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thezebraalliance.bsky.social
The Zebra Alliance Community
@thezebraalliance.bsky.social
290 followers 92 following 720 posts
The Zebra Alliance represents a beacon of hope and solidarity for navigating the challenging waters of Ehlers Danlos Syndrome, Rare Diseases, and Chronic Illness 🦓💙

Community • Education • Resources • Advocacy & Allies

https://linktr.ee/thezebraalliance
Posts Replies Media Videos
thezebraalliance.bsky.social
Life with Chronic Illness: We are over ripe 20 years before our time 🍌🤪😉

🖼 @chronicillness.bsky.social
#meme #memes #healthmeme #chronicillness #raredisease #EDS #hEDS #HSD #invisibleillness #disability
Cartoon drawing of a brown banana holding a red balloon "In banana years... You're bread"
November 28, 2025 at 3:18 AM
thezebraalliance.bsky.social
We are pretty stoked we can easily share products we use and recommend with all of you: Linktr.ee/thezebraalliance
🩵🦓🩵
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth
Products we use and/or recommend. A few: Kinesio Tex Gold, THERABAND, Vive Compression Gloves and Braces, Sunbeam Heated Blanket, Recognize Me, a Memoir
November 25, 2025 at 9:36 PM
thezebraalliance.bsky.social
What are the #EhlersDanlosSyndromes and what is #HypermobilitySpectrumDisorder? Is one worse than the other? The simple answer is yes because symptoms of (h) #EDS are (typically) more severe, BUT that does not discount the impact #HSD has on quality of life, or lack thereof. 🩵 We see you HSDers 🤗
Ehlers-Danlos Society EDS info graphic Ehlers-Danlos Society HSD info graphic
November 25, 2025 at 3:52 PM
thezebraalliance.bsky.social
Does taking a shower make you sick? If you answer no, youre not allowed to comment on someone who hasnt showered in over a week because showering is (e.g.) painful, triggers symptoms, and/or takes you out for a day.
Sincerely,
Folks with #ChronicIllness 🩵

🖼 @thethrivingspoonie.com
#ChronicIllnesses
"When you live with chronic illness, your body has its own pace, and your version of hygiene is valid–whether its a full bath or a few wipes and a fresh pair of undies." April Smith Chronic Illness Blogger & Creator of The Thriving Spoonie
November 20, 2025 at 2:54 PM
thezebraalliance.bsky.social
Woke up with severe nausea 🤢 Mum was a Rn: Table Crackers were a go-to nausea food ☺️ "Youre Gluten Intolerant" Took a bit, but we finally found & enjoyed Glutino and Schär crackers 👉 Whats your fave G Free Cracker when nauseous? 💚
Glutino:
amzn.to/49lUPF1
Schär:
amzn.to/49pLwnB
#Nausea #GlutenFree
Picture from Schär Crackers Gluten Free Non GMO Lactose Free Wheat Free
November 18, 2025 at 2:50 PM
thezebraalliance.bsky.social
Have you heard of pacing?
"Pacing is an energy management strategy focused on balancing activity and rest." 👉 www.psychologytoday.com/us/blog/disa... 👀📃
#ChronicIllness #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth
Daily Energy Levels of People Without Chronic Illness: Morning to Bedtime 1st Battery has all Levels full (green) 2nd Battery has levels half full (yellow) 3rd Battery has 1 bar left (red) People with Chronic Illness 1st Battery half full (yellow) 2nd Battery 1 bar left (red) 3rd Battery is completely out of power (no color)
November 15, 2025 at 1:16 AM
thezebraalliance.bsky.social
😘🖕

