A beautifully written account: it reflects my own experience of what it's like to live with Long Covid.
Thank you for sharing.

“There are two kinds of people in the world: those who upon seeing someone else suffering think, That could happen to me, and those who think, That will never happen to me. The first kind of people help us to endure, the second kind make life hell.”

I especially appreciated that Miles’s obituary recorded how much Alice did for people with Long Covid.

I regret I never told her how much it meant to me personally to be included, and how grateful I am for what she did for our movement.

Thank you Alice. For this and so much more, I am so grateful.

4/4

When I was first diagnosed w/ME/CFS 8 years ago, we were pretty split off from disability organizing as a result.

But Alice insisted our disabled experiences were just as valid as any other, and through this created space for coalition that has greatly strengthened chronic illness organizing.

3/

Chronic illness, especially those of us militating for better treatment options, can be an uncomfortable fit w/contemporary US disability activism often premised on the idea that inaccessible society, not our medical conditions, is what disables us (known as the social model of disability).

2/