Severe ME Difrifol Cymru
@severemecymru.bsky.social
11 followers 2 following 12 posts
Informal group of people in Wales with Severe/Very Severe ME and their carers. Campaigning to get Motion 8884 through to a debate at the Senedd.
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severemecymru.bsky.social
…but we're grateful that we have a new date for which we can prepare.

Adam stresses that personal stories carry great weight in such events - they are the lived experiences which help politicians connect with the lives of their constituents, their voters. 3/4
severemecymru.bsky.social
The Senedd Business Committee has therefore agreed to allocate a new date for it: Wednesday 26th November - Put it in your diary! 
 
We know that this understandable and unavoidable delay will be a disappointment to #pwme in Wales, and to their families, friends and carers… 2/4
severemecymru.bsky.social
Welsh Senedd Debate on Severe and Very Severe ME – 15th October - POSTPONED to 26th Nov.
 
Adam Price, MS, was due to lead the Members Debate on Severe and Very Severe ME tomorrow in the Welsh Senedd (Parliament), but on Sunday he suffered a close family bereavement.  1/4
severemecymru.bsky.social
Great News!
 
OCTOBER 15TH WELSH SENEDD DEBATE ON SEVERE/VERY SEVERE ME
 
The Welsh Senedd Business Committee has timetabled Senedd Member Adam Price’s Motion 8884 on Severe/Very Severe ME for a debate in the Chamber next Wednesday, 15th October - record.senedd.wales/Motion/8884 1/2
Motion - NDM8884 - Welsh Parliament
The Welsh Parliament is the democratically elected body that represents the interests of Wales and its people.
record.senedd.wales
severemecymru.bsky.social
We know that it has a good chance of being selected. Can you help to push it over the line?
 
1. Find your local Constituency/Regional MSs: senedd.wales/find-a-member-… 
 
2. Personalise a template: (500milesfor.me) 
 
3. Tell us: [email protected] 
 
Diolch /Thank you 2/2
https://senedd.wales/find-a-member-…
severemecymru.bsky.social
Next Tue 7th, the Welsh Senedd Business Committee will be considering allocating 15th Oct for a debate on Severe/Very Severe ME.
 
#pwME in Wales – please email your Senedd Members – ask them to get behind MS Adam Price’s Motion record.senedd.wales/Motion/8884 1/2

#MECFS #MEawareness
severemecymru.bsky.social
Y Farchnad was a fantastic start. But now, WE NEED YOU!

If you live in #Wales and would like to see this debate happen in the Senedd, then now is the time to help us. Every person in Wales is represented by one Constituency MS and several Regional MSs… 3/4
severemecymru.bsky.social
MSs will soon be returning to the Senedd after their long Summer Recess. Now we need them to make their support official – by actually signing up to give their backing to Adam Price‘s Motion for a debate about Severe/Very Severe ME in Wales - record.senedd.wales/Motion/8884 …2/4
severemecymru.bsky.social
We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchnad (The Marketplace) in @senedd.cymru on 15th July… 1/4