If you know, you know 🩵
linktr.ee/thezebraalliance
#chronicillness #raredisease #disability #dynamicdisability #mentalhealth #invisibleillness #EDS #ehlersdanlossyndrome
X Ray of a hand 🖕 "When someone suggests that your past wrong doings caused your chronic illness."
November 14, 2025 at 10:51 PM
thezebraalliance.bsky.social
My hands are super shakey, but its still pretty 🌌💜
There is emerging research about a connection between geomagnetic disturbances and #ChronicIllness flare-ups. Two e.g.'s are Inflammation and Nervous System Dysregulation 🔬🧬🧠
linktr.ee/thezebraalliance
#NorthernLights #EDS #dysautonomia #raredisease
Northern Lights where we are staying
November 12, 2025 at 3:16 AM
thezebraalliance.bsky.social
When you realize you need to do a bunch of updating on your web page, linktr.ee/thezebraalliance, GoFundMe, and catch up on research + get present to-do's done... 🤪🫩🫠🫩🤪 If you can relate 🙋‍♂️🙋‍♀️🙋
#ChronicIllness
#EDS #raredisease #invisibleillness #chronicpain #mentalhealth #healthcare #selfcare
What productive days cost someone with chronic illness An energy crash that lasts 3 days Emotional dysregulation Flare Up Recovery takes days Belief I should be able to do this everyday Realizing I didn't do enough to feel caught up Delayed breakdown Guilt PAIN
November 12, 2025 at 12:52 AM
thezebraalliance.bsky.social
Arterial Fragility is a real thing: vEDS is the subtype more likely to suffer from arterial rupture, but it can happen to any subtype due to collagen abnormalities. EDS is FAR more than being bendy 🩵🦓🩵

#ehlersdanlossyndrome #ehlersdanlos #EDS #vEDS #chronicillness #raredisease
November 11, 2025 at 8:32 PM
thezebraalliance.bsky.social
I think this will resonate with you 🩵🦓🩵
A chronic pain patient can function with a pain level that would incapacitate any other person.
November 9, 2025 at 5:34 AM
thezebraalliance.bsky.social
Acknowledge and be proud of your perseverance, but also take a f@cking nap 🤗😅😉

🎨 @katieabey.bsky.social
#healthmemes #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #mentalhealth
"Allow yourself to have the mother fucking nap" Colorful background with a rainbow "Tired of overcoming intense and exhausting thing but, nevertheless, I persist" Black cat with hiking bag and walking pole -> The Panther of Persistence "When you get tired learn to rest, not to quit" Picture of smiling napping cat with colorful background
November 7, 2025 at 4:51 PM
thezebraalliance.bsky.social
People who do not live with #Disability or #ChronicIllness will never understand what it is to grieve the life you had and the life you worked towards, every day: I used to snowboard, haul rocks & boulders, trail run, work home remodels, make jewelry, paint, find & hold a job + more. No more 😞
"Grief is such a strong part of disability/chronic illness. With each new symptom or increased severity, we lose a little part of who we used to be. Lose our hobbies. Lose parts of our appearance. Lose our dreams and goals. Lose a little part of ourselves."
November 6, 2025 at 5:32 PM
thezebraalliance.bsky.social
Do you have foot issues? Wool-It might be a great product for you! We use it and it's crazy how something so "simple" can have such a positive impact!
We have a small inventory offering of Wool-It Bags and the cardboard Packs. Message us if interested in foot pain and blister relief 🩵🦶🩵
Who needs Wool-It? (100% authentic New Zealand Merino Wool: We know the owner) Anyone with sore feet Anyone who doesnt want sore feet "Thank you, Im a diabetic with really bad feet, bunions, corns, and calluses. Wool-It saves me daily, I wrap my toe with it and stops the pressure...Tried all other foot relief and this is the best allows me to keep playing bowls. Thank you!"
November 2, 2025 at 5:03 PM
thezebraalliance.bsky.social
Happy Halloween to our beloved Zebra Alliance Community! 🧙‍♀️🎃🦓🎃🧙‍♀️

