JARDIN Joint Action
@jardinjointaction.bsky.social
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
📅🕯️ Day 15 of #JARDIN's Advent Calendar
✨ ERN PaedCan is the ERN on Paediatric Cancer working to reduce inequalities in childhood cancer survival by providing high-quality, accessible cross-border healthcare for children and adolescents across Europe.
🔗 https://paedcan.ern-net.eu
✨ ERN PaedCan is the ERN on Paediatric Cancer working to reduce inequalities in childhood cancer survival by providing high-quality, accessible cross-border healthcare for children and adolescents across Europe.
🔗 https://paedcan.ern-net.eu
December 15, 2025 at 12:12 PM
📅🕯️ Day 15 of #JARDIN's Advent Calendar
✨ ERN PaedCan is the ERN on Paediatric Cancer working to reduce inequalities in childhood cancer survival by providing high-quality, accessible cross-border healthcare for children and adolescents across Europe.
🔗 https://paedcan.ern-net.eu
✨ ERN PaedCan is the ERN on Paediatric Cancer working to reduce inequalities in childhood cancer survival by providing high-quality, accessible cross-border healthcare for children and adolescents across Europe.
🔗 https://paedcan.ern-net.eu
📅🌷 Day 14 of #JARDIN's Advent Calendar
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
December 14, 2025 at 12:02 PM
📅🌷 Day 14 of #JARDIN's Advent Calendar
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
📅🎠 Day 13 of #JARDIN's Advent Calendar
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
December 13, 2025 at 6:15 PM
📅🎠 Day 13 of #JARDIN's Advent Calendar
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
📅💗 Day 12 of #JARDIN's Advent Calendar
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
December 12, 2025 at 8:15 AM
📅💗 Day 12 of #JARDIN's Advent Calendar
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
📅⛸️ Day 11 of #JARDIN's Advent Calendar
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
December 11, 2025 at 6:30 PM
📅⛸️ Day 11 of #JARDIN's Advent Calendar
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
📅🎀 Day #10 of #JARDIN's Advent Calendar
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
December 10, 2025 at 3:40 PM
📅🎀 Day #10 of #JARDIN's Advent Calendar
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
📅🦉 Day 9 of #JARDIN's Advent Calendar
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
December 9, 2025 at 3:16 PM
📅🦉 Day 9 of #JARDIN's Advent Calendar
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
📅🐧 Day 8 of #JARDIN's Advent Calendar
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
December 8, 2025 at 9:02 AM
📅🐧 Day 8 of #JARDIN's Advent Calendar
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
📅❄️ Day 7 of #JARDIN's Advent Calendar
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
December 7, 2025 at 8:30 AM
📅❄️ Day 7 of #JARDIN's Advent Calendar
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
📅🌟 Day 6 of #JARDIN's Advent Calendar
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
December 6, 2025 at 12:30 PM
📅🌟 Day 6 of #JARDIN's Advent Calendar
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
📅☃️ Day 5 of #JARDIN's Advent Calendar
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
December 5, 2025 at 2:31 PM
📅☃️ Day 5 of #JARDIN's Advent Calendar
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
📅🧣 Day 4 of #JARDIN's Advent Calendar
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
December 4, 2025 at 8:15 AM
📅🧣 Day 4 of #JARDIN's Advent Calendar
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
📅🦌 Day 3 of #JARDIN's Advent Calendar
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
December 3, 2025 at 6:02 PM
📅🦌 Day 3 of #JARDIN's Advent Calendar
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
📅🎁 Day 2 of #JARDIN's Advent Calendar
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
December 2, 2025 at 2:11 PM
📅🎁 Day 2 of #JARDIN's Advent Calendar
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
📅 🎄 Day 1
✨ Endo-ERN, the ERN on rare endocrine conditions, works to improve access to high-quality healthcare for people living with rare hormonal disorders.
The network brings together paediatric and adult endocrinology to support patients across their entire lifespan.
🔗 https://endo-ern.eu
✨ Endo-ERN, the ERN on rare endocrine conditions, works to improve access to high-quality healthcare for people living with rare hormonal disorders.
The network brings together paediatric and adult endocrinology to support patients across their entire lifespan.
🔗 https://endo-ern.eu
December 1, 2025 at 6:31 PM
📅 🎄 Day 1
✨ Endo-ERN, the ERN on rare endocrine conditions, works to improve access to high-quality healthcare for people living with rare hormonal disorders.
The network brings together paediatric and adult endocrinology to support patients across their entire lifespan.
🔗 https://endo-ern.eu
✨ Endo-ERN, the ERN on rare endocrine conditions, works to improve access to high-quality healthcare for people living with rare hormonal disorders.
The network brings together paediatric and adult endocrinology to support patients across their entire lifespan.
🔗 https://endo-ern.eu
🤔 🗺️ How can #ERNs integration help shorten the diagnostic odyssey for patients with #RareDiseases?
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
November 27, 2025 at 2:10 PM
🤔 🗺️ How can #ERNs integration help shorten the diagnostic odyssey for patients with #RareDiseases?
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
🩺 🥼 How does integrating the #ERNs into National Healthcare Systems support healthcare professionals?
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
November 25, 2025 at 2:02 PM
🩺 🥼 How does integrating the #ERNs into National Healthcare Systems support healthcare professionals?
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
🏥 Why integrate #ERNs into National Healthcare Systems?
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
November 20, 2025 at 8:37 AM
🏥 Why integrate #ERNs into National Healthcare Systems?
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
🧬 Around 6,000–8,000 rare diseases affect people across Europe.
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
November 13, 2025 at 8:35 AM
🧬 Around 6,000–8,000 rare diseases affect people across Europe.
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need.
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
November 6, 2025 at 11:25 AM
The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need.
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
📬📰 JARDIN’s 3rd newsletter is out now!
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
November 5, 2025 at 11:23 AM
📬📰 JARDIN’s 3rd newsletter is out now!
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...