staff. It can be someone not associated with that hospital.
He's worn out tired this morning. Talked to him.
He's worn out tired this morning. Talked to him.
I've been researching all day. I need a shower. SNL will be on in an hour and I bet I fall asleep during the cold open.
November 9, 2025 at 3:37 AM
I've been researching all day. I need a shower. SNL will be on in an hour and I bet I fall asleep during the cold open.
New to Medicare and sorry, not sorry, I don't know much at all. Had no idea we'd be using it 18 days ago.
It's tiring me out to learn on this very steep learning curve how poorly our government treats seniors. The system is designed to wring out every last penny in retirement savings. Ugh!
It's tiring me out to learn on this very steep learning curve how poorly our government treats seniors. The system is designed to wring out every last penny in retirement savings. Ugh!
November 9, 2025 at 2:52 AM
New to Medicare and sorry, not sorry, I don't know much at all. Had no idea we'd be using it 18 days ago.
It's tiring me out to learn on this very steep learning curve how poorly our government treats seniors. The system is designed to wring out every last penny in retirement savings. Ugh!
It's tiring me out to learn on this very steep learning curve how poorly our government treats seniors. The system is designed to wring out every last penny in retirement savings. Ugh!
Reposted
Strange times indeed.
November 8, 2025 at 10:12 PM
Strange times indeed.
Hey world! Can we stop telling this very committed atheist about Jesus?
Cancer sent the chaplain around when I was waiting for his appt and we had things to discuss.
Doorbell rang and it was Jehovah's witnesses this morning.
Idiot woman told me that Jesus will save the day.
Cancer sent the chaplain around when I was waiting for his appt and we had things to discuss.
Doorbell rang and it was Jehovah's witnesses this morning.
Idiot woman told me that Jesus will save the day.
November 9, 2025 at 12:19 AM
Hey world! Can we stop telling this very committed atheist about Jesus?
Cancer sent the chaplain around when I was waiting for his appt and we had things to discuss.
Doorbell rang and it was Jehovah's witnesses this morning.
Idiot woman told me that Jesus will save the day.
Cancer sent the chaplain around when I was waiting for his appt and we had things to discuss.
Doorbell rang and it was Jehovah's witnesses this morning.
Idiot woman told me that Jesus will save the day.
Reposted
I prefer the singular possessive, "Oh, for fuck's sake." It just sounds more professional.
November 7, 2025 at 10:40 PM
I prefer the singular possessive, "Oh, for fuck's sake." It just sounds more professional.
We have no choice but to sign this hot mess of a nursing home contract since he's there. Can't protect the assets b/c of the Medicare five year look back rule.
I did find a palliative care doc that can advise me. The hospital doesn't have one but she's in private practice.
I did find a palliative care doc that can advise me. The hospital doesn't have one but she's in private practice.
November 8, 2025 at 11:20 PM
We have no choice but to sign this hot mess of a nursing home contract since he's there. Can't protect the assets b/c of the Medicare five year look back rule.
I did find a palliative care doc that can advise me. The hospital doesn't have one but she's in private practice.
I did find a palliative care doc that can advise me. The hospital doesn't have one but she's in private practice.
Nursing homes, there is no privacy and I don't need some CNA overhearing a phone call and getting into our business. I'm having anxiety attacks and that could be misinterpreted. Just emailed my husband to tell him we have to be cautious.
If anyone expects me to be calm, not going to happen.
If anyone expects me to be calm, not going to happen.
November 8, 2025 at 10:40 PM
Nursing homes, there is no privacy and I don't need some CNA overhearing a phone call and getting into our business. I'm having anxiety attacks and that could be misinterpreted. Just emailed my husband to tell him we have to be cautious.
If anyone expects me to be calm, not going to happen.
If anyone expects me to be calm, not going to happen.
I just shouted at my SIL because she wants me to find a better nursing home. This is the only one in a 50 mile radius that will take him and she forgot all previous conversations on this topic.
I apologized but just don't talk in circles, Delores.
I apologized but just don't talk in circles, Delores.
November 8, 2025 at 8:04 PM
I just shouted at my SIL because she wants me to find a better nursing home. This is the only one in a 50 mile radius that will take him and she forgot all previous conversations on this topic.
I apologized but just don't talk in circles, Delores.
I apologized but just don't talk in circles, Delores.
This damn nursing home wants to know what my husband's funeral is going to cost. I shit you not.
Let's plan one then. I can always change it after I sign this contract.
$14k for the high end is what was quoted.
I'm thinking added touches like a Mexican buffet for the wake. Open bar.
Let's plan one then. I can always change it after I sign this contract.
$14k for the high end is what was quoted.
I'm thinking added touches like a Mexican buffet for the wake. Open bar.
November 8, 2025 at 7:14 PM
This damn nursing home wants to know what my husband's funeral is going to cost. I shit you not.
Let's plan one then. I can always change it after I sign this contract.
$14k for the high end is what was quoted.
I'm thinking added touches like a Mexican buffet for the wake. Open bar.
Let's plan one then. I can always change it after I sign this contract.
$14k for the high end is what was quoted.
I'm thinking added touches like a Mexican buffet for the wake. Open bar.