🧡 linktr.ee/thezebraalliance
Happy Halloween to the Zebra Alliance Community! Whether you're in a zebra costume, carving pumpkins, or enjoying treats, Halloween embraces diversity and having fun. Wishing everyone a safe, magical, and Stripe-Tacular Halloween!
October 31, 2025 at 5:52 PM
thezebraalliance.bsky.social
What do you think their reply would be? Honest curiosity. 🙈🙉🙊😉

#ChronicIllness
#raredisease #invisibleillness #dynamicdisability #mentalhealth #EDS #ehlersdanlossyndrome #meme #memes
We couldn't find who made this image 😞 but.. Ring of flowers In the middle is words "You don't look sick" Cool. You don't look like someone who says dumb shit, but here we are.
October 30, 2025 at 6:51 PM
thezebraalliance.bsky.social
If you have wondered about Genetics, give this @ehlersdanlos.bsky.social article a read: www.ehlers-danlos.com/genetics-and...

#genetics #genealogy #chronicillness #raredisease #invisibleillness #disability #ehlersdanlossyndrome #EDS
Pathogenic Variant -> Dysfunctional Protein -> Harmful Trait Benign Genetic Variant -> Functional Protein -> Harmless Traits
October 30, 2025 at 5:15 PM
thezebraalliance.bsky.social
You are doing what is best for your (mental) health, nobody else's. Be proud! ✨️💜🫂💜✨️

Shaming people for taking medication for depression and anxiety shines a light on the bully, not the patient.

Image by the talented @katieabey.bsky.social
#MentalHealth
Colorful Drawing by @katieabey with Ants saying "please dont feel ashamed to be on meds for your mental health"
October 28, 2025 at 3:06 AM
thezebraalliance.bsky.social
There is zero excuse for medical professionals to treat a patient without compassion, but there are legitimate reasons (other than simply being jerks). One issue is Dr - Dr and Dr - Nurse bullying. It is a problem that unfortunately trickles down to patient care 😞 journals.lww.com/jaapa/fullte...
Screenshot of the web page that the link takes you to
October 27, 2025 at 4:30 PM
thezebraalliance.bsky.social
What are some suggestions you have heard?

The top (ableist) suggestions folks with #ChronicIllness hear: Essential Oils, Yoga, Meditation, Healthy Diet, and Exercise.
Do these help? Yes.
Are they a cure? Nope.
#memes #meme #invisibleillness #EDS #ehlersdanlossyndrome #rarediseases
Top: My Chronically Ill Body *Picture of a city on fire* Bottom: "Have you tried essential oils and meditation?" *Will Ferrell Yelling with hands at mouth*
October 25, 2025 at 12:12 AM
thezebraalliance.bsky.social
Learn about the National Disability ID: invisibledisabilities.org/national-dis...
National Disability ID order online: invisibledisabilities.org
October 23, 2025 at 3:55 PM
thezebraalliance.bsky.social
We found this great video about EDS on Lemon8 by @mandyrobertson36 and the vibe is perfect for October 💀🎃💀

#EDS #hEDS #chronicillness #raredisease #ehlersdanlossyndrome #ehlersdanlos
October 21, 2025 at 12:07 AM
thezebraalliance.bsky.social
🧵
Environment and Air Quality https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Light, Rest, and Regulation https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Energy and Recovery https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Original Poster, Shannon M Teeves
October 20, 2025 at 5:54 PM
thezebraalliance.bsky.social
🧵
Additional Factors https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Prepare https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Hydration & Circulation https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Meals and Nutrition https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall
October 20, 2025 at 5:53 PM
thezebraalliance.bsky.social
🧵 The October Slide
Have you noticed your symptoms worsen during fall time? Share your experiences with us 🩵🦓🩵
Image Navigating the October Slide Description of what the October Slide is https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Why It Happens https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall Additional Contributing Factors https://www.eds.clinic/articles/the-october-slide-managing-symptom-flare-ups-in-the-fall
October 20, 2025 at 4:50 PM