Thanks Adam Price & Osian for their work with @severemecymru.bsky.social

Excellent debate yesterday.
youtu.be/akICL-DXfp8?...

Adam with SMEDC team after the debate. Present in spirit & pictures by @jeremy-jeffs.bsky.social Cerith, Tomos, Eleri and someone else.
Pic by Jacob.
#MEcfs #LongCovid

Transcript
record.assembly.wales/Plenary/1547...

The Welsh Parliament debate on ME/CFS is now on YouTube. Adam Price MS led the debate, calling for better care, recognition, and support across Wales

youtu.be/akICL-DXfp8?...

Link the motion
record.senedd.wales/Motion/8884

Highlights - Mark Isherwood MS shares the story of a constituent whose life was transformed by a virus, becoming severely affected and housebound with #MECFS. It has “stripped away their independence and hope”, yet support, research and funding in Wales remain minimal.

Sioned Williams in Welsh Parliament talking about severe and very severe ME/CFS. It can be “as disabling as late-stage MS or advanced cancer but doesn't get a fraction of the acknowledgement, understanding or funding”.

Members of Severe ME Difrifol Cymru have been working with Adam Price, MS, for the past year to prepare for Wednesday’s debate.

You can see it here:  tinyurl.com/mux4pkcr
or read the transcript: tinyurl.com/4aumbvja

1/5

It’s finally here! 
 
@adamprice.bsky.social , MS, will be presenting the debate on Severe / Very Severe ME record.senedd.wales/Motion/8884
 
Contributions from other Senedd Members make up over half of the hour-long debate.
 
So - Get your voice heard!  1/3

*Welsh Senedd Debate on Severe and Very Severe ME*

DEBATE POSTPONED AGAIN - TO 10TH DECEMBER!

We’re sorry to report that there’s been a further postponement of the Welsh Senedd Debate on Motion 8884 – Severe and Very Severe ME - to be led by Adam Price, MS . 1/5 #pwme #severeme

Welsh Senedd Debate on Severe and Very Severe ME – 15th October - POSTPONED to 26th Nov.
 
Adam Price, MS, was due to lead the Members Debate on Severe and Very Severe ME tomorrow in the Welsh Senedd (Parliament), but on Sunday he suffered a close family bereavement.  1/4

Great News!
 
OCTOBER 15TH WELSH SENEDD DEBATE ON SEVERE/VERY SEVERE ME
 
The Welsh Senedd Business Committee has timetabled Senedd Member Adam Price’s Motion 8884 on Severe/Very Severe ME for a debate in the Chamber next Wednesday, 15th October - record.senedd.wales/Motion/8884 1/2

Next Tue 7th, the Welsh Senedd Business Committee will be considering allocating 15th Oct for a debate on Severe/Very Severe ME.
 
#pwME in Wales – please email your Senedd Members – ask them to get behind MS Adam Price’s Motion record.senedd.wales/Motion/8884 1/2

#MECFS #MEawareness

We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchnad (The Marketplace) in @senedd.cymru on 15th July… 1/4