Tom Kindlon
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tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.

With ME/CFS 36 years, severe ME 31 years.

@IrishMECFSAssoc trustee 28 years

26 publications in peer-reviewed journals

Social media: https://me-pedia.org/wiki/Tom_Kindlon
November 27, 2025 at 9:52 PM
5/
Kayli Jamieson (lead author) wrote on my Facebook page

Thanks for sharing!! Read our report* here static1.squarespace.com/static/66c36... and find more info about our studies at www.ohhiscience.ca/long-covid

*”Virtual Healthcare Services for People Living with Long COVID

#LongCovid
static1.squarespace.com
November 27, 2025 at 9:18 PM
1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.

They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.

November 27, 2025 at 5:52 PM
Reposted by Tom Kindlon
8) You can support OMF's work by donating using this form:
www.omf.ngo/?form=do...

All donations to OMF are tripled until December 2, 2025.

OMF Home - Open Medicine Foundation
ME/CFS & Long COVID are life-altering illnesses. Together, we can move research further, faster.
www.omf.ngo
November 26, 2025 at 9:34 AM
4/

“Additional recommendations include increasing availability of specialized Long COVID services in Canada—a suggestion that will require training more specialists and care providers on Long COVID management for informed, effective, and safe care.”

#LongCovid
November 27, 2025 at 5:13 PM
3/

“69 per cent of respondents shared that their primary care provider had low-to-no awareness of Long COVID, identifying another immediate and significant barrier to accessing health care”

#LongCovid #PostCovid #PASC
November 27, 2025 at 5:09 PM
2/
“PEM is common in many people with Long COVID, meaning that physical, mental, or sensory activity triggers can cause a flare-up in symptoms lasting from hours to weeks. It is one of many factors that contributes to the chronic and frequently disabling nature of Long COVID.”

#LongCovid #MEcfs
November 27, 2025 at 5:00 PM
I haven’t tried ketosis myself.
November 26, 2025 at 12:59 PM