This contract is 75 pages, printed front and back! It doesn't apply to people who are still employed and on FMLA!
I need a fucking lawyer and fast!
I need a fucking lawyer and fast!
November 8, 2025 at 4:09 PM
This contract is 75 pages, printed front and back! It doesn't apply to people who are still employed and on FMLA!
I need a fucking lawyer and fast!
I need a fucking lawyer and fast!
The oncologist just said "we must start chemo today". She didn't say what kind of chemo, how it will be administered, how many rounds or give a decent account of what it can do and what it will not do.
That's not patient education. We do not have a navigator or palliative care consult.
1/2
That's not patient education. We do not have a navigator or palliative care consult.
1/2
November 8, 2025 at 1:31 PM
The oncologist just said "we must start chemo today". She didn't say what kind of chemo, how it will be administered, how many rounds or give a decent account of what it can do and what it will not do.
That's not patient education. We do not have a navigator or palliative care consult.
1/2
That's not patient education. We do not have a navigator or palliative care consult.
1/2
When I woke up this morning, I can feel that a lot of that strength I was rebuilding in PT is going away. It's been three weeks! Quads, hamstrings and glutes especially.
No idea when I can go back. I can tell I've dropped a few pounds since my husband's cancer was diagnosed.
No idea when I can go back. I can tell I've dropped a few pounds since my husband's cancer was diagnosed.
November 8, 2025 at 1:27 PM
When I woke up this morning, I can feel that a lot of that strength I was rebuilding in PT is going away. It's been three weeks! Quads, hamstrings and glutes especially.
No idea when I can go back. I can tell I've dropped a few pounds since my husband's cancer was diagnosed.
No idea when I can go back. I can tell I've dropped a few pounds since my husband's cancer was diagnosed.
I got 12 hours of sleep! I need a good breakfast, gas in the car then I have to sit down with a 50 page nursing home contract that wants me to list every asset we have.
I am unsure if I ought to get a trust set up for those assets.
I am unsure if I ought to get a trust set up for those assets.
November 8, 2025 at 1:18 PM
I got 12 hours of sleep! I need a good breakfast, gas in the car then I have to sit down with a 50 page nursing home contract that wants me to list every asset we have.
I am unsure if I ought to get a trust set up for those assets.
I am unsure if I ought to get a trust set up for those assets.
Reposted
#HealingHearts
The anxiety, the waiting for the next attack, trauma, and abuse were things I knew. Familiar.
Growing out of that, learning to relax, was foreign. I was good at faking a calm exterior, but actually relaxing was hard. Then it happened. 💐
#CSASurvivor
#CPTSD
#Pinks
#ProudBlue
💛💚💜
The anxiety, the waiting for the next attack, trauma, and abuse were things I knew. Familiar.
Growing out of that, learning to relax, was foreign. I was good at faking a calm exterior, but actually relaxing was hard. Then it happened. 💐
#CSASurvivor
#CPTSD
#Pinks
#ProudBlue
💛💚💜
November 7, 2025 at 1:01 PM
#HealingHearts
The anxiety, the waiting for the next attack, trauma, and abuse were things I knew. Familiar.
Growing out of that, learning to relax, was foreign. I was good at faking a calm exterior, but actually relaxing was hard. Then it happened. 💐
#CSASurvivor
#CPTSD
#Pinks
#ProudBlue
💛💚💜
The anxiety, the waiting for the next attack, trauma, and abuse were things I knew. Familiar.
Growing out of that, learning to relax, was foreign. I was good at faking a calm exterior, but actually relaxing was hard. Then it happened. 💐
#CSASurvivor
#CPTSD
#Pinks
#ProudBlue
💛💚💜
The reason the onco gaslighted me on palliative care is this hospital system doesn't have a specialist on staff, despite claims on their website.
That's not an excuse to have one.
Siteman Cancer at Washington U does. We have a consult set up and it was done in less than 24 hours.
That's not an excuse to have one.
Siteman Cancer at Washington U does. We have a consult set up and it was done in less than 24 hours.
November 7, 2025 at 10:24 PM
The reason the onco gaslighted me on palliative care is this hospital system doesn't have a specialist on staff, despite claims on their website.
That's not an excuse to have one.
Siteman Cancer at Washington U does. We have a consult set up and it was done in less than 24 hours.
That's not an excuse to have one.
Siteman Cancer at Washington U does. We have a consult set up and it was done in less than 24 hours.
I am overwhelmed.
When that happens, I need rest. I put everyone on notice that I'm taking that rest. What you want me to do is not as urgent as you think and I need less demands on me, even if it just for a weekend.
When that happens, I need rest. I put everyone on notice that I'm taking that rest. What you want me to do is not as urgent as you think and I need less demands on me, even if it just for a weekend.
November 7, 2025 at 10:13 PM
I am overwhelmed.
When that happens, I need rest. I put everyone on notice that I'm taking that rest. What you want me to do is not as urgent as you think and I need less demands on me, even if it just for a weekend.
When that happens, I need rest. I put everyone on notice that I'm taking that rest. What you want me to do is not as urgent as you think and I need less demands on me, even if it just for a weekend.